Hypertrophiccardiomyopathy Photos & Videos on Instagram

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leilanirgraham

My heart has been so heavy these past few weeks. Between the haze of being perpetually burntout at work, shallow (but still) romantic wounds healing over, and feeling so fucking behind in this cacophonic city, it has been difficult to sense anything. I only recently realized that a medication has been numbing my sense of smell for years. It is like realizing the volume was not turned up to normal, but instead of feeling joyful at my rediscovered sensed I am overwhelmed and overstimulated: saddened that I had gone so long without it, saddened that I had missed out on part of this precious piece of being alive. And then none of that seems to matter at all, as I make my way through my day while my dear friend Anna rides the rollercoaster of complications: nearly the exact same ride I found myself on two and a half years ago. My soul has been in the hospital bed with her every day of the last month. I am remembering the fear, the sounds, the overwhelming smells. The hope- the only medicine that always works as it is intended to. I think of Anna, struggling to breathe. I think of @claire.wineland, who passed before she was able to. Transplant means sewing into the body the fabric of another. And in our mutual struggles, we who have known death are sewn to each other. I carry it proudly, but it has been heavier these days. ⠀⠀⠀⠀⠀⠀⠀⠀ ************************* ⠀⠀⠀⠀⠀⠀⠀⠀⠀ The words in the photo are by Anna, as is the print itself. She has a gorgeous and personal collection of poetry and art. I highly encourage everyone to take a look and, if something meets your eye, help support her journey by taking one home.

5

inaheartbeatfoundation

Today marked the 52nd AED Donation for In A Heartbeat. The recipient of the AED was Helen and John Connolly. John suffered a sudden cardiac arrest this past August. He did not qualify for an Implanted Defibrillator but doctors suggested his family have one around in case of an emergency! #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

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mikepapale

Today marked the 52nd AED Donation for @inaheartbeatfoundation. The recipient of the AED was Helen and John Connolly. John suffered a sudden cardiac arrest this past August. He did not qualify for an Implanted Defibrillator but doctors suggested his family have one around in case of an emergency! #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

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mistym0o

Unfortunately our gorgeous Misty passed away on August 5th. She had struggled with #hypertrophiccardiomyopathy for a while and unfortunately it ended up taking her life. We’re still devastated but I hope wherever she is there’s lots of tuna and soft blankets. Love you always Moo ❤️❤️

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davidmartzp

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christian_fighting_monsters_

No matter where this journey may lead you , there is an Army that will always be there for you , to support you , and to love you 🦋 #christianfightingmonsters #followusonfacebook #neurology #neuroscience #mayoclinic #helpusfindacure #hypertrophiccardiomyopathy #speech #asthma #gastronomy #neurobaby #thereisnostepinfamily

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kitty.starfluff

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walter_and_clive

Our little Walter is 3 years old today! Considering he was given a life expectancy of 3 years due to his heart condition we cherish every day we have with this little raw chicken. We love him so much ❤️ #petsofinstagram #birthdayboy #walterthesphynx #petportraits #sphynxcat #sphynxlove #sphynxofinstagram #petphotography #hairlesscat #catsofinstagram #hcm #hypertrophiccardiomyopathy #ifitisntasphynxitsjustacat #sphynxtagram

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christian_fighting_monsters_

Christians hair has always been well all over the place 🤷‍♀️ he was born looking like Jesus , evolved to looking like Elvis , brain biopsy himself to baldness , and now he looks like new version of the Linda listen child in the flesh 👨🏽‍🎤 Can’t fault him from being able to pull all these looks off so early on 💁🏻‍♂️😂 #christianfightingmonsters #followusonfacebook #neurology #hair #lindalisten #raremedicalcondition #hypertrophiccardiomyopathy #idomisshiselvisstagehairthough

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christian_fighting_monsters_

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christian_fighting_monsters_

Activity day with the release of the new @jurassicworld which ha been on repeat non step for the past 10 hours since we have had it !! Christian loves blue with everything in this babies heart ❤️ I don’t think I’ve ever seen him cry over a dinosaur until this movie 🎥 😩 #christianfightingmonsters #followusonfacebook #jurassicworld #jurrasicworld #jurassicpark #jurassicworldfallenkingdom #jurassicparkfan # #neurology #neuro #rareofrarest #raremedicalcondition #handtremors #hypertrophiccardiomyopathy #asthma #gastroenterology #lesions #brainlesions

