Spoonie Photos & Videos on Instagram

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conchisbebe

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allkat23

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thechronicsurvivor

- - - So FUCKING PROUD of myself!! ✨ Granny pants ✅ check, Self harm scars on arm visible ✅ check, Bare arms ✅ check, Cute side rolls ✅ check, Sexy boobies ✅ check, ✨ FUCK this is EMPOWERING. Society, ex partners, people can officially kiss my ass for making me always be so desperate to be “skinny” , always telling me I have a beautiful face and the body needs to follow. Fuck that noise. I’m no longer ashamed of myself. I’m no longer going to conform to the bullshit. I am me & that is GOOD ENOUGH. 🙌🏼🙌🏼🙌🏼🙌🏼 ❤️ #chronicillness #MEcfs #fatpositive #bodypositive #effyourbeautystandards #effyourbodystandards #effyourbeautystandard #selfworth #selflove #selfrespect #dietculture #feminist #beautiful #allbodiesaregoodbodies #allbodiesarebeautiful #spoonie #mentalhealth #mentalhealthawareness #woman #proud #fatshaming #endbullying

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ks.fitgirl

With my daughters birthday coming up, Christmas coming up, my new workout program starting and you know everyday life, me being busy is an understatement. I know lots of us feel overwhelmed and stressed around this time of year. Just remember that it WILL all get done, and be thankful that we can be stressed about a day some people don’t even get to have💕 You were born to be REAL, not PERFECT ✌🏻

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its.not.my.salt

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undercoverautie

My first go with new texturising hair spray 🧖🏼‍♀️ . Got a little bit overexcited today and overdid it a bit, but I feel like I’m not QUITE as tired and ill as I was 4 or 5 months ago when I was at my worst. So YAY 🥳 . But a small, quiet yay which means nothing really changes because when I do a big yay I start doing more and then I get tired again... like today 😴 . It’s almost harder having a tiny bit of energy because I finally feel like doing more, and have to stop myself. (Or I don’t stop myself and James has to stop me and I get grumpy and then realise how tired I still am and fall asleep.) . ANYWAY, check out my wavy hair 💁🏼‍♀️ (Can you tell I’m still hyper?! 🤪🙄) . . . #mecfs #myalgicencephalomyelitis #pwme #myalgice #chronicfatigue #chronicillness #spoonie #actuallyautistic #neurodiversity #autism #wavyhair #beachhair

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kristen.harris13

Maybe we get frustrated at our situations, bc we are focusing on all the wrong things. Maybe we are asking God to change our situation, instead of welcoming His presence in it. Maybe we are asking for joy, and He’s waiting for us to rejoice. ________ Today has not gone as planned, but when does it ever...am I right? I had two choices: 1-get so aggravated that I accidentally had dairy and that my body is so sensitive to food, let it ruin my day, and just sulk on the couch. Or 2-live on and learn, go do everything I had planned to do, ask a friend to go with you, and go to places you know where the bathrooms are #ibsmoments _________ I choose option 2. Target here we come ✌🏼

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byabernethyjames

There are so many nights where I can't sleep and wait through the long hours until my eyes want to close and my mind switch off. It's 2am. And I don't want to be here. My legs are restless from not getting used for days. Or i can have restless legs from actually being used each day. Not one or the other seems to be the defining trigger for my twitchy, restless and painful body that keeps me awake. Too tired to have a bath. Too tired to focus on TV. I find the only thing that soothes me is stretching. I lay on the sofa and let the cushions help me push my body into deep stretches. It takes no strength, no effort and helps me relax into a place that feels sooooo good. It's Yin Yoga. And I love it.

