A few of you may have heard me voicing my fears about winter, some of you will have even seen my crying on the gram. But do you really understand why?
This photo is last November when Jaxon caught bronchitis, a chest infection. Scroll right for a video of him before interventions.
He has high flow oxygen over a feeding tube in his nose & a cannula in his arm pushing fluids.
The Drs were struggling with the balance of heart and lungs. His heart needed the volume from feeds but the stomach was pressing on his diagphram making his lungs struggle.
I’d never seen my baby struggle from any of his multiple diagnosis, until this common childhood infection.
It was because of bronchitis Jaxon went onto full NG tube feeds dripping slowly into his stomach around the clock. He never returned to the bottle (see photos of once upon a time)& he’s vomited large feeds ever since - life-changing.
So again, why am I scared of winter?
Since this infection, we’ve found out Jaxons heart is 4x the size it should be and it was progressively getting worse for six months. It seems to have stabilised but is still terrifyingly huge and working overtime every second of every day.
If you add a chest infection to the mix now, whilst he’s home, essentially - it could take his life.
Reflecting on this, I’m an ever grateful for the nurseries that rejected him & the weekly struggles I have with family+friends doing shift work at our home.
If you have a child please, PLEASE be aware of the impact of common colds and illnesses have on vulnerable babies and children. Please do not just send them to nursery or school because ‘they’ll get over it’ &you’ve got a holiday booked to pay for. Children with low immune systems, with struggling organs already, may not survive what your child brushes off. OR they may have a life-changing impact.
I know the pressures of work but please do not take the risk.