Chdwarrior Photos & Videos on Instagram

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chdwarrior_yannaih_

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chdwarriorshop

Here's a #Repost from @amysmeats, who just got her new phone case in the mail today from CHD Warrior 🎉 ・・・ So I was home sick today. Not 💔 related. But I had to get up for the postman. I’m glad I did as he brought me this piece of loveliness. Thanks @chdwarriorshop I love it. Although it gets dropped A LOT. My phone is finally safe! #chd #chdawareness #chdaware #heartblog #chdblogger #chdblog #chd #tga #vsd #heartwarrior #openheartsurgery #hearthero #chdsupport #zippersister #chdwarrior #zipperclub #heartiversary #1in100 #thebhf #strength #congenitalheartdefect #bornthisway #achd #chdwarriorshop #phonecase #phone

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heartmom09

Sad I could not be there but Super proud of my Gordito! Everyday is a struggle to get him to read but it has paid off! Regardless of his educational delays I know he will overcome his obstacles just like he has little by little with his heart defects! #chdwarrior #myhero #babyboy #proudmom #loveofmylife #readingaward

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jaxc607

15/365 Paul loves his Grammy Barb so much! ❤ #heart❤️ #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero

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breannamarie_photography_ri

Here is a project my heart sister @diane_foster_photography_ and I will be working on this month. We will be taking portraits of fellow CHD survivors that show their battle scars and giving them a beautiful keepsake for years to come! . . . #riphotographer #portraitphotography #chdwarrior #chdawareness #scarsarebeautiful #scarstellastory #diane_foster_photography_ #breannamarie_photography_ri

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upsidesofdown

Everyone else might be running outside to see the snow, but Aria and I are sipping on our coffees staying WARM & COZY inside☕️ #priorities

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mrs_carol_johns

My boy 👦🏼 is on a mission to raise awareness of CHD and raise money for charity one bracelet at a time! He’s selling this style 👆🏻 for £2 each and if you have a little look through my feed you’ll find his limited edition red bracelet for #wearred day on the 2nd February which are £3. Toby was born with a CHD which was diagnosed at 6 days old, he had a key hole procedure at 7 days old and then life saving OHS at 12 weeks old and another OHS at 3 years old (he was one month short of his 4th birthday) He’s selling his bracelets to raise money for the Children’s Heart Surgery Fund which is a charity that provides vital equipment for the Hospital Toby is treated at and vital support for families like ours. He’s set himself a target 🎯 of raising £2000. So if you’d like a little wish bracelet made with love by my 6 year old heart warrior and to not only help raise awareness but also give to charity let us know and buy a bracelet 😘 ❤️🧡💛💚💜💙🖤💗 #lovefromtoby #heartsfortoby #chdawareness #chd #chdwarrior #handmade #handmadebracelets #love

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the_chd_life

#Repost @amysmeats with @get_repost ・・・ So I was home sick today. Not 💔 related. But I had to get up for the postman. I’m glad I did as he brought me this piece of loveliness. Thanks @chdwarriorshop I love it. Although it gets dropped A LOT. My phone is finally safe! #chd #chdawareness #chdaware #heartblog #chdblogger #chdblog #chd #tga #vsd #heartwarrior #openheartsurgery #hearthero #chdsupport #zippersister #chdwarrior #zipperclub #heartiversary #1in100 #thebhf #strength #congenitalheartdefect #bornthisway #achd #chdwarriorshop #phonecase #phone

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amysmeats

So I was home sick today. Not 💔 related. But I had to get up for the postman. I’m glad I did as he brought me this piece of loveliness. Thanks @chdwarriorshop I love it. Although it gets dropped A LOT. My phone is finally safe! #chd #chdawareness #chdaware #heartblog #chdblogger #chdblog #chd #tga #vsd #heartwarrior #openheartsurgery #hearthero #chdsupport #zippersister #chdwarrior #zipperclub #heartiversary #1in100 #thebhf #strength #congenitalheartdefect #bornthisway #achd #chdwarriorshop #phonecase #phone

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heartbabymj

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angel.staxx

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wildheart1984

There are two greatest days in a persons life, The day we are born & The day we discover why! . . #isurvived #heartkids #hearts #chdwarrior #chdawareness #lifeofadventure #pearljamofficial #eddievedder