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christian_fighting_monsters_

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webbydevvy

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arthur_and_rufus

Rest in peace beautiful Rufus. You were truly amazing and have left such a huge hole in our lives. Such a happy and loving little cat. You will be forever in our hearts and always on our mind. We will truly miss you every minute of every day. We really feel empty without you. Cherish your furry babies 💙 Rufus was born with Hypertrophic Cardiomyopathy which is a genetic heart disease. Breeders must take more care and responsibility when bringing Poor and defenceless kittens into this world. Not only is it not fair to the kittens but completely heartbreaking to us cat parents who love and cherish these little babies and have to watch them suffer. He left us at such a young age of 17months. We love you so much Rufus 💙 #hypertrophiccardiomyopathy #rufus #arthurandrufus #love #mybaby #neverforget

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thebillrossi

I received this lovely message from a friend today and it is exactly how I’m feeling the night before my surgery... tomorrow is the big day. More details in my Stories 👆🏼 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #goodvibes #hearthealth #fromtheheart #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #theuniversehasyourback #findyourhappy #betruetoyou #mondaymotivation #trustingod

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breakinthemix

Got this recipe from a magazine while I was in the hospital last. Finally got around to trying it and it turned out great! Rosemary chicken with garlic, green beans, and shallots. Really easy to adapt to low sodium and tasty! . . . #homecook #dinner #chicken #lowsodium #loso #piccline #milrinone #hypertrophiccardiomyopathy #heartsurgerysurvivor #heartfailure #hearttransplant #pretransplantlife #congestiveheartfailure #zipperclub #hcm #cardiomyopathy #chronicillness #spoonie #heartwarrior #heartdisease #openheartsurgery #hypokalemia #potassium #chf #lowpotassium

1

lex.the.vet

My very own Malibu came to the vets for her annual appointment this week! 🐱 As you can see she was very interested in Greensands new consulting room decor! . . . Malibu is a ragdoll and so we have to keep an eye on her heart as around 30% of ragdolls have a genetic mutation that makes it likely that they will develop hypertrophic cardiomyopathy (HCM). Although we know Malibu’s parents were fine it’s always worth being aware of. Derek had a good listen and fortunately there was no sign of anything abnormal! . . . It’s quite hard to tell when cats have heart problems until they get really serious. One of the symptoms of HCM is cats just being quieter than normal, which is pretty hard to spot as most cats are fairly sleepy as it is! To keep an eye on Malibu’s heart at home we check her resting breathing rate when she’s sleeping. Anything consistently above 30 breaths/minute would be cause for immediate concern. However, as I regularly monitor Malibu, I know that any deviation from around 16 breaths/minute might be an indication she’s not feeling herself! I’d highly recommend taking a baseline TPR for all of your pets as is surprising how much “normal” vary and how helpful they can be in identifying when your pet isn’t quite right! Tips on how to take a TPR coming soon.... . . . #kittens #cat #catsofinstagram #vet #vetschool #vetstudent #vetlife #ragdollcat #ragdoll #ragdollkitten #heart #hcm #hypertrophiccardiomyopathy #tpr #fluffy #whiskers #vaccinations #vaccines #vaccination #malibu

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webbydevvy

The vet has confirmed that Timo has hypertrophic cardiomyopathy, which means that his heart function is not good enough. To compensate for the decrease functionality, his heart grew bigger and thicker to try and pump blood round his body more efficiently, but it is one of those bodily functions that's only any good in the short term. After a while, the space in the heart valves gets pushed smaller by the increased size, which causes blood to backup, and to compensate for THAT the body dehydrates the liquid part into the lungs. So he has secondary congestive heart failure too, which is what caused his distress and failure to breathe at the weekend. He's now on a cocktail of 3 meds a day, and the vet can't tell me how long he has, but says that "he won't make old bones". This is only going to get worse, and it will kill him, so she says to just enjoy the time I have with him. #sadnews #poorlyboy #felineheartdisease #felineheartdiseasesucks #hypertrophiccardiomyopathy #hypertrophiccardiomyopathyawareness #felinehcm #limitedtimeleft #heartache

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christian_fighting_monsters_

