For those that follow my account closely and watch my lengthy ig stories this shots for you. The first time I was able to fully submerge my body since having my chest catheter out. Over 100 days with hardly any water. I waited a few extra days until my wound was mostly scab. I had some leakage from the site so I was baby-ing it for a few extra days.
I am grateful for water, sleeping on my right side again! Not feeling like something is jabbing my throat/clavicle, the ability to take showers and clean my entire body, being able to wash my own hair, having a working fistula even if some days I look down at my arm and feel sad about how it looks, my amazing dialysis staff, my mom, my little Luna- my constant companion, my kidney doctor, my vascular surgeon AND for being ALIVE. Even though no days are promised to us the state I am in now (being on dialysis) does put me closer to death. I am hopeful I will be listed at Cedars for dual transplant soon, I am hopeful I have much more life to live, but I am realistic. Thank you for the tremendous support you show me as I show you the good, the bad, and the ugly. This account is for advocacy and awareness. If you have questions about my journey I am happy to share. DM is always open.much love and light to all that live with chronic illness-every.damn.day. Continue to fight, push through, and live a graceful life. 💙💚🌈✌🏼