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ouralteredlife

The adventurer returns (without his eye 👁 but it’s only at his dads so we’re ok 😂). I think I overwhelmed him a bit when he came home, the clue being Harry shouting “cuddle stop now!” 😂😂😂 He’s had a brilliant time with his class. They’ve climbed walls, built dens, had archery lessons and enjoyed camp fire feasts! To think that once upon a time I worried about sending him to special school. It was the BEST decision for my boy and I’m thrilled to see him enjoying life...even more happy to have him home though 😉😍 - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #goldenharsyndrome #autism #autismawareness #writing #writersofinstagram #writer #ourstory #mysunshineboy #ilovemyboy #love #mylife #brothers #morealikethandifferent #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily

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schoolingsarah

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thirdtimeluckyboy

Ayer tarde de playa muy bien aprovechada. 🏖 Making the most of the heat wave! Late afternoon at the beach and fish and chips by the sea! #thesunisout #t21 #theluckyfew #morealikethandifferent #differentcapabilities #extrachromosomeextracute #downaddicts #downsyndromeireland

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adventuresoftracey

Ready for a party! 💛

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upanddownwithconnor

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hopeforhurtingmoms

I didn’t know when I held his newborn body in my arms, but I distinctly remember a thought that came to me that things would be different after his birth. * I didn’t know when he was born so small. I didn’t know, but I worried, asking the nurse, “Why is he so small?” * I didn’t know when he didn’t crawl. I wasn’t worried. He started to crawl on his first birthday and pulled to stand the very next day. I didn’t know. * Then my boy fell. A traumatic fall with huge ramifications. “Textbook” says he shouldn’t have responded neurologically the way he did, yet he began to show symptoms within hours. I thought all of his problems began the moment his head hit that hard dirt. I didn’t know. * And so began years of doctors and specialists and children’s hospitals and tests and answers: some wrong, some right, some incomplete, and some completely missing. But I will never forget being in the neurosurgeon’s office that first time. * The neurosurgeon pointed to my boy’s brain on the MRI and said... I’ll never forget it, “This is not a normal brain right here.” He would have impacted me less had he physically hit me. He continued in a regular voice, as if talking about the weather. Shouldn’t he have paused? * They tell me my son was born this way. How could that be? Didn’t all his problems start with his fall? They say no, and sometimes, I believe them. As the years pass, he has added many diagnoses. I keep a list now, which is easier than remembering. * I don’t know what breaks your heart, but I know what breaks mine. Here @hopeforhurtingmoms I do not have all the answers. I don’t even have all the answers to my questions and pain… but I have Jesus. I absolutely know the answer to surviving the heart breaking, hard to breathe, hard to get out of bed pain of this life is only found in a relationship with Jesus. * Psalm 34:18 means so much to me. It says, “The LORD is close to the brokenhearted.”(NIV) If you are hurting today, Psalm 62:8 tells us, “Pour out your heart before Him; God is a refuge for us.”(NKJV) There is no hope apart from Jesus. * Friend, if you are hurting today, He is close to you.

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different_kind_of_perfect

Happy FriYAY!!! Great weekend ahead with my boys. 😍😍❤❤❤

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savedownsyndrome

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makenna_grace_deanna

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robin.furseth

Top o’ the mornin’ to you! This kiddo continues to thrive post-surgery! We are so incredibly humbled and thankful for all of the help and support!! Thank you all so much! I cannot even begin to say how much it means to us! 💛💙💛💙 #theluckyfew #upsyndrome #nothingdownaboutit #savedownsyndrome #downrightperfect #downrightadorable #downsyndrome #translocation #robertsoniantranslocation #Trisomy21 #homiewithanextrachromie #avsd #atrioventricularseptaldefect #atrioventricularcanaldefect #alittleextra #morealikethandifferent #heartwarrior #openheartsurgery #heartwarriorbaby #firsttimemom #firstborn #boymom #parenthood #babyboy #sunsoutgunsout #dapper