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thebillrossi

Another day, another inspirational email from my dear friend, Amy, in San Francisco! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ "F.E.A.R. has two meanings: ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Forget Everything and Run...OR Face Everything and Rise! The choice is yours!" ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I choose the latter 😉 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #goodvibes #goodvibesonly #hearthealth #fromtheheart #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou #mondaymotivation

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christian_fighting_monsters_

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breakinthemix

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thebillrossi

My partner, John, coaches high school cheerleading on the side. As a matter of fact, his team, Lake Central High School, is one of the top teams in the state! The team took it upon themselves to create this GIANT symbol of love and send me well wishes for my surgery. (Check the Iron Man reference!) ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Thank you all for this love-filled gesture, team! It means the world! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #goodvibes #goodvibesonly #grateful #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #hearthealth #fromtheheart #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou

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kitty.starfluff

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thebillrossi

A friend of mine from the It’s Just Lunch San Francisco office recently started sending me daily inspiration emails. Her first email read: ⠀⠀⠀⠀⠀⠀⠀⠀⠀ “Whether or not you want them or like them...I will be providing you daily inspiration, (because you inspire so many, it is only fair that the favor is returned), throughout your final countdown. So enjoy! ‘You never know how strong you are until being strong is the ONLY choice you have!’" ⠀⠀⠀⠀⠀⠀⠀⠀⠀ This thoughtful act of kindness is going a long way, let me tell you. I’m excited for the upcoming emails and I’m excited to share them with you here. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #nowisthetime #livelifetothefullest #livelifehappy #keepmovingforward #goodvibes #goodvibesonly #hearthealth #fromtheheart #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou

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admo54

2

thebillrossi

This is not your standard open heart surgery. I’m getting four main surgeries in one. And rather than staying outside the heart as with traditional open heart procedures, they need to get to the inside of my heart (without cutting it open) and essentially reconstruct it. There are only a few dozen surgeons in the country that can do this procedure. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ The gravity of this surgery is hitting me. This surgery is complicated and risky. A lot of people are telling me, “Oh, you’re gonna be fine!” and I appreciate the positive support, truly. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ But I truly don’t know if I’m going to be fine. I truly don’t know if this is going to work. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’m going to stay positive that it is, and I have a top surgeon in my corner that’s increasing my odds here, but you just never know. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Thank you for the flowing well wishes and love, especially as the big day grows nearer. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #goodvibes #goodvibesonly #hearthealth #fromtheheart #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth

42

thebillrossi

I’m still in A-fib as I lead up to my surgery. Again, this is intentional so that the surgeon can easily identify where the electrical signals are coming from. I’m not as terribly tired as I was last week as my body is starting to adjust. I find myself still going to bed much earlier than I typically do, but other than that, I’m feeling OK, all things considered. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ People have been asking me what I am doing leading up to my surgery next week. Up until next Monday at 4pm when I officially put up my out of office response, it is going to be business as usual. I’m not going to act like anything is different. My family needs me, my companies need me, and I’m going to finish this week strong. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #goodvibes #goodvibesonly #hearthealth #fromtheheart #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou #universehasyourback

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kitty.starfluff

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christian_fighting_monsters_

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sunshine_peace_serenity

3

let_the_beat_go_on

After an evening & night at the CCU at @amc.nl back home. It is so tough, sometimes I feel so alone & desperate. Living with #arrhythmias #hypertrophiccardiomyopathy & #heartfailure is hard but I can’t give up, for my family I have to #letthebeatgoon. Still #awaitinghearttransplant. 🙏🏼

15

inaheartbeatfoundation

Did you know September is National Preparedness Month? Are you prepared for a cardiac emergency? Are you trained in CPR and how to use an AED? Do you have an emergency action plan at your school, business, or organization? If you answered no to any of these questions YOU ARE NOT PREPARED FOR A CARDIAC EMERGENCY!! #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

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christian_fighting_monsters_

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thebillrossi

Check out what my beautiful girls made! Not only did they create it themselves, but they got all the girls and boys in their class to sign it and send their well wishes. I am so grateful to be surrounded by so much love! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou #hearthealth #fromtheheart #nowisthetime #livelifetothefullest #livelifehappy #universe #goodvibes #goodvibesonly

