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Endometriosis Africa Awareness

The life of Millen Magese. An Endosister on living with Endometriosis/Infertility https://www.dropbox.com/s/rg72t5dw5okrfgm/SPEECH%20MILLEN.mp4?dl=0

http://www.millenmagesefoundation.org/

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Endometriosos huweza kusababisha makovu bpamoja ma uvimbe kwenye mayai ya uzazi...ninapata maumivu makali yanayopelekea kupoteza fahamu...pia inapunguza uwezo wa kinga ya mwilini kushindwa kufanya kazi vizur, endometriosis husababisha uchovu ambapo hufanya nijiskie kulala mda wote! Kila asubuh inakua ngumu kuendelea na shughuli za kila siku inaumiza na kuchosha sana !! Ndani ya dakika moja unaweza jihisi mzima ndani ya mda mchache hali hubadilika ghafla ..Watu huchanganya kati ya maumivu wakati wa hedhi na Endometriosis, endometriosis ni zaidi ya maumivu ya hedhi..... Endometriosis inadalili Nyingi mojaeapo ni kujiskia kichefu chefu Mara kwa mara, maumivu makali ya hedhi, tumbo kufutuka nakuonekana Kama mjamzito wa miezi 4, uvimbe katika mayai ya uzazi ,maumivu ya mgongo ,Endometriosis hukatisha tamaa ya kuishi ,kupelekea ugumba ,Endometriosis hupelekea mtu kujiuliza maswali mengi yasiyo na majibu "kwanini Mimi ? " nitaishi vipi pasipo kua na uwezo wa kuanzisha familia ?". "Nitaanzs vipi kumueleza mpenzi wangu " "Nitafanya vipi kaz zangu"?? " Ni kwanini Endometriosis haina tiba " -!! Baadhi ya wanawake kushindwa kushiliki tendo la ndoa kwan hupata maumivu wakati wa tendo la ndoa .....Wanawake wengi duniani wanateseka na Endometriosi 💛💛💛 #endometriosisisreal #findacure #speakout #manyfacesofendo💛

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#late post I spend all day feeling weak and tired, I try my best to accomplish as much as I can. I am drained physically and emotionally. Endometriosis can cause internal bleeding, scars and cysts. I get serve abdominal pain that can flare up at any time. It also decreases the effectiveness of my immune system. It can cause chronic fatigue, for me I sleep ALL the time! Yes it hurts and it's exhausting! Every morning is a battle to get ready for the day ahead. Every afternoon is a fight to stay awake. Every night is a struggle to sleep. One minute you can be perfectly fine and the next you struggle to walk! People misunderstand this as 'period pain' or 'cramps' I can assure you this is A LOT worse - it's like someone is carving your insides out just like a pumpkin. The constant feel of nausea, pain, serve cramping, bloating so much you look 4 months pregnant, cysts, bleeding, throbbing and the feeling like there's something popping in your lower abdominal. It's UNCOMFORTABLE and horrible to live with. Low chance of pregnancy, or even becoming completely infertile - having questions that no one can answer! Why me? Why can I not have a family? How will I ever tell the man who walks into my life? How can I get through a job without being let go? Why is endometriosis NOT curable. Some women can't even have a normal relationship, a normal sex life. Some women can't socialise and have fun like they should be. Behind every smile and every laugh she is hurting and crying because of what it makes you feel. Imagine taking codeine and it doesn't work, morphine and it doesn't work, tramadol and it doesn't work. Numerous surgeries to burn away the endo for it too only grow back in time. We live and fight with this disease every day, every moment and every second. People say we should be lucky it's not the C word and that were still on this earth - but it's completely emotionally and physically draining All i wish for is more understanding and more help needs to be given. Please help us suffers raise more awareness for endometriosis 💛💛💛