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alissabaptista

He wanted to lick the cart in the worst way. . . . #downsyndrome #changingthefaceofbeauty #morealikethandifferent #theluckyfew

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sadams847

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radcampoc

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chucklesandmeatloaf

It’s The Boy in the Bubble! Yep, just dated myself there... 😂 #downsyndrome #twinswithdownsyndrome #upsyndrome #morealikethandifferent #lifeisbetterwithyou #t21 #theluckyfew

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learningwithdownsyndrome

Callan's first intentional word was "dadda." He would say it a lot when his dad was out of town for work when he was around 7-8 months old. At 2, he now goes around the house looking for his dad saying "Daaad?" Yep, Daddy is his favorite. Daddy is my favorite too! (Sorry for the blurry pic). #theluckyfew #learningwithdownsyndrome #throwback #downsyndrome #nothingdownaboutit #morealikethandifferent

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wisniewskibeth

We cannot thank you all enough for the outpouring of birthday wishes for Henry!! It really means so incredibly much to both him and us! This kiddo was so wiped out tonight. . #henryharrisonska

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downwithsam

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ablefinder

“Hello, my name is Elizabeth and I was born with a connective tissue disorder called Ehlers Danlos Syndrome. Ehlers Danlos affects your collagen which is found in your bones, organs, skin, etc.. because of this I have a lot of stomach issues (Gastropariesis, Crohns, Colitis), I break bones a lot/tear tendons, I’m immunocompromised, etc.. I still try my hardest everyday. I used to run for a University and graduated not too long ago and still love to exercise when I can. Despite my disability and struggles, my team and I qualified for Nationals in cross country! What a deal!” ❤️✨ @ittybittytales #IAMABLE #ehlersdanlossyndrome #extraordinary * * *** Join the #IAMABLE movement and find out more about AbleFinder’s peer support community at www.ablefinder.org.au ***

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kariescott10

Zoe loved that 🐴! #downsyndrome #morealikethandifferent

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laurenmcculloch

On our way!!! Prayers appreciated for a safe and uneventful journey HOME!! Thank you all for the birthday wishes, support, prayers and encouragement. We have been blessed with an incredible village.

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charlies.way

REPOST - if you aren't following @ablefinder, you should! We love this organization and what they believe in! . . . Why #IAMABLE? Because we want kids like Oskar (@heidiiver80), Charlie (@charlies.way), Grayson (@emmeruth) and Elliot to grow up in a world that recognised them by their worth, strength, heart and ability! ❤️🌏✨ #Repost. . . . #toddlersofig #toddlersofinstagram #downsyndrome #ambassador #downrightperfect #ability #inclusion #inclusionmatters #advocate #nothingdownaboutit #theluckyfew #downrightawesome #morealikethandifferent #sewamazingandmore #instacute #instakids

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akettenbeil10

2 month shout out to this little cutie! Her personality has really started to show in this last month. I love the little cooes she gives me when I talk to her. She somehow knows exactly when you need a pick me up because she’ll give you the biggest smile that shows off her one little dimple. WARNING: This will cause your heart to melt into a million pieces right when you need it the most! Each day Rae proves to us that she’s #morealikethandifferent! But the biggest thing she taught us this month was that everyone laughs in the same language! And boy does this cutie have a cute little giggle. As simple as this might seem for some, I really needed this reminder. Her tiny onesie gave me a lot of comfort on a hard day. I thought I loved @Target before but they are killing the game with their inclusion attire for kiddos these days! Needless to say my love for Target has tripled in numbers. 💕✨☀️ . . #RaelynLee #OurRaeOfSunshine #theluckyfew #provethemwrong #2monthsold #targetstyle #inclusion

