Zipperclub Photos & Videos on Instagram

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openheartedlife

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tulagoddess

Two years ago, I joined a custom wait list for two merbabies. They were definitely worth the wait. My custom Aria merbaby matches her room. My custom Christian merman is a superhero just like his inspiration. #mermaid #merbaby #merkid #merman #aria #princess #princessaria #chdawareness #tetralogyoffallot #tof #iheartyou #superhero #superchristian #zipperclub #christiansheart @paperbirdcrafts

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tulagoddess

Two years ago, I joined a custom wait list for two merbabies. They were definitely worth the wait. My custom Aria merbaby matches her room. My custom Christian merman is a superhero just like his inspiration. #mermaid #merbaby #merkid #merman #aria #princess #princessaria #chdawareness #tetralogyoffallot #tof #iheartyou #superhero #superchristian #zipperclub #christiansheart @paperbirdcrafts

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tulagoddess

Two years ago, I joined a custom wait list for two merbabies. They were definitely worth the wait. My custom Aria merbaby matches her room. My custom Christian merman is a superhero just like his inspiration. #mermaid #merbaby #merkid #merman #aria #princess #princessaria #chdawareness #tetralogyoffallot #tof #iheartyou #superhero #superchristian #zipperclub #christiansheart @paperbirdcrafts

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fatbikedutch

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helendoyle

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verasvictory_t21

She is getting so great at sitting unassisted!!! 🤗👏🏻 And you can see her heart ❤️ warrior scar a little bit with this sweet leo! 😍💗🧜‍♀️ #verarose #downrightperfect #nothingdownabouther #theluckyfew #heartwarrior #zipperclub #instababygirl #tubielife #tubiebaby #gerberbaby #mermaidlove #mermaidvibes #peekaboobeaver #rufflesandsparkles #capableofamazingthings #changingthefaceofbeauty

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jonhsonsmile

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pirategirlamy

It's been two years today that I had open heart surgery to replace my aortic valve. I feel good. I am so very blessed. #zipperclub #openheart #openheartsurgery #aorticstenosis #heartwarrior #americanheartassociation #goredforwomen #heartbeat #cancersurvivor #amystrong @betty_white_5oh @dirtygoldyall @berberhicks

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breakinthemix

Another part of my nighttime routine, getting set up for my medicine bag/pump change and line flush. I complain about having to be on this medicine and carry around a pump 24/7 but I know this thing is my lifeline. I would not be able to get out of bed without this medicine and I'm forever thankful for modern medicine and science. Spoonie struggles come and go but we just take it day by day and hour by hour. . . . #piccline #milrinone #hypertrophiccardiomyopathy #heartsurgerysurvivor #heartfailure #hearttransplant #pretransplantlife #congestiveheartfailure #zipperclub #hcm #cardiomyopathy #chronicillness #spoonie #heartwarrior #heartdisease #openheartsurgery

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nicccccoleann

spent our last night in Boston with Chinese take out and all the “baby corns” his little mended heart desired. this guy is officially a zipper club member. 💔➡️❤️ #chd #bch #zipperclub

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different_kind_of_perfect

Oh man!!! Tank, you are getting so close to crawling. I see the determination all over your face. Have I mentioned the wee man is working on standing too?? He is a waze off still, but has gotten much stronger lately. Sitting... well, that's for another day. Still not a fan of that one. Its ok Tank, we're on your timeline.

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sindi_1982

You know you have a heart baby when...stethoscope are more fun than toys ;) #chdprincess #pinkstethoscope #cardiacbaby #stethoscope #alcapa #1in100 #zipperclub #openheartsurgerysurvivor

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breakinthemix

Routine. Every couple weeks, it seems like my meds get changed. Something gets increased, something gets decreased, something new gets added. Right now I am at 27 pills a day which is not bad. I just try to count my blessings that all these meds keep me upright on two feet and functional. . . . #piccline #milrinone #hypertrophiccardiomyopathy #heartsurgerysurvivor #heartfailure #hearttransplant #pretransplantlife #congestiveheartfailure #zipperclub #hcm #cardiomyopathy #chronicillness #spoonie #heartwarrior #heartdisease #openheartsurgery

