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1225.mhstam

1

dorachan.mm

✴️100本のスプーン✴️ *おいしい週末* 海老とエビとえびのドリア。濃厚オマール海老のソースに、甘エビのパウダーがかかった、たっぷりえびのドリア🦐🦐🦐 海老三昧で今週のお疲れ様会🍷 #東京#世田谷区#100本のスプーン#海老ドリア#海老#えび#ドリア#濃厚ソース#サングリア#赤ワイン#絶品#美味しい#おすすめのお店#また食べたい#二子玉川グルメ#ばんごはん#おいしい写真#東京グルメ#グルメ#二子玉川 #dinner#doria#shrinp#100spoons #restaurant#tokyo#japan#🍴#🍷#🦐

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cecilywilsonco

Lib (Elizabeth), a seasoned Crimean war nurse (trained by the infamous Florence Nightingale, no less) is hired to tend to a patient in a remote hamlet in Ireland. Her task is to observe an 11 year-old girl in order to determine, true or false, the claims that the child, who has not eaten any food for over four months, can survive because she supposedly lives off "Manna from Heaven". Determined to put a quick end to this sensationalism and rout out the truth, Lib arrives in her crisp uniform along with her equally crisp, no-nonsense, ward nurse mindset. Upon meeting Anna, an angelic, vibrant, earnest, and oh-so intelligent...and quite healthy little girl, Lib is annoyed her talents are being wasted on such a hoax. And so the watch begins. And, day after day, the child, in fact, doesn't eat a morsel of food. Could it be true? Could Anna be one of God's "chosen" for Sainthood, as her family and community so fiercely believe? Can Lib accept the possibility she may be witnessing a miracle? What unfolds is a breathtaking story of the tenderness within a child's mind and how she interprets the world around her. It is a tale of belief and superstition, and reason and evidence, and how holding firm to either extremes blinds us to the love and magic that is right in front of us. Transcending. #thewonder #emmadonoghue #100spoons #readingissexy #historicalfiction #godislistening

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writingbodypain

0

baronesscandy

連休最終日は二子玉川へ娘の秋服買いたしにお出かけ。ランチは100本のスプーン。 娘は私のリトルビッグプレートから好きなものを奪い、パパのパスタも分けてもらい、2歳も食べられる離乳食ももりもり食べました。 秋服はミニーが良いそうで、ミニーをゲット。ついでにかわいいロンパがあったので、11月に産まれる下の子用に購入w #100spoons #futakotamagawa #henesandmauritz #もうすぐおねえちゃん #pooh #minnie

3

aya0210s

3

ayatomomaya

2

afifaayu

had a great saturday date with #bae 🦄💑 at @100spoons_futako 🥄🥄delicious “Little big plates” and watching The Meg 🦈🦈 in 3D review about the restaurant in my profile! #restaurantweek #review #food #foodreview #restaurant #100本のスプーン #100spoons #レストラン #tripadvisor #レビュー #二子玉川

2

appalachian.possum

#100daysofselfcare day 62 Well, while all that shit was going on I tried to start my get up early every day thing and it just kinda worked. No matter what the planets are doing, some people just can not jump into something full force. And that's where I always fail because I want to see myself as someone who can. I can't. And that's fine. My hip has been reminding me daily that I am more screwed up than I let on. I accept that I have been sick for a very long time. I accept this getting better is going to take awhile and I accept that the outcome may be a lot different than what I have in mind. There are so many things that I can consider goals. But I have 2 that are the most important to me in this present time. Stuff like getting out to see friends, working on little projects, working on the house are working towards those 2 goals. This #selfcare is just leading up to obtaining my goals. I have come a long way since #100spoons was started. I can't believe how helpful this daily posting has helped 🖤 . . . . . . . . . #anxietyisaliar #deppressionisalier #mentalillness #mentalhealth #mentalhealthawareness #mentalhealthworrior #depression #anxiety #microblog #chronicallyill #chronicillness #chronicpain #spoonie #spoonielife

1

100spoons_futako

#100本の夏のおすすめ 】 まだまだ暑いこんな日にぴったりなドリンク。 フレッシュのフルーツをその場で絞って作る 爽やかなオリジナルカクテルがおすすめです。 レモン、ライムのカクテルは ノンアルコール・アルコール入り どちらもご用意できますので さっぱりシュワシュワのカクテルで オトナもコドモも乾杯🥂 #100本のスプーン の投稿で、皆さまの思い出のお写真も お待ちしています。 #100本のスプーン #まだまだ暑い日々 #フレッシュフルーツ #オリジナルカクテル #コドモがオトナに憧れて #オトナがコドモゴコロを思い出す #二子玉川 #ファミリーレストラン #二子玉川ライズ

1

hana__butterfly

お天気が回復してから母と二子玉川へ✨100本のスプーンでランチ🥄リトルビッグプレートでお腹いっぱい!これはラージサイズ10品、母はスモールサイズ6品。スモールサイズも食べ応えあり!おいしかった♪買いたいものも買えてよかった😉 * #二子玉川ランチ #夏のリトルビッグプレート #プレートランチ #100本のスプーン #100spoons #ファミリーレストラン #familyrestaurant #二子玉川rise #二子玉川

0

livliverly

Day 79 - Fever I have a fever. Not because I'm sick, oh no, I have a fever because I upped my weights at the gym yesterday and in order to cope with all the micro-tears, my body has inflamed. None of the MS symptoms have decided to rear their head though, just normal fever fatigue and for once, I'm actually quite cold and turned the AC to low. (Who am I? Is this an alternative universe? Also omg it's been so long since I upped my weights) 😱 That's all right, I took some ibuprofen and have just flexed in front of the morrow for a few minutes (ow). I'm at 60lbs for best press and seated row now. I forgot the other ones but I went up about 10lbs each. Pretty stoked. I might even start reintroducing free weights if my left side behaves with the numbness. Now if you'll excuse me, I'm gonna roll with a dryer ball. #100spoons #multiplesclerosis #livingwithMS #spoonie #MSwarrior #gym #workingoutwithMS #fitnessnotweightloss #MSfit #spooniefitness #spoonielife

