Chdwarrior Photos & Videos on Instagram

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julianswarriors

Julian’s first hippotherapy session! Horseback riding with physical and occupational therapists is a great way to improve coordination, balance and strength! 🐎☺️❤️ . . . . #hippotherapy #chdawareness #chdwarrior #julianswarriors #lowmuscletone #strength #balance #coordination #horsebackriding

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the.busy.babywearer

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auniqueticker

Did you know that I have an account on wordpress as well to! I just posted a blog up yesterday. My blog posts cover my daiyly life with a bit more detail. I invite you to go take a peak on wordpress if you'd like to know more on who I am! Thank you for all the follows! Almost at 100 on my instagram account!!! #follow #heart #chdwarrior #chdadult #tetrologyoffallot #tof #chd1in100 #chdawareness #myjourney #my story #welcometoit #rosary #catholic #prayer #heart #love #newvalvecomingsoon #operation #surgery #melodyvalve #replacement #faith #journey #pray

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_badchoices

What a difference a year makes! Couldn’t be more proud of my little warrior, he’s a little ray of sunshine who said ‘love you’ for the first time today! #chdwarrior #beautifulboy #heartmurmur #15monthsold #tga #coa #vsd #postopcomplications #amazingchild #sonbeam #proudparents #funnyboy #cheeky #proudmummy #keepswimming #love #myson

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lindsayalano

This time last year, my new diagnosis of PLE was winning the battle. Many times when I would call my cardio team, explaining my flare ups, they would refer me to the ER. I started going so often that the ER staff knew who I was. I hope no one finds themself in a situation where they don’t know where to turn to for answers/help. But if you do find yourself in a place where health seems hopeless, never give up on finding a solution. Always be your best advocate. Don’t be afraid to ask for second opinions or to do a little research of your own. If you are prescribed medication from a doctor, always be sure you know why they are placing you on it and any side effects to look out for. Bring your medical charts to appointments or know how to access them quickly. One year ago, I was learning how to be my own advocate and do all of those things. And because of it, I am 6+ months free from an ER visit and my PLE is managed. Listen to your body and never ever give up!!

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marii.be11

He was just not having it today, Praying for good news only! #Echocardiogram #YearlyHeartCheckUp #CHD #CHDWarrior #TCH #TOF #TetralogyOfFallotSurvivor

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lauren.shelor

My whole heart 💙💛

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raising_wesley

DAY 14! The day I’ve been waiting for so we could take Wesley’s nasty bandage off. So of course as soon as we opened our eyes this morning, we put him straight in the bath! Here’s the before and after. It looks so good! It was a little frightening to take off, but it turned out fine. Now to conquer the redness! . . . #raisingwesley #nothingdownaboutit #downsyndrome #downsyndromelove #upsyndrome #theluckyfew #trisomy21 #joyinthelittlethings #downsyndromemom #homiewithanextrachromie #nothingdownabouthim #celebratethelittlethings #tubiebaby #o2crew #wesleystevenpost #iamable #morealikethandifferent #t21 #t21love #changingthefaceofbeauty #chdwarrior #chdawareness #asdclosure #openheartsurgery

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2heartsdenver

4 R 2HEARTS Warriors! You are Amazing!! #chdwarriorsrock #2HEARTSWARRIORS #chdawareness #chdwarrior

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trisomy18mama

“Christmas waves this magic wand over the earth, and behold... Everything is softer and more beautiful.” . Day 18 of 🎄 25 Days of Christmas with Lillian 🎄 . Lillian had a busy day yesterday! She got out of the house for her first out of home therapy session since getting sick. Mama even muscled o2 tanks there (for the first time) because she was still on a bit of o2 at the time! I was able to wean her completely off o2 overnight so I’m praying hard that we are done with needing it so we can drop her vent settings back down soon. Keep praying with us that we will be able to completely wean her off the vent. If I could only have one more Christmas gift for the rest of my life, it would be that Lillian could wean from the vent and live a long happy life without it. . Christmas Game: In what state (or country for those of you outside of the US) will you be spending Christmas? 🗺 🎄 . . . 🌸PLEASE SHARE! . . . . #trisomy18 #trisomy18princess . . . #fortheloveoflillian #godisgood #miraclebaby #chdawareness #heartwarrior #trachbaby #morethan10percent #perfect #chdwarrior #trachlife #tubie #toddlerlife #warrior #compatiblewithlife #motherhood #motherhoodinspiring #mom #baby #beautiful #cute #babiesofinstagram #kidsofinstagram #follow #love #life