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countrygarbage

Chest tubes out now just waiting on one more session with physical therapy and I’m out of here tomorrow ! Can’t wait to get home #openheartsurgery #aorticstenosis #zipperclub

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ob.larson

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wolfpackwarriors

My sweet baby. All swaddled up. More info on our first 2 days on our #caringbridge #chd #zipperclub #1in100 #hlhswarrior #hlhs

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alilbit1

Taking it easy today but I still wanted to dress up for my Birthday! I put in a cute outfit and some fun earrings to make myself feel even more special today! #birthday #blonde #wethair #earrings #dress #purple #relaxing #saturday #hello #weekend #weekendvibes #zipperclub #chd #comfy

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thepathwetravel

Were you wondering how four point crawling is going? I figured so. 😉 Regan is getting better and faster! Still uses her belly crawl primarily but we are seeing this crawl more often! Go BRV girl! 🙌🏻

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courtneyheartstrong

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albieslittlebrokenheart

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albieslittlebrokenheart

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albieslittlebrokenheart

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fatbikedutch

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fatbikedutch

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fatbikedutch

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fatbikedutch

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elyssa.rulison

I get the same question asked lot... how do I stay motivated to work so hard, my answer is simple - it’s not about me! . It was when I first started...I wanted to earn enough to allow me to eventually quit my full time job as an X-ray tech. I set a goal for myself to do that by the time I decided to start a family... I never expected to be able to do it in a year! . and then it became so much bigger than me!! I wanted to pay it forward to teach others how to live their #lifebydesign, build their dream lives, quit jobs that were not fulfilling and earn an income doing what they love and have a sense of purpose! . It is easy to show up every day when your purpose is so much bigger than yourself! #Squadgoals #tribelife #vitaminsea

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heartbabymj

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heartbabymj

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lifewithlucy03

The term for Lucy that gets thrown around a lot by her doctors and therapists is “medically complex” kiddo. Raise your hand 🙋‍♀️ if you find yourself hearing this phrase constantly...? If you do, my heart goes out to you. You are not alone! We currently see 12 specialists for Lucy, yes 12, and are currently in the process of getting more. MORE?.... yup, more. As our doctor appointments seem to be increasing instead of decreasing (like everyone told me they would) I can’t help but complain. But then days like today hit me where I see this sweet girl a million miles ahead of where we were last year, and I know that without all of the HARD Lucy would not be laying next to her sister on a blanket with the cutest little profile ever (but really though look at that cute little face) ❤️. I’m grateful for the sweet little reminders Lucy brings to my life everyday. Reminders to find joy, be happy, and know that life is good. I’m so glad you chose to be in our family Lucy bug! I hope this post brings someone out there a little bit of Lucy Joy! 💗 #behappy #downsyndrome #downsyndromeawareness #joubertsyndrome #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids #downmagazine #upwithdown

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heartbabymj

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leannamay12

One year ago today Aaron had his first open heart surgery! These are the hardest pictures for me to look at. The ones where his chest is whole. No scars, no wires. But if it wasn't for those scars we wouldn't have him with us today. So thankful for this little life and for the wisdom and care of those who have helped us through this past year! (Also, there will no doubt be more reminisings throughout this year as memories come flooding back...) Thank you, Jesus for his life!! #singleventricle #dilv #heartwarrior #glenn #norwood #tubie #zipperclub #presurgery #openheartsurgery #aaronezekiel

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cerysjonesblunt

Non-toy toys: a Lego MRI. Back here again all too soon. Tough times ahead for my brave boy 💔 #oceanward #southamptongeneralhospital #tinytickers #zipperclub #chdwarrior #heartwarrior

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momfit_life

Taking it easy today but I still wanted to dress up for my Birthday! I put in a cute outfit and some fun earrings to make myself feel even more special today! #birthday #blonde #wethair #earrings #dress #purple #relaxing #saturday #hello #weekend #weekendvibes #zipperclub #chd #comfy