0

livliverly

Day 78 - (these are some long days) I needed horsehair braid. An inch wide. Three metres. There was no inch horsehair braid. There was 1/3 of an inch horsehair braid. So... I got nine metres. At 25 cents a metre that's pretty good. Then I got nine metres of other trim on sale cause...yknow...That's... How things go? #100spoons #livingwithMS #fabricland #sewingstash #multiplesclerosis #spoonie #sewingstashproblems #spoonielife #crafting #cosplaysupplies

2

writingbodypain

2

reverendtimothy

Saturday morning is the time for #brunch 😋🤩😋 #100本のスプーン #世田谷 #100spoons #setagaya #japan

3

writingbodypain

I miss the sea... But I can't stay outside with so much sun... Watching this pic almost makes me feel the smell of the salty water.... #spoonielife #chronicpain #spoonietheory #100dayspoonie #100spoons #psoriasis #migraina #anxiety #fatigue #Iwantalife #staypositive #chronicallycourageous #psoriasicarthritis #arthritis #asthma #spinepain

2

writingbodypain

0

appalachian.possum

#100daysofselfcare day 36 Fail😂 Oh well. Day 1 of #changemylifeonemonthatatime failed. I went to sleep on my couch last night. Somehow stuffed my phone in-between the cushions and didn't hear the alarm! So I did not wake up at 6:30am. But I did wake up at 8 and I am not falling back asleep until Dad gets up. I can still start my 3 walks a week today. After my coffee😂. My #selfcare for the day is going to be making time for a couple of creative things. this is all self care. And I have felt a bit selfish and winey during this one! But I'm gonna drop some #T here. Even though it's embarrassing to do. I am still not washing my face or brushing my teeth everyday. So I am still struggling. Bad thoughts are still getting to me pretty bad. I am still vegging in front of the TV when I could totally be doing something. I am trying to do this to keep myself accountable. So how in the hell can I get myself back into the habit of these things? I know my weight is holding me back. I just run out of energy faster that before. And having my areas clean and organized helps get me to do this stuff every day, but I did it before in pretty much a house that was falling down around me.😑 Maybe I will just break these posts up during the day. #100spoons helped me so much. I was basically doing nothing for a few years. Do what my Dad needs and the animals then nothing. My mattress looks so dirty because I couldn't be bothered to put sheets on for months at a time. So yeah, I'm gonna retool this today.🖤 . . . . . . #anxietyisaliar #deppressionisalier #mentalillness #mentalhealth #mentalhealthawareness #mentalhealthworrior #depression #anxiety #microblog #chronicallyill #chronicillness #chronicpain #spoonie #spoonielife #kittensofinstagram

4

livliverly

Day 76 - Feats Mode Activate It's been a couple of days. Month end at work and all that but that's work, I leave that when I go home. I had mostly just coffee today (don't worry there was a bagel and a bunch of fruit in there, too). So I was starving when I started on dinner. It got substantial: Soy ramen noodles with red curry eggplant Zoodles (like three zucchinis worth) with a sauce adjusted from a Maangchi recipe topped with red peppers and Gardein chick'n strips. It turned out a bit sour, but still tasty. Great news is that the red curry paste I used makes it taste exactly like my favourite dish from my favourite Thai place. The money I shall save! #100spoons #multiplesclerosis #livingwithMS #plantbased #veganeats #spoonie #vegandinner #easymeals #spooniecooking #cookingwithms #spoonielife

1

livliverly

Day 75 - I suck at taking pictures on the elliptical. I spent all of yesterday cooking and hanging out with friends for a fabulous birthday celebration. So today, everything hurt. I did not make it to the gym first thing in the morning as I had hoped but I took pain meds and made breakfast. Rested for a while, danced around the house to warm up and then finally dragged my butt to the gym around 12:30pm. And I was feeling it today. I have upped my resistance and was pumped, so I pushed hard today. And I hit 4k in 30 minutes. It's been a long time since I have done that and it felt great. I was exhausted but always able to dig deep and push a little harder to get me there. Unlike Friday, I could push even though I definitely lost part of my vision and my leg was numb to the hip. And then, I still managed to do a light arms workout. The moral of the story here is: pre-workout works 😄 (and really, Zombies, Run! remains my main motivation to keep it up) My back is still killing me but at least I can still move. Gonna make sure I keep up my PT exercises over the next few days. #100spoons #multiplesclerosis #livingwithMS #gym #spoonie #spooniefitness #zombiesrun #fitness #spoonielife #mswarrior #fitnessmotivation #cardio #chronicillness #personalgoals #fitnessnotweightloss #chronicfatigue

1

livliverly

Day 74 - Zombies, Run! I did this yesterday but by the end of the day I was so exhausted I couldn't think. So I'm posting today. I love this game. For those of you who have never encountered it, it's an audioplay married with an exercise app. You're Runner Five who crashes (literally) into the midst of the aftermath of a zombie apocalypse. This app is geared towards most fitness levels and can be used in a variety of ways. As they say in the app "anything faster than a shamble" will do, but you can turn off chases and set a constant approximate pace if you're on a treadmill, stationary bike, or elliptical rather than outside. I love it. I use it predominantly on the elliptical because that's the safest cardio for me. When my body warms up, my leg goes numb but on the elliptical that doesn't matter because I don't lift it off the machine. I remember when I started two years ago after all the relapses and months spent in bed when I could barely be on it for ten minutes on the lower settings. I found that if I set the incline above five, my hip injury starts to act up unpleasantly (probably because at 6' tall, the machine isn't quite my stride length), but I'm working on that. I'm pushing myself this weekend to go twice. Because a) I need to get back to three to four times a week and b) I wanna know what happens next! It is a lot of fun and if you need something to distract you through the monotony of the treadmill or the elliptical, I highly recommend this. #100spoons #multiplesclerosis #fitness #livingwithMS #chronicillness #spoonie #exercise #zombiesrun #spoonielife #mswarrior #spooniefitness #nerdfitness #fitnessnotweightloss #iwannapunchadinosaur

