Homiewithanextrachromie Photos & Videos on Instagram

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krigarenmoa

You have wanted for this... here you have a carpool😀😉🚘🎤 • Som ni har väntat... här har ni en carpool😀😉🚘🎤 • @justintimberlake #justintimberlake #cantstopthefeeling

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everydaywitheaston

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sarahgis_a_g

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21smyles

I know we parents are all a little bias, but my goodness, Myles is the best. I don’t go an hour in my day without reflecting on how lucky we are to have this little man. He lacks nothing in character, kindness, ability or strength. He only brings extra in all of these departments and leaves a trail of happy hearts in his path. 👣 Here’s an extra smile to help us reflect on how lucky we have it. Our first world problems and whomever or whatever makes our hearts feel this full 💙 . . #nolovelikemyleslove #perfectlymade #theluckyfew #happyhearts #homiewithanextrachromie #downsyndromelove #downrightperfect #t21 #trisomy21 #cdss #dsdn

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alilsomethingextra321

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nathanielextracute

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nathanielextracute

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lularoeginaschmittdiel

The people that have come into my life over the last 15 months, just because my son has an extra chromosome, have been my absolute favorite people. @petroneprincess . . #gigisplayhouse #gigisgala #homiewithanextrachromie #rockinmoms #lularoe #lularoeamelia #lularoeginaschmittdiel

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down.for.adventure

I wonder if these sleeping positions coincide with whatever he's dreaming about? Nevertheless, so adorable... #downforadventure #lairdbear #t21 #homiewithanextrachromie #lovedoesntcountchromosomes #morealikethandifferent #chromosomallyenhanced

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lularoeginaschmittdiel

The people that have come into my life over the last 15 months, just because my son has an extra chromosome, have been my absolute favorite people. This girl right here has such a heart for giving. It was so fun volunteering at Gigi’s gala tonight with you @petroneprincess 💙💛 . . #gigisplayhouse #gigisgala #homiewithanextrachromie #rockinmoms #lularoe #lularoeamelia #lularoeginaschmittdiel

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jagz_got_swag

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jagz_got_swag

@glambabyphotography, Thank you for the amazing pictures. Can't wait for next shoot. #changingthefaceofbeauty #homiewithanextrachromie #downrightperfect #theluckyfew

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thislittlelife1

We are back in the hospital. Tonight Rycker’s stomach got extremely hard and he had a lot of redness around his Gtube site. He had a nasty yellow puss spewing from it which we have never seen before. He had a fever last night as well and has been fussy all day today. He is breathing extremely fast and has been arching his back in the air like he is in a lot of pain and uncomfortable, it’s obviously nothing like reflux since he has had the Nissen, it’s more like he is bothered by something. So we brought him to the hospital right away. We were afraid that he might have an obsruction. They brought us back to the room immediately and the few minutes we were in the emergency room they put us in the lactation room away from everyone else. They are worried that he is coming down with a virus or possibly pneumonia. They are going to do a chest and belly X-ray as well as an EKG and most likely labs. They are calling cardiology to see if they want to do anything else. They are taking extreme precaution being that he is a cardiac patient and just had open heart surgery and has pulmonary hypertension. Any little virus could be deadly and is best caught before it’s gets too bad. We will keep everyone updated as always. Please keep Rycker in your prayers! As always it seems like we take one step forward and 10 steps back. I hate seeing Rycker like this especially knowing there’s nothing I can do to help him. #ryckertheupsanddowns #ryckersheartheroes #thislittlelife #chdwarrior #heartwarrior #hearthero #raisingawareness #changinglives #advocate #mysonsvoice #morealikethandifferent #lifeisbetterwithyou #homiewithanextrachromie #changingthefaceofbeauty #sadbaby #ekg #heartdefect #pulmonaryhypertension #hospitallife #missinghome #pneumonia #sickbaby #ourjourney #ourstory #getwellsoon #mommysboy #mamasbaby #momlife #heartmom