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isabelllasheart

2of2. This video I found on my Snapchat from September 2016. From Isabella's last open heart surgery. Her glenn redo. 24hours. Videoed the day she came back onto the ward. Also the night I noticed her right hand was floppy & not working, and realising I'd not seen her move it at all since surgery. Because she'd had a stroke. #chdAware #ChestScar #zipperclub #halfaheartnothalfalife #chd #bechdaware

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thumbseaw

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mikemcflex

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fredandbo

Totally in love with my latest purchase- @robotic_woodsmith has an exhibition today at Tong village hall- #brokenheart #mendedheart #zipperclub #heartsurgery #cabg

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thepathwetravel

A lesson for all of us! #presumecompetence ➡️ #blogpost 🔗 link in profile.

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meggie8787

A lesson on #presumecompetence #blogpost up! 🔗 in profile!

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isabelllasheart

1of2. This video I found on my Snapchat from September 2016. From Isabella's last open heart surgery. Her glenn redo. 24hours. Videoed the day she came back onto the ward. Also the night I noticed her right hand was floppy & not working, and realising I'd not seen her move it at all since surgery. Because she'd had a stroke. #chdAware #ChestScar #zipperclub #halfaheartnothalfalife #chd #bechdaware

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albieslittlebrokenheart

💔 F O N T A N I V E R S A R Y 💔 Its only when you look back you realise truly how far he has come 💪 He has been thrown more challenges and curved balls that most adults experience in their entire lifetime .... 3 Open Heart Surgeries ...3 Cardiac Catherisations & another imminent... Never ending Appointments... Countless Bloods... Lifetime medication... Physiotherapy... Occupational Therapy... Speech & Language therapy... an Autism & Global Development Delay diagnosis and yet...he has smiled through it all 😍 To say we are Proud doesnt even cut it ~ he puts everything in our lives into perspective and we are so honoured to be his parents👨‍👩‍👧‍👦 Love & Appreciation to the AMAZING team at @cmrf_crumlin that made it all happen ❤ On the First anniversary of his Fontan we celebrate a year of many "firsts" for Albie ❤ Half a heart ~ Not half a life ❤ #albieslittlebrokenheart #chd #chdawareness #hrhs #chdwarrior #zipperclub #hypoplasticrightheart #openheartsurgery #postfontan #singleventricle #albiesautism #autism #gdd #superman #superalbie #crumlinsheroes

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different_kind_of_perfect

Happy FriYAY!!! Great weekend ahead with my boys. 😍😍❤❤❤

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samuels.steel

Tomorrow is a very exciting one. My baby boy, Abrahm and my wife Kristina come home after the Fontan surgery, my two year old son’s third in his short but oh so meaningful life. On the left is my little hero wearing his Fontan cape on the morning we arrived for surgery, the right us my brave boy walking around the hospital today looking like a new kid. You may notice the bluish hue to his face in the left which is caused by the mixing of his oxygen rich and poor blood, and now you might not even be able to tell that there is something so amazingly special about him. Tomorrow brings its new challenges, new joys, and new fears, but tomorrow isn’t promised to any of us, so we rejoice in the challenges to come and hope for a better future. The shop is still silent and will be for a bit longer as we adjust, heal, and get some much needed rest and family time. Your prayers have meant the world to us. We’ve felt them and seen them move mountains. Thank you all, from the bottom of my heart. #samuelssteel #abrahmstrong #postfontan #hlhs #heartwarrior #mottchildrenshospital #mottchildren #mottchildrens #zipperclub #goblue #hail #littlevictors

