Chdwarrior Photos & Videos on Instagram

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heartwarriorsa

@beantheredrankthatcoffee and @rapidreliefteam will be serving up hot coffee and delicious bacon & egg rolls after the bootcamp! So be sure to bring 💰so you don’t get food envy!😋😜*proceeds going to Heartkids @heartkids

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mamabear_xviii

My girl has come so far! When she got admitted to the PICU on September 11th 2016 she went from low flow, to high flow, to intubated, to getting a trach in 0-60. It’s impossible to believe that today marks 2 years since my sweet girl got her life saving trach! 🌸🌸🌸 #trisomy18 #trisomy18princess #fortheloveoflillian #godisgood #miraclebaby #chdawareness #heartwarrior #trachbaby #advocatelikeamother #morethan10percent #perfect #chdwarrior #trachlife #tubie #toddlerlife #warrior #compatiblewithlife #compatiblewithlove #extrachromiehomie #trendybabies #specialneeds #specialneedsmom #normalizingspecialneeds #medicalmama #honestmotherhood #motherhoodrising #motherhoodunplugged #chdwarrior #motherhoodinspired #medicallycomplex

1

lindsayumlahrhn

Can’t had been deeply engrained from the start. A long played out story of limitation for fear of what might happen. A story which smashed ambitions and dreams before they ever made liftoff, or even escaped my lips. I want... I’d love... Let’s... Wait, that’s right... I can’t. • My story of can’t surrounded my physically broken heart. The very heart that we were told would give out long before I’d ever have babies of my own. “Don’t run, don’t play, don’t swim, don’t push yourself, it’s not safe”. Eventually I stopped trying, stop asking, stopped connecting to what I wanted, what I believed to be true. Can’t became my everything and I allowed it to trap me for years. • But who are they to tell me what I can and can’t do? Can they feel the heart that beats in my chest? Can they intimately know my body like I can? So I threw caution to the wind and reignited a story of CAN. As an act of love to myself I shifted my focus to celebrating everything I could do. I started smashing the barriers and limitations and rebuilding a belief in myself, in this vessel I had been gifted. I found my way back home. • The journey was long. The way wasn’t always clear. But little by little I found myself in an unshakable confidence and knowing that my body CAN. That even with this patched up heart, I was born to birth. • So with a divine inner knowing, faith in myself & my baby, faith in God who made me, and an excitement & joy that was palpable, I birthed my baby. In my home, in my power, in the presence of belief and love. • #highriskpregnancy #freebirth #homebirth #chdwarrior

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occongenitalheartwalk

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4ever_strong_ray2.9.17

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krystallaucht

0

theohhf

So excited to announce this week’s Wednesday Warrior! ❤️❤️His story is so inspiring and as an adult, he brings so much hope and awareness to the CHD community. Continue spreading the love! Here is his story: “Hi, my name is Steven Burns. I’m 28 years old, and I am living with a rare complex congenital heart disease called pulmonary atresia with an intact ventricular septum and a hypoplastic right ventricle. In my 28 years on this earth, I have undergone 7 open heart surgeries and countless heart caths. Somehow, I’ve maintained the courage and strength to fight my disease. As an adult, I dedicate my life to raising CHD awareness by sharing my story, and visiting fellow heart warriors in the hospital. My goal is to ease the minds of my fellow heart brothers and sisters as well as their parents as they embark on similar journeys as mine. I feel that the CHD community is one big family that I’m proud to be a part of, as we all come together to find some answers and even a cure for the number one birth defect.” Thank you so much @that_heart_guy for sharing your story with us!!! ❤️❤️❤️❤️❤️ . . . #chdwarrior #stopchd #chd #spreadlove #spreadawareness

3

ahanewjersey

Meet Meadow - a 13-year-old who was born with a congenital heart defect called hypoplastic left heart syndrome. But she doesn't let that keep her down and she will be walking with us on October 13 at the Shoreline Heart Walk! Learn more at shorelineheartwalk.org. . . . #chd #heartdefect #survivor #survivors #stroke #strokesurvivor #heartsurvivor #jerseyshore #newjersey #nj #walk #run #jog #marathon #5k #chdawareness #chdwarrior #chdaware

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ada_vera

Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromeloveanaldefectanalrepair #chdawareness #chd #chdwarrior #vsd

