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ryan.plus.1

The “Before I’m About To Cry” Face - The “Talking” Face - “The Protruberant Tongue” - “Hand To Mouth Milestone”

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ryan.plus.1

This guy dances all over the exam table! But check out his stats!! He gained a whole TWO pounds in a month! Just so you know, that is some pretty good growth for a kid with DS and heart defect. I was expecting him to weigh in at about 9 and a half pounds or so - especially since he’s been kind of eating funny, like he forgot what to do, not eating as fast. He is talking a lot more, smiling more - like big ones! 😄 He has put his hands together for a little while and even put his hand in his mouth. He is focusing on his toys hanging on his swing and has reached for the side of it. His neck muscles are getting there, still wobbly with holding his head up. He looks when we talk to him and his favorite person to talk to is big sister Cookie. She always gets a response out of him and everyone else sometimes has to try a few times! 🤟🏼💙💛

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The Protruberant Tongue. There are a few different reasons why babies with Down Syndrome, I’d say the main reason for Ryan is hypotonia - as he needs chin and cheek support when feeding. He’s doing better than when he was a newbie. I usually only have to support now when he needs to be reminded to finish his bottle or he lets his formula sit in his cheek and drain out. Not fun. One little nudge of the chin will get him moving again. Literally, you feel like one hand is doing 5 things when feeding and once you learn the way to hold the bottle one handed, you’ve mastered this. I believe it. Lol. Anyway, Ryan’s always got his little tongue sticking out. #DidYouKnow • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior

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ryan.plus.1

Our Ryan is TWO months today! Official two month pic coming Monday after his appointment so we all can see how much our guy has grown!! He’s doing new things and I’m excited for that post coming Monday! For now, here’s a pic of Ryan yawning. Typical. • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior #ellenratemybaby

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ryan.plus.1

#DidYouKnow that approximately 40 to 60 percent of all infants with Down Syndrome have some type of heart defect. Ryan has a Tetralogy of Fallot, which is a heart defect with four characteristics: a hole between the bottom two chambers (VSD), an overriding aorta (the larger artery taking blood to the body is on top of both ventricles, instead of just the left), pulmonary stenosis (a narrow pulmonary valve, carries blood from the heart to the lungs), and hypertrophy (the right ventricle becomes thicker and more muscular than normal from working harder to pump blood through the narrow pulmonary valve). Babies with Down syndrome also have smaller mid facial areas, including nasal and sinus passages, contributing to more colds and sinus infections. Some babies with Down syndrome may have a decreased immune response to bacteria and viruses. We don’t want him to catch even the slightest cold and earn a hospital stay. All that being said! I got this random package in the mail today with this awesome stop sign for his stroller/car seat! If I said to just not breathe in this area it would be perfect, but I guess that might be too harsh. I am a little coocoo when it comes to him getting sick. I almost flipped a table over the other day when a random lady just started talking all up in his stroller. So I’m super thankful that this neat little thing came today!

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ryan.plus.1

The fact that Ryan even acknowledged the toys in front of his face is a milestone! I was too excited when he even grabbed the side of his swing today. Wasn’t the toy but at least he reached for something!! Thank you Ryan! You’re awesome! And he was really talking a lot today! 🤪🤩... • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior #milestones

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n2utive

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emelinarocksmyworld

She loves the rocking ⛄ that her sister @_fridajuliet_ got for christmas ⛄❤🎄🎁 #rockingmyextrachromosome #rockingsnowman #christmastimeisthebesttime #lovethisgirl

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ryan.plus.1

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ryan.plus.1

Literally growing in front of my eyes. His clothes aren’t swallowing him and looks like a big kid sleeping unswaddled. His sisters are out of school for Christmas break, so the photo opps are less now. Also, I don’t want him to think my phone is my actual face and he just hears a random voice. He’s still 8 pounds, but still gaining. 😍 • • • • • #212121 #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #brandrepsearch #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21

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n2utive

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ryan.plus.1

Yesterday was a pretty busy day! I didn’t get to make a post! 😕 So we had our one month check up! And everything is looking good. We weren’t able to get the shot he needs for RSV season so - quarantine. Nobody can breathe on Ryan. 🙅🏻‍♀️ He’s steadily gaining weight, which is good! He’s 8 pounds and an ounce now! I didn’t get to get an exam room pic because my phone decided that’s when it should do an update, how convenient. 😑 I was exhausted yesterday! So I made up for it and slept half the day away today. ☺️ Swipe to see who was holding their pacifier in yesterday! Hand to mouth movement. 😍💙💛 • • • • • #212121 #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #brandrepsearch #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21

