She was beautiful, but not like those girls in the magazines. She was beautiful, for the way she thought. She was beautiful, for the sparkle in her eyes when she talked about something she loved. She was beautiful, for her ability to make other people smile, even if she was sad. No, she wasn't beautiful for something as temporary as her looks. She was beautiful, deep down to her soul. She is beautiful.
F. Scott Fitzgerald
This picture of my eldest child, Sydney, tells a very different story from the picture I posted a few days ago of Olivia. Many of you have seen it before and some of you have even followed us since 2015 and know the story behind it. For those who don’t, Sydney was born with Down Syndrome. She’s faced challenges from the start but in 2015 she was diagnosed with an extremely rare, fast growing and aggressive brain tumor. She then spent 7 months of her life never leaving her hospital room (except for a few trips around the hallway of her floor). It was a difficult time for my family as we were split between two states (the hospital wasn’t in Kansas) and Olivia was also recovering from a major surgery (both girls had surgery the same week). During all of this, the instagram community came together to support us in a way that just floored me. We were sent so much love, prayers, energy, light and thousands of cards from around the world urging Sydney to stay strong and know they were behind her, behind the whole family. So with the Instagram theme this week being , I had to share this story again. I will never forget that kindness 🙏🏼 I also have some exciting news to share if you’ve read this far. @ is sending us to @ in January. We are so excited and I know Sydney is going to LOVE it! ❤️