Dsdn Photos & Videos on Instagram

Report inappropriate content

thedsdn

October is near! Have you considered sharing our diagnosis cards with your local Ds organization medical outreach team or your own team of medical professionals? Go here to order today --> https://www.dsdiagnosisnetwork.org/materialrequestsforparents . . #dsdn #downsyndromeawareness #downsyndrome #dsawareness #downsyndromeawareness #downsyndromeawarenessmonth

1

mckiddsii

Doing my floor exercises and that annoying fan (aka grandma) keeps snapping pics!! #beautifulDSangel, #readytogetmovin, #dsdn, #dsrockstar, #rockinmyworkout

0

mercysangels

At @idolmakermiami I have been able to train my athletes at a different level. This inclusive environment has given them not only the opportunity to feel more confident but see that they are capable of doing more! . Here we see Brandon working on seated rows during his back workout! He has definitely gotten stronger and is making gains in more ways than you can imagine. Ps. If you don’t have equipment this movement can be done using bands against a solid gym rig or sturdy pole.

3

mckiddsii

This girl rocks my 🌎, she is toppings on my 🍨, and always makes me 😁. I hope everyone has someone that brings pure joy and magic to your life. My 🦄!! #dsrockstar, #dsprincess, #beautifuljustasyouare, #dsdn, #runtheworld, #thatsmile, #dsambassador

0

karaboswell

Ain’t no baby like the one I got💙 #finning #notcookiecutter #beyou

2

learning.with.hazel

Throw your hands up! We are less than $100 away from our Step Up for Down Syndrome fundraising goal! This Saturday, our team, The Hazelnuts, will be walking to raise awareness for Down syndrome and to fundraise for the @dsawm! I picked up our walk shirts today and Hazel was super excited to show them off! If you are local, there is still time to register to walk with us. You can also help us hit our goal by donating a small amount on behalf of our team. Click the link in my profile to join us!! . . . . #theluckyfew #dsdn #nothingdownaboutit #morealikethandifferent #stepupfordownsyndrome

3

thefergseveryday

Wow, those faces. When we got home today, Arbor woke up super mad after a nap in his car seat, so I gave them cookies and took them on the porch.

2

mosaicmama21

My kids really have an admirable bond. Watching them together is joyful. But, C Money thinks he’s slick by trying to sneak a bite of his sisters cake pop. He finished his in under 4 seconds. #cakepop #starbucks #sneak #love #siblings #dsdn #downsyndrome #theluckyfew #model #changingthefaceofbeauty #connoranddelila

0

nursemommytent_wife

My name is Bella and I am able! #18monthsold check up today and I scored a 100%. I inspire people every single day and I never cease to amaze my mommy and daddy. I have #14 words and #22 signs! Whaaaaaaaat🧐!!! I walk independently, I am healthy, happy, amazing, beautiful, and loved. Mommy says she is the lucky one, not me. . . My name is Bella, and I am ABLE to do anything in this world! Watch me! 💪🏼. #movemountains

7

mellokello717

Mom has gotten so desperate for me to start self-feeding that she's letting me paint with sour cream! Glad I'm not on clean up duty. . . . . #desperatemommymoment #downsyndromelove #lifeisbetterwithyou #lifeismessierwithyou #theluckyfew #nothingdownabouthim #tdsn #dsdn #adore_able

2

m4ri4_noh

[20180915] 아니.. #과일즙 하나 먹는데도 이리 #깜찍 할수가 ?! 😍 먹는거만 봐도 역시.. #내딸 ❤️ . . . #borntoeat #lovestoeat #babygirl #lovelyineveryway #precious #thankgod #wonderfullymade #t21 #dsdn #downsyndrome #nothingdownaboutit #dsblessed #theluckyfew #youareablessing #독일생활 #육아 #딸 #2호 #내보물 #하나님의선물 #느려도괜찮아 #다운증후군 #사랑받기위해태어난 #아기천사 #노한나

3

addisonremy

Sleeveless hoodies are my fav!! 👕 so excited for this fall weather... . . but confession... I am definetly in the minority of not liking pumpkin spice anything! 😳

