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dorachan.mm

✴️100本のスプーン✴️ *おいしい週末* 海老とエビとえびのドリア。濃厚オマール海老のソースに、甘エビのパウダーがかかった、たっぷりえびのドリア🦐 海老三昧で今週のお疲れ様会🍷 #東京#世田谷区#100本のスプーン#海老ドリア#海老#えび#ドリア#濃厚ソース#サングリア#赤ワイン#ディナー#絶品#美味しい#おすすめのお店#また食べたい#また行きたい#おいしい写真#東京グルメ#グルメ#二子玉川 #dinner#doria#shrinp#100spoons #restaurant#tokyo#japan#🍴#🍷#🦐

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cecilywilsonco

Lib (Elizabeth), a seasoned Crimean war nurse (trained by the infamous Florence Nightingale, no less) is hired to tend to a patient in a remote hamlet in Ireland. Her task is to observe an 11 year-old girl in order to determine, true or false, the claims that the child, who has not eaten any food for over four months, can survive because she supposedly lives off "Manna from Heaven". Determined to put a quick end to this sensationalism and rout out the truth, Lib arrives in her crisp uniform along with her equally crisp, no-nonsense, ward nurse mindset. Upon meeting Anna, an angelic, vibrant, earnest, and oh-so intelligent...and quite healthy little girl, Lib is annoyed her talents are being wasted on such a hoax. And so the watch begins. And, day after day, the child, in fact, doesn't eat a morsel of food. Could it be true? Could Anna be one of God's "chosen" for Sainthood, as her family and community so fiercely believe? Can Lib accept the possibility she may be witnessing a miracle? What unfolds is a breathtaking story of the tenderness within a child's mind and how she interprets the world around her. It is a tale of belief and superstition, and reason and evidence, and how holding firm to either extremes blinds us to the love and magic that is right in front of us. Transcending. #thewonder #emmadonoghue #100spoons #readingissexy #historicalfiction #godislistening

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kuruminut_

. Today's lunch🍴❤︎ おなかぺこぺこだったからとってもしあわせだった🤤 ・ #lunch #lunchtime #todayslunch #100spoons #littlebigplate #100本のスプーン #リトルビッグプレート

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writingbodypain

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baronesscandy

連休最終日は二子玉川へ娘の秋服買いたしにお出かけ。ランチは100本のスプーン。 娘は私のリトルビッグプレートから好きなものを奪い、パパのパスタも分けてもらい、2歳も食べられる離乳食ももりもり食べました。 秋服はミニーが良いそうで、ミニーをゲット。ついでにかわいいロンパがあったので、11月に産まれる下の子用に購入w #100spoons #futakotamagawa #henesandmauritz #もうすぐおねえちゃん #pooh #minnie

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aya0210s

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writingbodypain

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afifaayu

had a great saturday date with #bae 🦄💑 at @100spoons_futako 🥄🥄delicious “Little big plates” and watching The Meg 🦈🦈 in 3D review about the restaurant in my profile! #restaurantweek #review #food #foodreview #restaurant #100本のスプーン #100spoons #レストラン #tripadvisor #レビュー #二子玉川

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100spoons_futako

#100本のスプーンの離乳食 お店でお出ししている離乳食は、 小さいお客様にも オトナと同じ旬の食材を味わってほしい、 そして、いつもお家で離乳食を作っているお母さんに お出かけをもっと楽しんでもらいたい、 そんな思いから、ご提供をはじめました。 9月からは新しい秋のメニューに変わりますので、 ぜひご家族で秋の味覚を味わいに来てみて下さいね🍁 本日の#100本のスプーンの思い出 のお写真は 📷 @eri.jima さんから。 素敵なご投稿、ありがとうございます。 #100本のスプーン の投稿で、皆さまの思い出のお写真も お待ちしています。 #100本のスプーン #離乳食 #初期#中期#後期 #離乳食レシピ #知りたい方はスタッフまでお声がけ下さい #コドモがオトナに憧れて #オトナがコドモゴコロを思い出す #二子玉川 #ファミリーレストラン #二子玉川ライズ

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appalachian.possum

#100daysofselfcare day 62 Well, while all that shit was going on I tried to start my get up early every day thing and it just kinda worked. No matter what the planets are doing, some people just can not jump into something full force. And that's where I always fail because I want to see myself as someone who can. I can't. And that's fine. My hip has been reminding me daily that I am more screwed up than I let on. I accept that I have been sick for a very long time. I accept this getting better is going to take awhile and I accept that the outcome may be a lot different than what I have in mind. There are so many things that I can consider goals. But I have 2 that are the most important to me in this present time. Stuff like getting out to see friends, working on little projects, working on the house are working towards those 2 goals. This #selfcare is just leading up to obtaining my goals. I have come a long way since #100spoons was started. I can't believe how helpful this daily posting has helped 🖤 . . . . . . . . . #anxietyisaliar #deppressionisalier #mentalillness #mentalhealth #mentalhealthawareness #mentalhealthworrior #depression #anxiety #microblog #chronicallyill #chronicillness #chronicpain #spoonie #spoonielife

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100spoons_futako

#100本の夏のおすすめ 】 まだまだ暑いこんな日にぴったりなドリンク。 フレッシュのフルーツをその場で絞って作る 爽やかなオリジナルカクテルがおすすめです。 レモン、ライムのカクテルは ノンアルコール・アルコール入り どちらもご用意できますので さっぱりシュワシュワのカクテルで オトナもコドモも乾杯🥂 #100本のスプーン の投稿で、皆さまの思い出のお写真も お待ちしています。 #100本のスプーン #まだまだ暑い日々 #フレッシュフルーツ #オリジナルカクテル #コドモがオトナに憧れて #オトナがコドモゴコロを思い出す #二子玉川 #ファミリーレストラン #二子玉川ライズ

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hana__butterfly

お天気が回復してから母と二子玉川へ✨100本のスプーンでランチ🥄リトルビッグプレートでお腹いっぱい!これはラージサイズ10品、母はスモールサイズ6品。スモールサイズも食べ応えあり!おいしかった♪買いたいものも買えてよかった😉 * #二子玉川ランチ #夏のリトルビッグプレート #プレートランチ #100本のスプーン #100spoons #ファミリーレストラン #familyrestaurant #二子玉川rise #二子玉川

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livliverly

Day 79 - I made a thing! And I worked up at 5am so I'm going to bed before 10pm. Just wanted to share cause I'm flippin proud of this! #100spoons #multiplesclerosis #livingwithMS #spoonielife #spoonie

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livliverly

Day 79 - Fever I have a fever. Not because I'm sick, oh no, I have a fever because I upped my weights at the gym yesterday and in order to cope with all the micro-tears, my body has inflamed. None of the MS symptoms have decided to rear their head though, just normal fever fatigue and for once, I'm actually quite cold and turned the AC to low. (Who am I? Is this an alternative universe? Also omg it's been so long since I upped my weights) 😱 That's all right, I took some ibuprofen and have just flexed in front of the morrow for a few minutes (ow). I'm at 60lbs for best press and seated row now. I forgot the other ones but I went up about 10lbs each. Pretty stoked. I might even start reintroducing free weights if my left side behaves with the numbness. Now if you'll excuse me, I'm gonna roll with a dryer ball. #100spoons #multiplesclerosis #livingwithMS #spoonie #MSwarrior #gym #workingoutwithMS #fitnessnotweightloss #MSfit #spooniefitness #spoonielife

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livliverly

Day 78 - (these are some long days) I needed horsehair braid. An inch wide. Three metres. There was no inch horsehair braid. There was 1/3 of an inch horsehair braid. So... I got nine metres. At 25 cents a metre that's pretty good. Then I got nine metres of other trim on sale cause...yknow...That's... How things go? #100spoons #livingwithMS #fabricland #sewingstash #multiplesclerosis #spoonie #sewingstashproblems #spoonielife #crafting #cosplaysupplies

