In January 2017, at 18 weeks pregnant, I found out that I was having a girl. The doctor called me the next day because she had some concerns about the ultrasound, and she asked me to come in later that day to discuss the ultrasound and my genetic testing. All day I was worried and anxious. She explained to me that my baby had a heart defect and that my genetic testing indicated that I was high risk for having a baby with Down syndrome. She set up an appointment at Vanderbilt for more testing. Later that week, the cardiologist confirmed that my baby had a heart defect. She had an atrioventricular septal defect (AVSD), which is very common in babies with Down syndrome, and she would need surgery when she was 4-6 months old. I also found out during this time that I had gestational diabetes, so everything was so overwhelming.
On June 1st, when I was 36 weeks pregnant, I went for a regular checkup and was rushed to have an emergency C-section because my baby’s heart rate was going up and down. At 2:10, Janiya was born weighing 6lbs 1oz. She spent her first night in the NICU because her blood sugar was low, but we were discharged after three days. When Janiya was 4 weeks old, I rushed her to the ER because she was having trouble breathing. She had some fluid in her lungs and was started on some medicines, then we were discharged the next day. ----continue story in the comment section-----