Chdawareness Photos & Videos on Instagram

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traci_loops

First batch of Team Logan Heart Warrior bracelets are in. Please comment your name and how many you would like to order and we can schedule pick up times. They will be $1 each, thank you in advance.

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claudinephillips

“Mama, can we rest?” So we rest. Meanwhile my heart races and hurts and wonders if we are resting bc the hike is challenging to him or if his heart is weak and needs the rest. . . . . We got word on our third opinion from Children’s Hospital in Boston. Words like “ I would not consider a surgical intervention unless there was a strong desire for sports participation.” Um yes... and “ It is of course important for the family to understand that there is no zero risk management strategy, that comprehensive useful data to guide management is not yet available, and that our ability to risk-stratify patients is imperfect.” Nice. So not enough research to tell us definitively what to do. Like a heart attack is a symptom...Lord help us. . . . This mama’s heart isn’t settled. Jesus, you know the beginning and the end. And I’m SO trusting you in this one. Seriously. . . . 1 in 100 infants are born with heart disease. You never know how God will use you to tell His story. Ugh and thank you Jesus. Holding tight to you, Lord. . . . #chdawareness #chd #anomolous #anolomlouscoronaryartery #heartdisease

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plvsvltra1571

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pitterpatterart

“Do you want me to tell you something really subversive? Love is everything it’s cracked up to be. That’s why people are so cynical about it. It really is worth fighting for, being brave for, risking everything for. And the trouble is, if you don’t risk anything you risk even more.” - @erica_jong - • Thought of you @meredithtoering and your ayis and sweet babes...and our Everett. ❤️ • #everettsheart #chd #chdwarrior #chdawareness #heartwarrior #morningstarfoundation #hailtothelittlevictors

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jaxc607

201/365 Alex is HOME! Bryan and Paul made this box as Alex's urn in our wood shop. The box is beautiful and a wonderful way to remember our sweet kitty. We miss him so much, but so glad he's home with us! 💔💙😭🦁🐈 #miracleshappen #boymom #heart❤️ #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero #chdaware #heartwarrior #pcha #chddiagnosis #TOF #tetrologyoffallot #pchaohio #chdadvocacy #chdfamily #chdfunding #chdfight #chdmom #chddad #heartmom #heartdad #chdcare4life #chdaware

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bparker1786

The Rochester Athletic Club is a wonderful facility. A big thanks to @hopekidsmn for setting up a wonderful evening for my family. I was even able to squeeze a quick workout in. Today's exercise of the day is the Standing Dicks Press, my new arch nemesis. It is such a great overall exercise and shoulder builder. #rochesterathleticclub #hopekidsmn #powerlifting #strengthtraining #quickworkout #chestandshoulders #familyday #dadlife #elijahshlhsjourney #chd #chdawareness

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badassheartmom

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shelbz30_heartmama

It’s the little things, like heart shaped cheese curds ❤️ #iwearredforcharlie #chdawareness #newulm #bavarianblast

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lindsayalano

Why do I workout a lot? Because there are times when I can’t. When I am at my highest capacity health wise, I soak it up and focus my energy at the gym to reach my fitness goals. • I’m extremely grateful that I am able to workout right now! But I wouldn’t be where I am without my right hand and my go-to...my babe @j_1upfitness ❤️ He is the real workout MVP 💪🏼

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anissamaria80

This little #studmuffin has been out of a hospital for the longest ever today, and going strong. (At least from a heart/lung standpoint. Still working on the tummy) ❤️ #strikeapose #chdawareness #chdwarrior #bowenstrong #1in100

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dww98

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jensjexmark

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opheart_org

A MASSIVE THANK YOU to our sponsors & performers of this year's Backspace Charity Concert! We couldn't have put on such a fun event without you. We can't wait until next year's concert! . Sponsors: Orrick Caprock Midstream Vinson & Elkins Jones Walker Bracewell Opportune Nice Winery Griddy Qcue Duff & Phelps Moulton, Wilson & Arney Shellist, Lazarz & Slobin McGuire Woods Zecurity Weights + Measures . Performers: Amanda del Rae (Hula Hooper) Ben Kirsch (juggler) White Oak Music Hall (venue) David Ronn (band member) Jeff Dehner (band member) Dahl Thompson (band member) . And please forgive us if we have forgotten anyone. You were all awesome! . . . #CHD #congenitalheartdefect #backspace #houston #texas #houstonmusic #charity #medical3Dprinting #charityconcert #CHDawareness