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kellyann3mylife

{110/365} We're home and already back into our routine. I dropped Aidan off at the ball field for practice bofore his game. And Hazel and I came to the studio to get a few things done before we head back to meet the rest of the crew for the game. When we got back from the trip I snapped this picture because her little outfit was so cute. Good thing I got the photo, because less than an hour later (at the studio no less), Hazel had the blowout of her little life. Thank goodness it didn't happen on the 6 hour car drive today......She actually slept through 90% of that ride! ;) . . . . . . . . . . . . . #hazelgrace💖 #newbornbaby #ourblessedlife2018_365 #ourbittybaby❤️ #m4hlifein52 #nothingdownaboutit #theluckyfew #t21 #changingthefaceofbeauty #downsyndrome #downsyndromelove #ourjourneywithds #morealikethandifferent #livingwithalittleextra #iamable #jj_its_kids #childhoodunplugged #candidchildhood #pixel_kids #ourcandidlife #momtogs #thedocumentarymovement #momswithcameras

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sara_stegall

When I tried to put Eden at the other side of the table at the restaurant, she said, "No, sit by Portia!".☺️ We had a great night eating Mexican food, ice cream, singing to the radio, and Portia and I talked about who our NKOTB crushes were, lol!😜 Portia is very special to our family. She is my age and has Down Syndrome. Her and her dad visited us in the hospital soon after Eden was born over 6 years ago. She immediately eased many of my fears about Down Syndrome. She is an amazing lady, and Eden just LOVES her. We all do.❤️ #morealikethandifferent

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kenzieschromosomecrusaders

Just one week left for shirt sales! Follow the link below to get yours! https://www.bonfire.com/kenzies-chromosome-crusaders-shirt-campaign/?utm_source=facebook The people at Bonfire didn't think the dark blue will show up on the black so they're doing a slight adjustment to the blues. I will share an updated photo as soon as I have one. #loveeverychromosome #kenzieandcrew #downsyndrome #morealikethandifferent

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mommatamingo

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felicitysdada

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buddyuptennis

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arbordayeveryday

Went on a thrilling ride as King of all wagons, and I was certainly not even the slightest bit cold 😂😂 📸@keeaarstie

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adventuresoftracey

This guy loves his baby sister. Always snuggles up close to her on her play mat or next to us when Cleo is feeding. 😻👶🏾

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makenna_grace_deanna

🔊SoundOn🔊 👑Check out this little QUEEN from yesterday's job! Thank you @petetheproducer for being so awesome with Makenna! Her shoes kept sliding off while she was trying to walk to her scene from the trailer, so Pete solved that problem quick style haha! I also love her two hair&make-up angels, Hyun and Misa @misaaikawahouse who were right there behind her to help! #shoesdown 😂 You all were amazing!😘💞 #QOH #thatgigglethough #queen #queenoftheday #princess #bts #proudmama #likeapro #pmt #print #modellife #palomamodelandtalent #workinghard #model #photogenic #modellife #audition #actress #booked #childactor #childstar #nolimit #Hollywood #inclusion #downsyndromeawarenessmonth #downsyndromeawareness #downrightperfect #morealikethandifferent #downsyndrome #future

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peacelovegianna

Silas had a choice on how to practice his spelling words for the week. One of the options was to spell his word while doing an exercise. I couldn't get over how engaged Gianna was!! This gave me insight on a whole new approach to keeping her focused. Movement and music are her favorite so now I have a new list of ideas on ways to practice speech with her! Pretty exciting! #downsyndromeawareness #speechtherapy #thebestbigbrother #chd #morealikethandifferent #exercise #multitasking #PeaceLoveGianna #Heartwarrior #worthy

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laurasgreetingsco

Meet Laura's mom and Hannah (Laura's aide and one of the cofounders of Laura's Greetings). Everyone has a story-those close to Laura know she has a talent to share ❤ tag a disability advocate you know! Our Kickstarter can be found at the link in our bio 😊 . . . #laurasgreetings #disabilityawareness #disability #downsyndrome #t21 #equalopportunity #entreprenour #kickstarter #autism #kickstarterlaunch #makeadifference #disabilityadvocate #theluckyfew #nothingdownaboutit #autismawarenessmonth #morealikethandifferent

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wowcentermiami

Today @artatwow and our Technology program had the opportunity to visit the @microsoftstore at @shopdadeland for a Digital Art Workshop! They each drew on Surface Pros and then integrated their art into a presentation using Sway. We were also able to test some products! Next week we’ll be attending a Gaming Workshop! Can’t wait 💚 Thank you @microsoft & @microsoftedu!