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down_is_up_with_daxtyn

Alright guys, we’ve got close to 100 shirts ordered so far and there’s still time to order one if you want one. Please let me know by Friday if you’d like to purchase one. This is strictly for the support we’ve received from Daxtyn, the money does not benefit us in any way. Thank you guys again for being so awesome and showing your support! 💙💛. ‼️T-Shirts Sale Post‼️ Okay guys, we have found someone who is more than willing to make us some t-shirts in honor of Daxtyn! These shirts are super soft and look exactly like this, color and all. They are comfortable fitting as well. These shirts do not benefit us in any way, but with the crazy amount of support we have received through this journey, we would love to offer our supporters and chance to buy a #DaxtynStrong t-shirt. For adults, they will be $15 each, an additional $2 for larger sizes. Infants and kids will be $13 each. Me and my family are beyond blessed because of you guys. So if anyone would like to purchase one, send me your sizes and quantities so I can make a list to give to Regina so she can order as needed. If you have any questions, please feel free to ask me or Lucas. We will take orders for about two weeks before we give her the final list. Thank you all so very much for your love and support from the bottom of our hearts! We will get your shirts to you wherever you are if you send us your addresses as well. 💙💛💙💛🙏🏼 ‼️‼️‼️Edit‼️‼️‼️ Headbands will be $8. #daxtynkai #daxtynstrong #homiewithanextrachromie #supportdownsyndrome #upsyndrome #downsyndrome #trisomy21

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itsybitsygeorge

Jumping for joy because it’s the weekend!! #saturday #weekend #weekendvibes #jump #trampoline

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bittyeo_

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mrt21_thomasaurusrex

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crystalhol11

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katosharussell

World Down Syndrome Awareness Day is 3/21! Support @johnscrazysocks 💙💛 Purchasing mine now! . . . . #downrightperfect #downsyndrome #nothingdownaboutit #t21love #t21blessed #theluckyfew #dsdn #morealikethandifferent #mamasboy #homiewithanextrachromie #downsyndromebaby #downsyndromeawarness #downsyndromerocks . . . . “Our Down Syndrome Awareness Socks honor the contributions, achievements and struggles of people with Down syndrome. We donate $2 from the sale of every pair of these socks to support Down syndrome. One dollar goes to the National Down Syndrome Society (NDSSS) and one dollar goes to the Association for Children with Down Syndrome (ACDS). Our co-founder and inspiration, John Cronin, has Down syndrome and everyday demonstrates what people with Down syndrome can do. He wanted to do something to raise awareness of Down syndrome so he wanted to create a Down Syndrome sock. He helped design these socks. We wanted the Down Syndrome Awareness Socks to be colorful, fun and beautiful. The 3-21 represents both World Down Syndrome Day (March 21) and the extra chromosome that people with Down syndrome carry. Most of us are born with 23 pairs of chromosomes, but people with Down syndrome are born with a full or partial extra copy of chromosome 21, thus 3-21”.

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extra_exton

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glambabyphotography

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itb3m33

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ryan.plus.1

Ryan was really feeling this tummy time swing for a while at @downsyndromeoflouisville in todays infant exercise class! He was doing good with tummy time and was even showing off some side lying. That or Ms Dawn is an angel. Lol. He proved me wrong! He has improved so much with his tummy time over the past few weeks, so proud of this guy!

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m.roliczek716

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alilsomethingextra321

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itb3m33

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henrik.strong

Saturday morning shinnagins 🤪 · · · We are now in the very curious stage. He currently loves crawling under the side table 🤷🏽‍♀️. · · · · #henrikstrong #downsyndrome #theluckyfew #upsyndrome #morealikethandifferent #moreupthandown #worthy #homiewithanextrachromie

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alilsomethingextra321

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eliandindy

Having a Morning Bath in the Sink 🛁

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athomewithharry

*M Y T H  B U S T E R* I'm not a huge fan of generalisations and so when people say things like "all babies with Down Syndrome are happy all the time" I start to twitch. I'll bet this is, almost definitely, never said by parents of babies with Down syndrome🙄 While yes, Harry is a good natured baby, he also has a huge range of other emotions that he loves to show me...no different to his typical sister. He cries if he's in pain, he roars if he's hungry, he cries if he's tired (but really just needs a quick cuddle to go to sleep), he laughs if he's happy, he smiles if he's amused, he looks blankly at you if you're just not doing it for him, and he can open his huge blue eyes wide and stare into your soul to tell you he loves you. So yes he is happy, but he is so much more than that.💙💛 . . (Swipe for pics of him less than happy...🤣) #trisomy21 #nothingdownaboutit #dontbesorry #downrightperfect #upsyndrome #morealikethandifferent #homiewithanextrachromie #downsyndromecutie #downsyndrome #personfirst #dontdishisability #theluckyfew #downsyndromeawareness #geneticallyupgraded