5

rae_oft21

2

sonnymatthewman

🦁💙 #downsyndrome #dsdn

0

lifewithlucy03

We had our 20 week ultrasound for baby #4 yesterday and to say I was nervous about it would be an understatement. At Lucy’s 20 week ultrasound they noticed her small nasal bone (an indicator of Down syndrome), that she was measuring 2 weeks small, and that she had a dot on her heart (which we found out after she was born was a large hole which lead to her heart surgery in the following months). It was a big appointment that changed our lives. So gearing up for this appointment I was worried about our baby’s heart. Heavens, signs of Down syndrome was the least of my worries with this ultrasound. I would have another baby like Lucy in a heartbeat. I just didn’t want to have to go through another heart surgery again. Sooooo let me get to the point haha... Baby #4 looks as healthy as can be. No heart issues that they can see, and she is measuring a week early. Her nasal bone is also measuring normal, but again I wasn’t worried about that. We are just happy that so far she looks healthy and her heart doesn’t have issues!! Oh and she is still very much a girl...all hope is gone for my husband. 😂 We can’t wait to meet you baby girl! 💗 . . #downsyndrome #downsyndromeawareness #joubertsyndrome #13qdeletion #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids

38

joy_in_thejourney

This beauty had her one year appointment today😍😍 She rocked it! She is growing on her own curve and doing very well with her development! . . Children with Down syndrome have a higher chance of thyroid issues as well as Leukemia. So in addition to her normal labs, those were drawn as well. I know the chances are so slim, but there is still a nasty feeling in your stomach when you hear your doctor say the word Leukemia, even if it's just to get a screening. It is also never fun to watch your kiddos get poked, but she did amazing! God was so good and blessed us with a phlebotomist that was able to access her veins on attempt one! That is unheard of for her! So that was such a gift. Now we wait to get her labs back, and continue with all of her specialists. I am so proud of how wonderful she is doing at a year of age and I am so grateful to God when I see how far she has come! I cannot wait to see what this next year brings❤️❤️. . . Also! All day people have been commenting on her amazing jeans! They are from @better_baby_boutique 😍😍 they are sooo darling! . . . . #mom #momma #momlife #motherhood #aviyahgrace #aviyahsjourney #oneyear #one #dr #appointment #shots #dsdn #downsyndromelove #downsyndromeawareness #nothingdownaboutit #nothingdownabouther #littlestwarrior #instababies #beauty #specialneedsmom #changingthefaceofbeauty #adore_able #babyfashion #babymodel #fashioninspo #distresseddenim #inclusion #worthy

1

aviyahsgrace

This beauty had her one year appointment today😍😍 She rocked it! She is growing on her own curve and doing very well with her development! . . Children with Down syndrome have a higher chance of thyroid issues as well as Leukemia. So in addition to her normal labs, those were drawn as well. I know the chances are so slim, but there is still a nasty feeling in your stomach when you hear your doctor say the word Leukemia, even if it's just to get a screening. It is also never fun to watch your kiddos get poked, but she did amazing! God was so good and blessed us with a phlebotomist that was able to access her veins on attempt one! That is unheard of for her! So that was such a gift. Now we wait to get her labs back, and continue with all of her specialists. I am so proud of how wonderful she is doing at a year of age and I am so grateful to God when I see how far she has come! I cannot wait to see what this next year brings❤️❤️. . . Also! All day people have been commenting on her amazing jeans! They are from @better_baby_boutique 😍😍 they are sooo darling! . . . . #mom #momma #momlife #motherhood #aviyahgrace #aviyahsjourney #oneyear #one #dr #appointment #shots #dsdn #downsyndromelove #downsyndromeawareness #nothingdownaboutit #nothingdownabouther #littlestwarrior #instababies #beauty #specialneedsmom #changingthefaceofbeauty #adore_able #babyfashion #babymodel #fashioninspo #distresseddenim #inclusion #worthy

8

ameliapoppywall

Look at this little bean, when did she get so big! After lots of practice she can now sit up on her own for about 5 seconds, proud parents right here!☺️