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writingbodypain

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livliverly

TW: talk of personal experiences with eating disorders Day 77 - Orthorexia When I first started on my journey of eating vegan food, I watched all the documentaries. My undergrad was half devoted to rocks and the other half to food systems. I was obsessed with the food industry and how terrible it is. The first time I did the Engine 2 challenge was as a challenge to see if I could do it. And things escalated from there. With a history of disordered eating (binge eating, obsessive restrictions), obsessing over healthy food became my norm for a while. It caused anxiety to not eat as healthy as I could. And then I would backlash the opposite direction if just eating whatever followed by immense guilt going back to restricting and eating as healthy as I thought possible. 🍉 In hindsight, none of it was eating healthy. The issue is that eating healthy and having an eating disorder can be difficult to recognise or overcome. I had to hide my previous disordered eating but my obsession with healthy eating was applauded. People see weight loss as a good thing (I dropped 30lbs in less than four weeks). People see restricting diets as a sign of discipline and someone taking care of their own health. I got so many compliments on my weight loss while I lost strength and stamina and constantly was anxious over food and what I could and could not eat. 🍉 So when I gained back 30lbs of the almost 100lbs I had lost, it was seen as a failure. Only it wasn't for me, for me it was a victory. When I was diagnosed with MS, the first pieces of advice from non-medical professionals usually were "have you tried x diet?" and "You should cut out xyz". And I say no to that every time. I eat mostly vegan now, healthy for the most part but there will be days when I eat cookies or ice cream or chips. I'll eat carbs, heck I eat bread, so much bread. Sandwiches ftw! Food can no longer dictate who I am. There are still times when I slip, when I binge eat a box of Oreos or eat nothing but raw vegetables all day, but I know its name and I have no fear. . #100spoons #multiplesclerosis #livingwithMS #spoonie #chronicillness #spoonielife

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reverendtimothy

Saturday morning is the time for #brunch 😋🤩😋 #100本のスプーン #世田谷 #100spoons #setagaya #japan

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asagi_c

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pleasemrsbutler

Day 11 - relief. I have various things I use for pain relief which I’ve talked about a lot over the last photo challenge #100spoons. But today my great relief is rain. 💧 We’ve had a heat wave here in the UK for longer than we have in my memory, I heard someone mention the 70’s and that was 2 weeks ago. And although it’s raining today it is supposed to heat up again by the end of next week. 💧 It has been so hot here, and the heat has a huge effect on my fatigue, and on my joint pain. Also a huge thing for me in terms of pain relief is heat, I mean localised heat working on specific areas that are incredibly painful. With the heat in the air being so high I haven’t been able to use my heat mat properly for over a month, maybe longer. 💧 So today I am relived that the air is cooler, leaving my joints and fatigue levels feeling better. I’m also enjoying the relief of my heat mat on my back, which is agonisingly painful today after my lovely mini-break and lots of driving. [ID: my back garden with various furniture, a table, chair and 1 of 2 parasols has blown over in the wind, rain drops are gathered on top of the furniture] . . . . . #disabilityninjas #disabilityninjasphotochallenge #relief #rain #heatmat #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicpain #chronicfatigue #chronicillness #chronicallyill #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike

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writingbodypain

I miss the sea... But I can't stay outside with so much sun... Watching this pic almost makes me feel the smell of the salty water.... #spoonielife #chronicpain #spoonietheory #100dayspoonie #100spoons #psoriasis #migraina #anxiety #fatigue #Iwantalife #staypositive #chronicallycourageous #psoriasicarthritis #arthritis #asthma #spinepain

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writingbodypain

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appalachian.possum

#100daysofselfcare day 36 Fail😂 Oh well. Day 1 of #changemylifeonemonthatatime failed. I went to sleep on my couch last night. Somehow stuffed my phone in-between the cushions and didn't hear the alarm! So I did not wake up at 6:30am. But I did wake up at 8 and I am not falling back asleep until Dad gets up. I can still start my 3 walks a week today. After my coffee😂. My #selfcare for the day is going to be making time for a couple of creative things. this is all self care. And I have felt a bit selfish and winey during this one! But I'm gonna drop some #T here. Even though it's embarrassing to do. I am still not washing my face or brushing my teeth everyday. So I am still struggling. Bad thoughts are still getting to me pretty bad. I am still vegging in front of the TV when I could totally be doing something. I am trying to do this to keep myself accountable. So how in the hell can I get myself back into the habit of these things? I know my weight is holding me back. I just run out of energy faster that before. And having my areas clean and organized helps get me to do this stuff every day, but I did it before in pretty much a house that was falling down around me.😑 Maybe I will just break these posts up during the day. #100spoons helped me so much. I was basically doing nothing for a few years. Do what my Dad needs and the animals then nothing. My mattress looks so dirty because I couldn't be bothered to put sheets on for months at a time. So yeah, I'm gonna retool this today.🖤 . . . . . . #anxietyisaliar #deppressionisalier #mentalillness #mentalhealth #mentalhealthawareness #mentalhealthworrior #depression #anxiety #microblog #chronicallyill #chronicillness #chronicpain #spoonie #spoonielife #kittensofinstagram

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livliverly

Day 76 - Feats Mode Activate It's been a couple of days. Month end at work and all that but that's work, I leave that when I go home. I had mostly just coffee today (don't worry there was a bagel and a bunch of fruit in there, too). So I was starving when I started on dinner. It got substantial: Soy ramen noodles with red curry eggplant Zoodles (like three zucchinis worth) with a sauce adjusted from a Maangchi recipe topped with red peppers and Gardein chick'n strips. It turned out a bit sour, but still tasty. Great news is that the red curry paste I used makes it taste exactly like my favourite dish from my favourite Thai place. The money I shall save! #100spoons #multiplesclerosis #livingwithMS #plantbased #veganeats #spoonie #vegandinner #easymeals #spooniecooking #cookingwithms #spoonielife

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livliverly

Day 75 - I suck at taking pictures on the elliptical. I spent all of yesterday cooking and hanging out with friends for a fabulous birthday celebration. So today, everything hurt. I did not make it to the gym first thing in the morning as I had hoped but I took pain meds and made breakfast. Rested for a while, danced around the house to warm up and then finally dragged my butt to the gym around 12:30pm. And I was feeling it today. I have upped my resistance and was pumped, so I pushed hard today. And I hit 4k in 30 minutes. It's been a long time since I have done that and it felt great. I was exhausted but always able to dig deep and push a little harder to get me there. Unlike Friday, I could push even though I definitely lost part of my vision and my leg was numb to the hip. And then, I still managed to do a light arms workout. The moral of the story here is: pre-workout works 😄 (and really, Zombies, Run! remains my main motivation to keep it up) My back is still killing me but at least I can still move. Gonna make sure I keep up my PT exercises over the next few days. #100spoons #multiplesclerosis #livingwithMS #gym #spoonie #spooniefitness #zombiesrun #fitness #spoonielife #mswarrior #fitnessmotivation #cardio #chronicillness #personalgoals #fitnessnotweightloss #chronicfatigue

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livliverly

Day 74 - Zombies, Run! I did this yesterday but by the end of the day I was so exhausted I couldn't think. So I'm posting today. I love this game. For those of you who have never encountered it, it's an audioplay married with an exercise app. You're Runner Five who crashes (literally) into the midst of the aftermath of a zombie apocalypse. This app is geared towards most fitness levels and can be used in a variety of ways. As they say in the app "anything faster than a shamble" will do, but you can turn off chases and set a constant approximate pace if you're on a treadmill, stationary bike, or elliptical rather than outside. I love it. I use it predominantly on the elliptical because that's the safest cardio for me. When my body warms up, my leg goes numb but on the elliptical that doesn't matter because I don't lift it off the machine. I remember when I started two years ago after all the relapses and months spent in bed when I could barely be on it for ten minutes on the lower settings. I found that if I set the incline above five, my hip injury starts to act up unpleasantly (probably because at 6' tall, the machine isn't quite my stride length), but I'm working on that. I'm pushing myself this weekend to go twice. Because a) I need to get back to three to four times a week and b) I wanna know what happens next! It is a lot of fun and if you need something to distract you through the monotony of the treadmill or the elliptical, I highly recommend this. #100spoons #multiplesclerosis #fitness #livingwithMS #chronicillness #spoonie #exercise #zombiesrun #spoonielife #mswarrior #spooniefitness #nerdfitness #fitnessnotweightloss #iwannapunchadinosaur

