Well today was a bit of a day.
Harpers Methotrexate started this morning which means no walking around, in case we create a cytotoxic spill by falling over or tipping over our “robot” 🤖 . We are confined to her bed or to playing on the floor beside her bed.
Also on these days we are fasting from 7am as we go under GA for our Lumber Puncture.
Harper usually cracks it at some point in the morning because she can’t eat and can’t go anywhere, two frustrating things for anybody let alone a two year old.
After she has her tantrum she usually crashes as she’s worn herself out.
When she started to wake today though, I went over to check on her and noticed her back was wet and that the bedding underneath her top half was yellow. So too high up to be anything nappy related.
Harpers Methotrexate fusion is yellow so I freaked out that her port was leaking and obviously being chemo, could potentially hurt Harpers skin, so I buzzed for a nurse straight away.
From here we had to turn off chemo, remove the needle to her port, get her shirt off ASAP and give her skin a wash, strip bedding and yada yah.
Thankfully this chemo is not as potent as chemos from previous rounds so her skin will be okay. It’s just been a stressful day for our girl receiving more prodding and poking as the needle had to be reinserted without numbing cream, which was very owie.
Other than that! Our LP went well and we are now sitting up in bed eating chippies and watching toons.
We made it through another day 😪😬