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jdavall28

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openheart2fitness

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heartwarriormum

When your little rock star has a great check up before Christmas, and gained length as well as weight! His first chocolate baby biscuit treat is going down well. #heyjude #whenfoodislife #heinzbaby #chdbaby #chdwarrior #chdmom #chdawareness #heartwarrior #heartwarriormom #dilv #doubleinketleftventricle #TGA #VSD #1in100 #birminghamchildrenshospital #bornwithabrokenheart

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fiercegeorgiaonmymind

Today we have a pediatrician appointment to get some answers on Georgia being so "off" the last few days, but I am thinking it may actually be a UTI and not a stomach bug. That would also make sense with her renal ultrasound findings, that we are still waiting on a nephrologist to assess. . We are also getting her orthotics resized today, as little miss has gotten pretty good at escaping from her AFO... shoe and all. . Please pray that this is an easy fix for us and we can get Georgia back to her normal life! . As always, feel free to like, comment, and share. . #hopefortrisomy #childofgod #georgiaonmymind #trisomy18 #edwardssyndrome #compatiblewithlife #compatiblewithlove #specialneedsmom #specialneeds #specialneedschild #trisomystrong #redefiningtrisomy18 #morethan10percent #advocatelikeamother #speakuplikeamother #sheisfierce #littlebutfierce #fiercegeorgiaonmymind #tinysuperheroes #warriorbaby #chosen #thisiswhyweadvocate #simonslaw #chdwarrior #heartwarrior #perfect #mommysgirl #georgiaschristmas #disneybabyholidaysweepstakes

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jojobilligmeier

We’re getting closer! Yesterday Finn’s paperwork was picked up from the consulate and sent to Beijing... that means that we are officially waiting for our travel approval! #finallyfinn #finnsbraveheart #chdwarrior #gettingcloser #babynumberfour #waitingforta #article5 #cantwait

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henry_bear221

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helgakrunn

Yndisleg leynivinagjöf sem ég fékk í vikunni 😍😍 Listamaðurinn @styngvi teiknaði þessa flottu mynd af fjölskyldunni #Repost @styngvi • • • • • A family portrait of my friend Helga with her wife and son 💛 Their son was born with chronic heart disease and has had to have multiple surgeries in the first years of his life. He has now reached the age of 4 and in the past 2 years he and his moms have been vegan 🌱 ▪️ His health has improved a lot since then. After a few months of veganism he no longer needed to use a ventilator throughout the day. Now two years later he doesn't need the ventilator at all! ▪️ He is always very chipper and happy and he is also one of my biggest fans 😁 His favorite design is "Love All Eat None" which he has in a frame on his wall and on a t-shirt from my shop 💛 #vegan #veganart #veganfamily #vegankid #björgvinunnar #chdwarrior #cdh #chd #lovealleatnone

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alexa_rogers_mua

Ailyn is still recovering from her surgery and blood infection last week. She is the toughest little girl I know! Help our family navigate through this incredibly difficult time by following the link in my bio to donate...any little bit helps! Or share with friends! Ailyn’s journey won’t end when we leave the hospital....she will always require special care and have special needs. We are blessed this holiday season!! #heartwarrior #conqueringchd #hearthero #chdwarrior #1in100 #ailynsarmy❤️ #childrenshospitalofwisconsin PS- All my 2019 brides, I am still booked for your wedding and will begin returning emails in early 2019. Happy Holidays