7

bmm.28

My furbaby at @sash_vets today. He found a couch and made himself feel right at home. He was such a good boy that he didn't need to be sedated for his echocardiogram. . . . #mikey #scottishfold #scottishfoldcats #scottishfoldlovers #sashvets #smallanimalspecialisthospital #bestcare #bestservice #doctors #cardiologist #petsarefamily #veterinary #heartdisease #echocardiogram #hypertrophiccardiomyopathy #hcm #ourbaby #furbaby

1

inaheartbeatfoundation

We are less than two weeks away from our 3rd Annual Golf Tournament! We only have a few spots left to golf so please message ASAP if interested! If you are interested in sponsoring a tee for just $150 let us know! Finally, if you don’t golf and would like to attend the dinner, we will be selling “dinner only” tickets. All registration can be done online at www.inaheartbeat.org/golf. #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

1

cornymedical

No not a Samsung Galaxy S4, a hypertrophic cardiomyopathy S4😏. ------------------------------------------- Hypertrophic cardiomyopathy (HOCM) is a heart condition which leads to a thickened ventricle and septum, which is a structure that separates the ventricles from each other. Due to the thickening, it's difficult for the heart to fill up with blood (diastolic defect). Another finding in HOCM is an S4 heart sound heard by a stethoscope which indicates a stiff/thickened heart. HOCM is commonly a cause for sudden death in young athletes. For more info visit webMD or DM me. #hypertrophy #s4 #galaxy #ventricles #hypertrophiccardiomyopathy #heart #medicalmemes #medicine #medstudent #funnymemes #cornyjokes

3

christian_fighting_monsters_

Christian lovesss hats 🧢 so when his second daddy takes his off he tends to have a field day with it and wants to take all the selfies in the world with it on !! We would love to have hats sent to him from across the nation showing where different followers are from , with their cities logo ♥️ #christianfightingmonsters #followusonfacebook #neurology #neurobaby #hypertrophiccardiomyopathy #raremedicalcondition #breakthestigma #hats #showyoursupport #gosilver #gosilverforbrain

0

thebillrossi

You know when you’re already down for the count and the Universe just likes to test you? ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’m having one of those weeks—partner is traveling for work, I’m single parenting for the week, the dog is sick, one of my kids are sick (which is not good because if I get sick before surgery, it will be postponed), I’m starting pre-op procedures and meds tomorrow, and all of my companies are fighting for my time because they know I’m leaving. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I see you, Universe. I accept your challenge and know that you cannot get me down! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou #hearthealth #fromtheheart #nowisthetime #livelifetothefullest #livelifehappy #universe #goodvibes #goodvibesonly

6

thebillrossi

I am one week away from surgery and I am so ready. I am ready and willing to go through the discomfort and the pain and the slow down of my life for the chance of having a normal life again. To think I can jog and even run again after not being able to for close to 20 years. To be able to play soccer with my kids. To be able to simply have a lemonade or iced tea (or even an elephant ear – they are my favorite but loaded with sugar) and not worry about sending my heart into A-fib. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’m positive. I’m a tad bit nervous, not scared. I’m putting nothing but good vibes out into the Universe. I am going in with the right frame of mind. With TRUST and with HOPE. God will be my side. I have faith in that. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #findyourhappy #betruetoyou #goodvibes #goodvibesonly #highvibration #highervibration #universe #universehasyourback

3

kitty.starfluff

2

thebillrossi

I’ve been through enough hospital and doctors visits and seen enough echocardiograms that I have almost learned to decipher them and read them for myself. I can see that my heart is not working in the way that it should. I can see that the time is now for this surgery. A surgery that just a couple years ago doctors thought I may never have to have. Well, that changed! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ It’s so funny how the Universe works. I wanted to do this surgery in November. I had an entire plan in place and all my ducks in a row and a timeline set. I knew it was going to be a slower season for work, I knew I’d rather be inside recovering when it’s cold out rather than waste away precious summer sunshine doing the surgery now. I had everything planned. I was prepared. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ But now that my official surgery date is rapidly approaching, I’m realizing that the timing really couldn’t have worked out better. The third week of the month is always my least busy week of the month and my surgery is falling right on my slower time of the financial month. I also found out that my recovery time will include some prescribed daily walking once I’m up for it. Let me tell you I’d much rather take those walks outside while it’s still nice out rather than in the cold November chill! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Everything truly happens for a reason. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #outandproud #hearthealth #fromtheheart #businessstrategy #abnormal #thriver #gaycommunity #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #mypath #changeyourthoughts #itsajourney #bemindful #theuniversehasyourback #findyourhappy #betruetoyou

0

fitzfamfarmhouse1832

It's an early morning @dartmouthhitchcock, time for my yearly heart echo ♡ Happy Monday morning!

