Homiewithanextrachromie Photos & Videos on Instagram

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laurasgreetingsco

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ryan.plus.1

Ryan’s 9 Month Well Checkup was today! He’s checking out his finger he got poked for to get his CBC checked. Just kidding, he always looks at his hand. But he always looks at his left hand, so 🤔. He’s continuing to grow on his curve - an ounce shy of 16 pounds and 26.5 inches tall! On a typical growth chart, those measurements are the lower three percent. But as long as his growth curve doesn’t flat line, we’re doing good. This appointment was the first one where basically all the developments were a NO on this questionnaire. 🤷🏻‍♀️ He keep getting better and better at sitting each day, and I have a feeling he is rolling from his tummy to his back also, just always when I’m not looking. 😑 This Guy has been through all his emotions today. 😑 And sound asleep now! 💙💛 Also, can’t really see it in pictures, but we’re going to see a dermatologist for his patchy lighter parts of his skin on his cheeks.

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judedudeofficial

I don’t do this very often.  Honestly the mourning and the “why me” thoughts are very rare.  I don’t know why today, it was a great day with friends and everything running smoothly.  It’s probably with school coming near I’ve been thinking a lot. Sometimes I think about the life I thought I was going to have.  Where my kid could just go to school, do his best, learn and come home and play with friends.  Where my kid’s life wasn’t picked apart and put on charts and rating scales of mild, moderate, and severe.  My kid is only 3! I’m already tired thinking about doing this for next 15 years. I’ll do it because Jude needs me to.  Because no one cares more about him and his future than Tucker and I do.  I wish I could say that these services weren’t ran by numbers, money, and convenience but they are.  So because of that Tucker and I have to be there every step of the way. (I’m not talking about the people who are personally involved with Jude, but just the programs in general. 😉) I love Jude so much and I can’t wait to see where his future takes him.  For now though I will work on getting him to say more than 20 words and try not stress eat all of the cookie dough in the fridge. #judedude 😛 . . . . . #specialneedsparent #mystory #toddlerlife #toddlersofinstagram #shouttheirworth #theluckyfew #homiewithanextrachromie #nothingdownaboutit #downsyndrome #ds #t21 #trisomy21 #preschool

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caitlenbailey

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babybyoakley

Three arrows. One for each of my children. One for each copy of Baker’s tiny 21st chromosome. The same one that scared and saddened us when we first learned Down syndrome would be part of our lives. The thing about arrows, though, they tend to soar after being pulled back. We’ve been stretched to our limit several times over these last 15 months and every day we rise up and move forward. We fly higher than we ever thought possible. 💙💛 #theluckyfewtattoo #myriseuptribe

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embracing_the_extra

🏡 We've been having a lot of fun getting creative with tummy time at our house lately. >>> 💪🏻 As a bonus, we're building up the muscles needed for rolling over, sitting up, crawling, and eventually even tasks like handwriting! Pretty cool, huh? >>> What are your favorite ways to do tummy time at your house?

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mrsneelygay

So.. I did something today I swore I would never do... I got a tattoo 😬. Things change, People change. It signifies the growth I have had as a mother and as a person over the past year. We thought our world was crashing down after finding out Everett has Down Syndrome. Instead, he has enriched our lives so much. Like an arrow, we were all pulled back and stretched before we were able to fly forward. And of course three arrows to represent the third 21st chromosome 💛💙💛 #theluckyfewtattoo

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mrsrachelfry

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happydowngirl

Con mis trenzas regalonas y mi mamá😍

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jen__gonzales

This boy teaches me everyday. He is fully aware that he has Down Syndrome. You know what else he's fully aware of? Down Syndrome does NOT make him less than or not capable. Evan wanted to try out for the swim team, so he did! We walked into the pool + he was a ball of nerves. My eyes burned with tears + a lump sat in my throat as I saw everyone staring at us. I held my head up high + walked my boy to our spot. I reassured him that if any of those other kids could do it, so could he. As he slowly inched his way in, I could see him shaking + unsure. Before we knew it, he was swimming in his lane + kicking fear in the face 👊 I'll never stop shouting that he is more than able. I'll never stop him from trying something new. And I most certainly will never let a diagnosis dictate what he can or can't do. So lemme introduce y'all to my favorite member of the swim team!!! He did it!!!! #evan #morealikethandifferent #theluckyfew #shouttheirworth #upsyndrome #nothingdownaboutit #inclusionisthenewcool #dsdn #acceptancenotawareness #kindnesswins #chromosomecutie #homiewithanextrachromie

