Yesterday’s post from @humansofny caught me by surprise. Literally I am a blubbering mess at the moment and I can barely see they keypad of my phone through tears. I think this is the worry of all parents, but in particular parents of kids who have special needs and differing abilities. I worry every day about my girl. As she grows older, as I grow older, I wonder every day, if something were to happen to me right this very second, who would take care of her? Her parents won’t be here forever. If she outlives us, who will look out for Aisha? 😭😭😭. .
“Papa loves Ibrahim. He’s my beloved. He’s my whole world. I have four other sons, but I love him a little more because he needs it a little more. The doctors recommended an abortion but I wouldn’t hear it. He was only three pounds when he was born. He needed half a liter of milk per day. I’d skip my own breakfast just to buy it for him. I took him to nurseries when he was very young because I wanted him to be comfortable with other children. I found a charity that offered speech classes, and I took him five days a week. Anything that I have, I will give him. I only worry what will happen when I’m gone. I’m getting old. I had a major heart episode two weeks ago. I collapsed in the street and all I could think about was him. My wife can't support him alone, and I’m afraid other people won’t be as nice to him. If someone makes him angry, he’s very difficult to control. But I have patience. I’ll hold him. I’ll pat him on the shoulder. I’ll do whatever he needs. I just hope he'll always have someone to do the same.” (Cairo, Egypt)
#mygirl #myheart #downsyndromelife #downsyndromelove