15

queenchenna

0

mrt21_thomasaurusrex

This picture was in my Timehop today. It’s one of my favorite pics of my guys. My family and friends loved Matt before Thomas was born, but seeing how he cared for me and Thomas after delivery made us all love him even more! This man was part of his baby’s care team in that NICU, he knew every single STAT, the doctor’s names, what time the rotations came through, the o2 levels, I mean every little detail Matt had down. It was amazing to see. And a year later he is still making me say “WOW” at his parenting skills. @ds_dadvocate #savedownsyndrome #dontscreenusout #dssn #dsdn #morealikethandifferent #downsyndromeawareness #nicudad #dadvocate #dadsofinstagram #fatherandson

3

hazeyrain

It’s a sleep the day away kind of day in the Lawson house. I am definitely thankful for nap time today. I think my kidney infection from hell has reared it’s ugly head again. I thought I was out of the woods, but luckily I got an appointment right away for tomorrow. No high fever yet, just pain and exhaustion. Send me all the coffee and good vibes for a long nap! #hazelnoellawson #thislawsonlife . . . . . #downsyndromeawareness #downsyndromelove #christianblogger #christianmama #trisomy21 #brandrep #newmom #babiesofig #birthdaygirl #secondbirthday #mystory #influencer #instababy #toddlerfashion #instacute #brandrepsearch #dsdn #babygirl #babyfashion #babyclothes #toddlerstyle  #changingthefaceofbeauty #fashionblogger #baby #upsyndrome #nothingdownaboutit #momswithcameras #momblogger

10

alilsomethingextra321

I’m still like a little kid on Christmas when I see anyone in one of my shirts😆 Maybe a little too excited but to see it on the Jumbotron in NYC is so cool! Regardless of the shirt they wore, seeing all these faces lighting up Times Square is so special! It must’ve been an amazing and magical weekend in NYC! Thanks for sharing @jcanderson07 and @ashleyr28 💕 Down Right Awesome. Available in all sizes and various styles. Link in profile 👆🏻 . . . #alilsomethingextra #ds #t21 #321 #downsyndrome #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks

4

lily_mae_mama

1

harrisons_happenings

If you’re new here - check out #HARRISONandFORD to watch this little man grow! Another month has come and gone! {actually, it’s been two since I posted!} I realized that I totally missed pictures with Ford during month 19! Between sickness, everyone starting school, and life changes in general - it just slipped through the cracks! This kiddo just keeps growing!! He has such a fun little [BIG] personality! He is learning so much these days, and soaks everything in like a little sponge! His communication skills are exploding, and he is learning to sign more words weekly! It’s taking some time for us to train ourselves to look at him when he is trying to speak to us...not because we don’t want to, but because our eyes are often on one of the other kids. He is getting good at letting us know that he needs our attention if we aren’t looking at him though. His preferred method of transportation is now walking. I’m certain he will take of running soon! Harrison, you are a JOY! A bright spot in our lives! A huge blessing! I’m so thankful for the privilege of being your Momma! • • • #bigadventureswithlittleh #HARRISONandFORD #nothingdown #nothingdownaboutit #theluckyfew #dsdn #changingthefaceofbeauty #morealikethandifferent

4

thedsdn

That's a whole lot of cute right there! 😍 Repost from @kinda.kilany. Tag your pictures with #dsdn for a chance to be featured. . . #downsyndromeawareness #dsawareness #downsyndrome #upsyndrome #nothingdownaboutit #humansofjoy #downsyndromeisbeautiful

11

jaxonsfave

5

extrachromieveda

3

mrsneelygay

Down Syndrome Clinic day! This is where we sit in an exam room and have our whole team of specialists come in and evaluate how Everett is doing. It’s so helpful for us because it’s way less appointments to schedule 💙💛

3

ceci_downrightperfect

💃🏼 (Another shot from yesterday! Oxygen is still on! Just having some fun) #downsyndromeawareness #theluckyfew #dsdn #micropreemie #nicu #warrior #oxygen

2

sweet.on.sutton

One last time reminiscing on hot summer days and ice cream with this sugar loving dude🍦. We will miss the sunshine and pool/lake time but, we are SO ready for fall! 🍁 I have started a fall bucket list of fun things to do with Sutton this year! We are so excited for new adventures and experiences! (Even if it’s in our back yard.) What are some fun things you do in the fall as a family/ with a toddler!?