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rawritsamehh

Fin had his yearly cardio visit today with his new cardio team here in Washington. Everything went absolutely perfectly, and his cardiologist here is friends with his surgeon from Vandy! Small world. #CHD #chdwarrior

0

katekelly510

That post CG sort of vibe (all the ☕️ today). She begged to not take a nap since she wasn’t tired ☺️ #naomimei #chdwarrior

2

survivetothriveglobal

Regrann from @chrissymonroe - I AM ASKING MY FOLLOWERS TO DONATE WHAT YOU CAN TO NOAH'S MOM THROUGH THE LINK IN HIS PAGE !! 🙏 @supernoahjacob - Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #avcanaldefect #avcanalrepair #chdawareness #chd #chdwarrior #vsd #avc

3

4ever_strong_ray2.9.17

Guess whose kicking those legs?!!🗣🗣❤️❤️and my baby was sleepy👏🏾👏🏾I started doing extensive leg therapy on my daughter when she was in the CVICU and it has helped tremendously. 😁😁She is getting stronger and a lot of motor skills are coming back...LETS GO RAY👌🏾💯 This is a very very good sign ..If she can kick, she can crawl, or walk💪🏾 Whatever she puts her mind too!! IM SO VERY PROUD OF MY SUPERGIRL👏🏾👏🏾 #braininjurysurvivor #strokesurvivor #cardiacarrestsurvivor #physicaltherapy #extensivetherapy #limbcontrol #chdwarrior #cerebralpalsyawareness #keeppushing #staystrong #miraclesdohappen #hrhs #heartdiseaseawareness #determination #powerofself #youcandoit #cutie #queen #myhero #myangel #purpose #destined #encourageyourself #universehasyourback #meetingmilestones #cerebralpalsyfighter #proudmom #noweaponformedagainstmeshallprosper #complexheartdefect

10

lmhumb

Lunch date with mom and dad before visiting with Pumpkin and Pickles. #nom #birchwoodcafe #siberiancats #chdwarrior #tetralogyoffallot #childrenshospitalofminnesota

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thehalf_hearted

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thebiyitudors

Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #avcanaldefect #avcanalrepair #chdawareness #chd #chdwarrior #vsd #avc

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chrissymonroe

I AM ASKING MY FOLLOWERS TO DONATE WHAT YOU CAN TO NOAH'S MOM THROUGH THE LINK IN HIS PAGE !! 🙏 @supernoahjacob - Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #avcanaldefect #avcanalrepair #chdawareness #chd #chdwarrior #vsd #avc

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leighmkinnard

Took a while but we finally got Annabeth’s #beadsofcourage! I can’t wait to tell her what these all mean someday! I loved putting them together and it makes me so grateful that she has so few, when so many sweet kids have so many. This is such a neat program! @mgkinnard #chdwarrior #chdawareness

3

hannahsudlow_

This is motherhood to me. The feeding tube, machines, hospital stays, messy clothes. Daily phone calls for hours scheduling appointments, advocating for certain treatments, + approving care. Evelyn’s medicine schedule is memorized, her treatments can all be done with my eyes closed. Even though we have 3-4 appointments a week, I can schedule one 8 weeks out and know exactly when it is. This has ALWAYS been what motherhood has looked like to me, I know no different. After all, Evelyn is who made me a mom. To a large degree, I find that the fact that I have no idea of motherhood other than being a medical mom to be a huge blessing. I don’t know what it’s like to be able to take your kids out all day and not worry about a thing. I’ve learned from day one that I was to always have my stethoscope, a spare feeding tube, and medical bag handy. Never go too far away from home. Autumn to me has always meant flu season is coming, & it’s time to not go in public anymore. I don’t know what it’s like to continue through, not thinking much of a runny nose. I’ve learned from day one that even the common cold has the potential to kill Evelyn. Our team has ingrained that in my head hundreds of times. And no matter what, Always. Wash. Your. Hands. I’ve learned from day one how to check vital signs, hook up feeding tubes, and disconnect leads in a hospital room. And if I’m being honest, at times I’ve had a harder time adapting to Esmé and her needs than I have with what Evelyn required. I knew no different with Evelyn, and for some (insane) reason, at the time I felt like I wasn’t doing anything too different than a typical mom... I was after all just being a new mom. I hear people say that mine & my husband’s lives have completely stopped for Evelyn. It hurts. This is life to us. We never had a parenting style that completely changed over after having a medically fragile child. To us, being parents started with fitting life around Evelyn and her medical needs, not to pausing it. This IS living to us, we aren’t paused for Evelyn, we are all living abundantly, Evelyn included If parenting looks different on you too, embrace it. We were all made for our specific role❤️