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livliverly

Day 73 - migraine Not even gonna pretend I doctored this up into anything remotely healthy. What matters is that I'm keeping it down so I can keep taking acetaminophen and ibuprofen until this migraine lets me sleep. This is what the bad days look like and sometimes you just gotta make it through. I'll get back to zucchini noodles and veggie delights tomorrow. Until then my mantra is: don't throw up, that just makes it worse. #100spoons #multiplesclerosis #livingwithMS #spoonie #chronicillness #spoonielife #accidentallyvegan #instantramen #migraines #pain #chronicmigraines #dontthrowup #livingwithmigraines #migraine

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livliverly

Day 71 - Zoodles I don't like zucchini. They're flavorless and the texture when cooked is appalling. However, I'm allergic to a slew of fruit and broccoli, so I'm trying to eat everything else even if I don't like it. Except kale and Swiss chard and even then I'd eat kale over chard which tastes like swamp water. 🍄 Anyhow, I wanted to make myself like zucchini and I have always always failed. Cue the impulse purchase of a spiralizer at 50% off and my making zucchini noodles for the first time. They cook nicely, keep a pleasant texture and absorb the flavours in which they are cooked nicely. Will this replace noodles? Not for me. (Though for folks with diabetes I can see how this would be a suitable substitution. They hold up well unlike the eggplant.) But I like them and I will have them again. 🍄 This was one spiralized zucchini and one spiralized (ish) egg plant, Portobello mushrooms, green onion, sauteed in sesame oil (mixed with canola), soy sauce, and artifacts. Super delicious. Served with Gardein chick'n sliders because easy. #100spoons #multiplesclerosis #plantbased #livingwithMS #easyveganmeals #chronicillness #cookingwithms #spooniecooking #easydinner #veganeats #zoodles #spiralizer

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writingbodypain

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livliverly

Day 71 - Trying something new Before you go "yeah you go cutting out carbs!"...no. I added rice. 😋 Now that that is our of the way, I was intrigued by the idea of rice vegetables. I don't eat as much cauliflower as I would like because it takes longer to prep and cook. The frozen sweet potato chunks are great but they're massive. We'll have to see how I feel about value. It was 3.79 for a single bag which contains maybe two servings. I cooked the mix with some frozen spinach, a lot of lime, cumin, garlic, added a cup of rice. In a separate pan, I cooked some Gardein beefless ground and onions with adobo sauce. Mixed the two together and it's delightful. I might think about adding riced veggies into my regular grocery list, especially if I can find them on sale. #100spoons #multiplesclerosis #livingwithMS #plantbased #cookingwithms #spoonie #ricedcauliflower #chronicillness #veganeats #easydinner

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livliverly

Day 70 - Camp Forgive me if this is brief, fatigue is killing me tonight. The poll was from yesterday. Y'all can guess which one @the.reading.dragon voted for lol I upped my #campnanowrimo word count goal from 17,000 to 20,000 tonight. Ideally I will hit that this weekend and up my goal again but we will see. I'm so tired I can't think straight. I'm at 15,578/20,000. So woot. But now, sleep. #100spoons #multiplesclerosis #amwriting #writersofinstagram #livingwithMS #spoonielife #nanowordsprints #writinggoals #chronicillness #spooniewriter #spoonie #chronicfatigue #wordcount

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livliverly

Day 69 - Freezer Burn Last week was rough and this week is turning out to be just as rough. These are times when I'm glad I switched my habits. My freezer is always stuffed with frozen veg, fruit, and mock meats which can easily be thrown into a pan and cooked into something. I just don't have the energy to bother with cutting and preparing food when my weeks are this bad. I like all the vegetables in the freezer and can just toss them in a hot pain with oil. Add spices I feel like and voila, food. It's also quite economical. For 1.99 I get almost two heads worth of cauliflower fleurets while a whole fresh one costs me between 3 and 5 dollars. Chopped onions? What a time saver! Chopped sweet potato... Not as cheap but have you ever tried chipping a sweet potato with painful, swollen finger joints (spoiler alert: don't try)? The convenience is amazing and instead of eating cereal, I'm eating lots of veg. #100spoons #multiplesclerosis #freezerstash #spooniecooking #livingwithMS #frozenfood #spoonie #chronicillness #spoonielife #easycooking

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livliverly

Day 68 - Do you like hot sauce? I have a migraine and today insta gave me a "vegan taco bowl" ad. It was pretty much roasted potatoes on unseasoned rice with seasoned black beans and a hint of a memory of salsa. So I had to make a rice bowl that had flavour: 1 cup cooked rice 1 cup of corn and edamame 1/2 cup Gardein beefless ground A bit of Daiya shreds Garlic, cumin, onion powder, ancho chili, cayenne pepper, salt and pepper to taste Lime juice Then topped with mango hot sauce, chipotles salsa, ranchera sauce, hot salsa, and almond yoghurt. Do you have a favourite hot sauce? What is it? #100spoons #multiplesclerosis #livingwithMS #spooniecooking #cookingwithMS #plantbased #veganeats #easyveganrecipe #spoonie #chronicillness #vegandinner #easymeals #spoonielife

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livliverly

Day 67 - sweat baby sweat Some folks look so composed when they work out. They look strong and sweat beautifully. Oh not not I LOL I look like I almost died. I'll be red and splotchy, sweating like a horse. There were folks taking selfies that probably look amazing. Oh not I, I can barely hold the camera. Does that mean I'm working harder than them? Doubtful. I'm just a glorious mess and I don't give a damn. 🏋 Half an hour on the elliptical today, following by lifting weights until my arm noodles cried. I used to go during lunch but that's not an option during summer. I will not look even semi professional. I do have to increase my frequency at the gym a lot. I find the more time between workouts, the more my hip acts up. After work may be a plan. If I can go Fridays, I end work early, Sunday, whenever I roll up to the gym, and then one more day during the week, maybe Wednesdays. Every day isn't an option because I still have to do shit like clean my house and cook and write, but I should see if I can get maybe 15-20 minutes of yoga in every day I'm not at the gym. #100spoons #multiplesclerosis #gym #livingwithMS #sweatyselfie #sweat #chronicillness #workoutplan #fitnessnotweightloss #mswarrior #spoonie #spooniefitness #notforweightloss

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livliverly

Day 66 - spicy skittles Today was kind of hell. I slept about two hours before I woke up and walking to the bathroom was more falling to the bathroom, blind in one eye and nearly deaf in one ear. I couldn't feel my leg at all and what kept me from passing out on the bathroom floor was knowing if I slept more, if feel better. And I did. I woke up again a couple more hours later and I was mostly just in pain and tired. And then I was just in pain. And then the MS hugs started. In short: today sucked with the exception of writing with Holly at Starbucks and hanging out for a bit. I'm taking benadryl and muscle relaxants and I'm gonna try again tomorrow. Oh yeah and spicy skittles are good, being care for the orange or the watermelon, but the mango ones? Those are amazing. I'm deliberately saving them for last. #100spoons #multiplesclerosis #mshug #livingwithMS #spoonie #spoonielife #chronicillness #chronicpain

1

livliverly

Day 65 - impromptu adventures Work again was rough today, but I was off early and got two pairs of flats for 15 bucks which is amazing. Then I got home and had dinner. And then impromptu went to a bookstore on the other end of the adjacent town with @the.reading.dragon to visit @penny_knock at work. 😄 📑 And I came home with Moteki which I have wanted to read since I watched Yuri on Ice. I really enjoy Kubo Mitsurou's storytelling. And anything with a character within a decade of my age is refreshing (reasons I love Tiger & Bunny, too). Also considering there was a 50% off sale (Not the abridged version of Free) that's a lot of restraint. Now I am wired at 10pm, so I'm gonna write for a few hours. #100spoons #multiplesclerosis #livingwithMS #spoonielife #booklover #manga #spoonie #books