22

pabloemiliomachuca

1

inhisowntime

Hopefully second time’s a charm! On our way to get Oliver re-evaluated for his new IEP! Send good vibes that he shows them just how amazing he is!

2

rae_oft21

0

tiffaniblatt3940

1

amascott001

Indie started saying yeass instead of yeah and I love it so much that I ask her "yes" questions all the time. "Indie, do you like ice cream?" "And, how about cookies?" Haha. My last baby is growing up, but I hope she keeps waving bye to the planes and helicopters a while longer.

5

dereksmama321

Someone was super chatty last night after dinner 😄 I can’t wait to know exactly what your telling us 💙 * * * #diaryofdermike #lifeisbetterwithyou #downsyndrome #nothingdownaboutit #nothingdown #dsdn #homiewithanextrachromie #chatterbox #t21

2

themangomemoirs

Overalls + ducky rain jacket + this cutie = a perfect start to the day! Happy Wednesday, friends! #samuelamani

3

rae_oft21

0

anne.in.japan

⠀⠀⠀⠀⠀⠀⠀⠀⠀ カーモンベイビーアメリカ〜🕺🏻🕺🏻🕺🏻 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ アメリカ大使館に行ってパスポート作ってきました!その後、日本のパスポートを作って二重国籍ゲットだぜっ!🇯🇵🇺🇸🛂 まだ旅行の予定は白紙だけど、育休中にやっておきたかったことリストが一つ終わってホッとしました。将来的にママの実家のサンフランシスコにアンを連れて行きたいです♪ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Anne is officially a dual citizen!🇯🇵🇺🇸 It took us eleven months to get around to it, but we finally managed to apply for and obtain both her US passport and her Japan passport! We don’t have any plans to travel anywhere just yet, but we wanted to get this done while we were both still on childcare leave. We are happy that we can now cross this off our to-do list! In the future we hope to travel to San Francisco (Mom’s hometown)! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #changingthefaceofbeauty #downmagazine #downsyndrome #downsyndromeawareness #dsdn #elevenmonthsold #dualcitizen #extrachromosomeextracute #lifewithds #mixedbaby #morealikethandifferent #passport #theluckyfew #t21 #生後11ヵ月 #ダウン症 #チーム21 #二重国籍 #ハーフ #パスポート

7

aljoudalmugahwi

2

lilcubs

⚡️ HALF PRICE ⚡️ 50% off t-shirts today until midnight with code ERECTNIPS. Yes I’m cold. https://lilcubs.co.uk/discount/ERECTNIPS

1

katabianac

Check out my list that changed everything for me after my son was diagnosed with a disability. Link in bio! Thanks to @nab for giving me the opportunity to write it. #LifeMoments #ad #sponsored

6

baileyandthebabies

Just because a person may go to university and get themselves a fancy degree, or have a super high powered job with a slick suit and flash car, does not make them more qualified to teach and inspire people than someone with a disability. People are often very quick to judge a book by its cover and never get to know the person behind the diagnosis. But I have had the pleasure through this little app we call ‘Instagram’ to meet these inspiring people, some of whom have Olympic medals or run their own company. But most of all these people know how to really love without judgement. They’re truly amazing and inspiring people who despite their condition overcome it and achieve, they are not disabled but in fact very much able #iamable (outfit in Collaboration with @beauxbabyboutiqueltd )