36

diaperdivacreations

To all my followers, please take a minute to pray for Noah 🙏 he's a true warrior and know he got this, but lots of prayers goes a long way💙💙💙 We love You Noah!!! #Repost @supernoahjacob • • • • • Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #avcanaldefect #avcanalrepair #chdawareness #chd #chdwarrior #vsd #avc

66

amysmeats

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heartmamachronicles

3

nellyshines

1

brit_jo_cuer

💙 37 week 💙 and it’s INDUCTION day!! Mom and dad are beyond excited (mom is super nervous) to meet sweet Hudson and Hunter so let’s hope they are just as ready to enter into this world 😍 The boys are the size of watermelon 🍉 and should be around 6 lbs each! Please continue to pray for a smooth delivery, for Hudson and Hunter to be healthy and strong 💪 and for mom and dad!! We can’t wait to share pics of our sweet boys 😍 #twinmomma #chdwarrior #hlhs #twinboymom #fitpregnancy #fraternaltwins #boymom

17

fourheartsshop

"If you talk about it, it's a dream, if you envision it, it's possible, but if you schedule it, it's real." @tonyrobbins . Take a step today to bring your dream to life. . . . #heartstrong #inspiration #chdaware #charity #giveback #nonprofit #chdwarrior #congenitalheartdisease #congenitalheartdefect #heartwarrior #1in100 #fashiongram #OOTD #whatiwore #apparel #heartonmysleeve #dogood #foracause #giftsthatgive #shopforacause #dreambig

0

maricoocha

UPDATE🙏❤🙏❤🙏 MY HEART BLEEDS #Repost @supernoahjacob (@get_repost) ・・・ ➡️Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromeloveanaldefectanalrepair #chdawareness #chd #chdwarrior #vsd

1

hnnhmrcnrd

Ooh boys, I love you so. Never, ever, ever gonna let you go. 💕 . . Weston and daddy went to the Infectious Disease clinic for a check up today. Everything looks good, but baby boy is in for hella shots the next few months! Get him up to date on vaccines, Synagis, flu shot, and a Meningococcal vaccine. Wew! Gotta keep this boy safe, so PSA: get your flu shot! And don’t @ me if you’re an Anti-Vaxer, I’m not havin it. . . PS: Wes now weighs 16lbs, which is super cool! . . #westoneverettconrad #westonthewarrior #chdbaby #chdwarrior #chdawareness #chd #healthyhappybaby #getyourflushot #protectthebabies #loveyoutothemoonandback

4

supernoahjacob

Doctors are still working on our little superhero. It's hard to treat one thing when it can affect others. Noah is not your typical baby with a heart condition so they have to take all of that into consideration. As beautiful as he looks, he has the following diseases and conditions: Down Syndrome, Multicystic Kidney Disease, Congenital Heart Defect, Pulmonary Hypertension and Obstructive Sleep Apnea...this second surgery was to repair his AVC and VSD. He is truly a superhero and I am confident that he will get through this 💥 . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromerocks #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #avcanaldefect #avcanalrepair #chdawareness #chd #chdwarrior #vsd #avc

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mamabear_xviii

Two years ago today, we chose to give you a trach, Lillian. You were in severe heart failure, your respiratory status was critical, your co2 was off the charts, and it took 2 hours to intubate you 3 days prior. Your airway was very complex, and your small size didn’t help. So at 7 am, we walked back to the OR doors, and sent your off for your very first surgery. I cried till I couldn’t cry anymore while working to give you the best food possible in the mothers pumping room. I went back down to your PICU room and waited. Then finally, they wheeled you back in. You were breathing so comfortably, even more comfortably than when you were intubated. It was a breath of fresh air for all of us. You recovered beautifully. Waiting to hold you was the hardest part. I hope I never have to go that long without feeling your weight in my arms again. It seemed like a lifetime! As soon as we could, your daddy and I started doing everything we could to become the experts in your trach and vent care. And boy did we! The RTs said they’ve never seen such quick and confident trach changes. You’ve taught me so much more about myself than I ever expected to learn. I’m so proud of you, Lillian. You’ve come so far! You are the strongest person I know. Keep showing everyone how blissful life with a trach can be. Show them it’s not a bad thing. Sometimes God breathes the breath of life into us through medical measures. That’s a pretty beautiful thing if you ask me. You’re my hero. I love you more. . . . 🌸 Feel free to share! . . . #trisomy18 #trisomy18princess #fortheloveoflillian #godisgood #miraclebaby #chdawareness #heartwarrior #trachbaby #advocatelikeamother #morethan10percent #perfect #chdwarrior #trachlife #tubie #toddlerlife #warrior #compatiblewithlife #compatiblewithlove #extrachromiehomie #trendybabies #specialneeds #specialneedsmom #normalizingspecialneeds #medicalmama #honestmotherhood #motherhoodrising #motherhoodunplugged #chdwarrior #mom #motherhood