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jensjexmark

Event 3 in the team championship. Max rep burpees in 1 min. Nice one in between sets of spear and axe throws. . #camp #gripenocr #lingvallen #teamspirit #teamchampionship #burpees #challenge #ocrathlete #runner #crossfit #chd #chdawareness #beatyourobstacle #fitfam #nofucksgiven

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tiaobrien80

8 years ago today, Marisa had her open heart surgery. These are some bears we put together and a story we wrote to donate to the parents of babies having heart surgery this month at Children’s Hospital. ❤️ #childrenshospital #heartwarrior #tetrologyoffallot #chdawareness

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ambyrjill

Tbt... last year during cold season, he had the rhino virus, which is just a common cold, but for Bowie it’s a week in the hospital. But he rocked the helmet!! #tapvr #tapvrbaby #tapvrstrong #chdwarrior #chd #chdawareness #chdbaby #congenitalheartdefect #rhinovirus #helmet #zipperclub #chdmom #chocchildrens #heartbaby #heartwarrior #bowiesjourney

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ryan.plus.1

Ryan is Puerto Rican today so call him Ryán, with his PMB Cologne and comb over. 🤣 His hair is smooth right now though. Vote for your favorite Ryan hair in our story!

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dww98

This boy just hit is 26th and 27th states. There will be 2 more states and much more exploring this weekend. Look for the pictures. #delaware #pennsylvania #exploringtheusa #hypoplasticleftheartsyndrome #hlhs #hlhswarrior #chdawareness #aspergers #aspergerssyndrome #autismawareness #autism

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mujtaba.m.bhatti

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heartmamachronicles

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lanstey09

Nearing the end of our family vacay, I can't stop thinking about this miracle boy and all he has been through. He starts kindergarten in September but he confided in us recently to say that he wishes he was like other boys who didnt have all the owies he had in the hospital and that he dreams "every night" of being in the hospital again. My heart tears at this - just totally destroyed. My boy, I hope that your repaired heart holds out for you for the rest of your life- I know it's not likely, but it is possible. If you need more repairs and hospital stays just know this - I can't take your pain away but I will never leave your side. And neither will your extended family - we got you. #chdawareness #heart #chdawareness #congenitalheartdefect #halfthehearttwicethefight #hypoplasticrightheart #doubleinletleftventricle #sickkidsvs #singleventricle #sickkidshospital #onedayatatime #heartfamily #heartmom #heartwarrior

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queenofcreative

*\o/* theist shipment of malas are in the mail!!! repost via @instarepost20 from @mendedheartmalas Our first set of orders have just been dropped off at the post office! Words can't describe how intensely grateful I am to everyone that has supported this cause. I'm trying so hard to keep my emotions in check because I just don't have the time to cry tears of everything all day lol. But just know, I and the entire family can't say enough how appreciative we are to everyone. Thank you , thank you, thank you! #mendedheartmalas #mended❤malas #actionjaxon #allforjaxon #iloveaheartwarrior #amendedheartisaspecialheart #chd #ebsteinsanomaly #chdawareness

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mendedheartmalas

Our first set of orders have just been dropped off at the post office! Words can't describe how intensely grateful I am to everyone that has supported this cause. I'm trying so hard to keep my emotions in check because I just don't have the time to cry tears of everything all day lol. But just know, I and the entire family can't say enough how appreciative we are to everyone. Thank you , thank you, thank you! #mendedheartmalas #mended❤malas #actionjaxon #allforjaxon #iloveaheartwarrior #amendedheartisaspecialheart #chd #ebsteinsanomaly #chdawareness

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brogan_paul

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theohhf

I know first-hand that there’s something extra special about heart warrior siblings— they are warriors too— they are sunshine, they are strong, and they walk bravely alongside their sibling with #chd and their parents, whose attention so often goes to that sib. Peter, I can see all of these things in your sweet smile ❤️ Thank you for helping us #spreadlove in this new #theohhf t... sales on the new line coming soon! #chdawareness #chdwarrior #heartmom #lovealwayswins