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mightyaiden

Walks are my favourite as you can see. Im fast asleep 😴 💤 #homiewithanextrachromie # upsyndrome #downrightperfect #sleeping #11months #

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sweet.on.sutton

If you were a fruit you’d be a FINEapple 🍍☀️❤️ #nothingdownaboutit #homiewithanextrachromie #theluckyfew

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cedarsstory

I never planned on being a special needs mom. I don’t think any of us do, it takes most of us completely by surprise. In fact, I remember thinking for many of my childbearing years that I felt so bad for moms who had a child with special needs. Poor moms. Well, life has a way of surprising you and now I am on the other side of that coin. Here is what I want you to know (and I am sure that there are many other moms who feel this way too). So read on for a few ways you can teach your children empathy for those designed differently from them (link in profile to the blog post) #theluckyfew #downsyndrome #downsyndromeawareness #morealikethandifferent #homiewithanextrachromie #upsyndrome #nothingdownaboutit #trisomy21

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funwiththethree

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lovesforlilyruth

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lovesforlilyruth

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eloisetemplar

The face you make when mummy tells you “NO” .. but Daddy says “YES” ... 🙄 #smug #heswrappedaroundherlittlefinger #andsheknowsit #nothingdownaboutellie #daddiesgirl #upsyndome #homiewithanextrachromie #lifeisbetterwithyou 💘

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ourjudah

Shovels up for a looong summer because this Texas heat ain’t going anywhere 😛

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incitehope99

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themindofamammy

G I R L S R U L E ❤️ —————————————— We ended up having to go to the shop today so I dressed Evie for the whole of 5 minutes but how cute is this jumper that I got in @primark for...... wait for it............... a Euro like how could you go wrong you wouldn’t get a pack of crisps for that 😂 —————————————— • • • • • • • • • • • • • • • • #momswithcameras #cutekids #ootd #girlsrule #happy #parenting #inclusion #downsyndrome #downsyndromelove #upsyndrome #theluckyfew #nothingdownaboutit #bargain #downrightperfect #kidsofinstagram #kidstyle #kidstagram #irishmammy #instastyle #babyblogger #letthembelittle #myworld #myheart #babymodel #motherhood #homiewithanextrachromie #downsyndromeawareness #321 #lifeisbetterwithyou #changingthefaceofbeauty

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aoife_bear

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kaitperkins86

#tbt This time last year we were getting ready to welcome a little baby boy into this world. Little did we know that he would make a slightly early entrance or that he would be rockin’ an extra chromosome. Little did we know we would have to run to babies r us for preemie size clothes and that the cute homecoming outfit we bought would stay at the hospital with him until he could come home (2nd picture). More importantly, little did we know how much love and joy he would bring into our lives. I can’t believe the baby that fit into this outfit will be turning 1 in less than two weeks. 🙊 #theperksofhenry #theluckyfew #homiewithanextrachromie #livingwithalittleextra #alittlesomethingextra #downsyndrome #nothingdownaboutit

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trisomy_bout_it_bro

We leveled up #Rolling with the homies. #Milestones #LifeWithCJ

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clari.dance

Throw Back Thursday - Zincon ABBA with @kassandsteve @steveboedt @kassmartin ❤️❤️❤️ #zumbavideos #zumbafitness #zincon2018 #zincon #zumba

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cora_bishop_zebedee_model

Everyone who meets Cora and Kenny together, can't deny the beautiful bond and friendship they have. There are a lot of preconceptions that the sibling of a disabled child suffers. Kenny certainly hasn't. If anything it has made him more compassionate, understanding and loving. #brotherandsister #holiday #beach #family #childhood