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chosenforjoy

This cute mug Mila is drinking out of is not just any ordinary mug. You see. We received this mug in the mail from @morningstarfoundation when our family was sponsoring our daughter Elora ... during her time spent in the foster home. . We sponsored her not knowing God had already chosen her for Joy! . Oh we had great hope ... but we had no idea what He would do. We will be traveling to China to make Elora a Joy in June ... and we cannot be any more excited! . #morningstarfoundation #chinafosterhome #chinaadoption #chdwarrior #teamjoyadoption

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chdwarriorshop

"Scars are tattoos with better stories." Our Scars are Beautiful sweatshirts are now available in our shop! (link in Bio)

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s_walker_1985

Makes you think a little doesn't it! #CHD #chdawareness #chdwarrior #oneinahunred

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thomassheartjourney

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lindsayalano

⭐️NEW BLOG POST⭐️ • When you look back on your life and realize your mother’s advice was right!! • As I have been reading a new book, I am remembering the advice my mom once gave me. Her advice allowed me to push through a tragic situation and rise above it. • Check out my latest blog post to find out what tragedy I went through and how my choices allowed me to rise above. Link in my bio ☝🏼

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amandajbowen

Why do strangers feel the need to touch other people’s kids?! I can’t count how many times I’ve had to smack a stranger’s hand away from touching Eloise. Listen, I know she’s adorable, but she’s not a puppy! Not your kid = don’t touch! No excuse. You know nothing about that child your sharing your germs with, like the fact that my daughter has a Congenital Heart Defect and you’re putting her at risk. . . Today, a bagger at Publix decided to touch Eloise’s FACE right next to her mouth! Normally people want to grab Eloise’s hands or pat her back (which I still don’t allow...because they’re a STRANGER). I’ve never had someone so boldly grab my daughter’s face, especially during a deadly flu season. I flipped. . . Children with Congenital Heart Defects often have little to no immune system and the risk of infection or illness for them is very serious and fatal. With this deadly flu going around, germs are nothing to play around with! This CHD Momma bear will rip you apart for touching my cub! 😠 . . #congenitalheartdefect #eloisexo #miraclechild #chdwarrior #donttouchmykid #mommabear #turnersyndrome

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ahaoregon

We are grateful for our many volunteers who dropped off hats in support of #littlehatsor! Together, we are raising awareness of congenital heart disease and celebrating #HeartMonth! THANK YOU! ❤️❤️❤️ #littlehatsbighearts #americanheartassociation #chd #chdwarrior #chdawareness #hearthealth

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live.and.lose

Just a quick update - I will likely be quiet on here for a bit. I ended up in the emergency room for 7 hours Sunday night with chest pain and numb arms. Between the breathing problems and numbness and tight chest and dizziness it has STILL not been discovered what’s wrong. I am on a two week short-term disability leave from work while I get more tests done and rest to hopefully control/calm the dizzy spells. • Until we figure this out I’m just gonna do my best to be staying on track but my main concern is my health. Without that, I have nothing 🤷🏻‍♀️

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mommy_zza

My little boy is not so little anymore: 67 cm tall, 6.8 kg weight and meeting all the milestones for his age ❤️ Got his first shots and so far so good... so, after a long nap now a good chance for snuggling around with me and prefer a selfie together to this nice book 😎 Most importantly his heart: oxygen saturation between 95 and 100 and overall a good condition. Next step: fixing an appointment early February in the heart center where the OP will take place, presumably between March and April. In the meantime, maximum attention to avoid the seasonal flu. He is too young to get vaccinated, thus we need to minimize contact with crowds and other children until the OP, because a lung infection in his condition could be extremely dangerous. Deep breath and strong mom mode on: everything is getting more real each day, but we will make it and he will do great during and after. You are so strong, my boy. Yes, we can. 💪🏻❤️ • #heartmom #proudmom #chd #chdbaby #chdwarrior #heartwarrior #1in100 #futurezipperclubmember

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eleanoriodo

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andiesnest

Update! Last night they extubated Penelope successfully. 👏🏼 They have weaned her off all sedatives and are giving her pain meds as needed. Everyone keeps telling us how great she looks, but all I can see are her sad eyes. It breaks me to see her so sad and afraid, and I can’t wait for her to feel like herself again. This is all part of the process which I understand very well, its just hard on this mama to see her baby so sad. 😔 • Please continue to pray for our Penny as she continues to recover. 🙏🏼💞 • • • #penelopemila #pennygirl #mysupergirl #heartwarrior #chdwarrior #chd #chdawareness #openheartsurgery #brave #strong #littleandbrave #heartmama #motherhood #momlife #honestmotherhood #daybyday #godhealsthebrokenhearted

