Ryanplus1 Photos & Videos on Instagram

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ryan.plus.1

Ryan is Puerto Rican today so call him Ryán, with his PMB Cologne and comb over. 🤣 His hair is smooth right now though. Vote for your favorite Ryan hair in our story!

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This guy and his hand. He loves it. I tell you, if he wasn’t using both hands to do things, I would be worried. And just looking at this picture, even though he’s propped in a corner, the mere fact that he is leaning a little forward and looking at his hand and STILL sitting is a big deal to me. We’re working hard on him getting his hands down to catch himself, but it seems he’s more fascinated in looking at it for now. I can’t even believe how big he is right now too! Who has followed this guy since he was born? Can you believe how big he looks right now??! 😩

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That being said - I saved this pic for its own post because it’s my new all time favorite pic of Ryan. That smile! Y’all, when I tell you it’s some work to get that one big laugh out of him - only one in seven hundred would understand. Ryan gets happy and excited, you can feel it. But to get that BIG laugh, you’re gonna work for it. I LOVE this picture. 😍😍

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Just about a year ago was that appointment. The one I drove an hour home from contemplating ways to make it right. Thinking about what would happen next. Wondering if it was even real. Calculating the odds/chances. Doubting everything. Not a single positive thought, I know that. Check out the doctor notes...this pregnancy went from, can’t wait to meet this little guy to feeling like I’d rather just stay pregnant for 50 weeks or more. I literally read every single word and number on these notes EVERY week. The doctor could not put these notes in the record fast enough for me. Everything highlighted blue I wished would somehow be different in the next note. Every. Single. Week. Sometimes twice a week. These notes were unacceptable for the rest of the pregnancy. The only good thing is highlighted in yellow. A pregnancy that was halfway over felt like a brand new pregnancy and double the time. When I was admitted, I was not ready. I cried. I wasn’t ready. The notes never changed. — But let me tell you. If a kid was ever worth a wait, it’s Ryan. If God ever had a plan and I thought mine was better, it starts with Ryan. Ryan is totally worth every dragging moment of that pregnancy. Every smile we get out of this kid trumps 10 scary thoughts. Him knocking all his goals down this week, I could cry. Just when I start thinking - do I do enough? He pulls through. Every single milestone is worth the what feel like an eternity sometimes.

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Getting ready for bed, but first pictures. 💙💛

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Holding his bottle for long enough time for me to get my phone and get a picture! Ryan is knocking his goals down! So proud of him!

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The face you make when you sent the text to the wrong girl on accident. 🙈🙊🤣 Boy. Even if you didn’t, you did. 🤣🤣

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That face you make when your @babypapertoy is lookin like a whole snack. Thank you to one of our tribe mamas for sending this to Ryan! He loves it!

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Working on sitting and balancing today! This idea is genius!

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Baby Maui on a #TargetRun

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Can we just take a moment to love this cute little narwhal I found in one of these gift shops!? And I made it into a pacifier clip for Ryan. 😆😍💙💛

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It’s been a while since we posted about Ryan! BUUUT. Yah booooyyyyy! Is. Rolling! I don’t take enough pictures daily since we’ve been on vacation, especially with all the bigs - I’ll work on that. But I DID get this on video and I’m SOOOOO proud of this guy! 😍 Seriously, WHO ELSE IS EXCITED AND DID NOT EVEN EXPECT THIS!?? 🙋🏻‍♀️

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“I’m reading this book on antigravity. I can’t put it down.” 🤭🤓

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Buddy was so tired after church. Look at his cute little chin. I love it! 😍 This amazing muslin swaddle is from @swaddlebee - love this adventurous print! #TodayIsGoingToBeAwesome

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Guys, I’ve been harvesting pictures the past couple of days. I love that he loves his @hellomylovedesigns because I love them! I am so excited for what we’ve got coming from our girl! Sensory overload in one teether! Use code HELLO15 & @ryan.plus.1 to save 💲 when ordering! Even custom orders!