80

theextraordinarylifeofjake

#nicuawarenessmonth • November 10, 2004. The day my life changed forever. I found out about your #downsyndrome diagnosis after I gave birth to you. I didn't know what to think. I was angry, sad, hurt, confused. I didn't know any better. I was a kid having a kid. I was 18. My whole world flipped upside down in less than 24 hrs. Countless ppl came to talk to me before I even had time to collect myself or digest what was happening. Everything was a whirlwind. Nurses, doctors, specialists, case workers..They were all there waiting their turn to talk to me. So many shocked and disappointed faces. So many introductions beginning with "I'm so sorry". I didn't understand. I was terrified and confused. I was still trying to grasp if this was real life. What did all this mean for you?? My heart felt so full and so broken all at once. A feeling I'd never felt before. I remember the case worker as if it were yesterday. She consoled me while she introduced herself and began to explain why she was there. I will never forget her words- "We understand that this can be a burden for you, someone as young as you wouldn't want to take this on. They won't learn much or live full lives. We've even had families who have beautiful kids and unexpectedly gave birth to a disabled child and put them up for adoption to not ruin their image, and that's ok. We won't look at you in any way if you want to give up this child." I couldn't believe what I was hearing. My chest filled w anger. My heart was pounding. I cut her off sobbing uncontrollably and yelled I AM NOT GIVING UP MY BABY! I may not have known much. I was a kid having a kid. But I do know that they judged my character because of how I appeared, and they absolutely judged you because of how you appeared. They didn't know that the moment you were born, you were mine. They didn't know that you would exceed every expectation. November 10, 2004 God chose me to be your forever. And on that day you became my forever. I will always love you and I will never allow anyone to make you seem/feel/believe that you are anything less than perfect. Our hearts will eternally beat as one ❤ I love you, son. Ps: look how far we've come. 🙏🏼💛💙

17

theextraordinarylifeofjake

I had a super fun time today at my first Teen Book Club class! I got to meet some cool new friends that are all in hs too! I already told my mom that I'm excited to go again next wk🤗📖📚 #teen #bookclub #dsaoc #littleprince . . . #downsyndrome #ds #trisomy21 #t21 #upsyndrome #nothingdownaboutit #theluckyfew #inclusion #upwithdown #inclusionmatters #morethanable #seetheability #downmagazine #dsdn #stayRAD #specialneeds #downsyndromeawareness #changingthefaceofbeauty #savedownsyndrome #321 #dsrocks #iamable #morealikethandifferent #proudmama #shouttheirworth

0

downrightdelectable

2

kburton1376

My baby turned 5 months today, her feeding tube came out the other day, and she's been doing such a great job with feeding I haven't had to replace it 🙌🙌 #smilebabysmilecontest #extrachromosomesrock #rainbowbaby🌈 #dsdn

1

meeshellsullivan

Eli got his first haircut today! 💇🏼‍♂️Don’t worry, I didn’t chop off his curly locks, just evened them out - he twirls one side and makes dreadlocks, so one side was much longer than the other #elienhancesmylife

28

thisisluchi

2

cedarsstory

24

swiftti

Rocking the ABC’s!!!! (Excuse the proud mama scream 🤣) #peanutstrong #preschool #dsdn #morealikethandifferent @digitalmad

6

cchapman323

I mean this kid just keeps getting cuter everyday! He simply amazes me 😍💙💛 @chappy3483 #gipsonchapman #downsyndrome #lifeisbetterwithyou #morealikethendifferent #dsdn #nothingdownaboutit #happyboy #wouldntchangeathing

3

mountaineermeg

This tribe rocks! #alexstrong #theluckyfew #dsdn

5

wonderfullywillowmae

3

katie__mc__

If anyone would like to purchase a shirt to support Anna and Down syndrome of Louisville please dm me! #dsdn #downsyndromeoflouisville #downsyndromeawareness #annastrong #annasadvocates

8

adventuresofanextrachromosome

Kaleb loves Dr. Bussey’s office. Lots of girls to flirt with. However, wasn’t that big of a fan of Dr. Bussey trying to look at his eyes. In fact the stinker wouldn’t even tell her thank you for the sticker at the end. When I asked him if he was going to tell her thank you he just continued to look down and shake his head no. 🤦🏻‍♀️ #adventuresofanextrachromosome #dsdn #downsyndromeawareness #changingthefaceofbeauty #lifeisbetterwithyou

0

jackiemsydney

0

1tenaciousmama

9

thedsdn

October is near! Have you considered sharing our diagnosis cards with your local Ds organization medical outreach team or your own team of medical professionals? Go here to order today --> https://www.dsdiagnosisnetwork.org/materialrequestsforparents . . #dsdn #downsyndromeawareness #dsawareness #downsyndrome