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dereksmama321

Thank you for making every second of every day brighter, Derek Michael 💙 I am hoping these over exaggerated, hilarious belly laughs put a smile on anyone’s face who may need it ♥️😘 * * * #diaryofdermike #downsyndrome #nothingdown #nothingdownaboutit #homiewithanextrachromie #lifeissomuchbetterwithyou #laughteristhebestmedicine #theluckyfew

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alongcamegrey

Yesterday, I had the pleasure of cooking and delivering dinner to a family that recently adopted a baby girl. I couldn’t believe how smoothly it was going with the kids keeping themselves busy while I was cooking in the kitchen. After I was finished and ready to head out of the door with Quinn and Grey to deliver the food I noticed Grey sitting near the book shelf grunting. I knew what that meant 💩 . I finished getting Quinn’s romper on and looked over at Grey and I saw 💩 coming out of the tops and sides of his diaper onto our carpet (he was only wearing a diaper at the time... thank god). After making a complete disaster of his changing table and using a whole pack of wipes to clean him, I hustled both kids into the car only to realize I didn’t have my phone. I didn’t know where I was going without my phone so I couldn’t just leave without it. I left both kids in the car (Quinn was crying) while I went back inside to look for my phone. Finally after 5 minutes of frantically searching I moved a part of our couch and there it was. Greyson was playing where I found it so I’m assuming he placed it there for safe keeping 🙄. With two kids under two the day can derail so quickly but I would go through 100 afternoons like yesterday just for one moment like this photo. Seeing their growing bond is totally worth being elbow deep in 💩.

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enablesnp

You’re not alone and we’re here to help. We don't just care about planning. We care about your peace of mind. . #ENABLEsnp #specialneedsplanning #specialneeds #autism #cerebralpalsy #downsyndrome #epilepsy #spinabifida #BeImpactful

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charmainejade

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livin.with.my.rae.of.sunshine

. On this cloudy day I provide you with a sweet•sleeping•smiling•Rae of sunshine 💕☁️☀️ . . #RaelynLee #OurRaeOfSunshine #cloudydays #theluckyfew #homiewithanextrachromie #sweetbabe #mamasgirl

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extrachromieveda

🔈Lets talk #awareness today!! Our visit to any place ends up with weird stare & “baby wearing glasses” shaming❌. I never took them seriously but yesterday few kids stared Veda for long and made fun of her. Well it’s hurtful especially when I see parents supporting and terrifying their kids by giving veda’s example of being a “bad child” who got glasses at such age. Kids can be very mean and rude to kids with special needs or disabilities. As a parent it’s our responsibility to make them a better person. Please communicate with your kids about disabilities whether it's physical, neurological or intellectual. Encourage them to be kind and respectful towards every being. So, from next time don’t stare but approach us. Talk to us. BE KIND💖

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kavita.baluni

#AdvocateLikeAMother 🔈Lets talk #awareness today!! Our visit to any place ends up with weird stare & “baby wearing glasses” shaming❌. I never took them seriously but yesterday few kids stared Veda for long and made fun of her. Well it’s hurtful especially when I see parents supporting and terrifying their kids by giving veda’s example of being a “bad child” who got glasses at such age. Kids can be very mean and rude to kids with special needs or disabilities. As a parent it’s our responsibility to make them a better person. Please communicate with your kids about disabilities whether it's physical, neurological or intellectual. Encourage them to be kind and respectful towards every being. So, from next time don’t stare but approach us. BE KIND💖

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kwelch

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athomewithharry

OK seriously...where is my little baby gone?! 😭💙💛

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daxtyns_momma

How does it get many cuter than this little man?! What if we have more babies and I can’t make another baby this gorgeous?! Some of the most stressful days of my life were in the NICU, but I’d give anything to have those days back. We miss you tremendously, bubba bear! Always remember, you are your momma and daddy’s world, forever and always. (Momma loves you most, though 😉) #daxtynkai #daxman #blessed #nicubaby #heartsurgerysurvivor #chd #bornforgreatness #homiewithanextrachromie #mommasboy #thankfulforyou

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upanddownwithconnor

Mean and moody this morning! 😍😐 . Just dropped Connor at Grandma and Grandads house for the day and he was all smiles as usual. . Except for when I took this picture that is. Getting a good view of the bottom lip there! 😋 . #lifethruconnorslens #theluckyfew #babyspam #t21 #homiewithanextrachromie #ds #meanandmoody #bottomlip #downsyndrome #morealikethandifferent #lifeisbetterwithyou #changingfaceofbeauty