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athomewithharry

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ilswds

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chucklesandmeatloaf

Thank you @cedarsstory for sharing our story! Friends, you can read Charlie and Milo’s story on the Cedar’s Story blog - see the link in her bio! 💙💛 #downsyndrome #downsyndromeawareness #twinswithdownsyndrome #theluckyfew #t21 #homiewithanextrachromie #nothingdownaboutit #lifeisbetterwithyou #morealikethandifferent #provethemwrong #upsyndrome

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upsyndrome_xo

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the.lucky.few

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sarahbegara

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krigarenmoa

Tonight it's time for part competition 4. My votes goes to the best Mariettte 😀👊❤ • Ikväll är det deltävling 4. Mina röster går till den bästa Mariette 😀👊❤

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ryan.plus.1

I #mustache you a question - if Ryan’s not the cutest kid on the planet, then who is? #trickquestion A. I wished I looked that cute when I yawned; instead, I look like some sort of scary creature. B. I did not know which one of these pictures was the best, so, all!! 😍 #ladiesman

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judedudeofficial

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yasmin_serrano_1904

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ourjudah

80 degree weather calls for lunch outside, sunnies, and a helmet break 😎

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livingintentionallyfree

My guys 💙 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #boymom #boymomlife #momof2 #hubbylove #familydate #friyay

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itsybitsygeorge

Happy Go Texan Day!! 🤠🌵🐎 #houstonrodeo #gotexan #texas #rodeo #rodeohouston

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athomewithharry

Someone asked me recently "hows Harry?" Followed by "is he doing everything he's supposed to be doing?" And I thought how do I answer that?! With my typically developing daughter I had the apps (she followed the wonder weeks to the letter), I went to baby classes, I went to mother and baby groups where inevitably start comparing your little ones and their progress. And then you worry. I worried if someone else's little darling was better at tummy time, could crawl before my little one, could walk before her,  if another baby was munching on homemade bulgar wheat pancakes with a side of homemade organic quinoa ratatouille finishing with wild avocado puree while mine was still downing baby yogurt and cheese by the truck load. I checked in weekly to see what she "should" be doing and her development was perfect, but like anything, if you keep looking you'll find something. So with Harry, I've stopped looking. I know he will hit every milestone that his typical sister did...just in his own time. And that's ok. What's the rush? While I will absolutely encourage him and work with him to reach his potential, I'm.not worried.I've rewritten my little book of expectations. And it's actually quite refreshing. So "is Harry doing everything he *should* be  doing?". Well, he's doing everything he could be doing. And thats good enough for me. He is doing his thing, in his world. And it seems a pretty cool place to be.💙💛

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mrsneelygay

Everett is happy to announce he is a Brand Rep for @alilsomethingextra321 ! We love all of their Down Syndrome Awareness apparel. Use coupon code Everett20 for 20 percent off your order! https://www.alilsomethingextra.com

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dsacentralflorida

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katie622

Yesterday I went and got #theluckyfewtattoo by @tattoosbymarna. I absolutely love it and what it represents!!! If your local and looking for an amazing tattoo artist then please check her out. I said I wouldn’t get anymore but I’m already excited for my 3rd one which will be my moms handwriting so I always have her with me!! #theluckyfew #theluckyfewtattoo #brigyk #downsyndrome #downsyndromeawareness #nothingdownaboutit #tattoo #imobsessed #wantingmore #homiewithanextrachromie #waterford #dsinspire #advocate #morealikethandifferent #arrow #latergram #thursday #thursdayvibe #t21 #blessed #tattooedmom #downsyndromelove #mybaby #collarbonetattoo

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down.for.adventure

His facial expressions are so fun! I could just hold him and watch that beautiful face for hours... #downforadventure #lairdbear #t21 #homiewithanextrachromie #morealikethandifferent #lovedoesntcountchromosomes #chromosomallyenhanced

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liveloveleighton

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robin.furseth


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