6

mamabear_xviii

“I praise you for I am FEARFULLY and WONDERFULLY made.” When God created Lillian, He created her in HIS imagine. He gave her an extra chromosome, and with that, the ability to shape the world, warm the coldest of hearts, and prove that miracles still happen. I am so thankful He chose me to be her mommy. What an honor it is. #trisomy18 #trisomy18princess #fortheloveoflillian #godisgood #miraclebaby #chdawareness #heartwarrior #trachbaby #advocatelikeamother #morethan10percent #perfect #chdwarrior #trachlife #tubie #toddlerlife #warrior #compatiblewithlife #compatiblewithlove #extrachromiehomie #trendybabies #specialneeds #specialneedsmom #normalizingspecialneeds #medicalmama #honestmotherhood #motherhoodrising #motherhoodunplugged #chdwarrior #motherhoodinspired #medicallycomplex

2

jpr22511

0

that_heart_guy

11

thehalf_hearted

Look at that lil foot!!! ❤️❤️❤️. Hard to believe my little guy is so sick based on the power that little foot packs when I get a kick to the ribs. How can you love someone sooooo much you haven’t even met yet?! When the nurse at #nationwidechildrenshospital suggested blogging I never could have imagined how therapeutic it would be for me! I just hope it can have a positive impact on another mother going thru this ❤️💙 .......... ......... ........ ....... ...... ..... .... ... .. . #hlhs #hypoplasticleftheartsyndrome #hypoplasticleftheart #chdawareness #chdwarrior #chd #chdaware #pregnant #pregnancy #pregnancyover35 #advancedmaternalage #unexpectedlove #unexpectedpregnancy .... #blogger #blog #bloggerstyle #bloggers #bloggerstyle #chdblogger #chdblog #hlhsblog #pregnancyblog #pregnancyblogger #hightiskpregnancy #highriskpregnancyblows #ultrasound #depression #healing

3

pricanbxbossbabe

His smile just lights up a room and his heart fills the room with love! ❤💪😍 #TeamAJ #HeartHero #chdWarrior #Love #GodsPlan #Grateful #GodIsGood

5

greauxemupbreaux

Chapter Two of “Our Story” is out! Click the link in our bio to read the second part of how our lives were forever changed! #greauxemupbreaux #infantilespasms #epilepsy #specialneedsmom #specialneeds #chdwarrior #louisianalife #organicgardeners #familiesthatfarm #marriagestrong

0

kaitlyneda

Sending my handsome little man all my love and prayers today!! You’re going to kick this procedure’s butt!! #chdwarrior #chicksdigscars ❤️💪🏼

1

jpr22511

“There is no need to be perfect to inspire others...Let people get inspired by how you deal with your imperfections” #heartwarrior #chdawareness #chdwarrior #chdsucks #firstopenheartsurgery #openheartsurgery #rhettrileystrong

2

kaylaeda

I mean😍.... Our little champ goes in for another procedure today! Sending lots of love and prayers your way baby. You got this💔💪🏼 #teamdarian #chdwarrior #chicksdigscars

8

supernoahjacob

Good morning! So far our little superhero is doing good. Doctors say that they will try to remove breathing tube at some point today to see how he does. These are baby steps but the important thing is that aside from his blood sugar being low, the rest of his numbers are fine and his recovery process is great. . . . #ds #dsbaby #downsyndrome #downsyndromeday #worlddownsyndromeday #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #extrachromosomeextracute #nothingdownaboutit #downrightperfect #cutiepie #cutiepatootie #newborn #zipperclub #heartwarrior #multicysticdysplastickidney #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #avcanaldefect #avcanalrepair #chdawareness #chd #chdwarrior @nickcharlieinsta