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charmainejade

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clari.dance

Zumba glow in the dark party for 2 hours last night! So much fun!! @zwagy_ray #zumba #zumbafitness #zumbainstructor #zumbaparty #glowinthedarknails #downsyndrome #fun #dancing @clari.dance

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upsyndrome_xo

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lovesforlilyruth

I’m so thankful we had the opportunity to hear Gene Stallings speak tonight at Walnut Church of Christ in Texarkana! Coach Stallings is not only known for all of the coaching positions he held through his lifetime, but also for his advocating for their son, Johnny. Johnny had Down syndrome and passed away ten years ago. I loved hearing his stories, his heart for people with disabilities, and his preaching. . After he spoke, he stood out in the lobby to meet people with his wife, Ruth Ann. Both beamed and loved meeting #lilyruth. Coach Stallings asked how she was doing in life. I told him, “She had heart surgery in January and is doing great!” He kissed her forehead and told us to “take care of her. She’s special.” I had tears in my eyes! . Such an awesome night! . BONUS: I got to meet Shanna and Bryson face to face for the first time. Score!! . . . #welcometoholland #lovesforlilyruth #lillianruth #trisomy21 #avcanaldefect #heartwarrior #zipperclub #homiewithanextrachromie #lifeisbetterwithyou #wouldntchangeathing #weareallable #dsdn #downsyndromediagnosisnetwork 👧🏼🎀💛💙

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graysonsworld16

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larageragi

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keriputnam13

He has decided to turn his bench around lol #kamrenjames #theluckyfew #homiewithanextrachromie

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kortney.b

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karaboswell

Oh hey there you little cutie ❤️ #finning #babymodel

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extra_exton

I’m trying my best to keep this only one-nap-taking-baby awake but he is already begging for story time ! This is one of the books I read to him when he is wild in his crib late at night refusing to settle down ! I hope he is telling me “I want to go to bed early and I will sleep all night because I’m an exhausted and sweet little angel “ Here’s to hoping , note those red sleepy eyes ! #extraexton #welcometoholland #theluckyfew #downsyndrome #trachandvent #homiewithanextrachromie #homeventilatorclub #sleepyhead #t21

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brifrodsham

Just casually staring into my soul. 😳😳😳 - - #everettbeverett #littlefrodshams #theluckyfew #t21 #homiewithanextrachromie

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ourjudah

Just hangin in the laundry room because this is a new favorite spot for Ju 😆

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morealikethandifferent

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enzo.hendo

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laurasgreetingsco

Down syndrome. It doesn't mean I'm down It means I help people who are feeling down. My smiles are contagious. My laugh is medicine for the heart. My hugs are heavenly. My heart is pure gold. . Our greeting cards were designed by Laura, a 41 year old woman with Down syndrome. Check out her designs with the link in our bio or laurasgreetings.com ❤ . . . #laurasgreetings #awarenesswithart #theluckyfew #choosetoinclude #cerebralpalsy #homiewithanextrachromie #disabilityblogger #blogger #nothingdownaboutit #theluckyfew #autism #downsyndromeadvocate #f4f #autisticANDartistic #autismawareness #downsyndromeawareness #upsyndrome #t21 #t21love #makeadifference #specialolympics #disabilityadvocate #morealikethandifferent

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life_after_delivery

As part of Oliver's speech therapy we were starting to work on using a straw and ditching bottles. His first appointment was 2 weeks ago. Today he showed us what he can do! Oliver: 1 Goal: 0 He crushed it. I told his therapist it would only take 2 weeks when he was motivated. Proof that this kid will move mountains. *oh, AND he used a sippy cup AND signed two words. So now we move on to another sign and another goal to crush. #lifeafterdelivery #JollyOli #downsyndrome #nothingdownaboutit #homiewithanextrachromie #trisomy21 #rockinghisdesignergenes #goalcrusher #boom #justlikethat #proudmama

