Chdawareness Photos & Videos on Instagram

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tinytickers

“We were over the moon when Becky found out she was pregnant. We finally had our 20 week scan and were told everything looked healthy. 12 days after her due date our beautiful baby girl, Elsie, was born. Her feet looked slightly blue but, after being warmed with a towel, the colour improved slightly. We were discharged, thinking we were taking home a beautiful healthy daughter. We couldn’t have been happier. At one visit, the midwife noticed the colour of her hands and feet. She contacted the paediatrician to come and take a look. As soon as the doctor listened to Elise’s heart we knew something wasn’t right. They told us our baby was in great danger, and took her to the special care baby unit. Our world came crashing down around us when we were told she had a heart condition called TGA and other heart defects too. We were told she would need a children’s air ambulance to take her to hospital to preform open heart surgery. With her stats dropping dangerously low, she needed to be sedated and ventilated to be able to fly her safely. I felt like I was in a living nightmare. Elsie lay sedated with wires everywhere, she no longer looked like our little girl. I signed the consent form for her open heart surgery and, even though I knew the only other option was death, it was still heartbreaking. She was wheeled down to surgery and my wife and I were left in tears, knowing our daughter was going through such a major operation on her tiny heart which was only the size of a walnut. We are forever in debt to all the people who helped save her life. We were lucky. The thought of a congenital heart defect going unnoticed in other babies and them not being as lucky as Elsie is very disturbing. If an oxygen pulse oximeter was available in the maternity ward and had been used on Elsie, her heart condition could have been picked up before we left the hospital and our whole journey would have been less traumatic. Now Elsie is nearly fifteen months old and such a happy, beautiful girl.” Help us reach babies like Elsie this Heart Week before it’s too late. Order your free fundraising pack (link in bio). #CHD #CHDAwareness #HeartWeek2018 #Heartwarrior #Heartbaby

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sarahwood528

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the_collective_at_berrycool

Soooo! We have some super cool news!!! Next month is CHD Awareness month and on Saturday 10th Feb we are hosting our first market for the year. As well as our usual awesome live music, Markets, food trucks and kids activities we will also be raising money for an amazing cause which is very close to our hearts (pun intended) Tash, The Collective’s Creative Director’s daughter Lucy, was born with heart defects and has had 2 life saving open heart surgeries at aged 2 and 8!!! Scary huh? So, this is our way of saying thanks to @heartkids for supporting families in such terrifying times. Lucy is now a healthy and totally inspiring 13 year old girl so help us help others. For more info and to donate now, head to our Facebook page or the Heart Kids website and save the date 10th Feb ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

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sharon.lenny.steven

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michelego13

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cecilemichaelis

...and fly high, my love. I get pulled in both directions of grief—letting go and holding on. There is no right or wrong way, but there is certainly a harder way to see the road. Grappling at these constant thoughts, I'm reminded by her free spirit—the one she had on Earth, and there is no denying she has carried that with her. . #kcnhlifeasweknowit #mamagrief #mamagriefcommunity #BeFree #CHDawareness #illustration #sketchable #cmichaelisillustration #digitalillustration

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mabonengheartandlungs

#StethoscopeSays #FridayFactDay 👨‍⚕️👩‍⚕️ Pulmonary atresia is considered a ‘critical’ #CHD - meaning attention is required immediately after birth ❣️ In both types of #pulmonaryatresia the pulmonary valve is non-existent, meaning no blood can flow through the pulmonary artery to the #lungs to pick up #oxygen 💨 #MabonengHeartandLungs #CHDawareness

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pchf1

Every year we aim for 365 heart surgeries of CHD patients and try to bring them back to the normal life. Your financial support has always been a great help so far. Donate to PCHF and help us save more lives. #CHD #chdawareness #chdpakistan #pakistan #PCHF

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aliciagestro

Today was echo day for Quin, the anxious feeling of not knowing never gets easier ❤💙 #coarctationoftheaorta #chdwarrior #chdawareness #thomasandquinsheartjourney #alwayslivinginlimbo

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tannergfrey

Hey guys, long story short we had to start a new @tommytoughfoundation Instagram account. Sorry for the hassle but please follow the new link if interested. Thanks #Repost @tommytoughfoundation ・・・ We are so excited for our first major Tommy Tough event! It has to do with tennis and @utahtennis. Can't wait to share more details! 🎾❤ #tommytough #chdawareness #chd #chdwarrior #heartkid #heartwarrior @deedee_nelson @utahtenniscamps