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leanimoon

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mundane2magical

I know I’ve been pretty inactive on here the last few days but it’s been quite a busy time! On Sunday, December 16th, we celebrated our Sadie’s First Birthday!!!! I have been putting off writing a big Happy Birthday post bc when I think back to this time last year, I get incredibly emotional! Sadie is truly a blessing & our Christmas miracle!!! At only 4 days old she faced obstacles that most of us never have to face! And honestly it has made her such an incredible, determined, strong girl!!! I couldn’t imagine our lives without her & she is sooo adored & loved by not only us but her sister! I love watching my girls grow! 🙌🏼 👶🏻 🎂 🎈 We had a Muppet Babies themed party for Sadie! She totally loves Kermit & is one of her favorite shows!!! I have to say compared to Tessa’s first birthday, Sadie’s was very low key! But it was absolutely perfect! I wouldn’t change a thing!!! 🐸 🎀 🐷 🎂 #MuppetBabies #BabysFirstBirthday #SadieLantz #muppetBabiesBirthday #TurnerSyndrome #chdwarrior #congenitalheartdefect #warriorbaby #TSawareness #christmasmiracle #miraclebaby #disneyfamily #lantzfamily

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the_chd_life

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lovehopefaith4aiden

"Your stroller has been paid for in full I wish you guys health success and better days may God bless you." -- This message was sent to me by a wonderful gentleman I have only communicated with via Aiden's page, shortly after his mobility specialist called to inform me that Aiden's adaptive stroller/wheelchair had been ordered. My friends...I share this to show that GOOD does exist in this world and GOOD people with beautiful hearts are here and present.  I've cried many happy tears, many happy tears and thanking God for his blessings.  I've come to terms and have accepted that I tried to keep it together by my own will and I was reluctant to ask for help, by doing that it was a struggle, but when I listened...when I removed my will to try and do it all myself, when I truly opened up, became transparent and willingly allowed my journey and my testimony to be a help to others..that's when change happened. That's when I removed all of me and God was able /is able to bless me as He desires in His timing.  My heart continues to overflow with love and gratitude.  Love & Blessings~Kia . . #AidenMathis #LittleFieryGiftFromGod #AidenStrong #LoveHopeFaithForAiden . . . #CDHawareness #CDHwarrior #CHDwarrior #BPSwarrior #HIEawareness #CVIawareness #CerebralPalsyAwareness

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jenestrada1972

Doing some toy shopping with the boys for Children’s Hosp Los Angeles! Thank you #smpd for the $1500! #chla #payitforward #merrychristmas #chdwarrior #zipperbaby

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blessedwithawarrior

Griff got some new toys today 💙❤️ #chdwarrior #downsyndrome #thanksCHOA

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kacie.wetzel

How was this just two months ago?! Ryder was up walking one day after his open heart surgery. Now he’s back to school, a ball of energy & the happiest little boy. ❤️#heartmom #FightingCHD

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the_chd_life_

Bought myself a cow mug today because 1.) My last one broke 😭 and 2.) In celebration of 10 years (this Wednesday) having a bovine valve! #cowssavelivestoo

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sofifi7

Too much fun was had 🐙 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #aerie #chdwarrior #scarsarebeautiful #selflove #bodypositivity #noretouching #christmas #merrychristmas #xmasparty #unretouched #cagirl #realme #perfectlyimperfect #aeriereal #girlpower #zipperclub #1in100 #pnw #washingtonstate #happyholidays

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johanna_darling_

Well, our princess is out of the Cath lab and back at the Yawkey house with us. The Cath went well. No, surprising news and at the same time no good changes either. Clara, is stable in her case, “as she can be.” While they feel she is not strong enough for open heart. They decided it’s best to just change out that pacemaker battery for now. The surgery will be on Wednesday and she is first case. In her cardiologist’s words “We know Clara is very fragile and expect the unexpected with her.” She has a very low threshold but we are hopeful she will come out of surgery and recover just fine. We are prepared to stay a few days after. Thank you for your prayers, love, respect and support. -Mom & Dad ❤️💙 #chdwarrior #coparenting

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heartgiftfoundation

HeartGift served it’s 400th child this year!❤️ That is 400 hearts mended, 400 lives saved, 400 mothers/ caretakers that no longer have to worry if their child will make it to their next birthday, 400 children who can now run and play with their friends and thousands of family members lives changed. We couldn’t have done it without all of you. As the year comes to an end, we are reflecting on how thankful we are to all of you who have made this possible. It is because of YOU 400 children from all around the world get to live a healthy life. As you prepare for your year end giving, please consider HeartGift and all the children still waiting for their chance at life.❤️🌎