1

aubreelin

Happy birthday to this precious baby! Couldn’t be happier that she has made it to 2 years old😍 love her to pieces! Enjoying her favorite raw food Rad Cat! #radcat #sphynx #sphynxcat #sphynxmom #sphynxlove #sphynxlover #sphynx_feature #happybirthday #twoyearsold #hypertrophiccardiomyopathy #hypertrophiccardiomyopathysucks #hypertrophicobstructivecardiomyopathy

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hedwig_the_sphynx

Happy birthday to this precious baby! Couldn’t be happier that she has made it to 2 years old😍 love her to pieces! Enjoying her favorite raw food Rad Cat! #radcat #sphynx #sphynxcat #sphynxmom #sphynxlove #sphynxlover #sphynx_feature #happybirthday #twoyearsold #hypertrophiccardiomyopathy #hypertrophiccardiomyopathysucks #hypertrophicobstructivecardiomyopathy

0

crystal_skincredi_bull

Although today wasn't #caturday, I had the pleasure of hosting a HCM Cat Clinic (with a Board Certified Veterinarian Cardiologist) at our loft and met 16 other #sphynx babies and their owners! Below is more information about HCM (borrowed from lilnudists.com website). 💔Sphynx HCM stands for the medical condition hypertrophic cardiomyopathy which is unfortunately a widely prevalent condition in the Sphynx cat.  This condition is known to be hereditary in nature so it is critically important that you understand this disease and understand the ways you can reduce your risks of adopting/purchasing a Sphynx cat who will develop this disease. 💔 By definition, HCM is a condition that causes the muscular walls of a cat’s heart to thicken, decreasing the heart’s efficiency and sometimes creating symptoms in other parts of the body. 💔What Causes HCM? Although the cause of HCM has not been clearly identified, the fact that the condition is more prevalent in certain breeds (including Maine Coon, Ragdoll, British Shorthair, Sphynx, Chartreux and Persian cats) and that mutations of several cardiac (heart) genes have been identified in some cats with this disease suggests that genetics plays a role. 💔What are the Symptoms of HCM?  Many cats with HCM do not appear to be ill. Others may show signs of congestive heart failure, which including labored or rapid breathing, open-mouthed breathing, and lethargy. Another very serious and potentially life-threatening consequence of HCM is the formation of blood clots in the heart. These clots may travel through the bloodstream to obstruct flow in other parts of the body. The effect of the clot depends on its location, although in cats with HCM, clots most commonly result in blockage of blood flow to the hind limbs, causing acute hind limb pain or, in extreme cases, hind limbs will become pale and cold and experience paralysis. 💔HCM is diagnosed by echocardiography, a technology that uses sound waves to create an image of the heart, the same as if a person had a heart condition and needed diagnostics; this is essentially the same as an ultrasound just of the heart. #sphynx #sphynxsunday #hcm #hypertrophiccardiomyopathy

4

thebillrossi

9.18.18... If that doesn’t sounds like a magic number then I don’t know what does! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I went in for some pre-testing on Friday and I’m feeling really good about this surgery. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Good in that I have a surgeon that I know is going to take care of me. Good in that I know it’s time to get it done. Good in that I have a chance at a normal life on the other side of these procedures. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’m really not scared but anxious and excited. I want to get it done. 10 days and counting! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #outandproud #keepmovingon #pacemaker #gayparents #gaydad #gaydads #hearthealth #fromtheheart #businessstrategy #abnormal #thriver #gaycommunity #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward

12

admo54

Every year that goes by, I'm reminded of how I'm playing with house money. 4 years have passed, and I'm grateful for everyday since. I should have died, to be honest. I'm a walking miracle. So today, instead of letting depression hit me, I'm going to spend my day with family, with those who I love dearly, and remember that every minute moving forward is a gift. An extended warranty on my life. So, on the docket today, disc golf, BBQing, Texans football and ending with Astros baseball. Oh what a day to be alive! #ZipperClub #OHS #hypertrophiccardiomyopathy #ExtendedWarranty #ReBirthday #discgolf #BangingChains #growthesport #texansgameday #HouVsNe #NeverSettle #Astros #HouVsBos