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lularoe_ds_solly

This is what happens when my darling sister gets told from dad that she gets to keep both of these gorgeous dresses! Thanks @lularoe.lisaharrington ! Aibhi had to match The Scarlett when she saw a picture of her in the rainbow Scarlett dress! What do you think @deannelularoe !? @lularoe #lularoe #scarlett #lularoescarlett #lularoesariah #mysister #lovemygirl #princess #ndss #downsyndrome #rockingmyextrachromosome #happy #daddysgirl #instabeauty #elegant #elegance #kidselegance #lularoekids

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ryan.plus.1

Let me tell you about this picture. It all started the night before, Ryan just wanted to gaze into my eyes all night. I just wanted to sleep. Yea, I was mad at a baby! So it Carries on to the next day, when I was SURE he’d take a nap because the little dude was up all night. Nope. And wanted to eat oh I’ll say double! Well, while eating double - HE GOT HIS POOP ON ME! It should have been me wrapped up in a nice towel. I had to take him and dip him in the sink! And to top it all off, he spit up everywhere after! 😑 Today will be better. We were back on good terms by 7PM. Also, it only took me 4 kids to realize baby towels are for swaddling, I think. That’s why they’re like diamond shape. 🤨🤔 Think about it. • • • • • #212121 #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #brandrepsearch #ryanplusone #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21

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n2utive

3rd grade picture. ..Oh my the Sugah Boogah is really growing up #downsyndromebeauty #rockingmyextrachromosome #changingthefaceofbeauty

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ryan.plus.1

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ryan.plus.1

It’s been a few days! Ryan’s been eating and trying to bulk! He has been taking his bottles very well, sometimes I think he even takes them too fast and ends up spitting up all over the place. Which reminds me, I forgot how to change a baby boy diaper; the pee is literally shooting everywhere! I’m actually really tired right now! So, goodnight! Enjoy this sweet guy! • • • • • #212121 #betterwithyou #changingthefaceofbeauty #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21 #bulkingseason #ryanplusone

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emelinarocksmyworld

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ryan.plus.1

I was in the NICU today - didn’t get there til about 7 tonight, but I made it! And this little guy was wide awake! I told him sorry I was late today. I’m glad he was awake! Today I’m thankful for every single one of those NICU nurses. Just feeding this one is a task and they make it look easy. And that’s just one of many things they do. #Love #HappyThanksgiving 💙💛 • • • • • #212121 #betterwithyou #changingthefaceofbeauty #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21 #ryanplusone

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ryan.plus.1

Look at this guy! He’s been eating all his bottles but still struggling with gaining weight! So, he’ll have some formula added to his milk to add calories. Feeding him is a job, but he eventually takes it all. 💙💛 P.S. Happy Due Date! Today is his original birthday. Lol. We hope you put on some pounds this Thanksgiving! #HappyThanksgiving • • • • • #212121 #betterwithyou #changingthefaceofbeauty #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #dsdn #iheartT21 #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #morealikethandifferent #rockingmyextrachromosome #t21 #t21journey #theluckyfew #trisomy21 #ryanplusone

ryan.plus.1

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emelinarocksmyworld

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ageing_jedi

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n2utive

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n2utive

This little girl is truly the light of my life. October is Down Syndrome Awareness Month💙💛 #octoberisdownsyndromeawarenessmonth #changingthefaceofbeauty #t21_rocks#rockingmyextrachromosome #sugahboogah #iamloved

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n2utive

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verahanglin

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verahanglin

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ourlittlebutterfly

It's a sleepy Sunday, especially when you party late last night. This little Butterfly is a night owl! #ourlittlebutterfly #downsyndromecutie #adoptedcutie #sleepingbutterfly #sleepingbeauty #doihavetowakeuptoday #rockingmyextrachromosome #nightowl

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ourlittlebutterfly

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wattanasintham

Ever wonder what a mermaid taste like? 😂 ••••••••••••••••••••••••••••••••••••••• #baileykisses #fishfordinner #mermaid #lick #culverskidsnight #culversgrandhaven #culvers #tastelikechicken #bwahahaha #toofunny #downsisbeautiful #fulloflove #rockingmyextrachromosome

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wattanasintham

We love kids night! •••••••••••••••••••••••••••••• #baileyjoy #culvers #culverskidsnight #culversgrandhaven #happygirl #rockingmyextrachromosome #downsisbeautiful

