ryan.plus.1 on Instagram

Ryan + 1

ryan, born with down syndrome & tof/vsd >>> #RyanPlus1

http://ryanplus1.wordpress.com/

Report inappropriate content

The “Before I’m About To Cry” Face - The “Talking” Face - “The Protruberant Tongue” - “Hand To Mouth Milestone”

2

This guy dances all over the exam table! But check out his stats!! He gained a whole TWO pounds in a month! Just so you know, that is some pretty good growth for a kid with DS and heart defect. I was expecting him to weigh in at about 9 and a half pounds or so - especially since he’s been kind of eating funny, like he forgot what to do, not eating as fast. He is talking a lot more, smiling more - like big ones! 😄 He has put his hands together for a little while and even put his hand in his mouth. He is focusing on his toys hanging on his swing and has reached for the side of it. His neck muscles are getting there, still wobbly with holding his head up. He looks when we talk to him and his favorite person to talk to is big sister Cookie. She always gets a response out of him and everyone else sometimes has to try a few times! 🤟🏼💙💛

9

I’m gonna go out on a limb and say that Ryan (in fact) does NOT like it when his big sisters sing in opera tone while he is sleeping. 🤷🏻‍♀️ He hasn’t really exactly personally told me this, but - his face would determine my statement is not a lie. #votingisopen #story

7

2

The Protruberant Tongue. There are a few different reasons why babies with Down Syndrome, I’d say the main reason for Ryan is hypotonia - as he needs chin and cheek support when feeding. He’s doing better than when he was a newbie. I usually only have to support now when he needs to be reminded to finish his bottle or he lets his formula sit in his cheek and drain out. Not fun. One little nudge of the chin will get him moving again. Literally, you feel like one hand is doing 5 things when feeding and once you learn the way to hold the bottle one handed, you’ve mastered this. I believe it. Lol. Anyway, Ryan’s always got his little tongue sticking out. #DidYouKnow • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior

1

12

Our Ryan is TWO months today! Official two month pic coming Monday after his appointment so we all can see how much our guy has grown!! He’s doing new things and I’m excited for that post coming Monday! For now, here’s a pic of Ryan yawning. Typical. • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior #ellenratemybaby

6

#DidYouKnow that approximately 40 to 60 percent of all infants with Down Syndrome have some type of heart defect. Ryan has a Tetralogy of Fallot, which is a heart defect with four characteristics: a hole between the bottom two chambers (VSD), an overriding aorta (the larger artery taking blood to the body is on top of both ventricles, instead of just the left), pulmonary stenosis (a narrow pulmonary valve, carries blood from the heart to the lungs), and hypertrophy (the right ventricle becomes thicker and more muscular than normal from working harder to pump blood through the narrow pulmonary valve). Babies with Down syndrome also have smaller mid facial areas, including nasal and sinus passages, contributing to more colds and sinus infections. Some babies with Down syndrome may have a decreased immune response to bacteria and viruses. We don’t want him to catch even the slightest cold and earn a hospital stay. All that being said! I got this random package in the mail today with this awesome stop sign for his stroller/car seat! If I said to just not breathe in this area it would be perfect, but I guess that might be too harsh. I am a little coocoo when it comes to him getting sick. I almost flipped a table over the other day when a random lady just started talking all up in his stroller. So I’m super thankful that this neat little thing came today!

8

The fact that Ryan even acknowledged the toys in front of his face is a milestone! I was too excited when he even grabbed the side of his swing today. Wasn’t the toy but at least he reached for something!! Thank you Ryan! You’re awesome! And he was really talking a lot today! 🤪🤩... • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior #milestones

0

4

8

5

Not everyone would understand the excitement of fitting into a 3 month old outfit that is super cute when you still wear newborn old and you thought we wouldn’t fit in til the blistering summer. Love this outfit so much and I’m glad he got to wear it and I’m obsessed with him! He is so freakin cute!! 😍😍🙋🏻‍♀️ We are at my consult for tubal appointment. Momma is shutting the baby factory down. 🤷🏻‍♀️ • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior

6

5

3

Ryan is going to be reppin another small shop with two other cuties! Super excited! Excited to see all the new things from @mommaidclothingco ! 😍😍

8

Had a rough day today, so here’s an older pic. Lol. I just love this picture. Ryan was 100% in my lap today. Didn’t really sleep for his normal sleep times and two big spit ups. 😕 Hopefully it’s a better night than day. Some times the nights catch up to me and my alarm goes off to feed him and I do and then I wake up frantically like 30 minutes later forgetting that I just fed him and when that happens the following day is rough. I’m pretty sure I poured formula into the bottom of a bottle and made a huge mess. I wasn’t even human last night. So days like this I worry about every thing - if he’s getting all his nutrients, if he’s developing, if he’s growing, if I’m doing everything I can, his heart, his future, etc. etc. EVERY. THING. End of the day, I do that mom thing that he knows it could only be me because I’ve been doing it since he was in the NICU and he smiles at me before he falls asleep. I must be doing something right. ❤️ Love this guy!! • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior

4

6