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When taking pics of all the kids, sometimes you just “get what you get and you don’t throw a fit” 🙄. I’m pretty sure I told them to look in one general direction and say something like cheese. Lol. Also, sometimes I have to tell Olivia she gets to twin with someone in order to get her to even put clothes on for the day. 🤷🏻‍♀️

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My DI from @downsyndromeoflouisville said I gotta work for my therapy gifts. And I had to put in some work today, but it paid off for this cool eating toy. Today’s was Ryan’s toughest therapy day in the books. He really struggled and pushed through today. Two things - I was actually kinda sad after his session today and he literally slept from the time his DI left to a little while ago only waking up once to eat...7 hours. And I woke him up just now, he didn’t wake up on his own. He worked his butt off and cried the whole time doing it. We’re working hard on some cool new tricks and when he gets them what a glorious day it will be. Today’s therapy was hard for both of us. But look at this smile, eating his first real banana and made a mess of it too. He was so happy to see daddy when he came home today and was talking so much to him. I don’t doubt he was talking about his therapy session and how mom didn’t do anything to stop it. 😆

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Summer days are busy! I feel like I miss Ryan but I’m still with him all day! It’s the other kids, they’re taking up all my quality time with Ryan! And why does his stroller make him look like such a big kid!! Look at his just strolling with his arm up like it’s a car window! Who is he!?!!! And look at him checking out all his surroundings! I need to squeeze him extra tight tonight because he’s growing right in front of me! 😩💙💛

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One of my, if not, my favorite small shop! I cannot wait to rock one of these necklaces for Ryan to gnaw on! Also, SO many portions! @hellomylovedesigns has the cutest teething gear and clips for whatever you don’t want to hit the ground! Also, I’m excited to try these crochet beads! And the crinkle papers! I dare you to tell me your baby doesn’t like crinkle paper. 😍 Mention @ryan.plus.1 and HELLO15 for a discount!!

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It makes me SO happy how proud daddy is of Ryan and he’s his biggest supporter! It kind of a big deal! #Repost @xoxo.love.tiffany ・・・ Happy Father’s Day to this guy! He has gotten the girls up and dressed and made the best ponytails every morning so I can sleep in. Been working his butt off so I can stay home with Ryan. He likes my cooking. Has the corniest dad jokes, so that means they’re the best. 😉 Happy Father’s Day @derek.mcginnis ! We love you! 😘

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He loves food!! 😍

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I’m FOUR DAYS LATE posting this! Ryan is 7 months old! He is still working on rolling over from tummy to back and back to tummy. He can do these with assistance, but shows no interest otherwise. However, this guy is trying to just go straight to sitting up! He loves sitting upright and tries SO HARD when he’s laying down. He can sit for a while when propped in his boppy or tucked in the corner of the couch or a chair. He’s chewing on EVERYTHING! So pretty sweet he got a gig at @hellomylovedesigns !! Also, if you mention @ryan.plus.1 and HELLO15 at checkout when ordering you get a discount!! We love this shop! He’s also chewing on pureees now! He loves eating time and does so good! He reaches for toys when he’s on his tummy. And has successfully had his SECOND real in the bathtub bath of his life! He’s starting to warm up to the water a bit, but still kinda scared of it. He did some light splashing towards the end. Slowly but surely, what a glorious day it will be when he rolls. Til then, we work when he wants and take it easy. He’s doing amazing! We love you buddy! 💙💛

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We get to team up with one of our favorite small shops! Please please please!! Support Ryan and one of his fav shops @hellomylovedesigns ! I’m a sucker for pacifier clips too! But these, the teethers to go with them are IRRESISTIBLE! Also, not only pacifier clips, they attach to anything you don’t want to drop on the ground basically. Does not have to be clipped to baby. I literally keep one clipped to the car seat/stroller!

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#VBS treasure the kids brought home! Looks like DNA to me. 😉☺️👌🏼

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So, uuuhhhh, does this shirt make me the most ineligible bachelor? 🤔🤣

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Baby’s first chicken bone. 😍😋

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Here to save the world. ✊🏼

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Somebody didn’t last 5 minutes in the wild. 🤣

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There’s a very sweet message at the end of this book by @toddparr ! Olivia picked it out at the library today to read to Ryan.