0

livliverly

Day 73 - migraine Not even gonna pretend I doctored this up into anything remotely healthy. What matters is that I'm keeping it down so I can keep taking acetaminophen and ibuprofen until this migraine lets me sleep. This is what the bad days look like and sometimes you just gotta make it through. I'll get back to zucchini noodles and veggie delights tomorrow. Until then my mantra is: don't throw up, that just makes it worse. #100spoons #multiplesclerosis #livingwithMS #spoonie #chronicillness #spoonielife #accidentallyvegan #instantramen #migraines #pain #chronicmigraines #dontthrowup #livingwithmigraines #migraine

5

livliverly

Day 71 - Zoodles I don't like zucchini. They're flavorless and the texture when cooked is appalling. However, I'm allergic to a slew of fruit and broccoli, so I'm trying to eat everything else even if I don't like it. Except kale and Swiss chard and even then I'd eat kale over chard which tastes like swamp water. 🍄 Anyhow, I wanted to make myself like zucchini and I have always always failed. Cue the impulse purchase of a spiralizer at 50% off and my making zucchini noodles for the first time. They cook nicely, keep a pleasant texture and absorb the flavours in which they are cooked nicely. Will this replace noodles? Not for me. (Though for folks with diabetes I can see how this would be a suitable substitution. They hold up well unlike the eggplant.) But I like them and I will have them again. 🍄 This was one spiralized zucchini and one spiralized (ish) egg plant, Portobello mushrooms, green onion, sauteed in sesame oil (mixed with canola), soy sauce, and artifacts. Super delicious. Served with Gardein chick'n sliders because easy. #100spoons #multiplesclerosis #plantbased #livingwithMS #easyveganmeals #chronicillness #cookingwithms #spooniecooking #easydinner #veganeats #zoodles #spiralizer

0

writingbodypain

1

livliverly

Day 70 - Camp Forgive me if this is brief, fatigue is killing me tonight. The poll was from yesterday. Y'all can guess which one @the.reading.dragon voted for lol I upped my #campnanowrimo word count goal from 17,000 to 20,000 tonight. Ideally I will hit that this weekend and up my goal again but we will see. I'm so tired I can't think straight. I'm at 15,578/20,000. So woot. But now, sleep. #100spoons #multiplesclerosis #amwriting #writersofinstagram #livingwithMS #spoonielife #nanowordsprints #writinggoals #chronicillness #spooniewriter #spoonie #chronicfatigue #wordcount

1

livliverly

Day 69 - Freezer Burn Last week was rough and this week is turning out to be just as rough. These are times when I'm glad I switched my habits. My freezer is always stuffed with frozen veg, fruit, and mock meats which can easily be thrown into a pan and cooked into something. I just don't have the energy to bother with cutting and preparing food when my weeks are this bad. I like all the vegetables in the freezer and can just toss them in a hot pain with oil. Add spices I feel like and voila, food. It's also quite economical. For 1.99 I get almost two heads worth of cauliflower fleurets while a whole fresh one costs me between 3 and 5 dollars. Chopped onions? What a time saver! Chopped sweet potato... Not as cheap but have you ever tried chipping a sweet potato with painful, swollen finger joints (spoiler alert: don't try)? The convenience is amazing and instead of eating cereal, I'm eating lots of veg. #100spoons #multiplesclerosis #freezerstash #spooniecooking #livingwithMS #frozenfood #spoonie #chronicillness #spoonielife #easycooking

4

livliverly

Day 68 - Do you like hot sauce? I have a migraine and today insta gave me a "vegan taco bowl" ad. It was pretty much roasted potatoes on unseasoned rice with seasoned black beans and a hint of a memory of salsa. So I had to make a rice bowl that had flavour: 1 cup cooked rice 1 cup of corn and edamame 1/2 cup Gardein beefless ground A bit of Daiya shreds Garlic, cumin, onion powder, ancho chili, cayenne pepper, salt and pepper to taste Lime juice Then topped with mango hot sauce, chipotles salsa, ranchera sauce, hot salsa, and almond yoghurt. Do you have a favourite hot sauce? What is it? #100spoons #multiplesclerosis #livingwithMS #spooniecooking #cookingwithMS #plantbased #veganeats #easyveganrecipe #spoonie #chronicillness #vegandinner #easymeals #spoonielife

0

livliverly

Day 66 - spicy skittles Today was kind of hell. I slept about two hours before I woke up and walking to the bathroom was more falling to the bathroom, blind in one eye and nearly deaf in one ear. I couldn't feel my leg at all and what kept me from passing out on the bathroom floor was knowing if I slept more, if feel better. And I did. I woke up again a couple more hours later and I was mostly just in pain and tired. And then I was just in pain. And then the MS hugs started. In short: today sucked with the exception of writing with Holly at Starbucks and hanging out for a bit. I'm taking benadryl and muscle relaxants and I'm gonna try again tomorrow. Oh yeah and spicy skittles are good, being care for the orange or the watermelon, but the mango ones? Those are amazing. I'm deliberately saving them for last. #100spoons #multiplesclerosis #mshug #livingwithMS #spoonie #spoonielife #chronicillness #chronicpain