3

kitty.starfluff

3

thebillrossi

Last week was one for the books in so many ways. We started the week with a special honor: I was announced as one of Chicago's Most Notable LGBTQ Executives, a first-ever list from Crain’s – Chicago’s leading business publication. The article has gotten a lot of exposure, people are reaching out to me, congratulating me—people I don’t even know. It was truly an honor to be recognized in that way. But that very evening, was the night I went into A-fib again as I mentioned in my post yesterday and my whole week shifted at that point (my whole life, really) because by Thursday I had a major surgery on the schedule that wasn’t supposed to happen until November or later and here I am less than two weeks out. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Needless to say, a lot has been running through my mind. I’m trying to be very positive, but also very realistic. Thank you to everyone who is making this journey a smooth one. Thank you for all your love and support. I don’t take a single one of your well wishes for granted. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #outandproud #keepmovingon #pacemaker #gayparents #gaydad #gaydads #hearthealth #fromtheheart #businessstrategy #abnormal #thriver #gaycommunity #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward

10

christian_fighting_monsters_

Steroid infusions eventually stoped working on Christian as well . His body just continues to attack him for some unknown reason that the steroids can not stop it even at a 10 day level dosage . #christianfightingmonsters #raremedicalcondition #followusonfacebook #lethimbelittle #hypertrophiccardiomyopathy #anabolicsteroids #medicalresearch #breakthestigma #research #breakthemold #noteverychildwearsyellow #acknowledge

0

christian_fighting_monsters_

The moment my world froze ... 25 lesions on his brain and 5 going down his spine . The biggest relapse he has had yet . He was dying in the back seat of my car as I raced him to dallas alone and scared . I will never forget that day . January 2018 #christianfightingmonsters #followusonfacebook #research #lethimbelittle #raremedicalcondition #raiseawareness #breakthrstigma #neuro #neurology #hypertrophiccardiomyopathy

0

christian_fighting_monsters_

0

christian_fighting_monsters_

Throwback to being released from inpatient rehab from living at children’s hospital in dallas for 8 long weeks from our biggest relapse 🦋 #christianfightingmonsters #followusonfacebook #research #lethimbelittle #raremedicalcondition #neuro #lethimbelittle #neurology #hypertrophiccardiomyopathy #gastrointestinal #knowledge #raiseawareness

0

christian_fighting_monsters_

#TBF when we found out about Christians heart condition that’s a family trait hypertrophic cardiomyopathy. His heart is misfiring in the right lower atrium and he will eventually have to have heart surgery. #christianfightingmonsters #followusonfacebook #hypertrophiccardiomyopathy #neurology #neuro #rarerare #raremedicalcondition #lethimbelittle

0

christian_fighting_monsters_

Well labs came back NORMAL !! So no explanation on why Christians speech is slurring , off balance , and he has had issues holding certain items with hand tremors . It will be a watch and wait until his 20th MRI on October 24th Unless something major happens . #christianfightingmonsters #followusonfacebook #research #medicalresearch #raremedicalcondition #rare #lethimbelittle #hypertrophiccardiomyopathy #asthma #gastroenterology #neuroscience #mayoclinic #brain #brainonfire #brainsurgery #brainbiopsy

0

erkkiaatosarvid

Grålle orkar inte så mycket längre. Han trivs mest på sin favoritplats i hallen eller på stolen under köksbordet. Han är fortfarande vänlig och responsiv och äter och dricker, men det märks att krafterna börjar sina. Om han nu inte har något av sina nio liv kvar, vill säga. Vi avvaktar några dagar och ser hur det artar sig. Lilla fina Grålle. ❤️ #hypertrophiccardiomyopathy #hcmcat #sjukkatt #sickcat #sairaskissa #mirrisairastaa