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Guys! Check out what dads been rocking! 😍💙💛

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#Snapchat I cannot handle this cuteness!! 😩

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You guys. I am a sucker for a diaper design! And LOOK 👀 at this design on @pampersus @pamperspure Pampers Pure diapers!! It’s a #sloth!! How CUTE!?

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Who would have even thought you could have a picnic in Barnes & Noble!? That’s what we did today and it was perfect! If you could have even seen this sweet girl’s face light up when she got to hold Ryan! She loves him so much! She got a huge smile out of him today! 😍😍😍

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This sweet onesie came in our basket from Jacks Basket! 😍 #BeStrong #BeCourageous #Joshua1v9

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Ryan is doing so good trying to sit! He’s got a corner balance here, but still! He is learning to keep his balance and not just falling forward or over all the time. Get it big boy!! So excited for you!!! 🤩

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Y’all aren’t even ready for the tummy time saga to continue. Oh. He. Was. Pissed. Our follow up with the surgeon is tomorrow and I’m sure she will say carry on now, tummy all the time (not really all the time) - and it will be like starting all over. 😩 He shows absolutely zero interest. Even with his favorite ball! (I also just deleted a whole rant to spare you all. You’re welcome.)

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This little Asian sensation! 🍀 #theluckyfew

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Messy hair. Messy bed. Pajamas. Morning babbles. I love slow mornings. Even though I took his earlier and we’re out and about. We didn’t have to rush to any appointments or anything this morning or hurry up and clean for a therapy sesh and that’s sweet.

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Ryan was SUCH A BIG BOY today! He had his labs done today. The two important ones were for his thyroid and blood cell count. I also had his Vitamin D checked since I stopped giving him his polyvisol. Thyroid and CBC are important because with Down syndrome he’s got a higher risk of having thyroid issues and higher risk of having leukemia. I suspect both of these will be pretty good outcomes, or I hope at least. He’s been doing pretty well over all given his condition. It actually kind of makes me nervous at the same time. — I was nervous about getting the labs because who wants to see their baby get poked at and cry?! But let me tell you, that lab tech is AWESOME! He did Ryan’s labs when he was having surgery. He got away with one poke and DID NOT EVEN CRY! He smiled at the guy! @nortonchildrens for the win!

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Looks like the big bad wolf got that little piggie. 😆

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If this face does not melt your hearts! 😍 #NothingDown Got this onesie from @nothingdownorg along with the SWEETEST dvd that of course moved me to tears! 😩😭 It was BEAUTIFUL!!

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My new favorite chair at church! Our guy looks so big sitting by himself! Just being able to sit with nothing in front of him is a big deal. He could be tripodding soon. 😍 Also, he’s wearing the big debated boy/girl/unisex outfit and is handsome as ever!

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Sweet like Sunday morning! 😍

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When you’re the baby brother. 🤷🏻‍♀️ Also, just to show you that these stickers are not always narwhals!! 😆

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Our little Polynesian prince! 😍 Ryan was dressed for therapy success today! And he freakin rocked it, as always! #GoodMoodDude #pineapple #manbun #prince

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It’s the little things. Years ago I can guarantee you any of my kids grabbing anything was not even a milestone that would even cross my mind. But when you gotta look around and realize Holland has windmills and tulips, just lifting those arms up, reaching, and opening and closing those sweet little hands is huge. Also, using TWO hands! So proud of this guy! Every week he amazes us! 😍💙💛

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“Hey Erin, you look delicious. I mean beautiful!”

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I hate the sound of my own voice! But, when you’re sleeping and you hear mom saying good morning not in her dinosaur voice! 🤣😍

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Happy #HalfBirthday to Ryan!! Our guy is laughing! Grabbing his toys in front of him. Putting toys, packs, spoons in his mouth. Babbling. Ooo, eating some baby foods! Doing v-ups! 💪🏼 He does NOT like cold water. Not really a fan of loud crowdy places. He’s our good mood dude! Starting to say dada!! Light of our lives. SOOO cute!! Next week is his follow up with his surgeon and then back to #ryanstummytimesaga ! 😩 Are you all even ready????