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mia__darling

No filters but enough makeup to make me look not dead from chronic pain today. Fresh set of trigger point injections tomorrow so I should be comfy and recovered by my birthday Sunday. I’m so hype to turn 38. I way prefer even numbered years. We had a lot of plans for my birthday and Bear wanted to take me to do a lot of fun stuff, but I’ve been way low on energy lately so I requested something a lot more low key with minimal travel and he’s been super supportive about it. I just want a nice warm home, some video games, a warm meal and maybe a bite of cake and I’ll be perfectly pleased 💖#plaid #makeup #chronicpain #greyeyes #highlight #spoonie

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transspoonie

Wishing you all a happy holidays 💖 I’m not sure how active I’ll be on here until the new year but I wanted to post a little update just to say I hope you all are having a good month 🖤 my fiancée and I have been busy working on ourselves and I’m excited for the year to come.. I’m getting rid of all the old, cleaning and organizing our whole place, to make room physically and mentally for the new and it’s as exciting as it is exhausting lol! #spoonie #chronicpain #chronicillness #chronicillnesswarrior #chronicpainwarrior #invisibleillness #chronicfatigue #chronicfatiguesyndrome #ehlersdanlos #hypermobility #potssyndrome #posturalorthostatictachycardiasyndrome #disability #disabled #spoonielife #butyoudontlooksick #trans #lgbt #lgbtq #nonbinary #enby #ftm #depression #anxiety #ocd #cptsd #ednos

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lifeofleana

December 2018 marks a year out of hospital for me (excluding outpatient appts)✨ Hopefully this won’t jinx it, but I’m so thrilled to have made it to this point, with my health finally being stable enough to avoid hospitalizations Crohn’s is notorious for its rapid changes so with that in mind, I will fully appreciate this much needed break* . . . *to clarify, I still experience Crohn’s symptoms (some days are worse than others) and continue to take my meds & monitor my IBD with regular GI appts, blood & stool tests . . . . . . . . . . . . . . #crohns #crohnie #crohnsdisease #crohnsfighter #crohnswarrior #crohnsawareness #colitis #crohnsandcolitis #ibd #ibdawareness #inflammatoryboweldisease #invisibleillness #invisibleillnessawareness #chronicillness #chronicallyill #chronicallyfabulous #spoonie #autoimmune #autoimmunedisease #butyoudontlooksick #fightlikeagirl

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glutenandme

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blakelyrene

Don't let anyone tell you "that's not possible, accept your limits and be happy".. Well my happy is working being a productive member of my large family, and guess what I'm on my way... Tomorrow I begin part time work with my old employer. And after 2 yrs on disability I am so ready.. #nevergiveup💜💪 ..... #crohnies #spoonie #crohnsAwareness #autoimmunedisease #disabled #staystrong

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cfcanada

"Christmas is typically cold, sometimes with blizzards affecting holiday plans. I try to avoid too much sugar as I want to stay healthy all through the holidays and winter is the worst part of the year to maintain my health. We love traditions like setting up the tree together as a family, presents on Christmas morning, family gatherings and lots of quality family time." - Rebecca⠀ ⠀ #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #raredisease #holidays #thehappynow

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sickchickkie

So 2 fucking hours at the doctors!...nurse wouldn't let me go without seeing a doctor first!...chest is fucked!...like a bowl of rice crispies in there! Lol...7 days of anti biotics and 8 prednisolone a day for 5 days...and back to the doctors on Thursday!...what a load off bollocks before Christmas! 😷😩😣💜 #fibro #fibrowarrior #chronicpain #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #spoonie #spoonielife #fibromyalgiaawareness #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me #copd #depression #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife

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lisaanntrainor

..... we had the most festive and fun time at @diyparadiseincnj’s ornament painting party! 🎨 I made stockings for #PennyTPoodle and #doopasaur 🐩, @reallysamreed made a snowman to gift to a very special dude 😉, and @unifiedstep worked so hard on a double sided Christmas tree which turned out really well!🌲🎄🌲 it was wonderful to spend time with my fave people and work on art which is ALWAYS therapeutic for me. all that fun even inspired me to put a few ornaments on our tree today. slowly but surely getting in the spirit... 🎄💚🎅🏻

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debbiehellenbrand

Oeoeoe my husband is getting romantic on this vacation ❤️

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team_noellie_bellies

Monday’s are ruff, so here’s a picture of Demi to brighten your day 🥰 - - - #t1dcommunity #t1dlookslikeme #diabetes #spoonielife #t1diabetes #spoonie #ineedspoons #demitruffles #dogsofinstagram #puppiesofinsta