0

pleasemrsbutler

Day 99 - the straw issue. Time for a VERY unpopular opinion, but before you chew me out please read the entire post. 🥤 Plastic disposable straws are not the only thing polluting the earth, and they are not the biggest cause of pollution, and banning them is an ableist way of trying to protect the environment. 🥤 Most of the damage done to the planet is caused by industry not disposing of things properly, and the plastic packaging and disposal straws are in fact made by industry. Surely it is their responsibility to create a useable substitute to plastic. 🥤 Before you start telling me to use paper or metal, paper is not durable enough and metal or any other products don’t bend. They are also difficult to clean which is not ideal for disabled people. 🥤 Here is why disabled people need lightweight, bendy straws. For me personally, I can have flares with my back meaning any position other than lying down is agonising, have you ever tried to drink from an open cup lying down? Sometimes I have such severe fatigue, I can’t move my neck to the correct position to drink from a cup, or even a straw which doesn’t move. 🥤 My disability is in early stages and is moderate, there are so many people with much worse symptoms than me, we deserve better than having to justify our right to stay hydrated. If straws are that much of an issue campaign the industries that make them to make in a biodegradable material that still bends and doesn’t melt or fall apart. [ID: a clear plastic straw on a coke zero can, the straw is bent and has brown specks of coke along it] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #straw

55

livliverly

Day 64 - a big pile of soba Today was fucking busy. Work got super busy, so I needed up not eating or drinking or even looking at coffee until after noon. I took my Tecfidera an hour after I had already eaten (surprisingly no major flushing). It was rough LOL I went home late again and tomorrow I already know I'll go home late as well. Extra $$$ for Dragon Con though, so there is that. So I'm gonna devour that cold soba dish I made (soba, egg plant, red pepper, smoked tofu, soy sauce, sriracha), watch The 100, and then pass the frak out for the night. #100spoons #multiplesclerosis #livingwithMS #easydinner #plantbased #spoonie #cookingwithms #vegandinner #spooniecooking #easyveganmeals #spoonielife

3

pleasemrsbutler

Day 98 - be your own cheerleader I’m not one of these people that says positive thinking can “cure” your chronic illness. That is ableist BS said to make people feel bad when they complain. That kind of rhetoric suggests it’s our fault for being ill if we ever have a negative thought. That is just bit true! 👯‍♀️ Although I don’t believe positive thoughts can cure me, I do believe they can help in some respects though. My mood is often related to my pain, when I’m feeling low my pain levels soar. When I’m happy they improve slightly. The problem is when I’m feeling low I find it hard to bring myself out of a slump. In the words of Zeus “unslumping one’s self is not easily done. 👯‍♀️ Today my mum @grandkidsmyfav sent me this lovely app called cheerleader which is free (maybe only for today) and sends out notifications of nice little inspirational messages. Hopefully this will help me unslump myself in these next two weeks which are going to be tough. Hopefully it will see me through until my next job and help me keep my head up. 👯‍♀️ So I’ve been playing around with it today, and I’m looking forward to seeing some more phrases in the morning. Oh! Also, it’s customisable! Can you guess which phrases I’ve added 🙃 [ID: a collage of motivational phrases in a gray brush font on a light pink background. The largest says “Don’t throw away your shot!” The others say “be strong. Don’t be fearful.” “Make yourself proud.” “You are the one thing in life you can control.” And “Focus on the positive.”] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #motivationalquotes #cheerleader #myowncheerleader #hamilton

6

livliverly

Day 63 - The Sippy Cup? So Starbucks introduced their new lids to help with going straw free as much as possible. Straws are important tools for people with disabilities. I know they make my life easier because with my hands I often wasn't able to lift a cup or a bottle. So I get it, but their average person (which includes myself on most days) doesn't need a straw. And I really like the solution that Starbucks offers. It's a lipped lid, so you don't have to worry about spilling all over yourself, the liquid is guided to your mouth, so if you have some difficulty drinking, it still is a very stable experience. The plastic is clear and can be recycled (straws cannot). Is it a perfect solution? No, but it definitely is a start. From what I understand, a biodegradable straw is coming as well which will be a great alternative to plastic straws and folks who want or need a straw have access to an environmentally friendly option. Of course, a reusable mug, cup, bottle, etc is best. My bottle just bit the dust, so I'll be replacing it. #100spoons #multiplesclerosis ##livingwithMS #starbucks #strawfree #chronicillness #accessibility #spoonie #reduceplasticwaste #environmentallybetter #spoonielife #environmentalism

1

pleasemrsbutler

Day 97 - neuropathy I’ve talked before about pins and needles but I didn’t realise that came under an umbrella of neuropathic pain, something that I get quite a lot. ☂️ Along with pins and needles I also get sensations like: tingling, numbness, being stabbed, having sunburn, and having bugs crawling over my skin. ☂️ I get these often but notice they are worse when I’m feeling stressed out, this weekend they were so bad that I was having entire limbs completely numb and finding it hard to work. It got so bad this weekend I actually didn’t go into work yesterday because when it gets this bad the only thing that helps is CBD and I can’t just get my vape out at work. After having a day of relaxing and not just looking for new jobs it is a lot better but still worse than normal. ☂️ I went back to work today and it was incredibly difficult. While I’m up in the air like this and while my emotions are fluctuating between upset and angry, these next two weeks will be hard. I hope this neuropathic pain calms down after that though, and that I can enjoy the summer. [ID: a boomerang of me vaping, I am wearing my glasses but no makeup, my brows are knitted and I’m not smiling] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicpain #chronicfatigue #chronicillness #chronicallyill #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #neuropathy #neuropathicpain #cbd #vapelife #chronicallychill

21

uu33

1

livliverly

Day 62 - Beyond Burger Okay, today is when A&Ws came out with their new veggie Beyond Burger. And of course, I had to head to support that and try it. I've had the Beyond patties before and they were too meaty for me but in a well dressed burger like that, it's actually really good. It is pricey, $6.99 for just the burger, but it is on par with the rest of the menu. 🍔 What I found really interesting is just how popular it is. Almost everyone ordered one which is fantastic to see. It may just be curiosity but if it can get more folks to choose the veggie option rather than the beef option, that's great. Of course that meant it wasn't as well cooked or out together as it could have been but ultimately, that's a good sign! 🍔 Note: this burger comes with mayo standard so be aware of that if you're vegan. 🍔 Not so great were the screaming children and the family which decided to spread out beside me and soothe their screaming child by being loud. I have a migraine, I'm sitting in the dark corner for a reason, but even if I did not: control your loinfruit. No one wants to hear little Timmy screech like that. Not even you. #100spoons #multiplesclerosis #beyondburger #veganfastfood #plantbased #vegan #livingwithMS #veganoption #vegetarian #chronicillness #AWCanada

1

livliverly

Day 61 - Vegan Fest So yesterday I went to my community's first vegan fest, because I really wanted some vegan donuts or ice cream. Now unfortunately, it appears that no one was prepared for it to be busy and no one seemed to be prepared that people would be lining up for vegan food more than anything, because no one really was anywhere near the educational booths which is a bit sad because they do have sanctuary farms in the area which need more exposure. The food options were either sold out, looking a bit shady considering how ward it was, or had a half hour line. There was one place which offered cheese samples but didn't have them for sale? It's fine, I've taste a lot of vegan cheeses and this one had about as much flavour as cold paste. All in all, it was pretty disappointing and felt a bit disjointed. Hopefully better luck next time? Thankfully, I was still pretty full from my vegan breakfast which reflects how badly I have to do groceries haha potato and Gardein hash, leftover baked beans, half a mini watermelon, cheez and marmite toasties, and this coldbrew mocha stuff? It's delightful. A bit pricey at 4 bucks for just under a litre but it's less than a frapp at Starbucks, so win-win. It has 6g of sugar in the label but they were a bit misleading, it's 6g per 175ml and a cup is 250ml. Still not bad but reminds me to read labels closely. #veganbreakfast #plantbased #100spoons #multiplesclerosis #livingwithMS #vegan #chronicillness #spoonie #spoonielife

0

writingbodypain

1

livliverly

Day 60 - THE TEMPERATURE HAS FALLEN It's amazing outside! So comfortable! Of course, I decided to spend my evening at Starbucks to write but yknow. It's great! Despite having had three hours of sleep, eaten barely one meal all day and not having had any caffeine until like 3pm, I'm feeling good. Kind of airy and not quite in phase with the universe but that's okay. I feel good and that's what matters. Now to write my heart out! At least 3k before I go home! #100spoons #multiplesclerosis ##livingwithMS #spoonie #amwriting #writersofinstagram #selfie #curlyhair #spooniewriter #campnanowrimo #silly #chronicillness