1

pleasemrsbutler

Day 100 - regular programming. My last day of my 100 spoons challenge! I made it! Those able bodied among you may be thinking “oh good, regular programming will return now” I’m here to say that’s not the case. Sorry bout it. 📺 If you think you’re sick of hearing about my illness, imagine how sick I am of LIVING it. All you have to do is scroll past the occasional post about my pain levels. (Ok frequent post) but I have to live it day in and day out. 📺 If you’re ever feeling like “I’m so bored of hearing about Micha’s fibromyalgia” take a minute outside yourself to think about how I feel?! I’m so bored of every morning battling with myself to get out of bed, I’m so bored of the constant pain coursing it’s way through my body, I’m so bored of the loneliness and isolation I feel because my body won’t let me do the things I want it to. 📺 But here’s the thing, since writing about my illness on instagram I have met so many wonderful people with their own chronic illness battles, and I have found an online community that I love and that keeps my from feeling utterly alone at times, they help me through really dark periods of my life. 📺 So yeah, if your bored of it I’m not surprised, so am I. Please don’t forget that I am a human who is dealing with a huge amount of pain and suffering daily. If you consider yourself my friend in any respect of the word have a little patience with my posts, and maybe even engage with them. Regular programming will not be resuming. Sure I’ll still post about books, crafts, and days out but I’ll definitely still be posting about fibromyalgia. [ID: an old image from the 70’s of the BBC screen that would show after programming had finished. In a circle in the centre is a girl writing on a chalkboard and looking at camera, there is an extremely haunted puppet of a clown next to her. Outside the circle are black and white geometric shapes and outside of those are various colours around the edge.] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #regularprogramming

9

livliverly

Day 65 - impromptu adventures Work again was rough today, but I was off early and got two pairs of flats for 15 bucks which is amazing. Then I got home and had dinner. And then impromptu went to a bookstore on the other end of the adjacent town with @the.reading.dragon to visit @penny_knock at work. 😄 📑 And I came home with Moteki which I have wanted to read since I watched Yuri on Ice. I really enjoy Kubo Mitsurou's storytelling. And anything with a character within a decade of my age is refreshing (reasons I love Tiger & Bunny, too). Also considering there was a 50% off sale (Not the abridged version of Free) that's a lot of restraint. Now I am wired at 10pm, so I'm gonna write for a few hours. #100spoons #multiplesclerosis #livingwithMS #spoonielife #booklover #manga #spoonie #books

0

livliverly

Day 64 - a big pile of soba Today was fucking busy. Work got super busy, so I needed up not eating or drinking or even looking at coffee until after noon. I took my Tecfidera an hour after I had already eaten (surprisingly no major flushing). It was rough LOL I went home late again and tomorrow I already know I'll go home late as well. Extra $$$ for Dragon Con though, so there is that. So I'm gonna devour that cold soba dish I made (soba, egg plant, red pepper, smoked tofu, soy sauce, sriracha), watch The 100, and then pass the frak out for the night. #100spoons #multiplesclerosis #livingwithMS #easydinner #plantbased #spoonie #cookingwithms #vegandinner #spooniecooking #easyveganmeals #spoonielife

3

pleasemrsbutler

Day 98 - be your own cheerleader I’m not one of these people that says positive thinking can “cure” your chronic illness. That is ableist BS said to make people feel bad when they complain. That kind of rhetoric suggests it’s our fault for being ill if we ever have a negative thought. That is just bit true! 👯‍♀️ Although I don’t believe positive thoughts can cure me, I do believe they can help in some respects though. My mood is often related to my pain, when I’m feeling low my pain levels soar. When I’m happy they improve slightly. The problem is when I’m feeling low I find it hard to bring myself out of a slump. In the words of Zeus “unslumping one’s self is not easily done. 👯‍♀️ Today my mum @grandkidsmyfav sent me this lovely app called cheerleader which is free (maybe only for today) and sends out notifications of nice little inspirational messages. Hopefully this will help me unslump myself in these next two weeks which are going to be tough. Hopefully it will see me through until my next job and help me keep my head up. 👯‍♀️ So I’ve been playing around with it today, and I’m looking forward to seeing some more phrases in the morning. Oh! Also, it’s customisable! Can you guess which phrases I’ve added 🙃 [ID: a collage of motivational phrases in a gray brush font on a light pink background. The largest says “Don’t throw away your shot!” The others say “be strong. Don’t be fearful.” “Make yourself proud.” “You are the one thing in life you can control.” And “Focus on the positive.”] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #motivationalquotes #cheerleader #myowncheerleader #hamilton

6

livliverly

Day 63 - The Sippy Cup? So Starbucks introduced their new lids to help with going straw free as much as possible. Straws are important tools for people with disabilities. I know they make my life easier because with my hands I often wasn't able to lift a cup or a bottle. So I get it, but their average person (which includes myself on most days) doesn't need a straw. And I really like the solution that Starbucks offers. It's a lipped lid, so you don't have to worry about spilling all over yourself, the liquid is guided to your mouth, so if you have some difficulty drinking, it still is a very stable experience. The plastic is clear and can be recycled (straws cannot). Is it a perfect solution? No, but it definitely is a start. From what I understand, a biodegradable straw is coming as well which will be a great alternative to plastic straws and folks who want or need a straw have access to an environmentally friendly option. Of course, a reusable mug, cup, bottle, etc is best. My bottle just bit the dust, so I'll be replacing it. #100spoons #multiplesclerosis ##livingwithMS #starbucks #strawfree #chronicillness #accessibility #spoonie #reduceplasticwaste #environmentallybetter #spoonielife #environmentalism