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STORYTIME #36: (@tulalunah) I first went to the doctor with my pain when I was 17. She told me not to worry; that it was just anxiety giving me aches and pains and that it was very common at my age. This settled my mind for a short while until I realised this persistent and increasing pain couldn't possibly be caused by anxiety, what's more, I realised I hadn't been feeling anxious. So I went back, and so started a series of months in which the diagnoses changed frequently. After the initial declaration that it was "anxiety", the next diagnoses was a wheat intolerance...in my womb? Yeah... ok. I was then told it was cystitis, which I spent lots of money on medication for, and did nothing. Their next big idea was that it was Pelvic Inflammatory Disease causing the pain. I was sent to a specialist who used scratchy plastic instruments to stretch my cervix and see if he thought it was indeed PID. There is no test for PID, so a doctor can only speculate as to whether you have it or not. Unfortunately, mine thought I did have it, and I was treated with antibiotics for a month. That did nothing. They'd now run out of diagnoses', but I was told that although it sounded and looked like endometriosis(in amongst these diagnoses' I fought for an ultrasound scan as I had heard a radio add talking about endo and related to the description. The scan took months to get booked and then showed my right ovary enlarged and stuck to my womb), it definitely wouldn't be endometriosis because I was "too young. People under 25 don't get it". By this point I was 18. After 6 months my dad decided to pay £200 for half an hours consultation with a private doctor in a private hospital, to see if they could help us with advice on how to get a diagnosis and the appropriate medical care from the NHS. This gynaecologist(the top gynaecologist in my part of the country) had no doubt it was endo and said she could do the laparoscopy(keyhole surgery to see if endo is present and then remove it in the same session), and that it would cost £6,000. There was no way we could afford that. By this point I was in agony every day and knew it could be months, eve

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Naitwa @skyymua kutoka Alhambra,Nina umri Wa.miaka 23,nimekua nikisumbuliwa na Endometriosis kwa mda wa miaka 7...nimefanyiwa upasuaji Mara 4 kwa laparoscopies madaktar waliamini ingenisaidia lakini kwa bahati Mbaya Endometriosis imeathir mfumo.Wa maisha.yangu.. #endometriosisisrealspeakout #findacureforendometrisis #manyfacesofendo💛

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Hi, my name is sky herrera (@skyymua_) from Alhambra, CA. I am 23 years old about to be 24 I have been dealing with endometriosis for about 7 years. I've had 4 laparoscopies doctor has put me on the lupron doctor said that should have helped. But I had fallen to the 10% of women that it was effective sadly endometriosis has stopped my life for the most part but I doesn't not define me. Thank you for the post and support. I am making a YouTube channel and I just uploaded a video about my story I want to help another ppl

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Mwakajana niligundulika Nina endometriosis stage ya NNE kitalaamu wanaita (severe) ,toka kipind hicho nimekua na upasuaji Wa matakwa mara ....sikuwahi kufikiria katika umri Wa miaka 25 ningekua kwenye wakati mgumu sana ambao unanipasa kuchagua kufanyiwa upasuaji mwingine ambapo endometriosis imeathir Sana via vya uzazi..matarajio Yangu baada ya kushea stori Yangu nitafarijika kupata wenzangu wengine wanaosumbuliwa na Endometriosis.. #endometriosisawareness #

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#Repost @_endometriosis with @repostapp ・・・ STORYTIME #45 : (@carlamcressy) I was diagnosed last year with severe endometriosis, since then I have had lots of surgeries. I'm now within the terminal stage of Endo and been diagnosed with frozen pelvis disease. My Endo keeps returning and each time is worse. I never thought at the age of 25 years old I would be in a position where I need to decide whether I should risk another major operation that could potentially not work at all and risk my life like my recent surgery. Because the endo has now spread to my bowel, a hysterectomy is no longer an option for me. I hope by sharing my story it opens doors for me to connect with other women experiencing this horrific illness. For anyone who is interested, I have a personal blog about my journey listed here: https://myjourneybycarlacressy.wordpress.com/2017/04/29/the-personal-affects-endometriosis-has-on-you/