1

gabstar2510

#100spoons #day100 Tired mom and child and still quit shocked about toddlers operation, carrying her close to me. Thankful for every spoon, every power moment, every reader of my posts, every comment and every little 100 spoons moment. These pictures were taken in the Vondelpark. I put my phone away and walked on, giving myself and my toddler some distraction. Then a bike rides hard from the back into my back. And again I was in shock, but being able to keep Shaya safe. She sits normally in the stroller, but for once she was a moment in the swing, while she was in pain. Thank Gd we are ok, still walking and there was a very nice group of sports women who helped me out after the accident. Ofcourse my back isnt the same as before this joke but Im grateful I walk and I will go on, I will fight, I will try to spread awaremess and understanding and I hope I get to know you all. To another 100 something to write and share about😃 starting tomorrow🙌🙌 Love Gaby 💓💓 ##instadaily #instamoment #instamom #pink #toddler #momsofinstagram #kindergartners #kids #crpsawareness #chronicallyillawareness #awareness #amsterdam #spoons #spoonie #amsterdam #vondelpark #chronically #ill #accident #park #momsofinstagram

9

claramarolyn

Menu makan siang tadi.. . . Punya kebiasaan sama teman kantor kalo setiap jumat,makannya bukan di kantin kantor tapi nyobain makanan baru.. . Belum pernah ke restoran ini sebelumnya dan setelah nyoba, gw recommend... . Nama restorannya 100 Spoons.. . Jadi kalo yg lagi di Tokyo,silahkan coba makan di restoran ini,tapi siap-siap ngantri karena restoran ini lumayan terkenal.. . Harganya berkisar 300-600 ribu.. Mahal yakk?😅 Tapi itu adalah harga standard untuk lunch menu restoran dengan porsi yang banyak menurut saya.. . Halal atau ga? Kalau halal,saya kurang paham tapi daging nya sapi atau ayam, dan ada seafood juga kok.. . . So,ini adalah salah satu restoran rekomendasi saya.. . #100spoons #100spoons_futako #tokyorestaurant #lunchmenu #todaybrunch🍴

0

writingbodypain

0

gabstar2510

#100spoons #day99 Chronically ill or not, when your toddler is ill, getting an operation (toncils) you hold her, you carry her. All day, all night long. Nomatter what. If its by lifting her up or by letting her lay on you. And im grateful that Im the mama of such a terrific girl, like her sister as well. When she will feel better I can have this flair. For now Im mama bear and I live for getting her through the night. What do you hold on to? #chronicallyilllawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #mommy #crpsmom #crpssucks #nijntje #miffy #olvg #balloon #instadaily ##instamom #instamoment #mommy #momsofinstagram #toddler #girls #toncils

11

livliverly

Day 59 - It's Getting Hot In Here Time for some self care. Today is hot. 43C with the humidity (113F) and I am dying. However, that's the perfect excuse for a trip to Sephora to pick up some sheet masks. And to try out more Tatcha products. Their moisturizers don't agree with me but the rest of their skincare line seems to. The sheet mask comes drenched, so like the smart, thrifty person I am, I caaaaaarefully squeezed it while pulling out the mask and am saving the rest of the serum to use in my skincare routine for a few days (maybe more, we'll see how much I can get out of the packaging). Don't get me wrong, I'm not vain, but I like taking care of my skin. If I was told tomorrow, I had to choose between skincare and make up, I'd choose skincare. The routine itself is calming and amazing but on top of that, the reward is great. When my skin feels good, I feel good. Recently, I started breaking out constantly. On my face, my body, my ears, inside my nose. It's not because of the heat, so my guess is that my thyroid is to blame. Like okay fine just maybe not inside my nose? That hurts! #100spoons #livingwithMS #skincare #multiplesclerosis #tatcha #spoonie #tatchaluminousdewyskinmask #sheetmask #spoonielife #skincareroutine #handmask #footmask

3

gabstar2510

#100spoons #day98 What if I, being chronically ill, would become better? Even though there is no treatment right now for me available. Ofcourse there is always hope, while its nice to hold on and fantasize about that thought. If I was better again, what could I do for a living? I have no idea right now, even though I would love to go acting again after almost 10 years. Or become a doctor. Or a midwife. Or, or, or... What profession would you like if you could work again? #chronicallyillawareness #crpsawareness #crps #rsd #warrior #mommy #crpsmom #crps #pain #awareness

4

livliverly

Day 57 - Sports? Fatigue? Menstruation woes? Fennel in my mock meatballs? It's a Tuesday after a long weekend and I'm exhausted. It's taken two large coffees just to keep me going. My period has decided to just open the flood gates, we're on day four and I should be down to a trickle but that sure isn't what's happening. I actually made an effort to cook mock meat balls and there's fennel in them! 😖 I mean they have an amazing texture, but they have fennel in them. Blech. With enough garlic, they're okay. I'm hungry so it's good enough. After I eat, I'm gonna write a bit and then go to bed. #100spoons #multiplesclerosis #livingwithMS #spoonie #spoonielife

0

gabstar2510

#100spoons #day97 When you dont sleep, everything becomes worse ofcourse. How to keep your spirit up when its difficult? Do you treat yourself to something nice when you go through hard times? Shout out 😃I would love to hear! #chronicallyillawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #mommy #crpsmom ##instadaily #instamoment #instamom #pink #red #flowers #treatments #smile #love #together #toddler #instamom #momsofinstagram

6

livliverly

Day 56 - Adventures in Pseudoscience Disclaimer: you can eat however you want if it works for you and makes you feel better. This is what I personally have encountered. (And a rant because I need to) So here is the thing: not everything is solved by going gluten free. The thing I run into a lot is sudden conditions put on "easy" solutions. It isn't just gluten but other things too like dairy. Usually, I will be talking about a symptom and what's causing it and I will get one of three responses: go gluten free, go dairy free, go paleo. This is followed by me telling folks I have done all three and they have done nothing for the symptoms. In fact, I've been dairy free since before I was diagnosed with MS because my body cannot digest lactose or casein. And every time I mention this, there's a sudden disclaimer attached like "oh it takes xyz amount of time". Not everyone is like that but folks who really, really push for those choices tend to always have some sort of blame on me why it didn't work and how if I did it correctly, I could be symptom free. That's now how it works. As I said, if you're thriving on gluten free, go for it. The more people demand gluten free options, the more access there is for folks with Celiacs (of which I know a few). But really in the end, it is very often not the gluten, it's something else. I just wish people would calm down about it and just let folks eat their bread. #100spoons #livingwithMS #multiplesclerosis #spoonie #chronicillness #spoonielife #notglutenfree #pseudoscience #rant

8

gabstar2510

#100spoons #day96 Almost at the end of the awareness 100 spoons road, but I dont want to stop. Raising awareness of chronic diseases is so important. Especially when it is invisible on the outside! For instance: When someone is sitting on the floor in a store. When somebody is in a wheelchair and stands up to walk a while. When the right words wont come out When you cant eat everything Can you add some examples to this list? #chronicillnessawareness #chronically #ill #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #mommy #crpsmom #crpssucks ##instadaily #instamoment #instamom #pink #momsofinstagram #toddler #kindegartner

10

pleasemrsbutler

Day 96 - showing vulnerability Today I went back to work! I’m exhausted and very very sore (all over not just my back which I’m taking as a good sign) but I’m also very proud of myself. ✨ I’m proud that I managed to work a half day and take not push myself too much, I’m proud that I got myself back into the swing of things after two weeks of bedrest, but mostly I’m proud that I showed vulnerability in front of my pupils and the world didn’t implode. ✨ Working with 10 year olds can be hard, and despite having many mornings where I wake up feeling like I wouldn’t be able to cope I have only taken my sling stick into school 3 times, and only used it in front of children once. I have this fear that if they see weakness in me they will lose respect for me. When it comes to things they can relate to I’m open enough so they know how a person can overcome problems, but my fibromyalgia isn’t a problem I can overcome, and it isn’t a problem they can relate to. ✨ I was so worried that the child I work 1:1 with would try to run rings around me (as he does daily) but instead he got bored of how slow I was waking. I was worried the other children wouldn’t listen to me because they thought I was weak, instead they were so caring and attentive. ✨ So I went into work with 2 crutches, hobbled around, and made deflection jokes when asked “what did you do?” “Nothing I’m a transformer” luckily the children in my class were informed of my situation and understood. ✨ Look at all those chickens...I mean cards! They are such sweet kids and I’m so glad I’ve managed to come back in, there are only 2 weeks and 2 days until the summer and I’m glad I won’t miss the end of the time I’ve got to spend with these kids before they go to high school. [ID: Picture 1 - me walking on two crutches out of a bedroom doorframe looking to the right with light in my face, I’m wearing a paisley shirt and wine coloured skirt and my crutches have knitted covers in mint green, I’m wearing a back pack. Picture two - a desk covered in coloured handmade cards with messages like “we’ve missed you” and “glad you’re back” in bright coloured felt tip pens, some have pictures of flowers on.]