545

ingawellbeing

Have you ever seen fear or anxiety depicted in a more cute image?! I know he’s just chewing on his nuts most likely but he looked how I feel on occasions! Reality is I despise fear and anxiety… Too often it taps me on the shoulder as I edge towards sleep and it can bring the darkest of thoughts that utterly mess with sleep and my head in general, resulting in a difficult day ahead. When living with a chronic illness you definitely have to have a plan about this - a way that you take on those thoughts and hide them, change them, do what ever you need to do to make sure you keep seeing the light in life. What is truly good. We’ve got an article on our blog about how to feel better - ways in which people living with chronic illnesses have found their happy, distracted themselves or just found a great source of distraction that can maintain a feeling of positivity. It’s on today’s profile link. There is also a blog on ways to empower your support network to help you if you need a little help in getting there - so important not to be afraid to ask for help. * Please do share your thoughts too. After a sleepless night I would love to hear others suggestions as to how to keep the night demons away. In the meantime - I’m loving the squirrel!!!

2

thelifeofchaceelijah

Thank you @now.ive.seen.everything for making this video and helping bring awareness for CHD Fighters and Survivors like My (1 out of 💯) Mr. #stealyourheart #teamchace🤴🏽. ♥️🙏🏽 ⠀ ⠀⠀⠀⠀⠀⠀ #tloce #thelifeofchaceelijah #niafa #neverinafightalone ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #congenitalheartdefect #chdwarrior #chdawareness #chdsurvivor #heartdefect #heartwarrior #heartsurgery #chd #tetralogyoffallot  #openheartsurgery #tof #smib #pha #gtube #feedingtubeawareness #openheartsurgery  #childrenshosptial #trultfocusedfilms

14

me.in.honey

Nuestra bebé se recupera. Después de una angustiosa semana ha pasado dos días estable y en el camino correcto. Te recuperarás, pequeña Juliette. Mi estadía en el hospital ha terminado. A partir de ahora y hasta que Juliette vaya al pabellón pediátrico estaré usando transporte público, no es tan malo como pensé. La escultura, de 6mts, se llama "Exhuberance" y está en exposición permanente en la plaza del @artscapetheatre. De camino al hospital. . . . #sculptures #art #capetown #capetownsouthafrica #capetownartscene #visitsouthafrica #travelphotography #photographyeveryday #photography #p10 #phonephoto #darling #capetown #thankyou #thatsdarling #hope #heartmoms #heartwarrior #tetralogyoffallot #chdwarrior #cdhawareness #ilovemydaughter #love #instagood #newmommy #babylove #artsxdesign #artofinstagram #art_spotlight

1

tinytickers

CHD warrior, Willow, and her mum, Rosalind, took part in the Life Leisure Big Stockport 10k Run on Sunday, raising an incredible £165! Rosalind said, 'I'm very proud of Willow for coming up with the idea to enter and for keeping me motivated (especially when she was tearing ahead of me on the hilly bits!)' A huge thank you and congratulations to them both! #stockport #10k #fundraising #run #running #runner #wednesdaymotivation #chd #chdawareness #chdwarrior #getinspired #motivation #runnersofinstagram

1

smilie_zieth

1

defaulter____

8

thehalf_hearted

My!! how “Dot” grew and changed in just a couple short months. I remember this day so clearly full of excitement and anxiety. To see his little body taking shape was heart warming ❤️💙. This #nuchaltranslucency would be the beginning of a long and emotional road for us. Since beginning my new blog this was one of the first pieces I wrote about where things really shifted. #hlhs and #chd are such sad but real issues I was so oblivious to until they became my reality. .......... ......... ......... ....... ...... ..... .... ... .. . #chdwarrior #pregnancyover35 #hypoplasticleftheart #congenitalheartdefect #advancedmaternalage #heartmom #unexpectedpregnancy #unexpectedlove #ultrasound #heartbreak #blogger #bloggerlife #bloggerstyle #lifestyleblogger #pregnancyblog #pregnancyblogger #highriskpregnancy

0

chd_hearts_and_carolina_moons

3

celinena95

Bursdagen min i fjor ble tilbragt på sykehuset. I år tilbringes den på Bondi Beach. Snakk om kontrast! Life is good❤️ #awesome #lifeisanadventure #sydney #australia #chdwarrior #chd #zipperclubmember #beachday #fun #lifeisgood #norwegian #bondibeach #bondi #sun #ocean