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rondamathishelton

Good day at feeding therapy. Working hard to have this tube gone for good. Yes, the NG tube is missing but getting ready to go back in. 😢 Best part of the day is that she’s starting to crack a few little smiles. #thechosenfew #nothingdownaboutit #chdwarrior #1in100 #milestones #dailydoseofemmahelton #babysmiles #babysfirstchristmas #rufflebutts

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justplainbears

This handsome man is sitting up by himself now so proud of him #chdawareness #chdwarrior #1in100 #heartwarrior #picu #openheartsurgery #zipperclub #dorv

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ndingmann

|| It has been a bit of an adjustment having Paxton go back on his feeding tube a couple of times a day after being off of it for so long. Now that he is older, it is not easy keeping him still while his food runs through. Thankful for spatulas and my Bose speaker to distract the little guy. 🤣 || #heartwarrior #tubiebaby #strongertogether #feedingtubeawareness #motherhoodunplugged #paxtonstrong #chdwarrior #musiclover

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pcha_va

#Repost @pcha_chd with @get_repost ・・・ For the parents who have slept in hospital chairs, skipped meals, cried from fear and joy. For the parents who have become experts on their children's condition. For the parents who are strong advocates and have had to make life-changing decisions. For the parents of medically complex warriors and are #ConqueringCHD every day. #chd #chdaware #CHDAwareness #heartmom #heartdad #heartwarrior #giveknowledge #giveavoice #givehope #give #nonprofit #education #support #research #awareness #advocacy #1in100 #chdcare4life #chdwarrior

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tarian_brunson

No better company to represent at the gym. I had a killer leg workout today. With the combination of more carbs and hype I had an awesome pump. I am supper sensitive to stimulants so hype is always my go to preworkout. @blackstonelabs_official @blackstonelabs_legion @josh_feola #legionloyal #glutes #neverskiplegday #goals #teamprophysique #npcbikini #hardwork #blackstonelabs #npc #ifbb #chdawareness #chdwarrior #chd

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londonsimoneb

Thank you so much for the comment and like. I really appreciate it 🥰

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ctaylor615

TINY BUT MIGHTY - definitely this little mans slogan. A mixed bag of updates today. Yesterday was a small fever, but nothing some Motrin couldn’t handle. They have him back down to .5L on the oxygen. But the cardio team is still wanting to do the heart catheter and told us he definitely won’t be out before Christmas. BUT all the playing and therapy we’ve been doing is paying cause cause this little dude pulled his head up by myself for the first time! So incredible to see that progress! . . . . . . #RinJackson #ProudAunt #MohawkBaby #HLHS #HLHSAwareness #HLHSWarrior #CHDAwareness #CHDWarrior #ConqueringCHD #HeartBaby #HeartWarrior #1in100 #ChicksDigScars #Hydrocephalus #HydrocephalusAwareness #NoMoreBS #Fighter #LilChamp #Pip #Family #FamilyFirst #Nephew #SoMuchLove #GiveHope #TinyButMighty #Progress

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raising_wesley

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mrs_neidig

Just hangin’ around ☺️😊😍

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mandycmarie

I'm not a big fan of excuses. I believe if you want to make things happen you make plans, if you don't really want it you'll make excuses. I've been overcoming obstacles since the day I was born and 30(ish) years later is no exception. I was born with a congenital heart defect and would need open heart surgery to survive. Long story short - shunt to survive shortly after birth to get me to the first heart surgery -open heart surgery at 18 months - pacemaker at 21 - medication for arrhythmias scattered throughout the years - second open heart surgery in 2014 Sometimes I'm tired and want to use my heart as an excuse and quit. Thoughts creep in my head like ”I should rest”, ”I shouldn't be doing this”, This is enough for today”. But, I push those thoughts out of my head and keep pushing. Are you ready to push those excuses to the side and take control of your life? Let's chat! (I have been medically cleared to participate in these programs) #beachbodycoach #chdwarrior #changeyourbody #changeyourmindsetchangeyourlife #pacemaker #openheartsurgerysurvivor #hustlehard