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fabiola_farrell

Without a single doubt #LIFEisbetterwithyou. To places like Iceland and Australia that are proudly eliminating the birth of children like Gabi, I have one thing to say: shame on you! You don't know what you're missing! Her life as well as all others with #downsyndrome is worth living! #theluckyfew #changingthefaceofbeauty #downsyndromeawareness #nothingdownaboutit #downsyndromelove #rockingmyextrachromosome #chromosomeenhanced #t21love #t21rocksss #morealikethandifferent #gabigirl #bornthisway

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n2utive

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lularoelarafreeman

#spinning in her #lularoescarlett on a beautiful #summertime day. @lularoe makes a donation for #downssyndrome for every Scarlett sold! 💗 #ndss #downsyndrome #rockingmyextrachromosome

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downsyndromecutie

It's my first day back to school.....8th grade here I come 🍎📚✏️ #backtoschool #downsyndrome #downsyndromebaby #downsyndromecutie #rockingmyextrachromosome

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emelinarocksmyworld

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downsyndromecutie

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downsyndromecutie

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emelinarocksmyworld

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emelinarocksmyworld

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emelinarocksmyworld

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ourlittlebutterfly

Her newest favorite expression. Mommy is obsessed with making these dresses. #ourlittlebutterfly #adoptedbeauty #downsyndromecutie #rockingmyextrachromosome #changingthefaceofbeauty #mommymademydress

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ourlittlebutterfly

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ourlittlebutterfly

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n2utive

This little girl amazes me and wears me out, but I wouldn't change anything, she is truly what makes the world go round😍😊💚💙💖💟 . Happy 9th birthday to the Sugah Boogah. 🎂❣🌹🏵🌷🌼🍰🍭🍦🍨 #sugahboogah #littlegirlsruletheworld #changingthefaceofbeauty #rockingmyextrachromosome #nolongerababy #mylittlegirlisgrowingup #watchoutworldhercomesyvette #downsyndromeisnotmylife

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n2utive

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ourlittlebutterfly

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n2utive

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downsyndromecutie

Lexy's my best friend literally......we dance 💃🏿 and sing 🎶 together, we play together....She calls me on the phone even if I leave for just a minute to run to the store.....I normally wouldn't post this but this is us, this is our everyday life.....we're not saddened by her having Down Syndrome, we're not miserable, and for sure I wouldn't trade her for the world 🌎 and to be honest oftentimes I don't even remember she has Down syndrome....she's just my Lexy 💖💖💖💖 #mydownsismyup #downsyndromecutie #rockingmyextrachromosome #downsyndromerocks #downsydromeawareness #dollarwine #wearejamaicans #weteachourkidstodance

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downsyndromecutie

Going through old pics of Lexy....this is one of my favorites she was 2 years old and still not able to walk on her own yet. But she used to say "uh oh" and put her hands on her cheeks just like this whenever someone told her she needed to wipe her nose 😂💖😂💖😂 #unbothered #downsydromeawareness #downsyndromerocks #rockingmyextrachromosome #downsyndromecutie

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downsyndromecutie

Throwback picture of Lexy with her Gamma in Florida....I believe she was 5 then.....She was so tiny now she towers over me and her grandmother 😂😂😂😂 #downsydromeawareness #downsyndromerocks #rockingmyextrachromosome #downsyndromecutie #mydownsismyup 💖💖💖

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rosy_a5

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downsyndromecutie

💖🌟💖🌟💖 Lexy is no different than any other 13 year old....She's sassy and fun and gets emotional (ugh the emotions 🤦🏾‍♀️) just like any teenager her age. What makes her extra sweet and special is her spirit and fun loving personality 💕💕💕 #downsydromeawareness #downsyndromerocks #rockingmyextrachromosome #downsyndromecutie #downsyndrome

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downsyndromecutie

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downsyndromecutie

Lexy loves snapchat filters 💖💖💖.....Happy Sunday Everyone 💕💕💕 #downsydromeawareness #downsyndromerocks #rockingmyextrachromosome #downsyndromecutie #downsyndrome

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downsyndromecutie

Still my whittle baby doll 👶🏾💖💖💖🌟💖🌟💖 #rockingmyextrachromosome #downsyndromecutie #downsyndrome #downsyndromerocks #downsydromeawareness

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downsyndromecutie

Last year at summer camp....Wonder what this summer has in store 🌺 #downsyndromerocks #downsyndrome #downsyndromecutie #rockingmyextrachromosome

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n2utive

This little girl, the light of my life. Things very hectic and literally crazy for me. Little does she know how much of a blessing she is. #callback #astarinthemaking #changingthefaceofbeauty #rockingmyextrachromosome #downsyndromeawareness #kmrdiversity #sugahboogah

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