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healing.lyme.athlete

Truth! 🙌🏼 🎄 🙏🏼

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annakingskywalker

Finish STRONG! 💪 Show up for these last days and weeks of 2018!! Show up for your job, for your people, for your dreams. ❌Now is NOT the time to quit. Double-down on the choices you’re proud of. And SHOW. UP. FOR. YOURSELF. . If you need me I’ll be finishing up my year with @peoplehopeorg, putting the finishing touches on this DREAM-COME-TRUE project — the 2019 Focus Fix, and constantly learning and winning and learning some more!! #finishstrong

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the_unicorn_zebra

The sky is freaking GORGEOUS here. Early morning walk. 5.5 miles later and my sanity will stay intact. Exercise is my drug of choice and it’s one of the few things that EDS & POTS haven’t stolen from me. #texas, #exercise, #fitness, #motivated, #staystrong, #defyingtheodds, #invisibleillness, #chronicillness, #eds, #pots, #spoonie, #zebrastrong, #potsie, #dysautonomia, #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome

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quitecrumbly

Despite the lie in and three hour nap, I used all my spoons getting ready to leave the house and now I’m too tired to leave the house. Daisy knows the drill. . . . . . #fibromyalgia #fibro #cfs #chronicfatigue #cfsme #myalgicencephalomyelitis #chronicfatiguesyndrome #hypermobility #millionsmissing #spoonie #spoonielife #butyoudontlooksick #invisibleillness #chronicillness #fatigue #rescuedog #romanianrescue #springador

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amanda_o.k

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nutrirprebiotics

What Christmas season is complete without eggnog? We're leveling up our eggnog and packing it with protein and prebotics by using our Vanilla Creme Shake in @proteinpow's recipe.

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o0nasii0o

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amber_g_leigh

One of my oldest friends turned 27 yesterday and we fight similar battles. She is one heck of a person, strong, stubborn, smart and full of love. I am trying to be kind to my body as it got overwhelmed by a day of activity yesterday celebrations and drastic temperature/humidity changed in Vancouver. By the time we got to dinner my nervous system couldn't manage and my pain went haywire, we had a great day and so much fun. My friend is so happy and we can laugh about our ambitious minds when our heart/body decide not to keep up #besties #birthday #happybirthday #friends #friendsarefamily #spoonie

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rockystylz

#RenaissanceWoman #ColorTherapy 🎨 I am a single parent living with a chronic illness and an entrepreneur, therefore, it is so necessary that my home has peace and tranquility at all times. I strive for balance. It's a lifestyle and my ongoing therapy. Part of creating that environment for me involves satisfying all of the senses. This is a snippet of the visual part. I am absolutely in love with texture, from the surfaces on old buildings, textiles to hair (hence, being a hairstylist😉). Earlier this year, I created the old world textured look in my foyer and living room area. These walls are so soothing to look at and adds to the warm cozy vibes while being curled up on the couch, listening to some tunes, burning incense and sipping wine or sometimes just chilling in silence. These moments give me life. #IssaVibe. This is what I do. What are some of your therapeutic solutions? #Spoonie #RockMom #Artist #ApartmentTherapy #texturedwalls #SmallSpaceLiving #wanderlust #MotivationMonday #eclecticdecor #ethnicdecor #wellness #diy #wahlpro #LicensedToCreate #chronicillness #fibromyalgia #womeninbusiness #blackgirlsrock #essencemag #afropunk #homedecor #blush #dmvnetwork #dmvstylist #momlife #naturallyshesdope #Rockystylz

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coachrolly

I am not using my challenges as an excuse. I am leaving nothing to chance. I am giving it everything I have to be the best version of myself. My job is to be an agent for change. It starts with me.