1

pleasemrsbutler

Day 97 - neuropathy I’ve talked before about pins and needles but I didn’t realise that came under an umbrella of neuropathic pain, something that I get quite a lot. ☂️ Along with pins and needles I also get sensations like: tingling, numbness, being stabbed, having sunburn, and having bugs crawling over my skin. ☂️ I get these often but notice they are worse when I’m feeling stressed out, this weekend they were so bad that I was having entire limbs completely numb and finding it hard to work. It got so bad this weekend I actually didn’t go into work yesterday because when it gets this bad the only thing that helps is CBD and I can’t just get my vape out at work. After having a day of relaxing and not just looking for new jobs it is a lot better but still worse than normal. ☂️ I went back to work today and it was incredibly difficult. While I’m up in the air like this and while my emotions are fluctuating between upset and angry, these next two weeks will be hard. I hope this neuropathic pain calms down after that though, and that I can enjoy the summer. [ID: a boomerang of me vaping, I am wearing my glasses but no makeup, my brows are knitted and I’m not smiling] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicpain #chronicfatigue #chronicillness #chronicallyill #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #neuropathy #neuropathicpain #cbd #vapelife #chronicallychill

19

livliverly

Day 61 - Vegan Fest So yesterday I went to my community's first vegan fest, because I really wanted some vegan donuts or ice cream. Now unfortunately, it appears that no one was prepared for it to be busy and no one seemed to be prepared that people would be lining up for vegan food more than anything, because no one really was anywhere near the educational booths which is a bit sad because they do have sanctuary farms in the area which need more exposure. The food options were either sold out, looking a bit shady considering how ward it was, or had a half hour line. There was one place which offered cheese samples but didn't have them for sale? It's fine, I've taste a lot of vegan cheeses and this one had about as much flavour as cold paste. All in all, it was pretty disappointing and felt a bit disjointed. Hopefully better luck next time? Thankfully, I was still pretty full from my vegan breakfast which reflects how badly I have to do groceries haha potato and Gardein hash, leftover baked beans, half a mini watermelon, cheez and marmite toasties, and this coldbrew mocha stuff? It's delightful. A bit pricey at 4 bucks for just under a litre but it's less than a frapp at Starbucks, so win-win. It has 6g of sugar in the label but they were a bit misleading, it's 6g per 175ml and a cup is 250ml. Still not bad but reminds me to read labels closely. #veganbreakfast #plantbased #100spoons #multiplesclerosis #livingwithMS #vegan #chronicillness #spoonie #spoonielife

0

livliverly

Day 60 - THE TEMPERATURE HAS FALLEN It's amazing outside! So comfortable! Of course, I decided to spend my evening at Starbucks to write but yknow. It's great! Despite having had three hours of sleep, eaten barely one meal all day and not having had any caffeine until like 3pm, I'm feeling good. Kind of airy and not quite in phase with the universe but that's okay. I feel good and that's what matters. Now to write my heart out! At least 3k before I go home! #100spoons #multiplesclerosis ##livingwithMS #spoonie #amwriting #writersofinstagram #selfie #curlyhair #spooniewriter #campnanowrimo #silly #chronicillness

1

gabstar2510

#100spoons #day100 Tired mom and child and still quit shocked about toddlers operation, carrying her close to me. Thankful for every spoon, every power moment, every reader of my posts, every comment and every little 100 spoons moment. These pictures were taken in the Vondelpark. I put my phone away and walked on, giving myself and my toddler some distraction. Then a bike rides hard from the back into my back. And again I was in shock, but being able to keep Shaya safe. She sits normally in the stroller, but for once she was a moment in the swing, while she was in pain. Thank Gd we are ok, still walking and there was a very nice group of sports women who helped me out after the accident. Ofcourse my back isnt the same as before this joke but Im grateful I walk and I will go on, I will fight, I will try to spread awaremess and understanding and I hope I get to know you all. To another 100 something to write and share about😃 starting tomorrow🙌🙌 Love Gaby 💓💓 ##instadaily #instamoment #instamom #pink #toddler #momsofinstagram #kindergartners #kids #crpsawareness #chronicallyillawareness #awareness #amsterdam #spoons #spoonie #amsterdam #vondelpark #chronically #ill #accident #park #momsofinstagram

9

claramarolyn

Menu makan siang tadi.. . . Punya kebiasaan sama teman kantor kalo setiap jumat,makannya bukan di kantin kantor tapi nyobain makanan baru.. . Belum pernah ke restoran ini sebelumnya dan setelah nyoba, gw recommend... . Nama restorannya 100 Spoons.. . Jadi kalo yg lagi di Tokyo,silahkan coba makan di restoran ini,tapi siap-siap ngantri karena restoran ini lumayan terkenal.. . Harganya berkisar 300-600 ribu.. Mahal yakk?😅 Tapi itu adalah harga standard untuk lunch menu restoran dengan porsi yang banyak menurut saya.. . Halal atau ga? Kalau halal,saya kurang paham tapi daging nya sapi atau ayam, dan ada seafood juga kok.. . . So,ini adalah salah satu restoran rekomendasi saya.. . #100spoons #100spoons_futako #tokyorestaurant #lunchmenu #todaybrunch🍴

0

gabstar2510

#100spoons #day99 Chronically ill or not, when your toddler is ill, getting an operation (toncils) you hold her, you carry her. All day, all night long. Nomatter what. If its by lifting her up or by letting her lay on you. And im grateful that Im the mama of such a terrific girl, like her sister as well. When she will feel better I can have this flair. For now Im mama bear and I live for getting her through the night. What do you hold on to? #chronicallyilllawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #mommy #crpsmom #crpssucks #nijntje #miffy #olvg #balloon #instadaily ##instamom #instamoment #mommy #momsofinstagram #toddler #girls #toncils