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sickexhibition

#Repost @scarsarebeautifulproject SCARS ARE BEAUTIFUL.//💚 “This beautiful sign was made by my daughter Noelle. Although I was only 4 when I had my chest split open and had my tiny heart repaired, to this day it’s still my strongest childhood memory. Over the last 3 yrs I’ve done my best to raise awareness on CHD, congenital heart disease, and how I get on with it. I’ve come in contact with the most amazing heart warriors and would like to make a shoutout to @brigittazatko for her inspiring work on @scarsarebeautiful connecting us worldwide and destroy the stigma behind open heart surgery scars ❤️ “ @jensjexmark . . #scarsarebeautiful #scarsarebeautifulproject #openheartsurgery #chdawareness #chdwarrior #zipperclub #sweden #1in100 #invisibleillness #chronicillness #athlete # #rolemodel #invisibleillnessawareness

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janalareephoto

Take 1:🙈 Take 2:👊 Hey, Friends! My husband and I have started a new project —> @theserraofamily. We wanted a more public space to share our home and family life, and especially share how Congenital Heart Disease affects us daily. We’ve become apart of a beautiful community through our son’s challenges and we want to continue to spread awareness, understanding, and love. Come join us! We’d love to see you there!

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joekstergram

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ob.larson

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niques.creates

Haha thanks for the very fitting board message Godpaw 😂😜 Instead of celebrating 4/20 at 4:20 Denver style, I was signing the surgery consent form for placing my new device (happening Monday). Maybe not how I was expecting to spend today, but after hearing the detailed description of what happened during Monday’s surgery from my cardiothoracic surgeon... beyond awe and gratitude. I’m alive 😫🙏🏼💜 perspective 🙌🏼 #gratitudeattitude #grateful #arrhythmia #ventriculartachycardia #cardiothoracicsurgery #implantablecardioverterdefibrillator #pacemaker #zipperclub #openheartsurgery

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elyssa.rulison

Fridays in the office. it’s a tough job but someone’s gotta do it ☀️

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rooneywrites

Yes, little child: the toy IS the box! #NintendoLabo #NintendoSwitch 🕹📦🎯

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mike.shanti

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mike.shanti

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canuckscribe

TGIF! Week 14 post #openheartsurgery. If I am looking a bit tired here it’s because I am. Glad to be (mostly) back into the swing of things, but the busier schedule can leave me feeling drained (and sometimes a bit sore) at the end of the day/week. No complaints though, as I know my usual energetic self will be back better than ever :) #heartsurgeryrecovery #heartsurgerysurvivor #heartsurgery #congenitalheartdefect #chd #1in100 #zipperclub #zipperclubmember

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meeteverlyjo

If reuniting with your husband after 3 weeks feels this good, I can’t imagine the reunion we will have with Everly one day!

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catlynn_zraci

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austinhires

I was going for 4x2 but I did 6 reps on my last set all at 205lbs I had to concentrate on breathing the right way cuz certain ways was throwing my balance off lol crazy #olympiclifting #zipperclub #justdoit #overheadsquat #crossfit #heartsurgery #life #fitness #squats

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jodiexcampbell

: When it's Friday.. But you're lying in a bath thinking about how you have to work tomorrow *rolls eyes* 😭😭😭 . . . #friday #fundayfriday #notsofunfriday #fatfacefriday #worksaturday #bathtime #snapchatfilter #fatty #chubby #pale #pastywhite #pastywhitegirl #zipperclub

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michaelaangelo_4

**update #AveriStrong #HeartWarriors #ZipperClub #PAIVS Averi received a heart transplant when she was two months old, can you even imagine that? This is the first time she has shown any type of rejection. She was originally diagnosed with PA/IVS (Pulmonary Atresia with Intact Ventricular Septum) Did you know? PA/IVS accounts for < 1% of all congenital heart defects and 2.5% of critically ill infants with congenital heart disease (CHD).