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juliaolatunbosun

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t_downham

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wellscooperative

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babybyoakley

Taking a million photos of this cute boy while his sisters hold some sort of competition to see who can say “mommy” the most while whining about snacks... 🙄🤦🏻‍♀️ #mommysnothere #nomoresnacks #schoolstartstomorrow #loveyoubye

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livin.with.my.rae.of.sunshine

. Rae officially is fighting off her first cold. I knew this time would come but was so not looking forward to it. I can’t wait till my sweet girl is back to her normal happy healthy self like in this picture! 💕🏹 . . #RaelynLee #OurRaeOfSunshine #coldsarenofun #theluckyfew #happygirl #homiewithanextrachromie

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t_downham

#throwbacktuesday when I learnt to ride a bike!

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liveloveleighton

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leeesha23

Being your mom has not only opened my eyes to the world, but it’s truly changed me. I was lost before you, now I not only know where I am but I know where I’m headed. Nothing makes me happier than your smiling face. One month old with Andy, on oxygen and couldn’t even smile. 5 months old, tries to stand and crawl, loves cuddling, learning to play. And then there’s Andy, who isn’t sure why he’s not my only baby anymore. #cheesy #trisomy21 #homiewithanextrachromie #mrmaxcooper #cat #itsnotmeitsyou #lifechanging

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cooperthecourageous

BREATHE: Something I find myself forgetting to do far too often. Fear and worry can at times become so heavy that I find myself drowning in the air that surrounds me. My mind starts spinning uncontrollably about open heart surgery, pulmonary hypertension, oxygen, developmental milestones, therapy, speech, inclusion, muscle tone, chores, laundry, work, and Down Syndrome (note how far this one is down on the list- we’ll come back it later) that I actually forget to do the one thing that comes most natural to us. I get so caught up in my own thoughts that I actually gasp aloud for air at times. I snap myself back to reality, most often to a “so you forgot to breathe again, huh?” Comment & eye roll combo courtesy of my husband. Gosh, I really have to learn to gasp more conspicuously. But I’ve realized that despite his tiny stature, 3 heart defects, and pulmonary hypertension, that my 14 week old baby has it more together that I do. People keep saying “good job mama!” But in all honesty- I’m not doing a darn thing. Without words he tells me how to feel and what to do daily. When I’m stressed or annoyed he’ll pull out a huge smile or new trick to bring me back down to reality and into a positive space. His timing is perfection and his ability to stop me in my tracks for a snuggle, is flawless. Thank you Cooper for slowing me down and reminding me that nothing is more important than enjoying each and every moment as it comes and that being present and positive are just as easy as a smile. The laundry can wait. Anything that isn’t important right now, that can wait too 💛 Slow down and do something for yourself today without feeling any guilt about it. Trust us when we say, it feels darn good.

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alexandrah__1018

HAPPY BIRTHDAY 🎂🎊🎈 my beautiful baby boy 💙 Beach days are Jaxsons fave..🎉🎉🎉🎉 #mommyandjax #Happybday #mybaby #mommysbff #mylove #dsrocks #downstndromelove #homiewithanextrachromie #hesthebestthingthateverhappenedtous

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sweet.on.sutton

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charmainejade

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madeformotti

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advancinghope

Need a new idea for breakfast? Come by the Hope Cafè for a bunch of yummy options! From French toast sticks to egg sandwiches to smoothies, we have something for everyone! 😋🍎🍌🥓🥞🍳🥤 • • • #VisionForHope #Hope #AutismWarrior #NothingDownAboutIt #DifferentNotLess #AutismSupport #Quote #QuoteOfTheDay #HomieWithAnExtraChromie #SpecialNeedsChildren #DownRightPerfect #AutismWorld #ADHDawareness #AutismSpectrumDisorder #Learning #Acceptance #SpecialNeedsParenting #Parenting #HopeCafe #Cafe #Food #Yum

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extra_exton

Morning meds with a crazy toddler , but he is being particularly sweet this morning ! Love this little nugget soooo much ! #extraexton #miracleboy #chdwarrior #homiewithanextrachromie #myhero #morningmeds #trachandvent #homeventilatorclub #t21 #theluckyfew #welcometoholland #downsyndrome #downrightperfect