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myheartbeatsforharper

Harper's new shoes! #afo #chdwarrior #gottafixthatfoot

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chdwarriorshop

"We are one in one hundred, and we fight with all our hearts." 🥊🖤

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4ever_strong_ray2.9.17

She layed her head down fasttttt....I guess that's mama's cue😇😂😂😅Somebody ready to go back to sleep!!😪😴😚😙 #rest #miraclesandmesses #biggirl #mybaby #heartdisease #strokesurvivor #heartsurgerysurvivor #herjourney #chdwarrior #chd #brain #injury #epilepsy #epilepsyawareness #strong #fighter #perfect #personalgrowth

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rachtan88

You fought the good fight, baby E. You are loved beyond measure. We’ll see you again soon, on the other side of eternity ❤️ #prayersforfightereuan #chdwarrior

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hlhsmama_

Just a reminder that February is Heart Awareness Month! Wear RED to show your support! If you aren’t sure about heart disease, don’t be afraid to ask. Asking questions is what brings you aware to this problem. I’m not afraid to answer any of your questions that you might have. I am planning on posting every day of February to show the different types of heart diseases to bring attention to those who are unaware of all the CHD’s out there. If ANYONE (not just children, adults too!) have been affected by congenital heart defect, private message me and I will feature you! #heartdiseaseawareness #Heartdisease #heartwarriors #chdwarrior #chdawareness #findacure #1in100

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4ever_strong_ray2.9.17

Early morning Shenanigans with La'Ray on her trach collar👏👏😂😂😭😭😢She stay giving side eye, and stank face early in the a.m.! ( she trying to smile though)Guess its safe to say she not a morning person😇😂😂😅 #chd #chdwarrior #hrhs #dorv #tof #myangel #trachbaby #strokesurvivor #strong #fighter #smart #heart #instagram #instakids #instatoddler #instagirl #heartdisease #chdawareness #mygirl #biggirl #personalgrowth #perfect #miraclesandmesses

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fighthearterwithcarter

I’ll be updating the blog periodically today regarding his surgery. Link is in bio. #psalm91 #fighthearterwithcarter #chd #chdwarrior #heartwarrior #congenitalheartdefects #heterotaxy

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fighthearterwithcarter

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momma_laila

No more cheerful voice to greet me at home after work 😔 #alfatihah #istilahisabella #chdwarrior #13012018 #niece #daughter

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madddberry

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sophieembainbridge

4 weeks old! Where does time go? 9 months has passed, now she is following me around the house wherever I go, on her feet! I’m sure it wasn’t meant to happen this quick 🤭 #wouldntchangeathing #baby #fourweeksold #mummy #pottery #footprints #firststeps #happy #heartwarrior #chdwarrior

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chdlegacy

Finally my life in one sentence .. and here I am writing a book. ..smh .. lol But yup, story of my adult life. I just have to believe that everything I couldnt do because I was too tired, wasnt for me anyway. Otherwise Ill get lost in the downward spiral and quicksand of the shoulda, coulda, wouldas. Thank you for this! @hunt4happy ✌😚 . . . . #shebelievedshecould #tootired #lifehappens #spooniequotes #fightforchange #petition #goals #invisibleillness #chronicillness #neuroscience #neurodevelopment #chdfamily #chdwarrior #chd #spooniefamily #spooniestrong #warriors #ministroke #tia #hlhssurvivor #hlhs #spoonie #neurologist #changeorg #cardio #cardiology #medicalnegligence #abuse #disabilityequality #invisibledisability

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chdlegacy

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different_kind_of_perfect

How awesome is this?!? Thank you @us2macs for sharing the #teamtank onsie!!! This is just too cool!! They had a Tank in their therapy class who made these. Hopefully someday we can get the two Tanks together. 🤗☺❤💛💙

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theovercaffeinatedrandi

My beautiful baby girl. My heart, my soul, my lovie. #avsd # avsdmom #chdwarrior #chdawareness