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Naitwa Nondumiso kutoka Afrika ya kusini.. Nimegundulika Nina endometriosis miezi miwili iliyopita ilikua ngumu kwa Mimi kukubaliana na taarifa hizi ambazo zilinifanya Nijiskie vibaya sana....napata maumivu makali ya mgongo karibu kila siku,kichefu chefu,kuharisha,kushindwa kupumua vizur na maumivu yasioelezeka...nimekutana na wataalamu mbali mbali na kunishauri njia mbali mbali za namna ya kuishi na ugonjwa huu..Ugonjwa huu unachanganya sana akili.kwa sababu dakika kadha.unakua sawa dakika kadhaa zijazo unakua hauko sawa...Watu wengi bado hawana huelewa juu ya tatizo hili,...ninapo andika wakala huu Niko kitandani ninalia natamani ningekua na mtu karibu Wa kuongea nae juu ya tatizo hili kwasababu watu wanaonizunguka hawana uelewa Wa juu ya tatizo hili... Natamani watu wangelikua na uelewa wa juu ya tatizo hili kwani kadri tunavyoongelea Afya ya mwanamke ndivyo.urahis wa kupatikana kwan tiba.. #endometriosisawareness #findacureforendo #speakout #manyfacesofendo💛

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#Repost @_endometriosis with @repostapp ・・・ STORYTIME #41 :Hi, My name is Nondumiso (@uzwideomuhle) from South Africa. I feel like "death warmed up" today, and so I decide to search the internet for some positive stories about this illness, and I thank God I came across your page. I was diagnosed with Endometriosis 2 months ago, and I cried everyday for a week when I heard the news. I felt broken and extremely sad. I suffer from lower back pains ( almost everyday ), nausea, headache, diarrhea, mood swings, shortness of breath and the ultimate ABDOMINAL PAINS from hell. I have seen a lot of doctors, they all tell me different ways of managing my illness, but 7/10 have recommended surgery and I've also been told that I will be okay once I give birth someday! 😒 This illness is very depressing and stressful because, one minute you're okay, the next minute, you're on the floor literally screaming for help from God! A lot of people are not aware of this illness, so they find it hard to understand what #endosisters go through and explaining this condition to people is strenuous. So whenever my symptoms start showing, I just lock myself in my room, and switch off my phone. I had a lot of work to do today, but unfortunately, my health decided otherwise. I'm in bed crying as I write to you, I just needed someone to talk to because people around me lack knowledge about this chronic illness. My symptoms are intense, even when I'm not on my period, which makes me really sad. My condition continues to worsen, but I pray that I'll be alright and I will continue seeking the help that I need. I'd be lying if I said I am coping with this life changing illness, however, I know that I am not alone.My wish is for people to understand that, the more we talk about women's health issues, the sooner we will get to finding the cures and better treatment options. As for me, my story is still being written everyday... 🙌🏼 Kind Regards #EndoSister

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Jina langu ni mikaelaperss naishi Swiden ,niligundulika nina endometriosis tangu mwezi wa 11/2016... Sikuweza kuitambua endometriosis mpaka nilipofanyiwa upasuaji..nilitolewan mayai pamoja na viuvimbe....kwasasa nimejitolea kuielemisha jamii juu ya ugonjwa huu Wa endometriosis ni vyema Dunia ikatambua ni kwa kiasi gani endometriosis imeathir maisha ya wanawake wengi...Kwa sasa naelekea chumba cha ultasound kuangalia kama endometriosis imekua kwenye kibofu changu cha mkojo pamoja na utumbo kwa sababu najiskia maumivu makali sanaa... #endometriosisawareness #endometriosisisreal #speakout #manyfacesofendo

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#Repost @_endometriosis with @repostapp ・・・ STORYTIME #42: Hi! (@mikaelaperss)I live in Sweden and have had my diagnosis since November 2016. Didn't even suspect endo untill i had surgery. Had one ovary removed and lots of cysts. And now I'm doing a lot of voluntary work to raise awareness and spread knowledge! Soo important to let the world know what endo is!! (As of March 2017)I am now going to go to a ultrasound specialist to see if I have endometriosis in my bladder and intestines since I am in a lot of pain. Also I am doing everything I can myself to make my relieve my symptoms. For example by eating mainly vegan, not drinking alcohol or caffeine. Trying to do as much as possible to be able to have children in the future. (Update: September) I don't have endo in my bladder etc. All is much better now! Now I'm trying to work on a book and trying to include a humourous twist to my experiences with endo!

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Endometriosis Implant on pelvic sidewall and on the bowel superficial bowel implants are easy excised.

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