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im_sooo_extra

The new jam!! #smiles😁

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aoife_bear

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enzo.hendo

Sometimes I’m super great at holding my binkie in my mouth. Sometimes I’m not! I’m always great at being stinkin cute though! 😍 #Enzo #enzohendo #homiewithanextrachromie #downsyndrome #ds #trisomy21 #t21 #upsyndromenotdownsyndrome #cutie #preemie

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daxtyns_momma

Needing this sweet little stinker so bad tonight. 💔😥😭 #daxtynkai #homiewithanextrachromie #bornforgreatness #daxman #loveofmylife #mommasboy #ineedyou #angelbaby #brokenheart 👼🏻

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karaboswell

Wolfpack 🐺🐺🐺 #finning #bestiesfortheresties

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anmoody91

Today we celebrated Wyatt in a big way...with some of his @bittyandbeauscoffee family 🤗🤗 Happy 1st Birthday my sweet boy! #notbroken #nothingcanbringmedown #homiewithanextrachromie

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life.with.squidge

Found out how much of a waterbaby Tylar is today, he kept wanting to wade into the sea (with help) again and again literally trying to run into the waves he loved it so much 😍 #anotherhaircutsoon #hissmilecheersourdays #23monthsold #homiewithanextrachromie

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mrsrachelfry

Confession: I have taken this same photo everyday since Laney was born. This is my favorite place on Earth. I went back to work last week, so these moments are even more special now. 💗 . . . . #laneyfry #t21 #theluckyfew #morealikethandifferent #nobow #babiesofinstagram #snuggles #upsyndrome #homiewithanextrachromie #workingmom #hashtag #soextra #somuchpink #pink #babygirl

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ourjudah

This is the third day in a row that Judah has skipped his second nap and I’m kind of nervous that he quickly transitioned into napping once a day. please tell me this is not the case 😅

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happydowngirl

Mi papá es lo máximo👨‍👧❤️ /my daddy is wonderful 💕

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m.roliczek716

Guess who learned to stand today?!? I cant believe he really did it. This little man is simply amazing. Ryker, I could NEVER put into words just how much joy and happiness you bring into my life as well as anyone you meet. In no time you'll be walking without my help. I love you to the moon and back. . . . #babyboy #ourson #rykerstark #downsyndromerocks #downsyndrome #nothingdownaboutit #trisomy21 #t21 #iloveyoutothemoonandback #myworld #downrightperfect #homiewithanextrachromie #17monthsold #theluckyfew #dsdn #smiles #futuremodel #ladiesman #mamasboy #lifeisbetterwithyou #motivation #cutestbaby #zipperclub #openheartsurgery #chdawareness #milestones #gerberbaby

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upanddownwithconnor

❤❤❤ . My perfect little boy! . Just relaxing tonight before he decided to go to sleep. Connor had a busy day of nursery and swimming today. You'd imagine he'd be tired and decide to go to sleep early. . NO CHANCE! . He went to sleep at his usual time fighting all the way!😂 His little character cracks me up! . #lifethruconnorslens #theluckyfew #babyspam #t21 #smiles #blueeyes #beautiful #lifeisbetterwithyou #downsyndrome #morealikethandifferent #lifeisbetterwithyou #changingfaceofbeauty #homiewithanextrachromie

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upanddownwithconnor

This guy! 😍😍😍 . So we are just chillin this morning. Connor will be attending his physio review at 9.30am today. Today they will decide if he is able to come back for another term or if he's able enough to continue on without their intervention. . Daddy takes him to physio on Tuesdays and loves going to the group, but in our heart of hearts we know theres a strong chance they will sign him off. He is walking independently now, standing unaided, its just a case of practice rather than needing intervention now. . Here's Connor posing at his desk! He knows how to switch it on for the camera! 💙💛 . #lifethruconnorslens #theluckyfew #babyspam #t21 #poser #smiles #happymonday #downsyndromecutie #dsdn #downsyndrome #morealikethandifferent #lifeisbetterwithyou #changingfaceofbeauty #instakid #toddlerlife #beautifullymade #instakid #instagood #instaphoto #specialandproud #homiewithanextrachromie

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