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lifeoffbalance

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jamieashe

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flying.lozhka

This time last year 💙💛

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emma_butterfly

My lovely gifts from the beautiful @clairesparkles1 They really did bring a smile to my face. And the boys love their chocolates. Thank you 💖🦋 xxx . . #friendship #gifts #MariahCarey #MC #alliwantforchristmasisyou #Christmas #festive #lamb #Lambily #L4L #fibromyalgia #fibrolife #fibrowarrior #myalgicencephalomyelitis #spoonie #spooniesupport #anxiety #depression #positivity #spreadingawareness

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gpjazzie

Day 17: How would things be different if you weren’t ill? The better question is what WOULDN’T be different if i weren’t struggling with this disease!! Everything would be a little different/better. I would be passed my savings goal to move and finally start the career I’ve been working my whole life for. I would be healthy, i wouldn’t be putting stress on my family and friends. I wouldn’t feel like such a weak little human. But I try my hardest not to think about the “what if’s” and focus on the right now. I would drive myself mad if i did think back. So instead of the what if’s think about what’s going to be once i get this and my life under control. Keep on pushin.

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unwellunlimitedly

My dream doctor. 💕🏥 Wondering if I can get a referral... 🤔😂 ⠀ 📷: @itsdougthepug

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buenqamino

TRUE LIFE: I ENDED UP IN THE ER IN MEXICO is LIVE on the blog--- 🇲🇽 🏩🇲🇽I was recently working and living in Central Mexico, and got pretty sick… We are (romantically) talking about days of not leaving the bathroom, not sleeping, and not eating. Unsure if whether it was food poisoning or an infection at the time, I called my travel insurance company, @worldnomads and they instructed me to head to the ER. I began to Google, ‘How much does it cost to go the ER in Mexico?... ‘What is going to the ER in Mexico as an American like?’ and couldn’t find any decent answers. Per usual, I guess I was finding out IRL. Want to read more?? Head to the link in our bio 👆🏽👆🏽👆🏽

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servicedog_stone

This is the current status of my lap.. a cat, a dog, and a toddler. The toddler is reading a book to the cat and dog. The dog is laying on a black cat. If you look close you can see her sticking out from under him. Such a savage SDiT. 😂😂😂 . . .Don’t forget to go Subscribe to our YouTube Channel. I have a few SDIT videos coming out soon!! Also don’t forget about our giveaway. Make sure you get your name in the running and share the original post!! . #servicedog #youtube #youtuber #spoonie #spoonielife #mentalhealth #mentalhealthawareness #physicalhealth #sdit #sd #servicedogsofinstagram #toddler

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blisshealthcoach

I have reduced my migraines down to maybe 1 a month or two but I still have one sneak up on me every now and then. Find out my go-to products for migraines. LINK IN BIO -----------------------------------------------------Sent via ⠀⠀⠀⠀⠀⠀⠀⠀⠀ @planoly #planoly #chronicillness #chronicpain #spoonie #invisibleillness #fibromyalgia #chronicfatigue⠀⠀⠀⠀⠀⠀⠀⠀⠀ #gastroparesis #spoonielife #lupus #cfs #lymedisease #autoimmune #epilepsy⠀⠀⠀⠀⠀⠀⠀⠀⠀ #endometriosis #dysautonomia #chronicallyill #ehlersdanlossyndrome #fibro⠀⠀⠀⠀⠀⠀⠀⠀⠀ #disability #butyoudontlooksick #cysticfibrosis #autoimmunedisease ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #ehlersdanlos #posturalorthostatictachycardiasyndrome #fatigue #crohns⠀⠀⠀⠀⠀⠀⠀⠀⠀ #multiplesclerosis #migraine #foodismedicine

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chroniclesofyoolie

This tea is the shit. I love the taste of ginger so much, and it has plenty of medicinal purposes too, with helping stomach upset being my personal fave. I'm finally over my little jaunt with my virus and tonsil attack, but I still have a little sore throat. Ginger tea to the rescue! It's a comfort thing for me 💜😍

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coappadvocacy

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coappadvocacy

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fearlesslyjen

A big part of my life right now. I've been on a gut healing journey for about a year now. I've been very resistant to fermented foods. I honestly don't like the way they taste. It took me awhile to find fermented foods that I can actually eat and not completely hate. I'm rotating these three vinegar free fermented foods. Getting as much probiotic/bacteria variety as possible.