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mightyoakesheartfoundation

We wrapped up the work week with some big grants to help some phenomenal heart families. One was to pay rent for a scared and exhausted family who has been at their sons bedside while he recovers from surgery and a handful of unexpected set backs. The second grant is is also to help with rent, but this one for a single Mom who’s daughter just got discharged and she told us that “re-entry to the real world after being in the hospital for a few months has been much harder than I thought.” We are so happy we could help both families and make such a significant impact in their lives! ♥️✨🎉 #BeMighty #MOHFBeingMighty #Love #Hope #DoGood #CHDAwareness #HeartFamily #HeartMom

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sharethelovetoday

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itsmelucyt

When we were going through our IVF Adam said to me "at the worst its just us 2 and thats not that bad". Well last week we found our its just going to be the 3 of us and as sad as that makes me feel, I couldn't have hoped for more when we started out on this journey! #CHD #CHDawareness #HeartWarrior #IVF #Fertility #ICSI #Infertility #FertilityJourney #MumsOfInstagram #Mummy #MummyJourney #ttc #SecondaryInfertility #Miscarriage #Anxiety #BabyLoss #EndOfTheRoad

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occongenitalheartwalk

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thegrninf

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pchf1

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chels8113

We didn't get the best report yesterday but I keep telling myself that it could have been alot worse. They don't think that his pulmonary artery is growing with him. So now we have to schedule some more tests like a cardiac MRI so that we can get a better look at his heart. We will see what that gives us and go from there. Other than that the Cardiologist is very pleased with him and how great he really looks. #chd #chdawareness #heartwarrior #zipperclub #patch #myboy #myson

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manhattancardio

Regular aerobic exercise is absolutely critical to your cardiovascular health, but make sure not to needlessly risk injury! Avoid overworking yourself and always stretch before a strenuous workout. * * * #cardiology #hearthealth #nationalheartassociation #heartdisease #CHD #chdawareness #heartwarriors #hearthealthy #cardiovascularhealth #heartcare #heartdoctors

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r.o.s_babytreasurechest

We have some amazing donations over at R.O.S baby treasure chest!! Head over and take a look at the bargains we have! Our first garden sale tomorrow!! #Raysofsunshine #raisingmoney #ambassadors #poorlychildren #chdawareness

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careers_club

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joie_betz

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infoseminarkedokteran

Regrann from @littleheartfoundation_id - Siapkan generasi terbaik dengan melakukan deteksi dini bersama kedokteran fetomaternal di surabaya. Pelajari lebih dalam mengenai Penyakit Jantung Bawaan bersama narasumber dokter konsultan jantung anak nasional dan internasional. Keuntungan akan disumbangkan kepada *Yayasan Jantung Kecil Indonesia* utk membantu pejuang pejuang kecil kita. #rspremiersurabaya #rsps #seminarawam #fetomaternal #usg #chd #congenitalheartdisease #pjb #penyakitjantungbawaan #chdawareness #1in100 #littleheartcommunity #seminarkedokteran #simposium #kandungan #dokterkandungan #spog #dsa #dokterjantunganak #eventsurabaya #Surabayamaternalfetalmedicine #surabayacerdas #surabayapintar #surabayabelajar #surabayaberbagi - #regrann

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emlfoundation

Today we went to visit a Dylan, little boy we’ve known for many years but never met in person. We got to meet his mom and brother Jordan too. It’s the first time Blake has been in the hospital to see a child since Ethan was sick. It’s the first time every (that he’d remember) for Chase. They jumped right in and played video games with him. I love how, in this picture, Chase grabbed his hand and how Blake put his arm around him. We got in he car and they asked a lot of questions about Dylan and Ethan. Tonight as I put Chase to bed he said “mom, I think Dylan is going to be okay. He’s not going to die like Ethan, his heart is is good.” _ We give a lot of attention to our sick kids because we have to, but siblings, they are so tremendously impacted. It’s ever part of their lives, their thoughts, their hearts. We are just so blessed to be part of this community, to share in the lives and hearts of so many. It made my heart sing to see Dylan doing so well. He’s such a brave boy. His brother is so brave too. _ #heartstrong #heartwarrior #chd #1in100 #chdawareness #heartsiblings #brave