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thislittlelife1

Happy 9 month birthday my sunshine!! Little boy you are getting oh so big! You are such a fighter! These last few months have been hard on all of us, but you get through it with a smile on your face! You may have not yet conquered CHD fully but you sure are conquering it with that smile and your strength to get through anything put in your path! You had a very very special 9 month celebration today(which you all we soon see in the next few weeks!🤐) We couldn’t be more proud of you and the way you have been such an inspiration not only to us but so many that hear your story and see that infectious smile! I am so happy that on this day 9 months ago that you came into my life and completely took us by storm! That day perfection was born! Side note** whoever sent us this onesie please contact me!!

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heycollinges

4: DOWN SYNDROME. The second I heard the tone of his voice I knew our lives were forever changed. “Jill?” He called. I looked over to him, and with tears in his eyes he spoke the words I never imagined I’d hear that day, “They think our baby has Down syndrome.” It was overwhelmingly surreal. I instantly felt guilt. I felt like I had somehow failed him, and so after a moment of silence, my first response was, “are you disappointed?” “No!!” he instantly proclaimed, with a sort of excitement in his voice. He began to tell me how deep down he knew this was coming. God had been preparing him in the most seemingly insignificant ways throughout my entire pregnancy. I don’t know how long we sat there quietly reflecting, but when the nurse finally came to move us to our room the only thing on my mind was getting over to our sweet baby. - #estellesbirthdaycountdown - . . . . #birthstory #birth #thebump #mommyblogger #momblogger #dearmom #diagnosis #nicu #nicubaby #babiesofinstagram #nothingdownaboutit #dsdn #morealikethandifferent #theluckyfew #t21 #t21baby #trisomy21 #ds #downsyndrome #downsyndromelove #downsyndromeawareness #upsyndrome #downrightperfect #ndss #lifeisbetterwithyou #shouttheirworth #savedownsyndrome #newborn #baby

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amberdfox

Being their mama is the absolute best ❤️

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andafrenchiemakesfour

He’s not only cute, but he cleans too! #nothingdownaboutit #morealikethandifferent #downsyndrome

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downrightbeautiful_levi

Days can pass now where I completely forget Levi has Down syndrome! To think nearly 10 months ago the words "Down syndrome" consumed my world and now this gorgeous happy squishy little monkey consumes my world instead! Along with his demanding older brother of course! 😍 . . . #love #changing #feelings #positive #iamwhoiam #hat #sun #garden #play #stripes #love #dsdn #squishy #myworld #morealikethandifferent #changingthefaceofbeauty #nothingdownaboutit #downsyndrome #mystory #downsyndromelove #theluckyfew #lifeisbetterwithyou

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wovenwith47

It’s baseball season! ⚾️

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martythemoose

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uniqu3families

|| UPDATE || : The link in my bio is up and running again! So we told you a little bit about who we are and why we do what we do. Now we want to show you one way we plan on reaching our goals. Swipe right to see how it’ll look on your phone! 👀 If you are interested in buying and supporting our cause, click the link in our bio. Payments currently available through PayPal. They are only $10.00 each

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lookcookandeat

Look, Cook, and Eat is sponsoring a cooking competition at the @iowastatefair, and we want YOU to get involved! The contest encourages people 16 years of age or older who live in the state of Iowa to enter a recipe containing corn as an ingredient. [Find more details at the link in profile under “news”]

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henrik.strong

My constant bathroom companion 🚽🚻....that tongue tho 😛😊. · · · He is into everything lately! A bit more baby proofing 🛠 is definitely in need Dad!!! · · · #henrikstrong #downsyndrome #upsylndrome #worthy #morealikethandifferent #moreupthandown #theluckyfew #homiewithanextrachromie