36

livliverly

Day 55 - Canada Day Happy Canada Day, lovelies! It was shitballs hot today. Marginally better than yesterday, still too hot for me to want to do anything other than sleep. I did wake up at 5am to watch Yuri on Concert in Osaka because there was a livestream and the movie announcement at the end of it. I love Yuri on Ice. It's figure skating and just so pure and happy, so it was a wonderful experience even If I dozed off in the middle of it. I went to bed after it was over at 7am and woke up at 10 with a migraine. So I slept some more and then went to grab ice cream and bread because it is too hot for plans today. Ate ice cream, slept until 5 or so. Took more meds, watched Luke Cake, edited some stuff, and now I'm ready for bed again. Plans are for tomorrow. #100spoons #multiplesclerosis #livingwithMS #migraine #chronicillness #spoonie #spoonielife #chronicmigraines

1

gabstar2510

#100spoons #day95 Ruben and I just found out that we know eachother for 10 years now😃💓 normally we celebrate everything we can celebrate, but right now the day was too rough. Im happy Ruben knew me already before I became chronically ill. We were only 3 months together and then I had my little accident that resulted in life chancing crps. #lifeislikeaboxofchocolates @rubenfurman #chronicallyillawareness #crpsawarness #rsd #crps #warrior #pain #awareness #amsterdam #spoons #spoonie #chargie #mommy #crpsmom #crps ##instadaily #instamoment #momsofinstagram #family #love

2

aito_eito810

ジェラピケカフェでハンバーガー🍔 キッズスペースはそんなに広くないけど可愛らしいおもちゃがたくさんあるから飽きなかったかな⁇ ♡ お茶しに100本のスプーン🥄、ここ子供連れでいつも混んでて気になってたけど、ここ離乳食無料で提供してるんだね👏 授乳室もベビーチェアもあるし、メニューには塗り絵ができるようなってるし、そりゃメロンソーダの大きさに驚くな🥄 #ジェラピケカフェ #二子玉川高島屋 #キッズスペースカフェ #100本のスプーン二子玉川 #メロンソーダって夢がある#離乳食無料でくれる #授乳室完備 #10か月 #10months #10か月baby #10monthsbaby #gelatopiquecafe #futakotamagawastation #playgroundcafe #100spoons #melonsoda

0

livliverly

Day 54 - Heatwaves Today, temperatures hit 45C (114F I think) and I was fully prepared to stay indoors. Well I was until anxiety reared its head and insisted we needed to get out of the house now now now! So I wrapped an ice pack in a pillow case and shoved it into my purse, took a full water bottle and left. I drove with the ice pack tucked behind my back. First stop was Canadian Tire to get one of those windshield reflector things you put on while parking to help keep your car from reaching temperatures which will bake cookies on the dashboard. It'll help the AC be more efficient as well. Next stop was Starbucks for coffee and then Home Sense. I found this bed set and almost bought it but I want to sleep on it because it's 80 bucks and not on sale and I avoid impulse buying things on sale as much as I possibly can. I still really want it. My comforter is starting to die and it would be a nice replacement. But I also don't want another comforter that will die after just 3 years. I have a hand-me-down silk duvet which is older than I am. So while I love novelty, I do value quality. For now though, I am working on not being super vertigo-ed anymore so I can join the regional Camp NaNo chat. #100spoons #livingwithMS #multiplesclerosis #spoonie #spoonielife #bedding #spacenerd #thisisMS #heatwave

0

livliverly

Day 53 - Fatigue I am incredibly tired today. Thankfully I had some frozen tortilla soup I could warm up and omg y'all, we got more Gardein products again! I made a chick'n burger for extra protein. It's not bad at all. Not something I would get on a regular basis but it's definitely good. Made a second one so I don't have to worry about breakfast tomorrow. The fatigue has been relentless but I don't think it's related to the heat. I'm in air conditioning all day at work and then all day at home and my car is also air conditioned so I never end up overheating for the MS fatigue to make sense. Heart palpitations have been rough, too. Gonna take the weekend and then make an appointment with my doc. #100spoons #multiplesclerosis #tortillasoup #chronicillness #spooniecooking #chronicfatigue #livingwithMS #spoonie

0

gabstar2510

#100spoons #day92 What symptom belongs to your illness, whats normal, what is not? Chronically ill people have lots of insecurities considering their health. I cant meassure if I have a high temperature or not. When I had meningitis a doctor said I didnt have meningitis while I looked too good for having meningitis. 😷😱and that after a health study of 12 years... I still suffer from the left overs of my meningitis from 8 years ago. What did your doctor tell you what was weird? #chronicallyillawareness #crpsawareness #meningitis #myphoto #crps #rsd #Amsterdam #warrior #vondelpark #kids #toddler #instamom #pink #instadaily #instamoment #mommy #doctors #spoons #spoonie #chargie #pain #awareness

1

livliverly

Day 52 - Huuuungry I'm super hungry today. My heart has been beating and tumbling about all day so that's probably from the thyroid. I had half a bunch of asparagus, half a pint of local strawberries, and a whole bunch of food I ate before I could take a picture, whoops... Speaking of thyroid, I got a call from my endocrinologist and I'm scheduled for two thyroid biopsies, one for each side. So much fun. But it's enlarged and full of nodules which means they gotta check for cancer. And probably should be checking for Hashimotos. Just another thing on the list. #100spoons #multiplesclerosis #thyroidproblems #livingwithMS #spoonie #spoonielife #fruits #asparagusseason

0

gabstar2510

#100spoons #day91 What choices do you make when you dont even have enough 'spoons' energy to shower and have breakfast on the same day? What is your priority what needs to be done? Can you postpone all the work in the household or do you need to do it anyway? #somanyquestions 😊 #chronicallyawareness #crpsawareness #crpsmom #starbucks #spoons #spoonie #crps #rsd #medication #chargie #mommy #household #work #warrior #crpswarrior #choice #illness #black #coffee #cappuccino #priority #instadaily #instamoment #instamom #toddlers #kindergartners #momsofinstsgram

1

livliverly

Day 51 - Vans x Marvel I'm a nerd in a brace so I'm not gonna writr too much cause it's difficult. BUT These arrived in the mail today. They're sold out everywhere online and I got the last pair in my size from the store I bought them from. Had to be ordered in and they arrived today. I love Captain Marvel. Have ever since EMH which isn't that long but she is super badass in it. I'm so excited for her movie next March. The details are amaZing. The starburst top hole? Ugh. I'm so happy I got them. But now I'm super tired. Not sure I'm gonna be able to even eat the strawberries I had planned to eat. So to bed with me. Jk I'm already there! #100spoons #multiplesclerosis #livingwithMS #vansxmarvel #captainmarvel #thisisMS #spoonie #spoonielife #chronicfatigue

2

gabstar2510

#100spoons #day90 Being chronically ill is an expensive topsport. You need to have somehow the money for: a very good health insurance, the right, healthy food, all the help stuff when you go out or for in the house and ofcourse... for a house that fits to your disability. Without working though, because of the chronically ill part. Do you ever stress about money? #chronicallyillawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #vondelpark #kids #toddler #instamom #pink #instadaily #instamoment #instamom #mommy #crpsmom #illness #piano #keyboard #music