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kelseyjopetro

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ryan.plus.1

This guy and his hand. He loves it. I tell you, if he wasn’t using both hands to do things, I would be worried. And just looking at this picture, even though he’s propped in a corner, the mere fact that he is leaning a little forward and looking at his hand and STILL sitting is a big deal to me. We’re working hard on him getting his hands down to catch himself, but it seems he’s more fascinated in looking at it for now. I can’t even believe how big he is right now too! Who has followed this guy since he was born? Can you believe how big he looks right now??! 😩

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liza_alicia

We have a standing man!!! #chdwarrior #22q #chdawareness

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ashleyeasaurus

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lleinbach405

Eventually we will go home. As that date comes closer, I am starting to wonder if I’ll be able to care for my medically fragile child at home, by myself, with no nurses 24/7, no constant monitors watching his breathing and heart rate and oxygen levels? Will I constantly worry? Probably. I am realizing that being a heart ♥️ Mom is kind of a full time job. Medication, appointments, feeding tubes, etc. My little warrior has taught me a lot since his arrival and I know he will continue to surprise me everyday. Despite all the work, and constant worry, I feel lucky to be his mom. I wouldn’t change it for anything. #chdawareness #chd #heartbaby #congentialheartdefect #dilv

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betterblended603

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maptandf

Breakfast muffin .....Bacon,egg,avocado, tomato, feta,rocket and baby spinach 💕

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micheleenclancy

Look at him! He's such a little chunk now, and looks like such a big boy! Thankfully he's feeling much better now! After Wednesday came around and he was only getting worst, requiring more oxygen and more breathing treatments to help him. We finally got some answers, the antibiotics he was on was not treating the infection he had, so we got the antibiotics switched and within 24 hours he went from 65% to 25% oxygen! He's still his crazy self but today he's been resting and getting his beauty sleep. We are so grateful to have such a tough little guy who fights with a smile on his face. He is my hero, and I am so grateful he's mine, all mine. 🤗 #teamtad #chd #chdawareness #chdwarrior #hlhs #chargesyndrome #cleftstrong

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thehinkle5

When a nurse who cared for Ollie a handful of times during his short life sees you at the store and goes out of her way to tell you hello... She didn’t have to say hi— I didn’t see her... she didn’t care for Ollie a ton, as she helped us with his nutrition— but she remembers him... Each time this happens I’m overcome with emotion, but in a GOOD way— he’s remembered ❤️ It’s the equivalent of seeing a picture or video of him that I’ve never seen before— priceless, btw. It takes my breath away. It feels like a hello from my baby who I miss SO much. I’d be lying if I said it doesn’t hurt a little, but that’s the thing about grief... I’m reminded that he’s not here and it hurts REALLY bad, but one of my biggest fears as a grieving mother melts away— he’s not forgotten. And once again, I cross this intersection in the journey of grief when sadness and joy collide... facing what I went through, absorbing that pain, and reminding myself that the pain is a measure of my love for Ollie. But above all it goes to show how truly special he was. ❤️ Ollie ❤️ @theohhf #fridaymotivation #spreadlove #chd #chdawareness #heartmom #heartwarrior

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elfakusuma

Siapkan generasi terbaik dengan melakukan deteksi dini bersama Kedokteran Fetomaternal di Surabaya _ Pelajari lebih dalam mengenai Penyakit Jantung Bawaan / Congenital Heart Disease bersama narasumber dokter konsultan jantung anak nasional dan internasional _ Keuntungan akan disumbangkan kepada Yayasan Jantung Kecil Indonesia (YJKI) @littleheartfoundation_id untuk membantu pejuang - pejuang kecil kita❤ _ Mari bergabung bersama kami dalam acara SEMINAR AWAM : Deteksi Dini Kelainan Bawaan Janin pada Kehamilan bersama Surabaya Maternal-Fetal Medicine fokus pada Kelainan Jantung Bawaan _ 🗓Sabtu, 25 Agustus 2018 📍IBIS Surabaya City Center Hotel, Basuki Rachmat 🕓 Pkl 16.00 WIB - selesai 💸 Mulai dari Harga 125.000* . . *EARLY BIRD sampai akhir Bulan Juli *sudah termasuk makan malam, goodie bag, & turut dalam acara charity bersama Little Heart Community - Yayasan Jantung Kecil Indonesia❤ _ Deteksi Lebih Baik untuk Generasi Terbaik 👶 💯

