T21journey Photos & Videos on Instagram

Report inappropriate content

melting.hearts.21

3

eularavitoria

Boa noite gente... Hoje foi dia de fono e terapia ocupacional, EU AMO! 💕💕 . . . . #fonoaudiologia #boanoite #t21baby #t21journey #babygirl

11

makonokuni

今日のまこさん🎶 ✨ 【計算してた!〜の巻〜〜🎶】 ✨ 今日は認知クラスの日^^ ✨ クラスの最後に、今日の成果を発表してくれます。 ✨ 初めて3つの足し算を教えて頂いて、最初は分からなくて泣いたそうです😅 ✨ でも、何問か解いていくうちに自信がつきましたね👍 ✨ 頑張りました👏 ✨ それにしても… 韓国語で授業を受けているのに、 3を数えるところで「One...two...three..」って🤣どうしてそこが英語になっちゃうのかなぁ〜🤣🤣🤣 ✨ まこさんの頭の中は、3ヶ国語になってしまってるかもしれませんね😅「混乱するので2カ国語にして下さい」って、保育園時代から言われていたけれど…保育園でも小学校でも楽しく英語を教えてくださるのですから、そりゃ〜3ヶ国語になっちゃいますよ😆😆😆 ✨ 3つの言葉がどれも未完成😅 ✨ まこママは、将来の言語が心配です😅 ✨ *2枚目3枚目* 写真を整理しようと見直していたら… こんなのがありました🤣🤣🤣 ✨ まこさん、1人で自撮りですね🤣🤣🤣 ✨ 私が目が痛くて携帯を控えている間に、撮ってたみたいです。 ✨ こんな加工はどうやって設定したのか、私はやり方知らないのに🤣🤣🤣 ✨ まこさん、結構、機械に強いのかい⁉️ ✨ しかも、上半身裸ですね🤣 ✨ 口元がカールおじさんになっているし🤣🤣🤣 ✨ 今年初のいたずらですね😆 ✨ ソウルの冬休みは、まだまだ続きます🤗 明日は、PM2.5の警報が出るそうで、交通機関が無料になるんだそうですよ。あまり外には行かない方が良さそうですね。 ✨ 皆様も雪が氷って足元滑りやすくなっているかもしれませんね。お気をつけ下さいね🤗 ✨ #downsyndrome #downsyndromelove #downsyndromebeauty #downsyndromeawareness #t21 #trisomy21 #t21love #t21journey #ダウン症 #ダウン症のまこさん🎶 #ダウン症男子 #メガネ男子 #算数 #計算上手 #けっこう #負けず嫌い #でも #それが #伸びる力よね😉 #チーム21親バカ大会 #チーム21 #自撮り男子 #カールおじさんみたい #海外で障がい児子育て #ソウル #韓国在住 #障がい児子育て #specialeducation

11

ryan.plus.1

The “Before I’m About To Cry” Face - The “Talking” Face - “The Protruberant Tongue” - “Hand To Mouth Milestone”

2

ryan.plus.1

This guy dances all over the exam table! But check out his stats!! He gained a whole TWO pounds in a month! Just so you know, that is some pretty good growth for a kid with DS and heart defect. I was expecting him to weigh in at about 9 and a half pounds or so - especially since he’s been kind of eating funny, like he forgot what to do, not eating as fast. He is talking a lot more, smiling more - like big ones! 😄 He has put his hands together for a little while and even put his hand in his mouth. He is focusing on his toys hanging on his swing and has reached for the side of it. His neck muscles are getting there, still wobbly with holding his head up. He looks when we talk to him and his favorite person to talk to is big sister Cookie. She always gets a response out of him and everyone else sometimes has to try a few times! 🤟🏼💙💛