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mamawestman

This sweet little warrior had his pre-admission clinic in Edmonton today, and well, we drove 3 hours one way for a 5 minute appointment with the anesthesiologist. 🤦⁣ We tried to make a fun trip out of it with a little coffee + hot chocolate date! ⁣ As annoying as that was, we are so incredibly grateful for the amazing medical team that God has placed around him. They won't let him slip through the cracks. ⁣ ⁣ The plan is the same. We come back just after Christmas for a CT scan, and hopefully those images will give Iver's team a clear picture of what is happening with his conduit.⁣ ⁣ Our hearts are still so sad that this is happening, but we can't say enough how thankful we are that they follow Iver so closely and were able to catch this before we ended up in an emergency situation again.⁣ Also, that we can have Christmas at home. We know that's not a reality for many families with sick kids and our hearts ache for them. ⁣ Thank you again to everyone who has continued to share Iver's story. We so appreciate you sharing in your stories or on Facebook! Prayers are powerful and we'll take all the prayers we can get!! We have heard of so many people that we don't even know personally are praying for our sweet, strong little man. Could you please keep praying that his conduit doesn't narrow too quickly? Also, please keep his medical team in your prayers, praying that God would give them wisdom and direct their decisions! Thank you guys from the bottom of our hearts. 🖤⁣ ⁣ #ivernathanielw #heartmamadiaries #littlewarrior

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mamasweetbaby

My child just fell asleep, with his coat on, in a pile of letters...Is it Christmas yet? Asking for Cash...

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twins_plus2_

So I think this is Orlas way of telling us to up her feeds!😂😂 Thanks for her tea @teresa.clancy - bunny was very tasty! 🌸 💟 #ourstory #irishfamily #irishmammy #ourgirl #chdwarrior #hungrybaby #happybaby #sograteful #soproudofhowfarshescome #ourmiracle #beautifulgirl #mamasbaba #perfectineveryway #twin #twinsofinstagram

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k.e.thompson

#addiestrong her surgery went smoothly with favorable outcomes. The surgeon was able to preserve the pulmonary valve and she’s already off her breathing tube. She is so strong and we are two relieved moms. #tetralogyoffallot #chdwarrior

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abbykmend

Clean bill of health for my little #chdwarrior 7.5 months postop. He was fascinated by the ID bracelet and wanted to pull himself to a stand with the suction and oxygen setup. I was worried his blood pressures would be high but nurse mommy managed to get some accurate (not fussing and squirming) ones and they were perfect. #zipperclub #coarctationoftheaorta #vsd #bigandstrongandbrave

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jesusnsavana

She is still so cute, even when she is taking the ornaments off the tree 😍🙈#chdwarrior#zipperclub#firstchristmas @hopeful_hearts_foundation

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charlie.and.harlow

Today Charlie looked at Harlow and said "You're my best friend Harlow and I love you" This year my Christmas wish is that they stay this close forever. 💕 Merry Christmas from these two little Beeches! 🎅🎄

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inclusionfusionarts

#Repost @niiradaniella_dance with @get_repost ・・・ Keep those good healing thoughts coming for @madelinesmodelling_ and her mama @rosannestuart . Her surgery recovery has been a tough one and they need a lot of good energy 🌸 #Repost @madelinesmodelling_ with @get_repost ・・・ Update by mum @rosannestuart Another horrible night in ICU, I would love to give you good news but Maddy has gone back into Atrial fibrillation and her rate is sitting over 150 and fluctuating. We are trying more drugs today to see if we can bring it down. Feeling wrecked. 💕 • • • • • • #chdawareness #chdwarrior #chd #love #morealikethandifferent #theluckyfew #t21 #australia #modeling #inclusion

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niiradaniella_dance

Keep those good healing thoughts coming for @madelinesmodelling_ and her mama @rosannestuart . Her surgery recovery has been a tough one and they need a lot of good energy 🌸 #Repost @madelinesmodelling_ with @get_repost ・・・ Update by mum @rosannestuart Another horrible night in ICU, I would love to give you good news but Maddy has gone back into Atrial fibrillation and her rate is sitting over 150 and fluctuating. We are trying more drugs today to see if we can bring it down. Feeling wrecked. 💕 • • • • • • #chdawareness #chdwarrior #chd #love #morealikethandifferent #theluckyfew #t21 #australia #modeling #inclusion