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beckyp2018

This face when the hospital calls to tell you they cancelled your heart cath due to non authorization from your insurance but your oxygen saturation starts to go up anyways! Prayers bring faith, encouragement, and confidence. Thank you to all have been praying for our baby girl. It’s all the feels when you realize your world may have been rocked but God’s plan remains the same.

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meeteverlyjo

Just a quick fact and a quick question.. for all of you that have babies with CHD, did the hospital do genetic testing with your blood and saliva? What did you learn about the test? Tell me everything! . The one we did at Primary Children’s Hospital was part of a TEN YEAR STUDY! So much can happen in ten years! I’m just glad scientist and doctors are working on it. 💗 . . . #testing #genetictesting #genetics #causes #chd #chdawareness #chdwarrior #findacure #heartbaby #chd #hlhs #heartmom #awareness #1in100 #toomany #openheartsurgery #heartwarrior #zipperclub #infantloss #motherhood #instamama #familiesareforever #love #family #believe #Godsplan #havefaith #faith #hope #fundingforchd #keepfighting

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sharethelovetoday

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leanimoon

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mollyhemphillclimbs

18 weeks since surgery and beginning my journey towards rebuilding strength. It’s going to be a long road, but after today, I feel just that much closer! #bouldering #climbing #shouldersurgery #congenitalheartdisease #heartdisease #chd #chdawareness #chdwarrior #heartwarrior #heartwarriorninja #1in100 #strength #fitness #gym #motivation #nevergiveup #nolimits #💪 #❤️

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racheljacovino

The weekend starts and ends with my queen 👸🏻 #princessgia #warriorprincess #chdawareness #mosaicturnersawareness

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thepathwetravel

Adding to our signing repertoire! “Mom”, “more” and “hat” 🙌🏻

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prayersforkaspian

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prayersforkaspian

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prayersforkaspian

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hanpreston23

Be still my heart. Today marks one month since Emery’s birthday 🖤 So many thoughts and emotions yet no words seem right to describe how I feel. So broken yet so hopeful. One thing I do know is that I am super grateful for the opportunity we had on Sunday to celebrate Emery’s life and that I was so proud and happy to be able to share her with many of you. Thank you to everyone who came and to those who were with us in spirit. Here are a few photos from the evening. She is so loved and I love it. #infantloss #infantlossawareness #chdawareness #bestillmyheart #celebrationoflife #grievingmother #grievingwithhope

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wearredorgonaked

We need your help! If you or someone you know has a business who would like to make a donation for our 2nd Annual Golf Outing, please contact us at Matthew.Amore@WearRedOrGoNaked.org! Raffle prizes, baskets, bag stuffers, giveaways, etc!!! Please share and spread the word😊 #Donate #LongIsland #HeartWarriors #Warriors #CHd #CHDSux #Golf #FckCHD #WearRedorgoNaked #CongenitalHeartDefects #CHdAwareness #Fundraise #Fundraiser #NY #LI

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rossgfc88

Throwback to a beach visit over a year ago! #sheerness #hirschsprungsawareness #chdawareness #parentinglife #dadlife

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jaxc607

200/365 We removed the front of Paul's crib and are seeing how things go for nap time. So far so good! We had to order the front piece so he doesn't roll out of it and have to wait on the piece to be shipped as it didn't come with the bed. Such a big boy! #miracleshappen #boymom #heart❤️ #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero #chdaware #heartwarrior #pcha #chddiagnosis #TOF #tetrologyoffallot #pchaohio #chdadvocacy #chdfamily #chdfunding #chdfight #chdmom #chddad #heartmom #heartdad #chdcare4life #chdaware