9

makonokuni

1月のまこさん🎶 【今年初のプールの巻〜🎶】 みなさま、ご無沙汰しています。 年末から目が痛くて携帯を控えておりました。新年の挨拶も出来ずに申し訳ありません。今年も、マイペースにまこさんとの楽しい生活をアップ出来ればと思っています🤗 ✨ 心配下さってご連絡下さった皆様、ありがとうございました😊 ✨ とても励まされます。そして、海外で子育てしていると色々な事がありますが、決して1人では無いと、実感させて頂きました❤️ ✨ 本当にありがとうございました😍 ✨ 今年も、絶好調なまこさんのごくごく普通の生活をアップ出来ればと思っています🤗 ✨ 今年もみなさま、どうぞよろしくお願いします🤗 ✨ 1つ目:2018年初プール🎶 ✨ 小さなビート板で1人クロール‼️ ✨息継ぎも自分のペースで頑張っていますね〜🤗 ✨ まだ横に向くのは難しそうですが、 その調子、その調子‼️ ✨ 2つ目:プールの後、公園で。 ✨ 雪積もってたので、寒すぎて直ぐ帰ってくれましたけど、この笑顔を見ると、すっごく嬉しそうですね😃寒すぎて公園遊びを控えてましたけど、たまに遊ばないとかな… ✨ 3つ目:昨日、お誕生日会があって、一緒に過ごさせて頂きました🤗こうやって子どもたち同士の輪に一緒になっていられるって、本当に嬉しいです😆ケーキ、すっごい食べたんだそうで、その後の口が、カールおじさんになってました😆 ✨ 4つ目: とあるお宅前にいつも置いてある、誘惑の品😅 このおもちゃのお陰様で、出発が、遅れる遅れる💦 ✨ 5〜9つ目:先週の水木金で、まこさんを主人にお願いして、長崎に引率で行ってまいりました🤗日本の教科書では学べないなかなかの濃い歴史をたくさん学んで来ました。 ✨ まこさんは何回か、ママを探しに出発しようと試みたそうですけれど…😅私にとっては、大きなリフレッシュの旅でした😍😍😍 ✨ 長崎…是非、また行ってみたいです😍😍😍 ✨ #ダウン症のまこさん🎶 #downsyndrome #downsyndromelove #downsyndromebeauty #downsyndromeawareness #海外で障がい児子育て #ソウル #韓国在住 #療育 #水泳教室 #クロール #クロール練習中 #初泳ぎ #長崎 #26聖人 #長崎平和公園 #また行きたい #trisomy21 #チーム21親バカ大会 #t21 #t21journey #ダウン症 #メガネ男子

5

ryan.plus.1

The Protruberant Tongue. There are a few different reasons why babies with Down Syndrome, I’d say the main reason for Ryan is hypotonia - as he needs chin and cheek support when feeding. He’s doing better than when he was a newbie. I usually only have to support now when he needs to be reminded to finish his bottle or he lets his formula sit in his cheek and drain out. Not fun. One little nudge of the chin will get him moving again. Literally, you feel like one hand is doing 5 things when feeding and once you learn the way to hold the bottle one handed, you’ve mastered this. I believe it. Lol. Anyway, Ryan’s always got his little tongue sticking out. #DidYouKnow • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior

1

growingupwithkeyaan

It's been so bitterly cold as usual I guess typical British weather! Keyaan's cough is finally going so we decided to go out for a bit. Although he was a bit cautious at first not wanting to go on the slide once we reassured him we were going to help him play he had so much fun on the slide. #outdoorfun #downsyndrome #downsyndromediaries #t21 #t21rocks #t21journey #playtime #todderlife

1

ryan.plus.1

12

imdanaz

Pretty girl Averi Mae got in to see a Behavioral Development specialist today. 😍 His expectation for her at 4mnths was 2mnth development, but she’s EXCEEDING EXPECTATION and tracking right along at 4mnths! 🙌🏼🙌🏼🙌🏼 #babyaverimae #t21beauty #zacherygirls #exceedingexpectations2018 #thankful #grateful #t21journey

34

ryan.plus.1

Our Ryan is TWO months today! Official two month pic coming Monday after his appointment so we all can see how much our guy has grown!! He’s doing new things and I’m excited for that post coming Monday! For now, here’s a pic of Ryan yawning. Typical. • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior #ellenratemybaby

6

ryan.plus.1

#DidYouKnow that approximately 40 to 60 percent of all infants with Down Syndrome have some type of heart defect. Ryan has a Tetralogy of Fallot, which is a heart defect with four characteristics: a hole between the bottom two chambers (VSD), an overriding aorta (the larger artery taking blood to the body is on top of both ventricles, instead of just the left), pulmonary stenosis (a narrow pulmonary valve, carries blood from the heart to the lungs), and hypertrophy (the right ventricle becomes thicker and more muscular than normal from working harder to pump blood through the narrow pulmonary valve). Babies with Down syndrome also have smaller mid facial areas, including nasal and sinus passages, contributing to more colds and sinus infections. Some babies with Down syndrome may have a decreased immune response to bacteria and viruses. We don’t want him to catch even the slightest cold and earn a hospital stay. All that being said! I got this random package in the mail today with this awesome stop sign for his stroller/car seat! If I said to just not breathe in this area it would be perfect, but I guess that might be too harsh. I am a little coocoo when it comes to him getting sick. I almost flipped a table over the other day when a random lady just started talking all up in his stroller. So I’m super thankful that this neat little thing came today!