11

gabstar2510

#100spoons #day98 What if I, being chronically ill, would become better? Even though there is no treatment right now for me available. Ofcourse there is always hope, while its nice to hold on and fantasize about that thought. If I was better again, what could I do for a living? I have no idea right now, even though I would love to go acting again after almost 10 years. Or become a doctor. Or a midwife. Or, or, or... What profession would you like if you could work again? #chronicallyillawareness #crpsawareness #crps #rsd #warrior #mommy #crpsmom #crps #pain #awareness

4

gabstar2510

#100spoons #day97 When you dont sleep, everything becomes worse ofcourse. How to keep your spirit up when its difficult? Do you treat yourself to something nice when you go through hard times? Shout out 😃I would love to hear! #chronicallyillawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #mommy #crpsmom ##instadaily #instamoment #instamom #pink #red #flowers #treatments #smile #love #together #toddler #instamom #momsofinstagram

6

gabstar2510

#100spoons #day96 Almost at the end of the awareness 100 spoons road, but I dont want to stop. Raising awareness of chronic diseases is so important. Especially when it is invisible on the outside! For instance: When someone is sitting on the floor in a store. When somebody is in a wheelchair and stands up to walk a while. When the right words wont come out When you cant eat everything Can you add some examples to this list? #chronicillnessawareness #chronically #ill #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #mommy #crpsmom #crpssucks ##instadaily #instamoment #instamom #pink #momsofinstagram #toddler #kindegartner

10

gabstar2510

#100spoons #day95 Ruben and I just found out that we know eachother for 10 years now😃💓 normally we celebrate everything we can celebrate, but right now the day was too rough. Im happy Ruben knew me already before I became chronically ill. We were only 3 months together and then I had my little accident that resulted in life chancing crps. #lifeislikeaboxofchocolates @rubenfurman #chronicallyillawareness #crpsawarness #rsd #crps #warrior #pain #awareness #amsterdam #spoons #spoonie #chargie #mommy #crpsmom #crps ##instadaily #instamoment #momsofinstagram #family #love

2

aito_eito810

ジェラピケカフェでハンバーガー🍔 キッズスペースはそんなに広くないけど可愛らしいおもちゃがたくさんあるから飽きなかったかな⁇ ♡ お茶しに100本のスプーン🥄、ここ子供連れでいつも混んでて気になってたけど、ここ離乳食無料で提供してるんだね👏 授乳室もベビーチェアもあるし、メニューには塗り絵ができるようなってるし、そりゃメロンソーダの大きさに驚くな🥄 #ジェラピケカフェ #二子玉川高島屋 #キッズスペースカフェ #100本のスプーン二子玉川 #メロンソーダって夢がある#離乳食無料でくれる #授乳室完備 #10か月 #10months #10か月baby #10monthsbaby #gelatopiquecafe #futakotamagawastation #playgroundcafe #100spoons #melonsoda

0

livliverly

Day 54 - Heatwaves Today, temperatures hit 45C (114F I think) and I was fully prepared to stay indoors. Well I was until anxiety reared its head and insisted we needed to get out of the house now now now! So I wrapped an ice pack in a pillow case and shoved it into my purse, took a full water bottle and left. I drove with the ice pack tucked behind my back. First stop was Canadian Tire to get one of those windshield reflector things you put on while parking to help keep your car from reaching temperatures which will bake cookies on the dashboard. It'll help the AC be more efficient as well. Next stop was Starbucks for coffee and then Home Sense. I found this bed set and almost bought it but I want to sleep on it because it's 80 bucks and not on sale and I avoid impulse buying things on sale as much as I possibly can. I still really want it. My comforter is starting to die and it would be a nice replacement. But I also don't want another comforter that will die after just 3 years. I have a hand-me-down silk duvet which is older than I am. So while I love novelty, I do value quality. For now though, I am working on not being super vertigo-ed anymore so I can join the regional Camp NaNo chat. #100spoons #livingwithMS #multiplesclerosis #spoonie #spoonielife #bedding #spacenerd #thisisMS #heatwave

0

gabstar2510

#100spoons #day92 What symptom belongs to your illness, whats normal, what is not? Chronically ill people have lots of insecurities considering their health. I cant meassure if I have a high temperature or not. When I had meningitis a doctor said I didnt have meningitis while I looked too good for having meningitis. 😷😱and that after a health study of 12 years... I still suffer from the left overs of my meningitis from 8 years ago. What did your doctor tell you what was weird? #chronicallyillawareness #crpsawareness #meningitis #myphoto #crps #rsd #Amsterdam #warrior #vondelpark #kids #toddler #instamom #pink #instadaily #instamoment #mommy #doctors #spoons #spoonie #chargie #pain #awareness

1

livliverly

Day 52 - Huuuungry I'm super hungry today. My heart has been beating and tumbling about all day so that's probably from the thyroid. I had half a bunch of asparagus, half a pint of local strawberries, and a whole bunch of food I ate before I could take a picture, whoops... Speaking of thyroid, I got a call from my endocrinologist and I'm scheduled for two thyroid biopsies, one for each side. So much fun. But it's enlarged and full of nodules which means they gotta check for cancer. And probably should be checking for Hashimotos. Just another thing on the list. #100spoons #multiplesclerosis #thyroidproblems #livingwithMS #spoonie #spoonielife #fruits #asparagusseason