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ankeverlinden.md

This my little hero as a Christmas elf! Ruben is almost 4 years old now and was born with a severe congenital cardiac problem called transposition of the great arteries combined with a large ventricular septum defect, pulmonary valve stenosis and a single right coronary artery. He's one of a kind this little guy ... Thanks to an amazing team of pediatrics, cardiologists, surgeons, nurses, ... and after 15 months of struggle, his heart was repared by two very talented surgeons. Today we had a check-up and everything is still perfect! He will need more surgery in the future as he grows, but he is growing and glowing and I am thankful for that. . . #kidstime #familytime #qualitytime #chdwarrior #myheartkid #heartwarrior

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jantjevwingerden

#chd #chdawareness #chdwarrior warriors are the best !! 💜💜💜

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justinxscars

Y’all this kid just keeps kicking ass!!! Her protein levels and her Albumin levels are both up and we get to lower her steroid to 2 a day! She never ceases to amaze me y’all! #norajaneworley #chdwarrior #PLEcansuckabigone

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worthypursuitsproject

We were so impressed by this little ones eagerness to keep up. She was 5 month post second open heart surgery and she wanted to explore the whole @yosemitenps valley floor. 5,000ft doesn’t slow this one down too much anymore. . . . . . . . #worthypursuits #yosemite #yosemitenationalpark #yosemitenps #hiking #adventureswithkids #runwildmychild #chdawareness #chdwarrior #heartwarrior #halfaheart #hrhs

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pcha_chd

For the parents who have slept in hospital chairs, skipped meals, cried from fear and joy. For the parents who have become experts on their children's condition. For the parents who are strong advocates and have had to make life-changing decisions. For the parents of medically complex warriors and are #ConqueringCHD every day. #chd #chdaware #CHDAwareness #heartmom #heartdad #heartwarrior #giveknowledge #giveavoice #givehope #give #nonprofit #education #support #research #awareness #advocacy #1in100 #chdcare4life #chdwarrior

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derrickcantrelle

⏳ As we all know but not often think about, is that time is the most valuable commodity we will ever own which is why I preach working hard and enjoying those around you! You become the average of those you associate with so choose wisely! Fail Fast but Fail Foward! I’ve been knocked down more times than I’ve won. But my mentor once said that if you can look 🆙 then you can get 🆙 🙏📲🙏📲 There’s nothing more fulfilling than being able to spend time with my best friend 👑 Wills🙌 I have been super blessed to be able to escape working 40 hours for someone and working 80 for myself. Although it has been the toughest 5 years, I’m grateful that I chose to figure out a way to live life on my own terms‼️

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rareclaiiire

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mamma_laleo_ollyol

#sullegiostre#villaggiodellemeraviglie#giardinidipalestro#giardiniindrontanelli#laleoollyol#milanoperbambini#chdwarrior#hlhswarriors#gtubebaby#tracheostomybaby#sorelledalprimosguardo#

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c_hild87

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everleigh2018

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extra_exton

This sweet baby wants to do whatever Mommas is doing these days ! He may be wild most of the time but he sure does have a lot of love to give !! #extraexton #mommasboy #homiewithanextrachromie #downsyndrome #chdwarrior #pregnantmomma #specialneedsmom #theluckyfew #myhero #myshadow #miracleboy #trachandventbaby

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marissadomanico

One week down....one more week to go with my Zio patch heart monitor. It’s been more challenging than I thought it would be to hide it at work. Oh well just a few more day to go 🤷🏻‍♀️🖤 • • • #chdlife #chd #chdwarrior #chdsurvivor #health #transpositionofthegreatarteries #nevergiveup #cantstopwontstop #healthylife #healthymind #healthybody #healthyheart #instagood #photooftheday #openheartsurgery #teamnodaysoff #motivation #life #1in100 #nodaysoff #scars #heartstrong #bloodthinners #pacemaker #tattoo #slay #postop #chdawareness #heartmonitor

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essentialwellness_1

So our little girl, who has been going to bed at night around 7:30 for months has lately been deciding that she would rather be an adult and stay up past 10 PM. 😳 I seriously hope this is just a normal toddler thing and will pass as soon as it has begun. We never did the cry it out method as we never wanted to place too much strain on her heart. Last night, I put her in her crib after every attempt to mankind to get her down. She cried for what felt like a hot second and then proceeded to throw up in her crib. Ahhh the joys of parenthood! We sprayed her crib with Thieves (I made an extra strong bottle ( 2 capfuls instead of one) and added 10 drops of Purification essential oil) to clean it and take out the smell. I also only filled the 16 oz spray bottle halfway with water to keep it ultra concentrated. Today, I have been diffusing thieves and purification in her room, too. Thank goodness for these oils and being able to literally spray down my daughter’s crib with nothing but pure essential oils. I can’t imagine using anything else that she would have to inhale. 🙌🏼👌🏼 And as a side note, please don’t live life without Thieves household cleaner, thieves oil or purification. You’ll just have to work at this thing called life harder than what is necessary, mmmkay? 😉