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alviandcams

TBT To when Camila Faith was born. Her nurses used to tell me how dainty she was and how she looked like a little doll. Lately I find Camila looking like such a big girl 😫 but at the same time she’s still my little baby I brought home from the nicu. . . . . . . #misscamilafaith #lifeisbetterwithyou #t21 #trisomy21 #downsydrome #trisomy21rocks #ds #dsdn #lifewithds #nothingdownabouther #nothingdownaboutit #downsyndromecutie #downsyndromlove #downsyndromerocks #theluckyfew #downrightperfect #upsyndrome #chd #chdawareness #chdwarrior #zipperclub #downsyndromeisbeautifull #alllifeisprecious #morealikethandiffrent #chromosomecutie #changingthefaceofbeauty #upwithdown

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different_kind_of_perfect

Hi handsome!! Love getting these pictures while at work. Latest stats... 16.92 pounds, 26 inches long. Go buddy!!! We could not be prouder of you. ❤💛💙

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hedlundfamilyheartbeat

I love this pic. He now has over 750 beads. I’m debating ordering 100 yellow beads to cover his NICU stay. He’s such a warrior. He worked so hard at Therapies today. He is making so much progress. We have such a long and scary road ahead of us, but if he can face it so can I. #jacemichael #heartwarrior #chdsurvivor #chdawareness #t21 #mosaicdownsyndrome #pulmonaryhypertension #theluckyfew #warriorbaby #beadsofcourage #beadstrong

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twicetheheart_

(Sorry for the spam of pictures) Having had a heart transplant I know that the clinic visits, lab work, EKGs, echos, and caths will never stop. No matter what medical conditions show up or get better, I will always be in a complex situation. However I still have great times outside of the hospital and I don’t share them nearly enough. I have yet to go more than a few months without being admitted since receiving my LVAD, but during those periods of freedom I’ve been able to do so many fun and amazing things! Baseball is a huge part of that in case you couldn’t guess haha! It’s so exciting being at a game cheering on my favorite team! I love being able to forget about everything and just live in the moment.

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alviandcams

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this.little.heart.of.mine

Every pregnant woman dreams about what life is going to be like once their baby arrives. They dream about taking them home for the first time, putting them in the nursery they spent many meticulous hours decorating. They dream about showing off their brand new babe to their families and friends. I had those dreams too, and for some reason they became even more magnified after hearing my baby's diagnosis. The problem was, those dreams didn't have a newborn baby in them anymore. It was very hard to picture how those experiences would look now. I had a hard time thinking about what life was going to be like immediately after our baby was born. I didn't want to think about Hospital stays or open heart surgery. I didn't want to think about sleepless nights that were due to stress. I wanted sleepless nights because I had a hungry, healthy newborn. A couple weeks after our appointment in Winnipeg the geneticist called me. They had the results from our amnio. Our baby had no chromosomal abnormalities. I was so relieved. The geneticist told me that with the amnio they also knew the gender of our baby, and asked if I would like to know. I asked that she call me back after we hung-up and leave me a voicemail message with the gender. Kevin and I had originally not wanted to know the gender of our baby, we wanted the excitement of waiting until the birth, to hear our midwife announce it while handing the baby to me. But after hearing our baby's diagnosis we wanted something to lift our spirits, we needed something to celebrate. So, when Kevin came home from work that evening we sat down together, we put my phone on speaker and played the voicemail. Staring at my phone we heard, "your baby has the typical XX chromosome, which is what we see in girls." I was grinning from ear to ear with excitement. I always wanted a girl, I always pictured Kevin with a little girl sitting on his shoulders giggling away. Kevin was just as happy. Suddenly things were brighter, we had something to picture in our heads. We were having a little girl! #ellakaitlynwaldner #chd #chdawareness #chdaware #chdwarriorprincess #hlhs #babygirl #babygirlnursery #thislittleheartofmine #thisisourstory

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enya_serandour

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amyjodoin

Just what my feet need after a long day of chasing babies! #twins #momoftwins #tiredfeet

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heartwarriors.will.and.lucia

Here’s a wonderful article by a strong and inspiring heart mama I’ve had the pleasure to get to know a bit. Whitney really captures so much in this article about dealing with your child’s OHS. You can also find the link in her bio @wlr211 💞 https://themighty.com/2018/01/how-to-survive-your-childs-open-heart-surgery/