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Ryan 😍

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Still a little big but look what we put on today, @thedsdn #DSDNfam!

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Ryan’s FIRST real bath. Lol. Oh he was mad at first but ended up lounging for a while in this float! 😍💙💛 Dinner got messy. 😏

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Uuuummmm...why does Ryan look so big? 😩😍 He can go get back in my belly now, with his 6 month self. 😩

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Hi. My name is Ryan and I have Down syndrome. Sometimes I don’t know if it’s more awkward to just tell people he has Down syndrome or to let them ask questions until it comes out. It’s like I experienced the “label” thing. — Yesterday at Starbucks this lady sat next to us, she was a nice lady. I think this was the shirt she was looking for. But her questions were “how old is your baby?...he’s small for 6 months...does he say anything?” He was sitting in my lap just looking around at his surroundings, minding his business. She kept looking at him, I feel like looking for the label. Like she knew, but didn’t want to say, so kept looking for features. I’m sure she had a ton more questions, but I let her mind wonder and only spoke to her when she asked something never confirming the diagnosis that could very well still be blowing her mind. Also, joking with my friend when we left that if our older kids were in there carrying on about farts and poop colors, that woman would be letting me know how obnoxious they were without any questions asked. — Anyway, this is Ryan and he has Down syndrome and we may or may not mention it because he’s a baby. He’s not Down syndrome. 💙💛

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#SoundOn - Who doesn’t love a lil something extra!? We just got news that if you mention RYANGIFT when ordering from @swaddlebee, you’ll get a free gift with your order! This hat and this blanket are a sneak peek of what she’s got in store.

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Oh MYYY GOOOOSHHH! First of all. Ryan is so freakin cute. I want to squeeze him all the time. And second of all! He was like hm I’ll try it and then was like aw shucks this stuff is good!! I want more. I want more. Like I really like it. I want more. #avocado @happyfamily makes the best baby food for your babies!! @swaddlebee makes the best hats for your babies!! 😍😍💙💙

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You guys! This picture does not even do this hat justice! It’s so freakin cute and even cuter when Ryan moves his little head around wearing it! And that blanket - to say I love muslin blankets is an understatement. They are my fav and this print is 😍😍. We’ve been singing what does the fox say all day! 🤣 If you think this is cute, you NEED to go @swaddlebee and see the girl stuff too! 😍

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Meet Katherine. I cried within 30 seconds of encountering this lady. You see, our church has 6 campuses. I’m pretty sure our home campus is the smallest. We travel an hour less than once a month to go to the main campus when they have Kidway days. — Leaving Kidway we ran into a couple moms from the moms group at the main campus. A group I exclusively shared the ups and downs of pregnancy with Ryan. We were getting on the elevator and this woman came on last second and we weren’t paying attention and never pressed the button to go down, but then I was distracted by the love that came from her straight to Ryan! I did not even have time to freak out about her kissing Ryan’s head! And then I just couldn’t!! — Moral of the story is, the shock of getting a Down Syndrome diagnosis is overwhelming, hard, like traveling to Italy and surprise lending in Holland!, so emotional, everything. But today God showed me what love I have to look forward to. It makes me excited all over to see what Ryan teaches me in life. It also makes me feel terrible for remembering how I felt when we got his diagnosis. — This was literally instant ugly cry. Lol. It was so sweet! I don’t even know what I’m trying to say. Just love! #ilovesoutheast

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#BigSis was prepared to help feed Ryan today, because #swipeleft! 🤣

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We love therapy! MOST of the time. And I thought we would be 1000 years behind after surgery! He never ceases to amaze me! 😍