6

livliverly

Day 50 - Of Ultrasounds and Migraines Today, I had an ultrasound at the local hospital. This is ahead of the endocrinologist appointment at which we decide the nodules that need to be biopsied. It was straight forward and even better, it was on time. And then I got a migraine. Probably unrelated, but that doesn't make it any less painful. Took meds, having a tiny bit of caffeine to help them even out the whole thing. It's already better than it was, I can actually stomach eating. Half a flatbread pizza and Cajun spiced veg and hash browns, simple and tasty. Also easy on the stomach. Dessert was a mango and some peanut butter to help with the meds (forgot my morning dose). Flat bread pizza is super easy: tomato puree, olive oil, salt, pepper, daiya mozzarella shreds, olives, asparagus from last night, and some chopped up Yves back bacon. In the toaster oven on setting 5 and then again on setting 3. Done. #100spoons #multiplesclerosis #livingwithMS #cookingwithms #spoonie #spoonielife #easydinner #easyveganmeals #plantbased #vegan #flatbreadpizza

0

gabstar2510

#100spoons #day89 Foodpost part 2 Vegan, I would like to. Its so much better to eat vegan especially when you are chronically ill. It might be different for everybody ofcourse, but I would like to try. I dont eat meat for like forever and I dont eat eggs at home. But I do love my cappuccino and my yoghurt. For milk I could use almondmilk or so but for yoghurt I didnt find a better alternative with no soja and sugarfree. Yoghurt calms down my very disturbed stomach (by medication) in the first place. Like pretzels, without pretzels I become so ill. I dont know why pretzels work, I guess everybody has something that works for them. The only big problem is....lots of the glutenfree food and plant based milk is too expensive. I have a small budget, while being chronically ill is just very expensive.isnt it crazy that healthy good is expensive while crap is cheap?! What helps you when your belly/stomach is upset? #chronicallyillawareness #crpsawareness #vegan #crps #pain #awareness #rsd #Amsterdam #vondelpark #instadaily #instamoment #instamom #food #foody #crap #coconutmilk #momsofinstagram #spoons #spoonie #chargie =toddler #pink #polka #mommy

3

livliverly

Day 49 - You Would Be So Beautiful If You Lost 20 Pounds So here's the thing: often when people see me eat (unless they're close friends and fam), they ask me what diet I'm on and if they're really obnoxious, they ask me how much weight I'm looking to lose. They can't seem to wrap their head around that I don't care about losing weight. 👑 Here's the thing: I used to care. I used to count calories, take diet pills, weight myself every day at the same time wearing the same thing. I used to cry when I gained weight. I used to feel accomplished when I lost weight. I would restrict calories ridiculously because that's what I was taught as a child. "You would be so beautiful, if you lost 20 pounds" The first time I heard that phrase was when I was 11 or 12. From my mother. That's when my difficult relationship with food started. I won't go into the details but we all have heard that from people close to us. And none years ago? I said fuck it all. 👑 I eat good food because I like good food. And because I've learned to hide food I hate in good and good for me food (spinach pucks go in every soup). Well except kale, cause screw kale. Anyhow, I eat well because I like eating well. Do I eat crap for me food? Of course I do. I will have ice cream or Oreos or cake or takis when the fancy strikes me. Usually that's only about once or twice a month, but I also don't keep it in the house because I'd likely eat it on low spoon days because it's easy food. 👑 But I digress. Let's go back to weight loss. Or rather my not giving a damn about it. Weight loss isn't a goal, it's a side effect. I don't own a scale. I buy a size smaller when my clothes are too big. I exercise regularly, sometimes it's on my once a week because no spoons. Sometimes it's four times a week. My doctor doesn't care how much I weigh as long as my blood work is good. I don't care how much I weigh because I love myself no matter what. And remember, weight loss is a side effect, not a goal. I used to be 340lbs, when my endo checked (for baseline cause my thyroid) I was around 260. At my lowest, I was 230, now I'm 30lbs heavier and the same size and a whole lot stronger.

11

gabstar2510

#100spoons #day88 #foodpost1 Food can make it or break it. Sugar makes inflammatory illnesses worse. So, I bake healthy cakes🍰 at home. Im quite ruined while most candy I used to like, is disgusting nowadays while Im just not used to the amount of sugar anymore. Like dutch 'ontbijtkoek'. Tomorrow foodpost 2; to vegan 😊 Did you get involved in different kind of eating habits? #chronicallyillawareness #crpsawareness #foodawareness #crps #pain #awareness #rsd #spoons #spoonie #chargie #food #food

4

pleasemrsbutler

Day 95 - giving my all. For months I’ve been giving everything I can in all situations, and at the end of the day am left unable to move, all I can do for myself is rest after giving up each of my spoons to other people. ☕️ I’ve been feeling sorry for myself with my back going and thinking “why me? Haven’t I got enough to deal with?” Then I saw this meme (which I stole from @mycornerofimagination) and realised this is exactly why. My body has forced my to stop, it’s been warning me for months and I’ve been ignoring it, finally it had to take dramatic steps to make me listen. It even tried by making my back sore last weekend; too sore for me to walk without a walking stick and what did I do? I carried I pushing myself. ☕️ I feel hugely guilty that even after 5 days of rest I can tell I still won’t be able to spend 8 hours working and will need to take some more time off, but I also know that if I don’t take more time off I won’t have fully recovered, and my cup will be empty again in absolutely no time. I will push myself back into this situation and who will I actually be helping by pushing myself that hard? ☕️ So I’ll keep trying, I’ll keep moving, I’ll keep doing what the dr has told me and I’ll refill my cup before I start trying to give myself to everyone else. ☕️ [ID: a blue background with the writing “remember to take care of yourself. You can’t pour from an empty cup.” Below and to the right is a red polka dot tea cup] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #backpain #selfcare #emptycup

9

pleasemrsbutler

Day 94 - isolation. The other day my husband joked that these objects were my “3 best friends” and this was before I was laid up with back pain. 🌵 Sometimes this illness can be extremely isolating. Sometimes you’re in so much pain you have to cancel your plans. Sometimes you’re so fatigued you know you won’t possible last for another minute so you leave an event early. Sometimes you feel so lonely you start to wonder if you’re real or if you’re a ghost watching other people live their lives around you (ok, that one is certainly not as common but when you haven’t left the house in 4 days you can start to lose grip). 🌵 I would like to shout out to those who are always there. @joshubuh who always want to make me happy, @ezzl who always reaches out, even if she’s too far to do so physically, @superadaptoid who feels like a warm hug in even in a message, my horde of spoonie friends online who are always open to me moaning in their DM’s (there are too many of you to name but you know who you are so big love) @grandkidsmyfav who almost telepathically seems to know when I need a text, call or even just kind comment on a post, and I’m lucky enough to have some friends who aren’t on insta who always reach out. I know I’m luckier than most in my position but it’s hard not to feel lonely sometimes. 🌵 [ID: a heat mat on a white sheet, lying on top are a rose cold vape pen, and a kindle with the screen off and white headphones on top, my 3 best friends] . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicallychill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #heatmat #vape #vapelife #kindle #friendshipgoals

14

gabstar2510

#100spoons #day87 Today we fed every duck-kinda-animal of Amsterdam. My inflammations were big last night, while toddler kept me awake for parts of the night. In inflammation world there is a special happy hour at night where the inflammations flair up. They dance with fire and relax after a few hours leaving the damage behind. What do you do after a broken night?🌌🌛🌛🌌 #chronicallyillawareness #crpsawareness #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #warrior #vondelpark #kids #toddler #instamom #pink #coat #summer #instadaily #instamoment #instamom #ducks #water #nature #inflammation