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itsmarieslife

At this point I’m lost for words..I don’t know God’s plan all I can do is trust in him.. another leak in his heart was found we go back to UCLA next week. There’s no obstacle we can’t overcome,JesseJames is such a strong little guy he will continue to fight with every beat of his little heart ❤️ I know he will eventually win this battle... He’s been my hero since day one and has opened my eyes to so much..his strength and courage is what defines him no matter what he will always be my little heart warrior 💙 #chdwarrior #chdawareness #chdbaby #chdangel #myhero #heartwarrior #jessejames

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amazing_gracie_girl

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everydaywitheaston

Birthday Countdown: T W O M O N T H S Easton’s second month of life was a good one. We got to take him to church. He was finally able to meet my younger nieces and nephews (people under the age of 18 weren’t allowed in the NICU). We celebrated our first World Down syndrome day with my amazing Barrett family. He had his lip and tongue ties corrected. But, the best thing of all was going to what would be our very LAST cardiologist appointment. Going in to the appointment, I had no idea what lay ahead. The last time we looked he still had that “pretty sizeable” hole in his heart (VSD). We were told he could need open heart surgery. After doing his echo- the doctor came in to tell us that there was no longer any hole to be found. His heart was completely healed, and he didn’t want to see us back there ever again!! BEST. NEWS. EVER. A huge weight had been lifted off my shoulders. I remember running to the car with Easton to cry tears of joy, and call everyone I knew to tell them that my prayers had been answered. Month two was definitely one to be remembered. 💛 #powerofprayer . . . . . . . . . . . #downsyndrome #downsyndromeawareness #downsyndromelove #mamasboy #boymom #babyboy #lifeisbetterwithyou #momentslikethese #letthembelittle #babiesofinstagram #babiesofig #photooftheday #theluckyfew #morealikethandifferent #nothingdownaboutit #trisomy21 #shouttheirworth #2monthsold #t21 #dsdn #homiewithanextrachromie #clickinmoms #momswithcameras #throwbackthursday #tbt #tbthursday #chd #chdawareness #lovecarters

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joshua_yeary

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brigittazatko

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thecreativeheartwarrior

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wearredorgonaked

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andiesnest

Life for the next few weeks... So a few updates, so after Penelope’s surgery she experienced heart block and it usually comes back within 10 days. The doctor wasn’t worried about because it’s very common with surgery Penelope had. That’s why I haven’t mentioned it here. Yesterday they tested to see if the rhythm of the bottom chamber had come back and it hasn’t, so it’s been 8 days post surgery and they don’t believe it will come back, it may... but it hasn’t. So when they closed Penelope’s chest 4 days ago they placed a pacemaker thinking most likely she will be dependent on it. • Another thing that we are dealing with right now is a chylothorax effusion, of course we are. Apparently because she had on after she had her bidirectional Glenn, she was susceptible to it. 😣 So we are dealing with lower O2’s, heavy breathing and very wet chest/lungs. If anyone remembers about what had to deal with this, you know it was very stubborn last time and we had a longer hospital stay. As of today they put Penelope on a nonfat diet and on oxygen. If you go on my profile I will link what a chylothorax effusion is. • Overall Penelope looks so much better, she is scared with everything going on, but she is still making good progress. Just few issues we need to overcome. 🙏🏼 It has been so humbling to see all the love we have received. Penelope has a strong team of prayer warriors and we will always be forever grateful. Thank you! 🙏🏼 • #penelopemila #pennygirl #mysupergirl #chdwarrior #chd #chdawareness #brave #littleandbrave #mylittlestsuperhero #stronggirl #daybyday #heartmama #motherhood #honestmotherhood #momlife #uniteinmotherhood #godhealsthebrokenhearted

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jennifer_frances_b

Super cute pillow, right?! But it also serves a purpose. It was designed with the assistance of a surgeon specifically for kiddos recovering from open heart surgery. It attaches to seatbelts for comfort and safety in the car and can be used when she has to cough or sneeze during recovery. Angels for Hearts is a local nonprofit that provides endless amazing and unique opportunities to heart kiddos like Ava as well as to their siblings. They have become dear friends in the last 10 years, too. Thank you to Kim, the entire Kaufman family and everyone at A4H for making these pillows available to our babies. Ava can’t wait to collect all the signatures on hers. ❤️💙 #chd #chdawareness #zipperclub #zipperclubmember #heartofawarrior #pacemakerpowered #mightyava

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single_mama_getting_fit_again