17

thehalf_hearted

This photo was taken early morning in June of 2018. Was so #blessed to be able to take this trip to #hiltonheadisland I took advantage of the beautiful backdrop God was providing and used these gorgeous quiet mornings for #prayer and #meditation I really came to terms with my #pregnancy and began getting excited ❤️💙 ............. ............ ........... ......... ....... .... .. . #chdwarrior #pregnancyover35 #hlhs #chd #hypoplasticleftheart #unexpectedlove #unexpectedpregnancy #pregnancyblogger #pregnancyblog #highriskpregnancy #lifestyleblogger #bloggerstyle #sunrise #pregnancy

3

maptandf

If your heart is in it you will achieve it ❤

2

super_nessie_

I've been feeling like crap latel...😓, I honestly don't know why, and I shouldnt because very exciting things are happening right now, and I should be happy and very excited about all these events, I mean come on! Not even 👻Halloween decorations cheer me up. I remember I used to get so excited about this time of the year specially cause it's my bday🎃🎉🎂 ... It's like I'm lost with my life, the lack of concentration, motivation, and so on. 📢I can't and shouldn't be reminded all the time that life is good because it is. Or maybe I should? I try to find motivation to even work out a little or to at least try to do what once made me happy... Nope. I dont feel like doing anything, I don't want to get out of bed and I don't even want to eat O don't want to get dressed or so my makeup even though I know that would boost my confidence a little......I try to fight it but i feel like this time it's stronger than me. ☁️I have so many goals and dreams but just thinking about them make me think they're unreachable and I will never acomplish any of them, I feel like Im wasting my time, when I could be doing wonders out there. ✨ Have you ever felt this way? What did you do about it? . . #fitness #transformation #healthy #summer #summerbody #beachbody #warrior #beachbodycoach #yummy #goals #healthylifestyle #love #loveyourself #loveyourselffirst #motivation #veganrecepies #snack #vegansnack #workout #dinner #cute #adventure #adventurepartner #chdwarrior #heartfailure #hike

12

snyderamanda_2011

The kids got crazy spoiled tonight with an impromptu trip to target. Dylan , the amazing little nerd he is , picked out a huge Harry Potter LEGO set. I must say ... tonight I am officially jealous of my kids toys. Harry Potter legos and Polly pockets. 🤦🏼‍♀️ #asdsurvivor #chdawareness #chdwarrior #mychildisironman #chd #openheartsurgery #openheartsurgerysurvivor

0

cvw18840

Can we please go back to yesterday when he was not a diabetic and only had a scar from his heart surgeries? PLEASE?!?!?!?! #chdwarrior #chd #juvenilediabetes #t1d #t1dlookslikeme #type1diabetes

0

twentyonexthree

0

meredithtoering

The last month at #mylittlehouseofbrave has been filled to the brim with new — new hearts to learn & hearts to love... surgeries to be fought through & a new sort of normal to be found. . She’s been here almost a month & while she hasn’t yet made it to here, introduced in this space, she’s captured all of our hearts. . Her orphanage asked - “We don’t really know what’s wrong... she’s too small, she won’t eat, she turns so blue...” - & now here she is. Home here with us, for as long as she needs — as long as Hope takes. . Her chosen English name means Brave Lioness, a crown of Light. She’s one of the tiniest warriors we’ve had in awhile, just 3 little months new... & our Liviyah Light she will be. . Our tiny & fierce Lion girl 🦁... our blazing Crown of Light — we can’t wait to hear you roar. We will fight for your hope & love you to the moon. I choose names carefully, & sweet baby Liv... the girl named Light? You are loved & chosen & named, & so very wanted here. . Welcome, little Lionheart. We welcome hope, we welcome light, we welcome you... welcome home 💛🦁✨. #LiviyahtheLionheart #chdwarrior #chdawareness