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catlovesclothes

Enjoying this little Downy woodpecker. Thought I was going to go all gung go and start on this garden but realized really fast, I need help. I hate feeling like I can't do something but my heart still has some healing to do. Maybe @halldev91 will help me Monday get it all together. Healing sucks sometimes. #gardening #organic #vegetables #chd #survivor #aorticanuerysm #zipperclub #woodpecker #bicuspidvalve

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jannylynnlevis

My yesterday's look at work #Zipperclub Received my new bodyshaper!! 😍 Still in love with that awesome product! Look at the shape it gives me 😸👙 Don't wait! Go give it a look and try it at @bodyshaper_by_5starpma #love #bodyshaper #jackdaniels #tshirt #club #bar #waisttrainer #slim #shape #sexy #waitress #awesome #look #shorts #feelinggood #happy #boobs #legs #train #trainer #motivation #woman

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ourjourneyforjackie

4.20.2018 - It has been such a wonderful experience spending every therapy session with this girl. Three times a week we are here. On Friday’s we get to spend the morning with other children her age in a group therapy session (all of these people have become friends). Today, we took the session outside and enjoyed the fresh air. ☀️ One of the grandmothers (who attends with her granddaughter regularly) leaned over to me at one point and said “she is just...wow.” I said, I know, she is a warrior, and she responded by saying “She is much more than that, she is a true gift. I wouldn’t have expected all this when I first met her”. ❤️ I couldn’t agree more. She is such an incredible little blessing. I remember when we first started coming here I would often leave with tears in my eyes because I worried Jackie would never catch up to the other kids. Even in a group of other children with special needs it seemed she was advancing the slowest, and had the most things working against her. We missed weeks at a time because of upcoming surgeries, recoveries or doctors appointments. While the other kids had snack in the early days, Jackie couldn’t yet enjoy it because she wasn’t eating by mouth, so she would sit connected to a feeding pump instead. All of the other kids would explore the toys around them, and Jackie didn’t/couldn’t (because she didn’t yet have her glasses). When the other kids sat in a circle, she resisted and laid on the ground instead. It was hard, every single thing was hard...but it was all worth it. Every day, every single struggle has been worth it. I’m so amazed at how far she has come and the little girl she is today. She IS a miracle. Today she eats, plays and dances right alongside the rest of ‘em. To those of you reading this who are still in those dark, early, sink or swim days....hang on. Keep swimming. You’ve got this. 👊🏼 It will ALL be worth it in the end. . . . . . . . . #CHARGEon #chargesyndrome #warrior #chd #cleftlip #zipperclub #cleftpalate #cleftstrong #tubie #nicugrad #hipdysplasia #deafblind #unilateraldeafness #colaboma #medicalwarrior #instagood #carpediem #love #momsofinstagram #motherhoodunplugged #specialneedsmom

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theserraofamily

No matter what we do, the kiddies always end up in our bed in the morning and we’re up waaaay before we want to! But we’ll trade sleeping in for these two any day ❤️

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my_warrior_will

Will’s been working on using a fork and a spoon. This morning it was strawberries and eggs, yesterday it was yogurt. #embracethemess #downsyndrome #downsyndromeawareness #downsyndromelove #nothingdownaboutit #upsyndrome #congenitalheartdefect #heartwarrior #zipperclub #specialneedsmom #t21mommy #warriormom

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abstract4hearts

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shinebrightorion

Every. Single. Bath. is an adventure with this tiny daredevil. Anyone else getting a workout?? 😂💦

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theadventuresofrobyandamelia

These two are so destructive! They have to take every toy out and as soon as I was going to break up the mess making they sat down together and started reading a book. They're the very best of friends and I love it! #twinmom #twinlife #twinlove #borntogetherfriendsforever #bestfriends #sahm #theAdventuresOfRobyAndAmelia #t21 #dsdn #upsyndrome #nothingdownaboutit #theluckyfew #downsyndrome #morealikethandifferent #zipperclub #heartwarrior #chd #extrachromosomesrock #19montholdtwins #19monthsold #youtubetwins #youtubemom

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wolfpackwarriors

Welcome to the world little #heartwarrior Harper Mae joined us yesterday and we’re all doing great. If you want to know more click on my profile and follow my #caringbridge blog #hlhswarrior #zipperclub #hlhs #chd #1in100 #wolfpackwarrior

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jodiexcampbell

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jodiexcampbell

: Much love x . . . #bf #kisses #couple #zipperclub

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