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amber.starnes

Her Glen surgery is scheduled! I am not looking forward to this process again, but I am looking forward to the 2 year break until the next surgery. Luna is the most incredible little human. She has taught me so much in her short time on this earth, and inspires me to be a stronger person. Thank you my little moon beam. #LunaRae #chd #chdwarrior #chdawareness #tricuspidatresia #heartbaby #mendedheart

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emilyeverwatson

#throwback One week since we’ve been back home ❤️ a whole week of enjoying wireless Maverick, again! #bravemav #chd #chdwarrior #1in100 #maverickmatthew

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lillmunstar

Trying not to act sleepy.. but the parents know me so well.. #LillianMarie #SleepyHead #NoonanSyndrome #CHDWarrior #HeartWarrior #BedTime

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noodles209

I'm thankful for the 37 years in between my heart surgeries and for the amazing advances in heart surgery. I was lucky enough to have my bicuspid aortic valve repaired. I'm also very lucky that the supramitral ring was noticed on the TEE right before my surgery. A supramitral ring is a is a rare developmental abnormality of the supravalvular area of the mitral valve producing obstruction to left ventricular filling. It's more commonly associated with other issues, all of which I had: bicuspid aortic valve, parachute mitral valve and coarctation of the aorta and is classically described as one of the four features of Shones Complex, which I have been diagnosed with . . #CHD #chdwarrior #chdawareness #scarsarebeautiful #heartsurgery #openheartsurgery #heartwarrior #bicuspidaorticvalve #aorticregurgitation #mitralvalverepair #parachutemitralvalve #supramitralring #coarctationoftheaorta #subclavianflaprepair #congenitalheartdefect #1in100 #ShonesComplex

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jeymy.c

“Being a mother means being strong, even though you know you are weak. Giving them love 💕 , even when you want to be comforted. Most of all placing their needs before your wants.” #themomlife #myheartwarrior #chdwarrior

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mrs_leopaaaaard

Si gembul nya mami nic n papi bri nyaa.. Anak surga kami.. Yg selaluuuu dirindukan,miss u nak.. ❤❤ #misharyjadenbrani #childofjannah #chdwarrior #tagsforlikes #like4like

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ryan.plus.1

The “Before I’m About To Cry” Face - The “Talking” Face - “The Protruberant Tongue” - “Hand To Mouth Milestone”

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thechf_pennsylvania

Our legs are sore, and our hearts are full. Thank you for hosting Spin the Barre tonight, @focusfitnessmainline! Great workout and great night! #conqueringchd #CHDfamily #chdwarrior #chdresearch #mainline

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chdlegacy

Lol this would be cool if it wasnt me recording my own videos .. 🤣 .. and if you could hear what Im saying. I dont know how to edit videos very well so if anyone can help please let me know any programs or tools that are helpful. :) #signforsign . . . . #changeorg #change #fightforgrowth #fightforchange #ER #emergencyroom #erstaff #fightforchange #petition #goals #invisibleillness #chronicillness #neuroscience #chdfamily #chdwarrior #chd #spooniefamily #spooniestrong #ministroke #tia #hlhssurvivor #hlhs #spoonie #neurologist #cardio #cardiology #medicalnegligence #abuse #disabilityequality #invisibledisability

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vickisgettingfit

Truth.. as a woman with a congenital heart defect and pacemaker dependent I hope that I can motivate others to never give up on themselves. Believe in yourself, because you are amazing and one of a kind! You CAN do anything you put your mind to! I believe in you! #inspiration #mondaymotivation #iwanttoinspire #chdwarrior #ihaveapacemaker #completeheartblock #npcbikini #goals #believeinyourself #ibelieveinyou #dontgiveup #youcan #fitnessgoals #weightlosstransformation #mychdstory #heartbeat #heartstrong

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ryan.plus.1

This guy dances all over the exam table! But check out his stats!! He gained a whole TWO pounds in a month! Just so you know, that is some pretty good growth for a kid with DS and heart defect. I was expecting him to weigh in at about 9 and a half pounds or so - especially since he’s been kind of eating funny, like he forgot what to do, not eating as fast. He is talking a lot more, smiling more - like big ones! 😄 He has put his hands together for a little while and even put his hand in his mouth. He is focusing on his toys hanging on his swing and has reached for the side of it. His neck muscles are getting there, still wobbly with holding his head up. He looks when we talk to him and his favorite person to talk to is big sister Cookie. She always gets a response out of him and everyone else sometimes has to try a few times! 🤟🏼💙💛