128

lillmunstar

0

fiercegeorgiaonmymind

12

jaxc607

1

mateoandmama

S I X M O N T H S | I can’t believe it’s already been half a year since you’ve been with us. Each and every day of loving you is a blessing! ✨ He loves: Green beans and pumpkin His jumper Rolling from back to belly Making raptor noises Smiling at dad Naps with mom & chewing on his hands (teething) ✨ He hates: Sleeping through the night 😓 When mom takes too long making his bottle & forced cuddles. ✨ Also, just realized his giving me the finger in this pic so I guess that’s how he feels about turning 6 months 🤷🏻‍♀️ . . . . . . . #alaska #boymom #boymomlife #preemie #preemiemom #chdawareness #chdwarrior #heartwarrior #heartmom #mom #momlife #motherhood #motherhoodthroughinstagram #motherhood #blogger #blog #bloggerlife #lifestyleblogger #lifestyle #lifestyleblog #motherhoodblog #motherhoodblogger #mateoandbean #mateoandmama #watchmateogrow

2

thehalf_hearted

I will never forget this day, shock and awe indeed. Pushing 40 with one getting ready to graduate, one entering 8th grade and one going into 5th. I thought things were going to start slowing down! Seeing these results scared the hell out of me. I was not prepared to start over. I would gradually begin to get more comfortable with the idea, at times even a little excited. Unfortunately things would become a little more complicated for our family. ............ ........... ........ .... .. . #chdwarrior #pregnancyover35 #hlhs #chd #hypoplasticleftheart #advancedmaternalage #unexpectedlove #unexpectedpregnancy #highriskpregnancy #pregnancyblog #chdblogger

0

fourheartsshop

The best part about our journey as a heart family has been the people we've met. These dear friends become like family. This is George and his mom @erobb77. George was born with a complex heart and we spent time in the hospital together when Ethan was quite sick. Today George is doing so well. He's in school, making mischief and growing strong. Nothing makes our hearts happier than watching George and our heart friends thrive. They are indeed #heartstrong ❤ . . . #heartstrong #inspiration #chdaware #charity #giveback #nonprofit #chdwarrior #congenitalheartdisease #congenitalheartdefect #heartwarrior #1in100 #fashiongram #OOTD #whatiwore #apparel #heartonmysleeve #dogood #foracause #giftsthatgive #shopforacause

4

maptandf

Wednesday morning women's muay thai at Gemina kelmscott

4

cherrybashbeauty

Dream big little one❤

2

fiercegeorgiaonmymind

2

rareclaiiire

1

kaliefitthomas

Every time I walk down this hallway I remember the FIRST time I walked down it the night Axxle was transferred up here 2 days after he was born 😣 . . •It was almost midnight. •I was in my pj’s and robe. 🙈 •I had red eyes, splotchy makeup and blurry contacts from crying more than I ever have. •Mom and I had NO IDEA where we were going or how to get where we were supposed to go. •I had no idea what to expect or if I was going to be able to see Axxle. And I was terribly exhausted and terrified. . . But now I know I was in THE BEST PLACE POSSIBLE ❤️ UAB is the most amazing hospital with the most amazing doctors and nurses who want nothing more than the best for your baby. I actually enjoy being here now (I mean aside from THE REASON we’re here of course) and the fear I once felt is no where near what it was. I hate the situation but I feel so encouraged and hopeful having this as our place for Axxle 💙 His first little heart procedure is coming within the next couple of weeks. This will give them a much better idea of what’s going on in there and what all is possible to fix it🤞🏼 so y’all be praying for this little dude. . . . . . #chdwarriormom #nicumom #nicubaby #chdwarrior #chd #dorv #rainbowbaby #preemie #preemiestrong #heartwarrior #heartbaby

5

milaya.c

I’m not sure if it’s because she’s the youngest but she really craves playing alone just as often as she wants to play with the older sibs. #babygirl #dollhouse #birthorder #crowdercutie #chdwarrior #prettyinpink #toddlerdays

0

supernoahjacob

842

growyourhappy1

G’mar Chatimah Tova. May you be inscribed for a God’s healthy blessed prosperous year. Wishing all an easy fast. #yomkippur #dayofatonement #easyfast #chdwarrior #poh #family #love #cleanslate #blessed #blessings #steffeb

1

fluffypandalifts

New gym buddy. She’s been waiting to turn 12 so she could finally get her own membership. So now she’s a gym chick. Yoga is her thing. She can’t lift too much so she does maybe 2-3 exercises with weights to learn form and technique. She’s a lil cardio queen and a yoga lover... she’s proof that as a parent you have to set an example. You can’t expect your kids to live a healthy lifestyle if you don’t do it either. Ugh these 3 lbs of bloat got me fucked up. That #thickfit life tho . . . . . #mommydaughterduo #momswhoworkout #leowifelife #iifymgirls #girlswholift #kidswhoworkout #kidswhoyoga #chdwarrior #chdwarriorprincess #duplicate22q #cheermakeup #swelfies #gymmotivation #workoutmotivation