8

threesmallwanderers

Key sign for ready and I think going by Elliot’s face he is! We have started to do key sign song videos now, but what should I do with them? 🤔 #youtubemaybe #blogmaybe #needideas #keysign #t21journey

1

ryan.plus.1

The fact that Ryan even acknowledged the toys in front of his face is a milestone! I was too excited when he even grabbed the side of his swing today. Wasn’t the toy but at least he reached for something!! Thank you Ryan! You’re awesome! And he was really talking a lot today! 🤪🤩... • • • • • #betterwithyou #chromosomallyenhanced #downrightcute #downrightcute21 #downrightperfect #downsyndrome #downsyndromeawareness #downsyndromebaby #downsyndromecutie #downsyndromelife #downsyndromelove #downsyndromemom #downsyndromepride #DS #DSawareness #dsdn #homiewithanextrachromie #justlikeyou #lifeisbetterwithyou #ryanplus1 #morealikethandifferent #rockingmyextrachromosome #t21journey #theluckyfew #trisomy21 #babymodel #chdawareness #chdwarrior #milestones

0

melting.hearts.21

Andres has developed this obsession with plants. Not sure how it started, but it seriously has to be the cutest thing I’ve ever seen...and funniest. #plantas #iloveit #theluckyfew #changingthefaceofbeauty #downsyndromeawareness #giftfromgod #perfectlymade #downrightadorable #downrightperfect #downrightblessed #t21 #t21journey #myheart #myworld #andresworld #adventuresofandres #whyfitin #borntostandout #nothingdownaboutit

0

tracy0o501

4

pieceofheaven321

2

pieceofheaven321

8

threesmallwanderers

In the summer time we colour outside #coffeebreakformummy #summerdays #threesmallwanderers #t21journey

1

melting.hearts.21

0

melting.hearts.21

It’s real right now. Apparently Chavo had to use the toilet. At the end when Chavo washed and dried his hands Andres said, “Wow, good job Chavo!” This kid makes life so much more entertaining.💙💛 #downsyndromerocks #theluckyfew #downrightblessed #downrightperfect #downrightadorable #downsyndromeawareness #thiskid #andresworld #heownsmyheart #t21 #t21journey #perfection #giftfromgod #trisomy21 #changingthefaceofbeauty

0

ryan.plus.1

4

maddox_t21_warrior

Maddox. 💙 💛 Born with T21, and AV canal defect. I'm here to help spread awareness about Down syndrome. #iheartT21 #nothingdown #t21journey

2

pieceofheaven321

0

ryan.plus.1

8

melting.hearts.21

0

ashleighvalentine33

I love being this little girls mom ❤❤She has shown me the beauty of life and love..Made me stronger as a person and woman.I cant wait to see what our next adventures are in this life .. #mymoon #Zeldamoon #nothingdownaboutit #trisomy21 #t21journey

6

thislittlelife1

Rycker wearing his red for Rycker shirt #ryckersheartheroes! Tomorrow is the big day. A day that I will forever remember having to hand him over to the heart surgeons. I am keeping sane by keeping busy. I will be doing a lot of writing, walking, and praying while while my little boy is in surgery. Please keep us in your prayers and Don’t forget to wear red for Rycker tomorrow,post a picture and tag us @thislittlelife1 and use the #ryckersheartheroes I can’t wait to see your pictures! #iwearredforrycker #campaign #wearred #heartwarrior #heartdefect #heartstrong #fisherprice #smartpuppy #changingthefaceofbeauty #trisomy21 #t21journey #homiewithanextrachromie #morealikethandifferent #theluckyfew #brandrep #downmagazine #savetheheartbeat #childhoodunplugged #babiesofinstagram #momlife #instamom #instababy #ryckertheupsanddowns #blog #ourjourney #dsdn

6

threesmallwanderers

Flicking through memories of last year already. Well Eve and Isaac are, Elliot is just working on pulling faces at his brother 😜 #threesmallwanderers #summerdays #t21journey #welovephotos

6