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sarah_h921

If she wants to snuggle forever, that’s ok with me. ❤️

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princessglorykay

Hi everyone! I had a really great week at school this week! I only cried a little each time when mommy dropped me off (and really that was just for her benefit). The rest of the time I played with my friends, did art projects and got to know my new therapists! All in all it was a great week. Here I am chilling a bit after school today. Don't panic, the folks aren't trying to potty train me yet... they are actually the ones that are trained! I sort of make it kind of obvious when its time for me to go...you know...so they bring me on in. Works out okay :) Have a great weekend! #nothingdownaboutit #morealikethandifferent #theluckyfew #upsyndrome #toddlersofinstagram #adorable #pottytime #cutebaby #daddysgirl #tusksout #battleboarlife #downsyndrome #chillin #bringontheweekend

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theadventuresofrobyandamelia

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cassvb24

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bar.elle.againstallodds

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mylittlekaya

✨We like big-girl books!📚✨ ✨And blowing kisses!💋✨

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mpcbuddybreak

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up_about_giddy

These boys are NUTTY! 🤦🏻‍♀️🥜😳

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mdoussi

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emsmith55

Rocking my @more_alike_than_different T today! As a teacher I LOVE the heart behind this line! We are more than our diagnoses, disabilities, color, weight, height, learning speeds, etc etc. We are ALL more alike than we are different❤️❤️❤️ #empowerothers #loveyourself #morealikethandifferent

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inhisowntime

I never get these snuggles anymore! He woke up from his nap and then fell back asleep on me 😍

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cydkaren

Not sure what’s wrong with my IG but it’s not letting me upload any of my Stories for the day (did any of you report me or something...? 😆) so instead, I’ll do an actual post of one of the things Lana did today 🖍 She also stole a bag of spinach as I was prepping her lunch and tried to eat it right out of the bag! If I can figure out what’s going on with my app, I’ll share that Story later.

6

togetherweebloom

I love using the See and Learn Speech Program with Madeleine. It’s systematic, easy to implement and evidenced based. Since intensity is key in speech work for children with #t21 we attempt a little speech session at least once a day. It’s never perfect but I’ve seen improvement in Madeleine’s attention and speech skills already. #seeandlearn #downsyndromeeducationinternational

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lindyt63

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tulach.ard.farm

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alternativet21

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littlest_warrior

❤️❤️❤️❤️ #advocatelikeamother // Thanks for sharing @jesmandujano // 10% of sales this month will go to the adoption fund for @desireelyse

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kellyann3mylife

A little bit of pool time fun. It really was chilly out, but you’d never know from these crazy kids playing in the pool like it’s 90 out. At least me and Hazel stayed nice and warm bundled in our blankets. . . . . . . . . . . . . . . . . . . . . . . . . . #hazelgrace💖 #newbornbaby #ourblessedlife2018_365 #ourbittybaby❤️ #m4hlifein52 #nothingdownaboutit #theluckyfew #t21 #changingthefaceofbeauty #downsyndrome #downsyndromelove #ourjourneywithds #morealikethandifferent #livingwithalittleextra #iamable #jj_its_kids #childhoodunplugged #candidchildhood #pixel_kids #ourcandidlife #momtogs

3

lovedailydoseofbella

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alilsomethingextra321

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0utsidetheboxfox

#giveaway - Hi friends! Happy #friyay! I am so thrilled to tell you about my friend Gabi from @gabisgrounds . Gabi is a graduating senior and young entrepreneur. She is working on opening her very own coffee shop here in #raleigh and we are so excited to share that with you. Gabi and I have teamed up to bring you a super sweet #giveaway to help spread the message of inclusion and acceptance of individuals with Down Syndrome and different -abilities. To win (scroll through pics) ☆ one tee, one bag of coffee, one mug and a sticker just: 1. FOLLOW @gabisgrounds + @0utsidetheboxfox 2. Tag a friend (or more for extra entries ) below. That's it! Help us to spread love and awareness. Open to everyone, we will ship! 💕☕ . . . . . . . . . #dsdn #theluckyfew #thehappynow #nothingdownaboutit #downsyndromelove #downsyndromerocks #lovewolfandfriends #lifeisbetterwithyou #ndss #shouttheirworth #morealikethandifferent #specialneedsfamilies #uniteinmotherhood #ig_motherhood #babiekinsmag #childhoodunplugged #changingthefaceofbeauty #littleandbrave #flashesofdelight #letthekids #dslooking #abmlifeissweet #ministyle #kidsofinstagram #ig_kids #magicofchildhood #raleighmomsblog