0

gabstar2510

#100spoons #day91 What choices do you make when you dont even have enough 'spoons' energy to shower and have breakfast on the same day? What is your priority what needs to be done? Can you postpone all the work in the household or do you need to do it anyway? #somanyquestions 😊 #chronicallyawareness #crpsawareness #crpsmom #starbucks #spoons #spoonie #crps #rsd #medication #chargie #mommy #household #work #warrior #crpswarrior #choice #illness #black #coffee #cappuccino #priority #instadaily #instamoment #instamom #toddlers #kindergartners #momsofinstsgram

1

livliverly

Day 51 - Vans x Marvel I'm a nerd in a brace so I'm not gonna writr too much cause it's difficult. BUT These arrived in the mail today. They're sold out everywhere online and I got the last pair in my size from the store I bought them from. Had to be ordered in and they arrived today. I love Captain Marvel. Have ever since EMH which isn't that long but she is super badass in it. I'm so excited for her movie next March. The details are amaZing. The starburst top hole? Ugh. I'm so happy I got them. But now I'm super tired. Not sure I'm gonna be able to even eat the strawberries I had planned to eat. So to bed with me. Jk I'm already there! #100spoons #multiplesclerosis #livingwithMS #vansxmarvel #captainmarvel #thisisMS #spoonie #spoonielife #chronicfatigue

2

gabstar2510

#100spoons #day90 Being chronically ill is an expensive topsport. You need to have somehow the money for: a very good health insurance, the right, healthy food, all the help stuff when you go out or for in the house and ofcourse... for a house that fits to your disability. Without working though, because of the chronically ill part. Do you ever stress about money? #chronicallyillawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #vondelpark #kids #toddler #instamom #pink #instadaily #instamoment #instamom #mommy #crpsmom #illness #piano #keyboard #music

6

livliverly

Day 50 - Of Ultrasounds and Migraines Today, I had an ultrasound at the local hospital. This is ahead of the endocrinologist appointment at which we decide the nodules that need to be biopsied. It was straight forward and even better, it was on time. And then I got a migraine. Probably unrelated, but that doesn't make it any less painful. Took meds, having a tiny bit of caffeine to help them even out the whole thing. It's already better than it was, I can actually stomach eating. Half a flatbread pizza and Cajun spiced veg and hash browns, simple and tasty. Also easy on the stomach. Dessert was a mango and some peanut butter to help with the meds (forgot my morning dose). Flat bread pizza is super easy: tomato puree, olive oil, salt, pepper, daiya mozzarella shreds, olives, asparagus from last night, and some chopped up Yves back bacon. In the toaster oven on setting 5 and then again on setting 3. Done. #100spoons #multiplesclerosis #livingwithMS #cookingwithms #spoonie #spoonielife #easydinner #easyveganmeals #plantbased #vegan #flatbreadpizza

0

gabstar2510

#100spoons #day89 Foodpost part 2 Vegan, I would like to. Its so much better to eat vegan especially when you are chronically ill. It might be different for everybody ofcourse, but I would like to try. I dont eat meat for like forever and I dont eat eggs at home. But I do love my cappuccino and my yoghurt. For milk I could use almondmilk or so but for yoghurt I didnt find a better alternative with no soja and sugarfree. Yoghurt calms down my very disturbed stomach (by medication) in the first place. Like pretzels, without pretzels I become so ill. I dont know why pretzels work, I guess everybody has something that works for them. The only big problem is....lots of the glutenfree food and plant based milk is too expensive. I have a small budget, while being chronically ill is just very expensive.isnt it crazy that healthy good is expensive while crap is cheap?! What helps you when your belly/stomach is upset? #chronicallyillawareness #crpsawareness #vegan #crps #pain #awareness #rsd #Amsterdam #vondelpark #instadaily #instamoment #instamom #food #foody #crap #coconutmilk #momsofinstagram #spoons #spoonie #chargie =toddler #pink #polka #mommy

3

gabstar2510

#100spoons #day88 #foodpost1 Food can make it or break it. Sugar makes inflammatory illnesses worse. So, I bake healthy cakes🍰 at home. Im quite ruined while most candy I used to like, is disgusting nowadays while Im just not used to the amount of sugar anymore. Like dutch 'ontbijtkoek'. Tomorrow foodpost 2; to vegan 😊 Did you get involved in different kind of eating habits? #chronicallyillawareness #crpsawareness #foodawareness #crps #pain #awareness #rsd #spoons #spoonie #chargie #food #food

4

pleasemrsbutler

Day 95 - giving my all. For months I’ve been giving everything I can in all situations, and at the end of the day am left unable to move, all I can do for myself is rest after giving up each of my spoons to other people. ☕️ I’ve been feeling sorry for myself with my back going and thinking “why me? Haven’t I got enough to deal with?” Then I saw this meme (which I stole from @mycornerofimagination) and realised this is exactly why. My body has forced my to stop, it’s been warning me for months and I’ve been ignoring it, finally it had to take dramatic steps to make me listen. It even tried by making my back sore last weekend; too sore for me to walk without a walking stick and what did I do? I carried I pushing myself. ☕️ I feel hugely guilty that even after 5 days of rest I can tell I still won’t be able to spend 8 hours working and will need to take some more time off, but I also know that if I don’t take more time off I won’t have fully recovered, and my cup will be empty again in absolutely no time. I will push myself back into this situation and who will I actually be helping by pushing myself that hard? ☕️ So I’ll keep trying, I’ll keep moving, I’ll keep doing what the dr has told me and I’ll refill my cup before I start trying to give myself to everyone else. ☕️ [ID: a blue background with the writing “remember to take care of yourself. You can’t pour from an empty cup.” Below and to the right is a red polka dot tea cup] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #backpain #selfcare #emptycup