8

sabi.regalo_de_dios

7

jennifervancura

0

cathcabrera

20

keepingpacewithkase

For those of you who don’t know us we are the Whetton Family (a.k.a Kase’s crew). I thought I would just do a quick family into for our new friends! I am Kassidy 🙋‍♀️ married to my high school sweet heart Randy 👦🏻. We have three boys Easton (5) 💙Kase (2 1/2) 💙 and Asher (5 months) 💙. We love all of our adorable boys and each one is unique with their own interests and strengths. This page however is mostly centered around Kase and his journey with Mosaic Down Syndrome! We wanted to be able to change the face of beauty and to help people get a real view of what it’s like living with someone with Down Syndrome (spoiler alert : it’s totally awesome)!!! Thanks for following us on our adventures and we can’t wait to meet more people in this awesome community! #nothingdownaboutit #morealikethandifferent #mosaicdownsyndrome #letlifesurpriseyou #dsdn #theluckyfew #themighty #upsyndrome #keepingpacewithkase #kasekelly #familyfirst #supporteachother #downsyndromeawareness #familypics #families #thinkdifferently

27

staceycampbellrussell

0

downwithsam

1

mamabeardaniels

All prepped and ready for my conversation with a room of resident doctors about DS and diagnosis delivery 💙💛 #DSDN #NDSS #theluckyfew #morealikethandifferent #Advocate4Life #dsawareness #T21Strong

1

sabi.regalo_de_dios

8

raisingjackandjune

The closer we get to Juniper’s birthday next week, the more I keep reliving what we went through last year... My Facebook memories keep reminding me of the fear that Juniper would come before 35 weeks. My fears that I wouldn’t be able to hold her, my fears that they would find more issues than just her heart. But somehow, through the fear and the worries, I had hope... Through all the trials we’ve been through with Juniper, I would hear it all the time. “I don’t l know how you do it.” I would always just laugh it off, but in truth, I had no idea how I was making it. Yes, sometimes I just wanted to hide from the world and cry all day. But for the most part, I can honestly say I was ok. I often wondered why I was ok with everything. Even now looking back, I still wonder. I had post-partum depression with Jack, my healthy baby. But with my baby that had a heart problem, I want sibling down into the depression. Ultimately, I knew my faith and trust in God was the only explanation. But today while reading ‘Hope Unfolding’ by @scissortailsilk, it finally hit me. In her book she writes, ‘praise became my weapon against grief.’ And in that moment I knew. You see, after Jack was born, I had several doctors tell me that they didn’t think I could get pregnant again, and if I did, it would be a tough road. Every day that I was pregnant with Juniper, even after finding out about Down syndrome and her heart, I thanked God for giving me another baby. I was so grateful that I was once again blessed with another baby. My praise for her became my weapon against the fears, and the worries, and the doubt. I woke up thanking Him for another day with her, and I went to sleep praising Him for giving her to me. Without this thankfulness in my heart, I wouldn’t have made it through to the other side. Do I still have my fears? Of course. That’s normal. That’s human! But I am now choosing to let praise be my weapon.

12

rareclaiiire

1

somethingalittleextra

Happy 29th birthday to this sweet husband of mine!! I can’t believe you’re almost 30. 🙈 thank you for being an amazingly awesome husband and dad and for loving this sweet boy with all your heart. I couldn’t imagine life without you. 😘 . . . #happybirthday #loveyou #birthdayboy #nothingdownaboutit #upsyndrome #family #candidchildhood #dontforgetdads #kisses #dsdn

48

cooperthecourageous

GRATEFUL- We spent our pregnancy dreaming of all the things we would do this summer once our son was born. We would go camping, hiking, to our cabin down south, boating in Idaho, we’d go to weekly outdoor concerts, have play dates with new friends, bbq’s with the buds and family, the market on Sundays, target runs, Trader Joe’s trips, you name it, we dreamt it. We didn’t do any of those things- we C O U L D N O T do any of those things and that’s ok. We got to become better people, we got to experience unconditional love, we got to build a better marriage, be apart of a stronger family, established new relationships, and realize that there are entire groups of amazing people that we didn’t even know existed. We are better, kinder, stronger, more knowledgeable, more aware, more grateful, and more opened minded people than I ever thought we could be. Seclusion was hard- but it was the road we chose to take to ensure that Cooper succeeded with heart surgery. It was the right choice and it taught us the most valuable life lessons. No matter your path, no matter your story, no matter your struggles or hardship, find the joy, find the positivity, find the lesson in it because there is someone else wishing they could be in your shoes and that their journey could look like yours. Be grateful. Be open. Be kind. Ps. We’re going home 💛

