“You’ve got this and we’ve got you.” This is what I’ve heard many times in the Down syndrome community. I am constantly reminded that even outside of that community I am surrounded by friends, near and far, that are part of the amazing support system we’ve made! I’m so grateful for you all. 💓 I love my people.
Some of you have asked how Cam has been doing, so here’s a not so quick update... Cameron continues to progress, achieve new things, and make strides all at his own pace. He’s so close to walking and can now chase the bigs around outside thanks to his new walker! The walker scared the you-know-what out of me, but our PT has assured us that this is just a tool to motivate Cameron even more. His favorite place to stand is at the fridge (runs in the family). I can’t keep that thing clean bc of the little handprints that have started to appear. It’s a reminder though that he will get there...he will walk. He is cruising everywhere, will walk holding one hand, climbs everything possible (chairs, the stairs and the fireplace). Cameron is learning new words (drink and cheeeeese are his newest) and has mastered even more sign language. I try to remember, “your speed doesn’t matter. Forward is forward.” We’ve also met with a cardiologist here in Rhode Island and Cameron’s heart looks great! I’m so grateful for the wonderful care he had while in Las Vegas. In a few weeks Cameron will undergo another surgery - having his adenoids removed and having his ear tubes replaced. This was supposed to be a month ago, but he got sick the night before...impeccable timing from this years flu bug. Like a good, paranoid Mom, I think I may quarantine him 2 weeks before the next appointment. 😬
The littlest Butler is well on her way to keeping up w Cameron and I’m excited but scared to see what these two do together. They’ll definitely be in cahoots with each other!