173

chloe_zebedeemodel

15

vanvlittles

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upanddownwithconnor

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banks_is_so_money

All smiles during our pre-surgery consult to separate his fingers (syndactyly). All bones are present and we're moving forward with surgery in the coming weeks. He'll have two separate surgeries that will have him in a cast from his shoulder to his fingertips for THREE weeks each. This poor kid is in for one heck of a summer! #downsyndrome #t21 #nothingdownaboutit #trisomy21 #morealikethandifferent #worthy #IAMABLE #syndactyly #childrensmercy #surgery #BanksPayne #BanksIsSoMoney #homiewithanextrachromie #CaptainAmerica #superhero #banksy #downrightperfect #downrightcute #downsyndromeawareness #bigboy #11months

8

extracrazyculps

Thoughts.... Okay, so when someone says to me " I hope I have a child with special needs/DS", it makes me feel two ways. First it makes me feel appreciative that you see my son's uniqueness and the joy he brings to our life, but even though I love my son and wouldn't change him for ANYTHING, I would not wish the hardships he has faced and will face on him. Second, being a Special Needs Parent is hard work and somedays you just don't know how you are going to get through this next hour, day, week without completely losing it, so when you essentially say that you would want our struggles it downplays our feelings. Also, we (parents) share our kid's struggles and accomplishments because we want the world to see that they are more than their disability and deserve to be included. Our kids are not a fad like the next pair of stylish jeans, but real people and with real feels. #thoughtsfromaspecialneedsmom #advocatelikeamother #advocate #theluckyfew #upsyndrome #nothingdownaboutit #specialneedsmom #morealikethandifferent #mightymaverick. 💪💙💛

0

lorisvoice_admin

“See them SHINE ☀️through their brokenness” We all carry brokenness (hidden or visible) we’re broken vessels. It’s ok to show our brokenness, if we allow light into our broken pots, the brokenness or cracks is how the light shines through our cracked vessels onto others! Look at her beautiful smile, she radiates joy! #lorisvoice #shine #radiatejoy #celebrateabilities #differentlyabled #bekind #loveoneanotherasihavelovedyou #childrenscharity #helping #makeadifference #love #morealikethandifferent #seethemshine #shouttheirworth #disabledcommunity #ability #fox17

2

chloe_zebedeemodel

"Mum, hotel picture please!" 📸💁🏼 In London for the night for another casting for Chloe tomorrow morning! Didn't get here till 5ish, but a quick change of outfit, suncream on and we were out to enjoy a couple of hours in this brilliant weather ☀️️☀️️☀️️ : : : : : : : : : : : #zebedeemodel #zebedeemanagement #teamzebedee #childmodel #kidmodel #kidstagram #minimodel #scottishmodel #chloelennon #differentlyabled #t21 #theluckyfew #thisgirlcan #castingcall #changingthefaceofbeauty #morealikethandifferent #designergenes #ootd #ootdkids #instakids #downsyndrome #iamable #nothingdown #sunshine #summerfashion #london #strikeapose

20

brittanysbaskets

Last Friday night, Lindsey Preston (who happens to have Down syndrome) had a special date to her prom: @donjones5 of the San Francisco @49ers! We hope you both danced the night away! . . . . . #downsyndromelove #downrightperfect #nothingdownaboutit #morealikethandifferent #differentisbeautiful #differentnotless #upsyndrome #bornthisway #specialneeds #t21rocks #brittanysbasketsofhope #nonprofit #spreadlove #spreadhope #welcometoholland #49ers #donjones #prom #promqueen

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