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juanignaciolf

Evaluacion de equino terapia con la Dra. Beth, ella viene una vez al año. Me dijo que tengo buena fuerza en el tronco y buena movilidad 🙌🏼🙏🏼 Gracias a mi terapeuta Olga! TQM 😘

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prayersforkaspian

Thankful, Grateful, Truly Blessed Beyond All Messuares. The Lord continuiously blesses our brave little heart warrior Kaspian. #9monthsold #godisamazing #bravelittlewarrior #thankful #PrayersforKaspian #curepvs #chdawareness #instababy #photooftheday #FISHCOOL

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januarykenoyer

Thankful, Grateful, Truly Blessed Beyond All Messuares. The Lord continuiously blesses our brave little heart warrior Kaspian. #9monthsold #godisamazing #bravelittlewarrior #thankful #PrayersforKaspian #curepvs #chdawareness #instababy #photooftheday

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hannah_kristine

Mason is THREE months old! He just had his follow up cardiologist appointment and got cleared to travel, start being introduced into the pool, and has officially been taken off all medications! 💥 Weight: 12 lbs, 1 oz 💥 Height: 23 1/4” 💥 Oxygen: between 98% and 100% 💥 Heart rate: between 103 and 150 ❤️ He LOVES bath time 💔 He HATES when his arms are swaddled and has started to kick off his swaddle around his legs. ❤️ He has started to copy/mimic our facial expressions ❤️ He enjoys talking and smiling with his mom and dad, he has so much to say! ❤️ He gets super excited when music starts playing, and protests when it stops! #heartwarrior #masonjames #superheromason #threemonthsold #tga #chdwarrior #chdawareness

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babybyoakley

Cannot handle his chubby baby body and the fact that HE. IS. SITTING! 👏🏻👏🏻👏🏻 and 🙌🏻🙌🏻🙌🏻 He’s wobbly and unsteady and can only hold it for brief periods of time but we are celebrating this major milestone. 👊🏻 #bigboystatus

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abstract4hearts

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natasha_barstow

Family Never missed two humans as much as I have these two!! #eadiesjourney #familytherapy #mumofthreegirls #chdawareness

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crislynsand

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taiyari_ac

Aurorita. 5 años. DX. Estenosis aórtica valvular. Tuvo su cateterismo en marzo del 2017. She born with a congenital heart disease. Her diagnosis was valvular aortic stenosis. She had a catheterization on March, 2017. #cardiology #cardiologia #pediatrics #pediatria #cardiopatiacongenita #cardiopatiascongenitas #congenitalheartdisease #congenitalheartdefect #felicidad #happiness #happy #smile #sonrisa #smiley #ayuda #help #ong #asociacioncivil # #corazon #heart #taiyari #heartprincess #braveheart #catheterization #cateterismo #chd #chdaware #chdawareness #1in100

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our1909cottage

This little lady gets her heart checked today and lucky for her she will have her sisters for some support and to make the appointment go by faster. . C has gone through more than most, definitely me, and proves us wrong every step of the way. She is truly the strongest person I know. She has powered through two open heart surgeries, heart caths, countless exyrays. Has been poked with a needle more times that you would want to be and has taken around 50 different medications in her three years of life. . We are hopeful for the future of Pediatric Cardiology. Hopeful for a lengthened life span for child born with #congenitalheartdefect and hopeful that little girls with CHD will confidently be able to carry their own children. Putting our hats on Hope is all we can do and in the mean time relish in the craziness of now🖤 . . . . . . #heartwarrior #chdawareness #hypoplasticleftheartsyndrome #atrialseptaldefect #tricuspidatresia #pulmonaryatresia #our1909cottage #cottage #cottagelife #orangecounty #losangeles #childrenshospitallosangeles

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rhymeandrylee

This custom was created for a amazing little CHD warrior & quickly became a FAV! • Available TODAY on our website 🤗❤️

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alana_not_graceful

The @mendedheartmalas website is up and running and we are also on Facebook now! Be sure to visit all our sites, or just whichever social media you prefer 😉 the link is also in my bio. #mendedheartmalas #chdawareness #ebsteinsanomaly #heartwarrior #allforjaxon #iloveaheartwarrior #amendedheartisaspecialheart #chd #mended❤malas

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