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I think he loved it. 😌

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#Lunch got a little messy. If you know me, you know that a messy kid is not my fav! Messy face. Messy food. Messy mess. Sticky. Stinky. Touching. Etc. Etc. But this. This here is an exception. He can do it. I put the food on his hands so he would put them in his mouth and eat it. It’s my ploy to let him know he can use his hands to eat and he can do it. Even if it’s a “purée” mess!! 🙀😹 Ah. HA!! You see what I did there!! It wasn’t planned - it just happened!! 🤣🤣 Cheesy things like that happens when you hang out with your husband for fun, watch Jeopardy, have a daughter who’s just like him, etc. P.S. Still debating if he will indeed be allowed to mix the play doh colors. Still a no from me right now. 😄

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This guy got to taste something yummy for breakfast. Yes, I chose it because guavas are my fav! He LOVED it! This makes me so happy because even after eating a little bit of this, he still had 4 ounces of his bottle! That’s really good for him, especially during daylight! I think he did really well keeping it in his mouth and figuring it all out too. 😄🙌🏼 We May be on to something here.

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Ryan’s been sticking his feet up in the air and I can’t get enough of it. I’m also obsessed with this overalls outfit! Also seen here experimenting with holding the bottle! He’s working on the art of mastering holding the bottle on his own. Actually. I’m forcing him to even try. It’s actually too big, I think he would greatly benefit from some little handles of some sort. 🤷🏻‍♀️ Also, seem in the last pic doing what we call, the frog legs. Some of his therapy is actually to get his legs together because babies with DS have loose hips with low muscle tone so we want to work on not keeping them so loose, I’m guessing for walking purposes later. Also still learning. Not a Down Syndrome expert here. 🤣 Also, too many cute pics to choose from!! 🤯🤯

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This guy’s got his “hey girl” look on again. And his big brown eyes! 😍

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Dad gets all the creds for this simple cute outfit. He was so excited for a boy that he got all the outfits before Ryan was born! One of my favs! 🖤 But only maybe half of the cute baby creds. 😉😄

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Quite the lady’s man. #chicksdigscars #chdwarrior #tofwarrior

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Sleeping with my Easter duck from nana & papa. 🐥

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So today was Ryan’s follow up after surgery to see how he’s doing. He had an echocardiogram and EKG today. And the cords involved with these can be a lot and easy for him to snag. So this silicone teether was perfect for his fast little grasping hands! It was perfect for his hand and sufficed for one of the cords he thought he was pulling. Lol. Everything is looking good. He got his sutures from his chest tubes removed today. He is now 12 pounds 4 ounces, which is a little less than when he was admitted for surgery. The good thing is he’s back in the 12s. He had lost weight and almost readmitted for that. So that’s why I’m so excited about him eating better. He was VERY wiggly today which makes the echo hard and getting blood pressure hard. BUT even with the extra wiggles today we managed to get out of there a whole hour earlier than I anticipated! 😄🙌🏼

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This guy ate SO good today. So much better than he has been; the best since he had his surgery! Proud momma here. All day he has had 3 ounces or 100 mL, which is almost 3.5 ounces. On. All. His. Bottles! Hopefully he keeps it up, but I’ll take a great day out of three long weeks. We will be a little thrown off tomorrow because we go to get an ech🙄 and then stitches out! Echos are much needed but also much dreaded. They. Are. Soooooo. Loooooong. And at this point in time, I’m tired - so I don’t wanna. But 🙌🏼 to stitches coming out!

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Baby: @xoxo.love.tiffany & @derek.mcginnis Shirt: @alilsomethingextra321 Disposable undies: @honest 💙💛

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We can get with this label. 😉😄

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*Most days I’m pretty positive. But if I’m being honest, some days I feel completely guilty for thinking I don’t want to do this anymore. And I’m afraid that this is the easy part when I’m thinking that. And then I think, when you’re a parent, you don’t give up on your kid. The past couple days I have literally been falling asleep holding the bottle and waking up to realize the nipple actually shifted from his mouth to the pillow. 🤦🏻‍♀️ I think I’ll have it together by tomorrow. 🤷🏻‍♀️ Also, this is his happy place these days and we don’t do a lot in this place. Also makes me feel guilty. But, whatevs. We’re tired.