I could’ve pushed today’s run off until tomorrow. I have a few good “reasons” to do so but I know they weren’t Reasons...they were excuses. So, I went. And I did it. It wasn’t easy. And it certainly wasn’t pretty. But, it’s done 🙌🏻 #irun4kian #chdawareness #tattooedrunner #motherrunner #runnersdoitbetter #marathoner #unitedairlinesnychalf2018 #2018goldchallenge #1000milesin2018 #dreadmill #satanssidewalk

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princessaudrii_heartwarrior

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happyredhead75

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sarah_jarnagin

We CAN do hard things// tears are allowed

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cariwhalen

We delivered 90 HATS to the AHA today in honor of Emma Grace for Congenital Heart Disease Awareness next month! And we have still have more coming! I couldn’t have imagined that my small request would have produced those numbers! THANK YOU deeply for everyone who helped me to honor Emma. We will be back to Louisville on Monday and will deliver more hats then. 😍 PS. Feel free to share #CHDAwareness #LittleHatsBigHearts #SuckitCHD @american_heart

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lindsayalano

In honor of the upcoming heart awareness month, I thought I’d throw in this #tbt, to get us ready to spread awareness in February! • I literally owe my life to this man, Dr. Lamberti. He performed all my open heart surgeries (over 24 years ago 😱) and STILL practices today!!! That is crazy awesome because he must be in his mid 70s. He is truly a gift to so many heart families! • Heart Warriors, raise your hand if you can’t thank your heart surgeon enough 🙋🏼‍♀️!

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valerie3582

Yesterday marked one year that we got Joshua's HLHS diagnosis. I'm still amazed at what my Maternal-Fetal Medicine Doctor saw, or rather, didn't see on Joshua's teeny tiny 16 week in-utero heart. Not everyone is as lucky as we are to get set up with the doctors and plans that we did. Joshua's HLHS would have been fatal without intervention. Congenital heart defects are the most common type of birth defect in the United States. 1 in 100. Friends and family, if you or anyone you know is expecting, please encourage them to get their 20 week anatomy ultrasound. We had no reason to think we'd have a sick baby. We have 3 other very healthy kids. I can count the number of times they've all needed antibiotics on one hand. Yet, here we are. BUT modern medicine is incredible... and HERE WE ARE! #hlhs #halfahearttwicethefight #chd #1in100 #chdawareness #weloveourcardiologists #butthatsilencewasinsane #imsorrysophia #joshuasjourney

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tancadd4

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jaxc607

18/365 #tbt #tbthursday, almost 17 months ago. Baby Paul, less than 8 hours post op from a full repair, open heart surgery! He was sitting up with assistance asking for a bottle. I reflect on this photo when I'm having a rough day thinking how strong he is and I remind myself that I can keep pushing and fighting and moving forward. My son is a ROCKSTAR and my hero! ❤ #heart❤️ #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero #tetrologyoffallot #TOF

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the_chd_life

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mama_of_a_heart_warrior

Life outside the hospital has flashed by us these last few months. At the beginning of November, Isaiah had his third open heart surgery. It failed and so he had to undergo a fourth open heart surgery at the end of November. Recovery has been difficult with some very scary complications along the way. I'm blown away by Isaiah's bravery and sweetness, and I am overly proud that in the midst of everything he still uses his manners, imagination, and blows kisses. We've been home for a few days now, and we are busy turning the living room into a fort city, playing tag, and balancing medications and cardiologist visits. Here's the last hospital fort we built before he was discharged- Isaiah's recovery [and our fort building] have been improving ever since. #mysweetson #lifeisgood #bravelittlewarrior #chdwarrior #heartwarrior #hearthero #chdawareness #sickkidsvs #sickkidsvstheodds #fortbuilding

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lupus_fighter

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thecreativeheartwarrior

Excited to share the latest addition to my #etsy shop: Fight For Life CHD Awareness Ribbon Vinyl Decal #chd #creativeheartwarrior #awareness #chdawareness #accessories #red #black http://etsy.me/2DNK3X9

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hrspell22

We are ready for heart month in February! More specifically congenital heart defect (chd) awareness week February 7-14. Statistics show 1 in 100 births will result in a chd. Join us for a 5K to honor sweet Emma Kate. Vivi Kate and our family thank you! Vivs and Caroline are ready! Thank you April Penn Bowden for the sweet knit hat. I can’t thank you enough for your contribution to this cause that is so near to our hearts. Love you friend! #chdawareness #hlhswarrior #viviennekate Link for 5K is in comments.❤️