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withhopeandgracellc

Meet Kinley. She will be celebrating her 6th birthday this week! Her CHD is tetralogy of fallot /w hemitruncus. She also has 22q deletion syndrome. She’s had two open heart surgeries, full repair at 8 days old and the second at 4 and a half for her pulmonary valve replacement. Kinley is absolutely rocking this #1in100 look I think you'll agree! #heartwarrior #hearthero #chdawareness #chdwarrior #chdhero #gowiththefallot #tetralogyoffallot

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theheartsister

When I survived ventricular fibrillation, a form of cardiac arrest, & lived to tell the tale without brain or heart muscle damage - oh boy did I pray. I figured my miraculous survival was the proof I needed that God is real. I thanked God for saving me & giving me more time on this earth. I made all sorts of promises that I couldn’t keep, like never to be a shitty person ever again or take my sister Olivia for granted. I also asked God for the strength to make it through my upcoming defibrillator surgery...praying just seemed like the right thing to do in such desperate times. I found faith in a hospital bed, and know many of you have too. I still question my belief in God all the time, but my faith in myself is unwavering. I am a survivor - and if God wants to take credit for that - that’s okay with me because believing that I wasn’t alone in this fight against heart disease gave me the hope that I needed to live again. For that I am most grateful. 💖🙏🏽💖 #faith #prayer #powerful #hope #chdwarrior #heartdisease #heartwarrior #scasurvivor #hospital #memories #realtalk #countyourblessings #itsabeautifuldaytobealive

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baby.frank.zillins

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adventuresofellaandlily

Don’t worry boys, we’ve got you covered too 🏈 #goteam #shoplinkinbio

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adventuresofellaandlily

The girls are cheering their way through the playoffs! #whosteamareyouon #littlegirlsbighearts #goodcause

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chdlegacy

Sign for Sign🔞 Make sure to swipe right at the end of each video for the next one. Here are three small videos taken from my long video about implementing signs in ERs and a law would be amazing to enforce the severity of invisible disabilities, to avoid abuse in ERs. If you have not yet, please sign my petition! The link is above on my profile. Thank you so much! ❤ . . . . #ER #emergencyroom #erstaff #fightforchange #petition #goals #invisibleillness #chronicillness #neuroscience #neurodevelopment #chdfamily #chdwarrior #chd #spooniefamily #spooniestrong #warriors #ministroke #tia #hlhssurvivor #hlhs #spoonie #neurologist #changeorg #cardio #cardiology #medicalnegligence #abuse #disabilityequality #invisibledisability #help

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jennyfi

TWO years. It’s been two years since we handed over our sweet girl to a team of amazing doctors to fix her broken heart. I can still bring up every emotion that we felt that day but with a different perspective now, knowing that not only did she overcome this, she has proven she will fight every challenge with bravery and determination to conquer! Happy Heartiversary to our sweet pea!💗💗 #downsyndrome #t21love #tetralogyoffallot #avcanaldefect #chdwarrior #chdawareness #theluckyfew #heartiversary #lizzykate

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coachash

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kbfitmomstrong

Happy 8 year #heartiversary to my and my pig part! #CHD #chdwarrior #chdawareness #chdsurvivor

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skylerhollier

David, Aubrie, and Jaxon got good news today at the cardiologist. ECHOs are needed for the kids. David found out that his function percentage went down slightly to 52% (you'd rather it be at 55%). Other than that, this is the first doctor's appointment to go really well recently. #chd #chdwarrior #chdawareness #zipperheart #zipperscar #surgery #heartsurgery #heart #heartdisease #spreadawareness #awareness #love

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pinkkandpretty

It was a mommy-daughter day and it went a little something like this 👩‍👧 #mygirl #chdwarrior #mommydaughterday #shewearsmeout #iwillsleepwell #wemisseddaddy

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_yari.alegria

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hammer_strongfit

A answer to prayers. She had to take blood thinning shots twice a day since her surgery, Not No Mo! Thanks for all the continued prayers. #godisgood #charliestrong #heartwarrior #chdwarrior #daddysgirl

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his_heart_beats

I have lots of respect for those who can Smile while it’s Raining. We want to encourage baby Riley 2 months old and his parents that we are holding you up in prayer. Hoping for his lungs and heart to be whole. He’s a precious gift Valley Children's . #chdwarrior

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