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crazyplannerrrwife

Even though I had this #infusion sticker from @planyourspoons in my #b6 I still forgot about it until my nurse knocked on the door. #planneraddict #plannercommunity #spoonie #plannerstickers

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lisakateostomate

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duchess.f.auhuighan

Ah, this is the life!🙌🏽🎶📸 • So very glad that Daddy God introduced us at the beginning of April. I swear we were separated at birth! Ok, ok, a few years apart but... • When you find people who are definitely a part of your tribe, it's almost always an instant & unshakeable bond. It's weird to think it hasn't even been a year yet & it feels like it's been a lifetime. This, is how you know a friendship/sisterhood was meant to be!💕🎉 • Now, if only my #illness & #pain would quit trying to get worse & my #socialanxiety would learn to take a break every now & again?!🤔🤷🏽‍♀️ And, if my lungs would realize how hard it is to get dressed up & go anywhere, & that a couple of hours really isn't long enough after I do...that would be great also.🤦🏽‍♀️ • Until then, I'll press on & do my best. I'll keep pushing myself to stop being such a hermit, realize that it's okay to be "in the world" with other people, & keep trying my best to rise above the thoughts that overwhelm me daily.🙏🏽 • Thank you sis, for helping me to realize that I'll be ok. Thank you for helping me to be better. Thank you for loving on me. And thank you so very much, for telling me that day, how much you liked my hair & talking for hours about #thedoctor, Tennant & Smith & so on, & realizing how much we are #kindredspirits & #sisters 💞 Love you beyond #betelgeuse my beautiful & amazing queen, sláinte!👑😘🍀🥂 @therubear @twogeekgirlsinthecity #pnw #bellevue #music #drinks #fellowship #goodtimes #greatfriends #sisters #ineedmore #invisibleillness #spf #asthma #suicidalthoughts #recoveringcutter #pierced #tattooed #unapologetic #christfollower #tomboydiva4life #spoonie #survivor #whosurdom #geeksquad

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gpandibs

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mrs.schwenck

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glutenfree.wanderlust

Beef Rendang & Sajoer boontjes met witte rijst. Gewoon omdat het kan. Lekker toch. 🥥🍚🍛 #coeliacsafe #coeliacdisease #glutenvrij #beefrendang #sajoerboontjes #lekker #homemade #zelfgemaakt #zondergluten #zondertarwe #melkvrij #lactosevrij #crohnslife

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disabilitvlive

Repost from @mightywell_emily using @RepostRegramApp - When I was first diagnosed with my illness, the struggle of just getting out of bed or getting dressed were a reality for me. As my health has started to improve I can look back at those times and see the true measure of my strength and how much I have endured. #KeepFighting 💪 What is one daily challenge that you have overcome? . . #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Hope #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness#LymeDisease #LymeWarrior #LymeDontKillMyVibe #Spoonie #SpoonieLife #SpoonieCommunity #NeverGiveUp #Healing #QOTD #LivingwithChronicIllness #Strength #Challenge #SupportSystem #CEOLife #StartUpLife #FemaleEntrepreneur ******************** [image description: white text on a navy blue color block from Emily Ana Levy and Mighty Well that says, “Without my chronic illness, I wouldn’t have learned how big my capacity is.”]