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mrs_carol_johns

Toby and I have been creating these tonight with some new beads that arrived today! We need to discuss pricing tomorrow as he hasn’t decided quite yet. I don’t think £14 is appropriate do you?! 😆 💚💛💜💗💙🖤❤️🧡 #lovefromtoby #handmadebracelets #chdawareness

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brokenheartedfitness

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americanheartla

100 little red hats from one amazing crochet teacher and volunteer. Thank you @kimbot87! If you’re making hats for our #littlehatsbighearts program, tag us on your pictures. We’d love to see! #littlehatsla #knittersofinstagram #knitting #crochet #crocheting #baby #newborn #heartdiseaseawareness #chdawareness #chd

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ashley.havens321

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bassitnawaz

Isn’t it amazing?! How for a individual receiving a new heart is a gruelling, gratifying experience. Someone who’s heart is compromised is given a second chance at life ❤️ Did you know* The idea of replacing a bad organ with a good one has been documented in ancient mythology.

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kait_harrison

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shinebrightorion

So many BIG BOY things lately. I think my ❤️is gonna explode!!! At 11 months, Orion evaluated at only 4-5 months of age. His delays were significant so we increased his therapy. In just 3 short months, he has shown tremendous progress. Go Orion!!! We are so proud of you. @elavate

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avasheartproject

It is with great sadness that we announce the passing of Dr. Francois Fontan, who in 1971 created the Fontan procedure that has given life to so many children.. our sweet Ava will have this procedure sometime before the age of 4. Thank you for your contribution to Children’s Medicine. ❤️ #chdawareness #chdaware #hearthealth #surgicalprocedure

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allisonbelenhernandez

Share & Tag your friends ♥️ JOIN US for Mended Little Hearts 4th Annual Roar 'N Run Virtual Charity Race Participants can pick their distance goal 5K , 10K, 13.1 miles or 26.2 miles Then run, jog or walk your distance ANY TIME and ANY WHERE this is a VIRTUAL RACE during CHD Awareness Week, February 7 -14. Registration Cost: Adults $25 and Children 13 only $15. ALL participants receive a commemorative medal and a certificate of completion. You can join our team “Team Baby Allison” or donate to help us meet our fundraising goals. Fundraising prizes for individuals are: $100 raised--a MLH lion drawstring backpack $500 raised--a stainless yeti-style MLH tumbler $1000 raised--a MLH blanket By participating in this event, you are not only helping Mended Little Hearts create awareness of CHD, the most common birth defect in the USA, but you also are helping us directly support families of children with CHD. All proceeds from the event will be going to our Bravery Bag program. https://www.crowdrise.com/o/en/campaign/team-baby-allison-/allisonbelen LINK ON BIO #chdawareness #hypoplasticleftheartsyndrome #hlhs #heartwarriorprincess #chd #allisonbelenhernandez #rainbowbaby #turnersyndrome

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reneachristinamelissa

I’ve been hesitant for the longest time to post my sons pictures on here which is why all you see is me on my Instagram. because you never know if someone is going to try to steal his pictures and use them as their own or be a creeper! But I feel like im doing a disservice by not sharing him on here. So you will see more of him. You can also follow me on Facebook to see more! #chdawareness #trachawareness

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abstract4hearts

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talkinmedicine

My name is Maria, and I’m 23 years old. At some point in the past four months I was infected with Sepsis, a deadly infection of the blood. After a month of severe symptoms my angel of a mother talked me into seeing a doctor, which resulted in my admittance to the hospital for treatment. After further investigation, the doctors discovered that the infection had reached my heart, resulting in endocarditis which had destroyed an abnormal valve I had no prior knowledge of (supposedly abnormal since birth). On November 20, 2017 I was moved to Vancouver General Hospital for a surgery with two possible outcomes - a mitral valve replacement or repair. The repair was managed with the use of tissues pre existing in my body. In two short weeks I have made incredible progress, better than expected actually. I’m still on an array of medications and IV antibiotics to treat both the infection and manage my heart function, I have a lot of weight to gain back and look sicker than I feel due to the weight loss, and a ways to go before I can get back into the swing of my regular routine. HOWEVER, I’ve gained back about 50% of my upper body strength and mobility, I can go for walks without nausea or heart palpitations, sleep without sleeping pills, take Tylenol rather than Oxycontin for pain, have an appetite, no longer feel blue or depressed, I am able to live independently with some help with grocery shopping etc., and have impressed all of my doctors with how comfortable I have become despite the circumstances. The biggest difficulty though, has been finding other people with similar experiences. I’m not the typical candidate for OHS, as a healthy, fit, young woman. Scars Are Beautiful has been a godsend in finding others with their own yet similar stories, Maria." @mariaesthete @scarsarebeautifulproject . . . #SCARSAREBEAUTIFUL #scarsarebeautifulproject #openheartsurgery #zipperclub #vancouver #portraitphotography #positivebodyimage #1in100 #victoria #endocarditis #selflove #heartdisease #chdawareness #chd #vancouverphotography #selfcare #rockyourscar #hearthealth #fitness #healthyliving #healthylifestyle #hearttransplant