29

m4ri4_noh

[20180917] #나의비타민 ❤️ 널 보고만있어도 너무 #행복 하고 #감사 하고 #세상부러운게없다 😍 하지만.. 이런 사랑스런 모습들 보다 #고집불통 너가 보이는 #진상 모습들이 더 많다는건 #안비밀 🙄 . . . #myvitamin #stubborn #exhaustingday #notalwaysanangle .. though.. #precious #wonderfullymade #t21 #dsdn #downsyndrome #dsblessed #theluckyfew #lifeisbetterwithyou #youareablessing #육아 #딸 #내보물 #하나님의선물 #느려도괜찮아 #다운증후군 #사랑받기위해태어난 #아기천사 #노한나

5

addisonremy

Looking at this face you would never know we were up half the night. 😴 between the constipation and coughing this mom is a #mombie wishing I looked half as good as she does!💗 . Thank you for everyone who sent responses to my question, I will share them all with you. . Does anyone else think baby jeans are the cutest thing ever? Cheers to a Happy Tuesday and hopefully a good night sleep.

11

adventuresofanextrachromosome

0

queenchenna

Hi IG fam! It's been a while! The past 3 months has been quite the whirlwind. I'd like to introduce to you, Legacy Alexis Chizitelum Lewis! Legacy finally made it home from the NICU 2 weeks ago!! Legacy was born with a large VSD (hole in her heart) and had been in congestive heart failure almost since birth. She had open heart surgery on 8/16/18 at 7 weeks old. Swipe left to see her photo immediately after the procedure. I still stand in awe of how God has walked with us through this journey and I truly am a witness to the truth that many are the afflictions of the righteous, but the Lord delivers him from them all. This has been the most unexpected, challenging and yet beautifully exhilarating experience. The LORD has stretched and grown us beyond a space that our minds could never have conceived. A huge thanks to the amazing Pediatric Cardiologists, NICU, PICU and 9N Bloomberg staff at John Hopkins. We owe you a debt of gratitude for the heartfelt care Legacy received. You all are an answer to prayer. Thank you also to every one who prayed, sent a word of encouragement and well wishes through this ordeal. God astonish you and your on-lookers with the wonders of his might displayed in your life! You too are in line for a mind blowing testimony!! Last but not least, to my family who stood by us and journeyed through this with us, thank you will never suffice! May God show up for each of you in a mighty way. Friends, don't give up....no matter how hard it gets. You are about to make it to the other side! #VSD #openheartsurgery #VSDrepair #trisomy21 #perfectlyimperfect #fearfullyandwonderfullymade #lewislovestory17 #chosenfew #luckyfew #LegacyAlexis #daddysgirl #Miracles #GodDidIt #Motherhood #Maternity #Expecting #amotherslove #prayingmom #yoursundaysbest #lovemybabies #like4like #follow4like #follow4follow #black_beautifulclassy #ThankfulTuesday #l4l #photographyislifee #TeamLewis #AlohaBabyLewis #DSDN

35

upanddownwithconnor

2

fjollarraci

7

thesaigesagas

I’m ready for another day of daycare learning 😊 even tho I think I’m the teacher 😂 #goodmorning

1

upanddownwithconnor

Deep in thought. 😍 . There wont be too many days left where we are able to go out and enjoy the park, so we are taking every opportunity to get some fresh air! . Connor just looks so peaceful, and so beautiful against the bright colours. Love this picture. ❤💙💛 . #lifethruconnorslens #theluckyfew #babyspam #t21 #instakid #kidstagram #instatoddler #toddlersofinstagram #iamable #nothingdownaboutit #dsdn #homiewithanextrachromie #downsyndromeawareness #downsyndrome #morealikethandifferent #lifeisbetterwithyou #wouldntchangeathing #changingthefaceofbeauty #differentlyabled #designergenes

6

eve_pv.as

0

eve_pv.as

0