18

inaheartbeatfoundation

1

greatormondst

“There’s a lot of research around this condition, and we are involved in a lot of it - some of it funded by Great Ormond Street Hospital Children’s Charity. The aim of everything we do is to try and help the children to live as normal a life as we can. George has to be a little bit careful in terms of how strenuously he exercises or how competitively he plays football, but things like changing his position in the football team is a good way of helping him continue to do something he enjoys and that his friends do, without putting him at an increased risk. I understand he was a very skilful right winger, but he’s now moved to a goalkeeper and he’s very good in this position too.” Earlier today, we shared George’s inspiring story, which featured in Wednesday’s #POGLIttleHeroes. Here, George’s cardiologist at GOSH, Dr Kaski, describes George’s treatment and the small changes he’s making to maintain a normal life. #LittleHeroes  #GreatOrmondStreet  #HypertrophicCardiomyopathy

4

thebillrossi

My heart is working overtime. Literally. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I went into A-fib last Monday night and rather than going through another cardioversion or hospital stay to get me back to a normal heart rate, my doctors have elected to keep me in A-fib until my surgery. This will help the surgeon locate where the electric signals are coming from during my actual surgery, which is totally logical. I just have to walk around in A-fib for the next two weeks which is not all that much fun :) ⠀⠀⠀⠀⠀⠀⠀⠀⠀ If you’ve ever felt anxious or like your heart’s racing, that feeling that (hopefully) passes after a few minutes’ time for the average, healthy heart—well that’s my new normal until I have this surgery done. I’m simply exhausted. By late afternoon each day I basically have no energy, but I know it will be well worth it once this surgery is behind me. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #outandproud #keepmovingon #pacemaker #gayparents #gaydad #gaydads #hearthealth #fromtheheart #businessstrategy #abnormal #thriver #gaycommunity #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #working #workingovertime

11

greatormondst

Last night’s #POGLittleHeroes introduced us to George. George underwent open-heart surgery at GOSH when he was just eight-years-old and since then, he’s had to make significant changes to his life to accommodate his condition - hypertrophic cardiomyopathy. His mum, Serena, explains: “We’ve always been really careful to make sure he doesn’t miss out because of his condition. We encourage him to do as much as he can, we want him to have the same opportunities as other children and I think it’s encouraged him to try other things he might not have done otherwise. He’s really into photography now and he’s got a real eye for that. I think he’s had learn to look at things in a different light.” George says: “I hope that I’ve shown other children with my condition that life doesn’t have to stop. I have had to adjust my life to what I can do, not what I can’t.” #LittleHeroes  #GreatOrmondStreet  #BeInspired  #HypertrophicCardiomyopathy

4

christian_fighting_monsters_

1

christian_fighting_monsters_

0

mikepapale

Today @inaheartbeatfoundation partnered with The Rotary Club of Wallingford to donate our 51st AED! The AED recipient was The Ward Street Church of Christ in Wallingford, CT. Huge thank you to the Rotary of Wallingford Club for their continued support. #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

1

inaheartbeatfoundation

We partnered with The Rotary Club of Wallingford and made our 51st AED Donation today. The recipient of this AED is The Ward Street Church of Christ located in Wallingford, CT. A huge thank you to The Rotary Club of Wallingford for your continued support. #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

1

kitty.starfluff

1

frankiebarber.mke

3

greatormondst

“The filming was great. It was the best day I had ever had, because I never stopped laughing at Paul’s jokes! I hope that I’ve shown other children with my condition that life doesn’t have to stop. I have had to adjust my life to what I can do, not what I can’t.” On tonight’s #POGLittleHeroes, you’ll meet George, who was born with two holes in his heart and later diagnosed with hypertrophic cardiomyopathy. Get ready to be inspired by his amazing positivity! Don’t miss it: Tonight. 8pm. @itv. 📺🌟 #LittleHeroes #GreatOrmondStreet #HypertrophicCardiomyopathy

6

sunshine_peace_serenity

I challenge you to the #30daychallenge post a picture everyday of something that is positive in your life. Or just something that made you smile. Today was full from beginning to end. I am exhausted and willl need a day to sleep and recoup all that was achieved today #30dayspositive #summerfun #strengthcouragewisdom #timewithmygirl #braveheart #summerfun2018 #summer2018 #gotherownwheels #toyotafamily #vote #ivoted2018 #cardiorehab #cardiorehabilitation #hypertrophiccardiomyopathy #hcm #healingheart #girlswithscars #girlswithtattoos #dayfifteen #longtiringday