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Because TAKE US BACK TO FRIDAY when it was so sunny we couldn’t open our eyes up all the way and we could lay in the grass! 😩 #ComeBack

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Just gonna chew on this and make a mess. 😏🤷🏻‍♂️

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Hey girl! Let’s #cuddle and watch #Disney movies. 😏😘

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Until we’re doing more, just pics of Ryan’s sweet face! Day two home was much better than yesterday. Doesn’t seem so irritated when I move him, not as much at least. Ate a little more than yesterday. The doctors really want him eating 100 mL every three hours - but after thinking and worrying - he wasn’t even eating that much when he was discharged. So, yes, that can be our goal, but crazy to expect right now. He’s having about 60 every 3.5 hours. He is ALWAYS chewing on his hands/socks on hands! I hate always having his hands covered because we can still work on grasping - but I am urging him some slack so he can heal and he just keeps digging into his face! We did have to give the cardiologist a call today because his feet were pretty blue and cold, so we’re going to get checked out tomorrow. Cleaning his cut went over a little better today - it still makes my heart feel all light and fluttery when I have to touch it. Lol. 😖 Other than that, he’s still doing good!

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April 10. 5 months old! Day 1 home from open heart surgery - this picture sums it up! Every move I made - cry. Not eating how I would like him to. The scooping to pick up is going to be the death of me. I’m more afraid to do anything to him than when he was a newborn! I’m pretty sure he’s still 12 pounds. He’s just chewing his milk! It’s driving me crazy. I get the heeby jeebies when I have to clean his incisions. The good thing is that he is so much more smiley and talkative! Today was a challenge. 😕

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I’ll give you ONE GUESS what we got to do today!! 😍

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It’s the little things, like a smile. Ryan’s smiles have been giving me life the past few days. Look how happy he is to see dad! What dad said 👇🏼 - our guy has come such a long way in a short period of time! I can’t even believe it. I had a tubal done and thought I was having a heart attack for two weeks. 🙄 #Repost @derek.mcginnis ・・・ Our boy was looking a lot like himself today! My first time seeing him since Friday and he’s come a long way in a short period of time! Hopefully checking out later this week so it’s very exciting!

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I hate leaving this guy because my mind immediately starts thinking what does he think? Does he know? What if something sudden happens? Who plays with him? Does anyone talk to him? Does he get held to be fed or just feed in his bed? Is he just listening to those Disney movies on that speaker remote all the time? Is he just an alarm? So many things. God knows I cannot wait to bring this boy home. He is too far and I am not in his face enough! I need an Eskimo kiss! I know. I k ow. He’ll come home when he’s ready. I’m just saying - I want him now! 🤣 It is so crazy that under that shirt there are still stitches! Which I know I know he’ll have for a while. It just blows my mind. He has done so much in 5 days!! He’s my hero!

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No tubes!! 😍😍 He is so stoked we’re here! Now, 3 days after coming home I bet he’ll want to be on vacation! 🤣🤣

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When we got there today Ryan was just relaxing. He has been all day. He’s got that NG (feeding) tube but not using it. I told them to just keep it til discharge because every time it comes out he gives them a reason to put it back. 🙄 He’s been eating good with the bottle all day. His incision is looking really good! I like the zip line closure a lot. I think it makes it look more clean. I got him dressed because it’s cold in there! 💙💛💙💛

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You guys, Ryan was so freakin excited to see Bella today. He immediately lit up and started talking so loud! He obviously loves his big sister so much! He is off oxygen and just working on eating again. He likes to talk and play at the dinner table. 🤣 SO glad he’s back! They are just going to keep him in PICU until discharge (hopefully early next week 🙏🏼) so that I don’t have to spend the nights. In the PICU he has his own nurse. In a step down unit I would have to stay with him all the time and that’s hard with living far away and with sisters at home. He is eating from the bottle again without spitting up immediately, just likes to play and talk and sometime let the formula dribble. I know he’ll be so happy to bust out of here!

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