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lifewithhalfaheart

It’s the little moments like this that I hope she remembers as she grows. Sharing happiness one Pocky stick at a time! Pocky is available at your local grocery store in the Asian Food aisle. #ad #ShareHappiness @pockyusa

13

given_today

One of the hardest times in the hospital was when Zola was relearning how to eat. She had just come off life support and had survived the unthinkable, but couldn’t eat for more than a few mins without falling asleep from exhaustion. . Zola wasn’t a preemie, but she did spend a lot of time in the NICU and had a lot of trouble feeding. That’s why I’m super passionate about this subject. . Preemies need more nutrients, calories and protein to thrive. That’s why the NICU will add something called “human milk fortifier” to your breast milk to provide this added nutrition. But even though the product name says “human milk,” most fortifieres are made from cow milk! And cow milk fortifier has been shown to increase the risk of serious complications, especially  necrotizing enterocolitis (NEC) — a leading cause of death for preemies! . That’s why I’m sharing this post today. I am partnering with @prolacta_bioscience , which offers the ONLY human milk fortifier made from 100% human donor milk, to give preemies the added nutrition they need in the NICU! I’m passionate about helping to raise awareness so preemie parents know that there is an alternative to cow milk-based fortifier in the NICU. . If you have a preemie, or know someone who does, please check out the link in my bio for an infographic that breaks down the facts about human milk fortifiers and is something you can share with your baby’s care team! Join me in raising awareness! #superzola #prolactabioscience #ad #nicu

39

twins_plus2_

Such a good feeling to be able to unplug this as we like. Orlas sats are fantastic so we only need to "plug her in" for obs during the day! She gets a change of scenery too! Just over 2 weeks ago, Orla had 6 infusions AND 2/3/4 antibiotics depending on how bad she was. She had a blood pressure cuff on all the time, 2 temperature probes, 1 oxygen saturation probe, 3 teddy bear dots for heart rate. She also had a central line in her leg. This was all along with her chest vacuum drain. She was then on the ventilator, then on mask, then on airvo.. so now to have her with one wire hanging down is like a miracle!! 🌸 💟 #ourstory #irishfamily #irishmammy #twin #twinlife #twinsofinstagram #chdawareness #chdwarrior #chd #alltheequipment #allthewires #probes #oxygensats #ventilator #noninvasivemask #airvo #tempprobe #infusion #antibiotics #cvc #centralline #childrensheartcentrecrumlin #picu #ourladyschildrenshospitalcrumlin #heartchildrenireland #heartmom #littleheartsmatter

8

fionamackenbarry

#chdwarrior#braveheart #thatgorgeousface😍#myboy💙#ourladyschildrenshospitalcrumlin#surgery#swapplacesinaheartbeat#goodresults#truelove#💓

2

auniqueticker

0

jdavall28

Looking for my id came across this gem in my wallet and of course I feel like I’m about to lose it I miss my son so much #ripjjthesuperhero #chdangel #chdwarrior #brokenheartedmom #childloss

0

yepitssam100

Throw back to this Wish Kid mesmerized by his Mickey ears. Who knew then that Make a Wish would change his life when he was granted his wish to be a Ninja? He became #Sacninja and saved the city of Sacramento, California. The most amazing experience ever. This family loves DISNEY and MAKE a WISH. ❤️💫 #shareyourears #ellenratemybaby #chdwarrior #heartofachampion❤️ @makeawishamerica @makeawishcanv @sacninja THANK YOU DISNEY and everyone that shared your ears....2 million dollars was raised!

0

londonsimoneb

Whew chile‼️ They way I just let loose in this diaper honey code brown is in full affect‼️ Sorry not sorry mom

7

angelsflowerpowerart

8