6

writingbodypain

0

gabstar2510

#100spoons #day87 When tight is tighter Medium is small Clothes are a huge challenge when you have pain from touching fabric. It burns in my skin like fire. It makes big scratches by knives. So, if you live in the Netherlands, you really need long clothes most of the time. Unfortunately I cant wear at all how I was used to dress myself before I became ill. Shopping online became about crps proof choices, not about what I like to wear. Im happy though online shopping exists, so Im able to feel the fabrics at home in rest and try them on when Im able to. How do you shop your clothes? #chronicallyillawareness #crpsawareness #shopping #sale #myphoto #flowerlovers #yellow #flower #crps #rsd #pain #awareness #amsterdam #spoons #spoonie #chargie #clothes #instadaily ##instamoment #kids #toddler #instamom #momsofinstagram ##warrior #warrior

1

pleasemrsbutler

Day 93 - mobility aids. Every time I end up getting a mobility aid I think it’s a massive step. ♿️ It’s a step towards a disability label that I never particularly wanted to take on board, but that I increasingly have acknowledged because I’ve had to. ♿️ Earlier in the week I was lowering myself onto the toilet while holding onto the sink and while my husband was stood nearby to help support me when it was too painful (by holding my butt) he also has had to help me get into and out of the bath every SINGLE time I’ve had a bath since we moved in October, so it was about time we bought handles so I could do it myself. ♿️ The toilet Frame is an eyesore and I may want to store it away when we have people visiting, but hey they’ve all seen it now, they even may want to use it! ♿️ So here goes, I’m disabled and I need aids to help me remain independent. I’m not ashamed that I do what I can to keep my independence so why should I be ashamed to acknowledge that I am disabled? (Also I’m hella high on back pain meds so sorry if it doesn’t make sense) . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #mobilityaid

41

gabstar2510

#100spoons day86 Like every parent it takes some arrangements when your kid is suddenly free (like a bird) from school. Especially when it is after my research treatments in the hospital which was already planned before. Its difficult to keep all the balls in the sky as a parent in the first place. How do you fill the gaps of sudden breaks from school? #chronicallyillawareness #myphoto #crpsawareness #crpsmom

5

_miho_77

2018/06/21 🍴二子玉ランチ🍴 . めっちゃ久々に母とランチ🎵 母も私もお互い夕方までに帰宅しないとならなかった為、うちと実家の間の二子玉川にて🚃 . 長男が生後3ヶ月まで3年くらい歩いて行かれるくらいの場所に住んでいたけど、ライズができてからはちゃんと行ったこと無かったのと、そこに行きたいお店があったのでランチも高島屋ではなくライズにしました🍴 . ちょっとオシャレなファミレス、"100本のスプーン" で母も私も大人のお子様ランチ🎵なプレートに😍💖 . ハンバーグもグラタンもライスコロッケも海老のスープも、少しずついろいろ頂けてとっても美味しかったです😋 🍹私はドリンクセットにライムマスカットソーダ(名前違うかも💦)を、母は単品で生ビール🍺✨ . 赤ちゃんやお子ちゃま連れにとっても優しいオシャレなレストランなので、平日の、しかもオープンすぐなのにあっという間に満席でした! . ランチの後は行ってみたかったDIYのお店や雑貨屋さんも見ることができ、また高島屋側にも行きたいところがあるし、やっぱり二子玉好きだなー💕またゆっくり来よう🎶と思いました😌 . #二子玉川#二子玉川ライズ#二子玉#二子玉ランチ #母娘ランチ#100本のスプーン#大人のお子様ランチ#インスタ映え#オシャレなファミレス#世田谷区 #futakotamagawa#rize#lunch#100spoons#family #restaurant#withmymother#tokyo

2

pleasemrsbutler

Day 92 - side effects I am trying to do this fibro thing as pharma free as possible. Sometimes when I’m having a flare (a regular fibro flare that is) I wonder why, and I wonder how long I can keep this up. 💊 But then I take medication and I realise why. The meds I’m on my for my back are naproxen and diazepam. The diazepam is making me feel as high as a kite for a solid hour after taking it, and then making me sleepy. The naproxen is making me hella nauseous, I’m supposed to take them with food but by the time my next meal comes around I can barely eat. 💊 Don’t get me wrong, I’m not someone who will avoid medication at all costs. If my doctor suggests I take medication for a specific ailment I will oblige, but the thought of taking them long term for symptoms that will never ease up, knowing that I am likely to get at least the most common side effects of any meds, makes me realise that for me I know I’m doing the right thing in using cbd and other natural remedies. 💊 Now I would like to make it very clear I don’t not think this is appropriate for everyone. I have made this decision based on the knowledge of my own body, and through a fair bit of trial and error. I think one of the most important things you can do with fibromyalgia is tune into your own body and make decisions for yourself. Don’t be afraid to have an open discussion with your medical professionals if you think something isn’t working and don’t be afraid to ask for a treatment that you think will help. . . . . . #100spoons #spoonie #spoonielife #fibromyalgia #fibrowarrior #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #sideeffects #bigpharma

38

writingbodypain

working outside helps sometimes when it's possible. Exhausting but giving the feeling of a true life.... And I cherish each proof I can socialize hence this pic. These people were my trainees today and they also were my customer.... This is also a good opportunity for me to thank my supportive husband and a friend of mine who continued to give me her trust even when knowing I'm someone who can't be as dynamic as others (I 've been hiding it for years until the "unvisible" started to be visible). A lot just let me down so I feel grateful each time I meet someone who assesses my work the good way: because I' m special I bring something special...The reward is worthy twice more when we success together. 💪 Love You P, M. S. #spoonie #smallvictories #100spoons #chronicpain #dailysponielifereport #spoontheoryinspired #psoriasicarthritis #chronicpain #autoimmunedisease #spoonielife #arthritis #asthma #butyoudontlooksick #youlooloktome #spooniework #spooniefrienship #spooniesolidarity

0

writingbodypain

0

gabstar2510

#100spoons #day86 Today we went to the library where there was 'singing with little kids'. It was fun to watch the children but most of all...it hurts, a lot, to be there, to sit there. The guitar music makes me happy, but it hurts my body. I know people dont really get that vibrations can hurt. Its like being at the dentist who is drilling into teeth and hitting a bone or a nerve. At the same time I see happy faces, help my toddler, smile at my kindergartner and be present. Afterwards Im extremely tired and I get a few big pain attacks. Thats just how daily crps life is, so I keep coming to the library for a moment anyway. #chronicallyillawareness #crpsawareness #happyfaces #amsterdam #spoons #spoonie #chargie #pain #awareness #rsd #crps #library #kids #toddler #kindergartners #guitar #medication #instadaily #instamoment #momsofinstagram #mom #crpsmom #instamom

2

pleasemrsbutler

Day 91 - life is full of surprises We do our best to adapt to a life of chronic pain and give ourselves the tools we need to keep going but sometimes our bodies have different plans. 🙀 My lower back - which I thought had been “playing up” since Friday night - has completely gone kaput and incapacitated me to a level I hadn’t been prepared for. 🙀 Because I’m so used to pushing myself more than I think I can handle, I pushed myself to go into work Monday and Tuesday this week and thought I was getting better by Tuesday but when I got home I went to bed to do some stretches and when I tried to get out of bed I found I couldn’t move. 🙀 This morning I phoned the dr and explained how much pain I was in, that I couldn’t even get to the toilet without assistance and they arranged a home visit for me, the lovely dr was very kind and gave me some suped up drugs to see me through the pain but not to take for the long term. She also said I couldn’t go back to work THIS WEEK!! I will feel lost. 🙀 So here’s how we’re taking care of me. Images left to right: 1. Cute toe socks which Josh put on me so I could tell if my feet were going numb or just cold. They were cold. 2. Finger food we had for dinner last night so I didn’t have to try to sit up.3. A jar full of chocolate button and smarties which I started putting together a while ago so I could have just a couple when I wanted a sweet snack (the buttons and socks were both from a pride themed box josh put together for me.) 4. My crutches, out from storage. 5. A list, reminding me that there things I can do in bed because I was getting quite upset with the thought of not being able to do anything. And that just isn’t the case 6. My meds. She said the diazepam will make me sleepy which is good because I already don’t sleep and last night the pain was being to loud for me to sleep. . . . . . #100spoons #spoonie #spoonielife #chronicillness #chronicallyill #chronicpain #chronicfatigue #fibromyalgia #fibrowarrior #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike #backpain #pride

14