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fitheartmom27

2

_mallory.t

0

livinglifeloved

Very grateful for the life of Dr. Fontan and his groundbreaking heart surgery that enabled my brother to live through an otherwise incurable diagnosis. He leaves a legacy that lives on in so many hearts - literally! 💕💚💙💕 #CHDwarrior #CHDsucks #CHDawareness #RememberingVJ #SketcHEART #fontanprocedure #asd #vsd #trucuspidatresia

1

ryan.plus.1

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avasheartproject

Next Month is #chdawareness month.. we have got some awesome things in store..

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kim_modelsc

2

w.o.b.h

In January 2017, at 18 weeks pregnant, I found out that I was having a girl. The doctor called me the next day because she had some concerns about the ultrasound, and she asked me to come in later that day to discuss the ultrasound and my genetic testing. All day I was worried and anxious. She explained to me that my baby had a heart defect and that my genetic testing indicated that I was high risk for having a baby with Down syndrome. She set up an appointment at Vanderbilt for more testing. Later that week, the cardiologist confirmed that my baby had a heart defect. She had an atrioventricular septal defect (AVSD), which is very common in babies with Down syndrome, and she would need surgery when she was 4-6 months old. I also found out during this time that I had gestational diabetes, so everything was so overwhelming. On June 1st, when I was 36 weeks pregnant, I went for a regular checkup and was rushed to have an emergency C-section because my baby’s heart rate was going up and down. At 2:10, Janiya was born weighing 6lbs 1oz. She spent her first night in the NICU because her blood sugar was low, but we were discharged after three days. When Janiya was 4 weeks old, I rushed her to the ER because she was having trouble breathing. She had some fluid in her lungs and was started on some medicines, then we were discharged the next day. ----continue story in the comment section-----

5

michele.barilla

Nico's heart surgeon recognized as The Top Doctor he is ❤❤❤ We are forever grateful to Dr Setty and are happy to see him get this well-deserved honor. #CHDAwareness #HeartWarriors #DrSetty #Grateful #MillerChildrensHospital #HeartSurgery #TopDoc #HeartDoctor #CHD #OHSTwoTimes

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avasheartproject

WALNUT: the size of a newborn baby’s heart. Imagine having to operate on this.. #chdawareness #chdwarrior #hearthealth #heartwarrior #newborn

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zacharysmission

So many sweet hats being made by our volunteers for our Baby’s First Valentine’s Day Photo Shoot. #VolunteersRock #ShareYourHeart #CHDAwareness

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the.life.of.lameeha

21 July And we are home... sweet home! Excited to see her big brother. Just a few more meds added to her long list of daily medication, together with nabs to have her nebulized every few hours to clear that chest. Shes still coughing and that will take a while to clear up completely. Otherwise all is good... We have a check up at Cardiology in a few days. . . . #CHDLameeha #livingwithlameeha #livingwithCHD #CHDsurvivor #CHDwarriorprincess #1in100 #ZIPPERclubmember #scarsarebeautiful #heartwarrior #gtubebaby #CHDawareness #withawarenessthereisgreaterresearch #withawarenesscomeschange #prayforLameeha

5

swedest_la

Morning marathon training. See link in bio for Jon’s upcoming charity run. #SwedestMoments

4

joyforcaden

One of my favorite views! Watching Caden’s legacy live on through love and support makes my mama heart so happy ❤️ . Are you or someone you know expecting a baby with a congenital heart defect? Make sure to request a bag today using the link in our bio! ❤️you can gift them or request one for yourself❤️ . . . . #hlhs #tapvr #chd #congenitalheartdefect #preggo #expecting #warrior #chdaware #chdawareness #heartwarrior #joy #hypoplasticleftheartsyndrome #tga #chdlife #openheartsurgery #heartkids #heartbaby #heart #tetrologyoffallot #tof #1in100 #nonprofit #spreadhope

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