0

hdsportsmed

Hypertrophic cardiomyopathy (HCM) is the most common cause of heart related sudden death in athletes under the age of 30. Its a condition where a portion of the heart- typically the ventricular septum becomes thickened causing the heart to be less able to pump blood effectively. It can be completely asymptomatic or include symptoms such as shortness of breath, fatigue, chest pain, leg swelling or sudden cardiac death. The causes for this are most commonly genetic although other conditions and medications can also play a role. HCM can usually be detected with an echocardiogram or ultrasound of the heart. Increased screening in athletes has helped catch many cases of HCM however many are still missed. Treatment includes medications, implantable defibrillators, ablations, and sometimes surgery. The incidence of sudden death in athletes due to HCM is overall low however it has been common enough to catch the attention of the media with several high profile athletes falling victim to it. #hypertrophiccardiomyopathy #cardiomyopathy #cardiology #sportscardiology #sportsmedicine #injuryprevention #health #wellness #fitness #hdsportsmed #liveyourlifeinhd

0

thebillrossi

The topic of conversation lately has been my heart. The inevitable has come and I’ve got to plan for surgery. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I have faith that God has his path for each of us. You can create your own plan but sometimes you have to face facts: the fact that this happened and I don’t have a choice, the fact that I planned to do this surgery in November and that I gave myself two months to get everything in order and under control, and the fact that in a matter of 12 hours my whole plan was flipped upside down and here we are. I keep telling myself: “God has a path…” albeit a winding one! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Situations like this cause you to rethink things. I’m a planner and I like to get everything in line before jumping in to anything. This time around I am just not able to. I’m just going to have to let go, trust, and go do this. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #hearthealthy #healthylifestyle #openheart #wellness #heartrate #cardiovascular #cardiovascularhealth #outandproud #keepmovingon #pacemaker #gayparents #gaydad #gaydads #godsplan #hearthealth #fromtheheart #businessstrategy #abnormal #thriver #gaycommunity #nowisthetime #livelifetothefullest #livelifehappy #keepmovingforward

19

christian_fighting_monsters_

2

inaheartbeatfoundation

Did you know sudden cardiac arrest also affects the youth? Swipe to read these scary statistics about sudden cardiac arrest in youth! What are you doing to keep your child your loved ones safe? #nonprofitorganization #nonprofitlife #nonprofitwork #nonprofitfoundation #fundraise #fundraiser #fundraising #fundraisers #money #donate #makeadifference #charity #cpr #aed #cardiacarrest #cprsaveslives #savinglives #lifesaving #savealife #heartdisease #hcm #hypertrophiccardiomyopathy

1

kitty.starfluff

3

kitty.starfluff

2

blessedmummyof2

I am running the Oxford Half Marathon on the 7th October along with my amazing team of 24 others in aid of the amazing charity @maxsfoundation Please help us raise as much as we can to support this incredible charity by sponsoring me as little or as much as you can. My story can be found in the link below, please take a few minutes to have a read and if you can help I would be truly grateful. So from me, Max’s Foundation and my these two little monkeys, Thank you x #hypertrophiccardiomyopathy virginmoneygiving.com/Team/HeartWarriors

0

kitty.starfluff

0

inaheartbeatfoundation

3

ivelinavelkovaphotography

2

thebillrossi

Last Sunday we spent the day cheering on our girls on the soccer field (parents-of-the-year award over here for staying positive in that sweltering heat and humidity!). ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’m grateful for the cooler temps this weekend and even more grateful for an extra day off tomorrow to spend with my budding soccer stars and my loving partner. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #businesstalk #financialfitness #financetips #outandproud #keepmovingon #pacemaker #gayparents #gaydad #gaydads #hearthealth #fromtheheart #gaycommunity #nowisthetime #livelifetothefullest #livelifehappy #financialfreedom #businesstips #keepmovingforward #movewithheart #hearthealth #healthyheart #hypertrophiccardiomyopathy #healthylifestyle #openheart #familytime #longweekend #weekendvibes #goodvibesonly

3

officialswitchbladestiletto

0

mamabear_2_louie

Today is 2 years since Louie came home from the hospital, I never thought we would be where we are today. The 6 months waiting for him to come home felt like a lifetime but it was all worth it. We could not have done it without our Duke family we love you guys!!!! #dukeicn #chdwarrior #nicubaby #trachbaby #miriclebaby #louie #chd #hypertrophiccardiomyopathy #ohs

3