9

pleasemrsbutler

Day 94 - isolation. The other day my husband joked that these objects were my “3 best friends” and this was before I was laid up with back pain. 🌵 Sometimes this illness can be extremely isolating. Sometimes you’re in so much pain you have to cancel your plans. Sometimes you’re so fatigued you know you won’t possible last for another minute so you leave an event early. Sometimes you feel so lonely you start to wonder if you’re real or if you’re a ghost watching other people live their lives around you (ok, that one is certainly not as common but when you haven’t left the house in 4 days you can start to lose grip). 🌵 I would like to shout out to those who are always there. @joshubuh who always want to make me happy, @ezzl who always reaches out, even if she’s too far to do so physically, @superadaptoid who feels like a warm hug in even in a message, my horde of spoonie friends online who are always open to me moaning in their DM’s (there are too many of you to name but you know who you are so big love) @grandkidsmyfav who almost telepathically seems to know when I need a text, call or even just kind comment on a post, and I’m lucky enough to have some friends who aren’t on insta who always reach out. I know I’m luckier than most in my position but it’s hard not to feel lonely sometimes. 🌵 [ID: a heat mat on a white sheet, lying on top are a rose cold vape pen, and a kindle with the screen off and white headphones on top, my 3 best friends] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicallychill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #heatmat #vape #vapelife #kindle #friendshipgoals

14

gabstar2510

#100spoons #day87 Today we fed every duck-kinda-animal of Amsterdam. My inflammations were big last night, while toddler kept me awake for parts of the night. In inflammation world there is a special happy hour at night where the inflammations flair up. They dance with fire and relax after a few hours leaving the damage behind. What do you do after a broken night?🌌🌛🌛🌌 #chronicallyillawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #vondelpark #kids #toddler #instamom #pink #coat #summer #instadaily #instamoment #instamom #ducks #water #nature #inflammation

6

writingbodypain

0

gabstar2510

#100spoons #day87 When tight is tighter Medium is small Clothes are a huge challenge when you have pain from touching fabric. It burns in my skin like fire. It makes big scratches by knives. So, if you live in the Netherlands, you really need long clothes most of the time. Unfortunately I cant wear at all how I was used to dress myself before I became ill. Shopping online became about crps proof choices, not about what I like to wear. Im happy though online shopping exists, so Im able to feel the fabrics at home in rest and try them on when Im able to. How do you shop your clothes? #chronicallyillawareness #crpsawareness #shopping #sale #myphoto #flowerlovers #yellow #flower #crps #rsd #pain #awareness #amsterdam #spoons #spoonie #chargie #clothes #instadaily ##instamoment #kids #toddler #instamom #momsofinstagram ##warrior #warrior

1

gabstar2510

#100spoons day86 Like every parent it takes some arrangements when your kid is suddenly free (like a bird) from school. Especially when it is after my research treatments in the hospital which was already planned before. Its difficult to keep all the balls in the sky as a parent in the first place. How do you fill the gaps of sudden breaks from school? #chronicallyillawareness #myphoto #crpsawareness #crpsmom

5

pleasemrsbutler

Day 92 - side effects I am trying to do this fibro thing as pharma free as possible. Sometimes when I’m having a flare (a regular fibro flare that is) I wonder why, and I wonder how long I can keep this up. 💊 But then I take medication and I realise why. The meds I’m on my for my back are naproxen and diazepam. The diazepam is making me feel as high as a kite for a solid hour after taking it, and then making me sleepy. The naproxen is making me hella nauseous, I’m supposed to take them with food but by the time my next meal comes around I can barely eat. 💊 Don’t get me wrong, I’m not someone who will avoid medication at all costs. If my doctor suggests I take medication for a specific ailment I will oblige, but the thought of taking them long term for symptoms that will never ease up, knowing that I am likely to get at least the most common side effects of any meds, makes me realise that for me I know I’m doing the right thing in using cbd and other natural remedies. 💊 Now I would like to make it very clear I don’t not think this is appropriate for everyone. I have made this decision based on the knowledge of my own body, and through a fair bit of trial and error. I think one of the most important things you can do with fibromyalgia is tune into your own body and make decisions for yourself. Don’t be afraid to have an open discussion with your medical professionals if you think something isn’t working and don’t be afraid to ask for a treatment that you think will help. . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #sideeffects #bigpharma

38

writingbodypain

working outside helps sometimes when it's possible. Exhausting but giving the feeling of a true life.... And I cherish each proof I can socialize hence this pic. These people were my trainees today and they also were my customer.... This is also a good opportunity for me to thank my supportive husband and a friend of mine who continued to give me her trust even when knowing I'm someone who can't be as dynamic as others (I 've been hiding it for years until the "unvisible" started to be visible). A lot just let me down so I feel grateful each time I meet someone who assesses my work the good way: because I' m special I bring something special...The reward is worthy twice more when we success together. 💪 Love You P, M. S. #spoonie #smallvictories #100spoons #chronicpain #dailysponielifereport #spoontheoryinspired #psoriasicarthritis #chronicpain #autoimmunedisease #spoonielife #arthritis #asthma #butyoudontlooksick #youlooloktome #spooniework #spooniefrienship #spooniesolidarity

0

writingbodypain

0

gabstar2510

#100spoons #day86 Today we went to the library where there was 'singing with little kids'. It was fun to watch the children but most of all...it hurts, a lot, to be there, to sit there. The guitar music makes me happy, but it hurts my body. I know people dont really get that vibrations can hurt. Its like being at the dentist who is drilling into teeth and hitting a bone or a nerve. At the same time I see happy faces, help my toddler, smile at my kindergartner and be present. Afterwards Im extremely tired and I get a few big pain attacks. Thats just how daily crps life is, so I keep coming to the library for a moment anyway. #chronicallyillawareness #crpsawareness #happyfaces #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #library #kids #toddler #kindergartners #guitar #medication #instadaily #instamoment #momsofinstagram #mom #crpsmom #instamom

2