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sonic116

Full track "Garageband 228" up on #youtube link in profile ** So, I threw an #effect on this picture that @safekicker took of me, and synched it up to a 3 minute funky odd track of #electronica that I hope a bunch of people will listen to, because it's the art I make even when I can't get out of bed to face the world. #sonic116 #electro #edmaddict #ambientwave #adhdmusic #spoonie #chronicpainwarrior #comedian #composer #arttherapy #ios #playlistsfordays #youtubevideos #undergroundtechno #techno #electrodisco #producer #linkinprofile #tripstagram #selfpromotion

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bethan_tew

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roomy.ys

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gpandibs

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shellysralife

More shower steamers! This time a custom order for pink peppermint scented and purple lavender scented steamers. Using biodegradable glitter makes them shine for the holidays! See the link to my Etsy shop in my bio. • • • #shower #showertime #showersteamers #peppermint #lavender #invisibleillness #pain #advocate #chroniclife #ra #rheumatoidarthritis #spoonie #rheumatoidarthritiswarrior #rheumatoiddisease #rheumatoid #autoimmune #autoimmunedisease #autoimmunediseaseawareness #butyoudontlooksick #etsy #etsyshop #etsysellersofinstagram #etsyseller #etsystore

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xtra_ordinary_girl

#mondaymotivation I like this quote because it is a perfect one for those who suffer from #chronicillness . With my #crohns I get tired A LOT. But I am working everyday to not use that as an excuse to quit, to not try new things, or go after my dreams. I just must remember to rest when I get tired to not go into a flare up. Sometimes things might take a little longer to accomplish when you have a chronic illness, but with determination you can get there. #autoimmunewarrior #spoonie #crohnslife

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ulcerativecolitis_warrior

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cookingformysanity

Another gooey banana bread I don’t get to eat 🤣😭 Same recipe as in previous banana bread post except I used 2 tsp of fresh ginger instead of powdered ginger. Jay always grinds the ginger himself as I don’t have the strength in my hands (spoonie problems) but you could also buy fresh ginger in a jar to use and that would work just as well. #bakingathome #cookingathome #homemade #bananabread #banana #gooey #foodiesofinstagram #foodporn #foodie #lovefood #yum #cookingformysanity #spoonielife #spoonie #mylittlekitchen

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thechroniccommunity

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authoradeleleigh

The Pain Room” by me and @crookedjordana. I have had chronic pain and limited mobility that for decades went undiagnosed. I used to sketch where the pain was in my body to show doctors. My sister took one of my sketches and made this. #oilpastel #chronicpain #writerslife #artwork #sketch #painroom #figurativeart #artist #crookedjordana #chronicillness #chronicpain #pain #spoonie #invisibleillness

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rockyroadtohealthy

I had bioresonance today to restore balance my body’s systems and I’ve been told to keep this on me to maintain the energy and frequency. Not a clue how or if this sourcery will work but hey, you gotta try these things #bioresonance #optimumhealth #bodybalance #wavelengths #frequency #energy #energyhealing #healing #ms #multiplesclerosis #spoonie #spooniewarrior #mswarrior #autoimmunedisease #alternativetherapy

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joellennotte

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empower_hart

No matter how hard it gets or how many challenges you face, remember, you ARE a Warrior! So keep that game face on and stay strong because everything is going to be alright. You just have to Believe and keep your Faith 🙏💪🦄💜🧚⭐🌠🌈💗 . . . . . . . . #EmPOWERThePATIENTS #dreambigbeunique #lazzara #fibromomblog #believe #faith #warrior #fibromyalgia #raredisease #invisibleillness #chronicillness #chronicles #chronicallyill #chronicfatigue #invisibledisability #hashimotos #thyroidectomy #nonprofit #spoonie #spoonielife #support #illness #fatigue #pots #selfcare #relatable #relief #mentalhealth #empower #butyoudontlooksick

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blakelyrene

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busy_doingme

“Christmas time is cherished family time and family time is scared time….. . . . . . Confession I wasn’t really in the Christmas mood. With my son being away as school and my mom moved out, the joy wasn’t there yet. It really kinda of hit me out of nowhere. Christmas doesn’t really start until we get together and decorate the tree. This year we didn’t decorate when we normally do , because my son had to go back to school. He asked that we wait until he got home to decorate, so we did. Last night was the first time it felt like Christmas to me and not because we decorated the tree, but because we were all together as a family…

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vix_the_star

#2018bestnine my health may have taken a nose dive this year, but there’s been some good times too! #engaged #lgbtq #girlswhokisskirls

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amdam1990

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