4

natasha_barstow

Its only when you look back can you see how far you have truly come. I have outgrown thoughts and feelings I used to have and the last year has truly taken me to places I never knew existed. Faith over fear. #eadiesjourney #faithoverfear #gratefulheart #mumofthreegirls #chdwarrior #heartmum #dilv

0

hannahsudlow_

Once Evelyn was born, the reality that she could be taken from us at any moment hit. But instead of living in that sorrow & fear, our family decided to celebrate. I wanted Evelyn to have as many birthdays as she could remember, so every month, we got her a cake, we gathered our whole family together, and we celebrated Evelyn’s birthday. You can swipe through and see some of our moments from the first year of her life. There’s a lot of sickness pictured, it’s hard to look at some of these and see that that’s even Evelyn. She doesn’t even look like the same person from early days. Yet more than anything I see a little girl who continued to gather strength, and fight. More than anything, I see joy, and love, and life in these pictures. More than anything, I see God’s miracle of our sweet gift of grace. Evelyn, I wouldn’t trade you for the world. And today my brave girl, you are 23 months. In exactly one month from today, you will be TWO years old. Two years more than you were given to live, two years more than you were expected to live. You amaze me every single day. It’s all for you ❤️

47

theohhf

We are so excited to announce that our online store is up! Help us spread love and awareness with some of our shirts. ❤️ You can find the store on our website, theohhf.com, or just click the link in our bio 🙌🏼 . . #spreadlove #spreadawareness #chd #stopchd #chdwarrior #chdaware

1

thehalf_hearted

Who would have thought that this tiny dot would bring so much heartache and havoc into my life. Even though I haven’t met him yet, I wouldn’t change it for the world. You can read all about “Dots” story on my blog ❤️. www.thehalfhearted.com .... ..... ... .. . #hlhs #hypoplasticleftheartsyndrome #hypoplasticleftheart #chdawareness #chdwarrior #chd #chdaware #pregnant #pregnancy #pregnancyover35 #advancedmaternalage #unexpectedlove #unexpectedpregnancy .... #blogger #blog #bloggerstyle #bloggers #bloggerstyle #chdblogger #chdblog #hlhsblog #pregnancyblog #pregnancyblogger #hightiskpregnancy #highriskpregnancyblog

1

justinxscars

Having to hold your daughter so she can’t move while they stick her for the 1 millionth time while she is screaming no more ouchies, no needles, no stop you are hurting me or please stop. That will never be easy for me, we have a good system down for it now but it will never be easy. I am so sick and tired of everything bad happening to my #norajaneworley but like always we will kick anything that comes at us ass! We have to postpone her heart cath for 4-6 weeks because she got a rhino virus. We may get to go home today or very soon. Then return for her heart cath. Seeing her in pain kills me and again It will never be easy. Nora I love you girl, we will get through this awful stuff. Thanks for all the positive vibes and prayers! #chdkid #PLEkid #chdwarrior #plecansuckabigone #onlymakingusstronger

33

this_blessed_road

Nine years ago (yesterday) our sweet Justus underwent open heart surgery as the first phase of correction for a heart condition known as Tetralogy of Fallot (TOF). There was a complication of his sternum breaking open after the repair - which then extended his stay due to an emergency surgery to fix that and combat the fever soon after. Intubated three times, put on a bed of ice, and adverse reactions to medication made for a stay at @seattlechildrens that I will never forget. The care provided was outstanding. One of the hardest things is to be faced with seeing your child fight a battle of illness, and yet - I can look back with a fondness. It was at that time, I as a parent had nothing truly to offer, other than getting on my knees and praying for my son. Drawing close to the Saviour, who so graciously bestowed our gift of a baby upon us. Today: Justus is healthy, pink and even quite sassy. I couldn’t be more grateful. Happy heart day Justus! (Belated) #zipperclub

7

5stonesdesigns

2

raising_ryanmm

It’s been so long since we have posted because my mommy had open heart surgery but here’s a quick video of me taking my first steps! 💕

6

marbolz

6

supernoahjacob

65

thehalf_hearted

1

mcaprint

0